My mother is in what they call end stage alzeheimers. For about a
year she has been unable to walk, speak or move in any way. She has
not known me for at least 2 years. Now she is having trouble eating
and swallowing. She is being fed pureed food, but most of the time
refuses to open her mouth. She will drink the protein shakes and she
is being given liquid morphine for pain. She is in an assisted care
facility with a locked dementia unit. Most of the residents are
ambulatory and can do for themselves. My brother and I think she
should be in a skilled nursing facility with more attention and
personal care. The facility disagrees with us and has told us that she
would not get any different type of care in a skilled nursing
facility. At this point, since she can't do anything for herself,
would there be any difference in care?
Also, the facility she is in now she is paying for herself. Because
she has excellent insurance, a skilled nursing facility would be paid
for 100%. I just found out about this when I called the insurance
about a question. It's another consideration for us.
Thank you,
Peggy
august - 12 Mar 2008 20:12 GMT
> My mother is in what they call end stage alzeheimers. For about a
> year she has been unable to walk, speak or move in any way. She has
[quoted text clipped - 17 lines]
> Thank you,
> Peggy
Is your mom's insurance paying for her care at the current location or is
she paying out of pocket? This is not clear in your message.
Is your mother having problems at the facility where she is now?
Is she developing bedsores? losing lots of weight? do you find her
frequently in unchanged diapers or dressed in dirty clothes? constantly ill
with colds or flu bug and not receiving proper treatment?
If the answer is no to these practical issues then I think they are doing
the best possible for your mother.
If I was in your mother's place, assuming my other needs were being met,
liquid morphine and protein shakes sounds like an ideal menu.
My father spent two years in a skilled nursing facility prior to his death
and while his care was adequate, I did not think his care was what I would
call superior. Cost was about 4600. a month minus what long term care ins.
covered. My mother actually hired an attendant to stay with my father all
night rather than depend on the limited attention from the facility staff.
AW
Evelyn Ruut - 14 Mar 2008 00:52 GMT
> My mother is in what they call end stage alzeheimers. For about a
> year she has been unable to walk, speak or move in any way. She has
[quoted text clipped - 17 lines]
> Thank you,
> Peggy
Peggy, who is in charge of making your mothers medical decisions for her?
Is it the facility she is in now, or is it you?
If it is you, you can make whatever moves you feel are in her best interest.
It doesn't matter what the current facility people think. They could just
be out to get the money she pays, and perhaps they have no reason to make
decisions for hers or your benefit.
Do what you need to do as long as you know she is properly cared for.

Signature
Best Regards,
Evelyn