Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Alzheimer's / February 2008

Tip: Looking for answers? Try searching our database.

Question Please

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
luv-z@webtv.net - 16 Feb 2008 06:42 GMT
Hello everyone - thank you for taking the time to read this.

My mother is 91 lives alone and cares for herself.  However, she has
been "seeing" people come in her apartment, mostly during the night but
recently in the daytime too.

She says they seem to come in thru the walls and disappear the same way.
She "sees" a man, woman and two little children.

At first I thought she was dreaming but now I am wondering if it is
dementia.  She makes perfect sense all other times.

I should add, though, she is having trouble remembering words and
sometimes gets confused with the TV remote.

I spend a lot of time crying and wondering what to do.

I tried to tell her there are no "people" coming in her apartment and
she will agree but in the next sentence tells me something they did.

Anyone have any experience like this?

I told her we need to make a special appointment with her Doctor but she
doesn't want to go talk about this.

I would appreciate any advice you can give me.

Thank you so much for listening!

Lynn
Baird Stafford - 16 Feb 2008 11:20 GMT
> Hello everyone - thank you for taking the time to read this.

> My mother is 91 lives alone and cares for herself.  However, she has
> been "seeing" people come in her apartment, mostly during the night but
> recently in the daytime too.

> She says they seem to come in thru the walls and disappear the same way.
> She "sees" a man, woman and two little children.

> At first I thought she was dreaming but now I am wondering if it is
> dementia.  She makes perfect sense all other times.

My mother saw people come into her apartment, too.  They were, she said,
from The Government.  They took away all her furniture and replaced it
with furniture that looked exactly like hers but wasn't, really.

> I should add, though, she is having trouble remembering words and
> sometimes gets confused with the TV remote.

The Dowager went through this, too.  Also, the telling and retelling of
the same stories several times during a single visit.

> I spend a lot of time crying and wondering what to do.

> I tried to tell her there are no "people" coming in her apartment and
> she will agree but in the next sentence tells me something they did.

> Anyone have any experience like this?

> I told her we need to make a special appointment with her Doctor but she
> doesn't want to go talk about this.

You really do need to get her doctor in on this, if you can.

> I would appreciate any advice you can give me.

The most important thing you can do, other than get medical advice, is
to see if her lawyer will draw up and she will agree to sign a) a
Durable Power of Attorney and b) a Durable Power of Attorney for Health
Care (or whatever they're called in the jurisdiction in which you live).
If you do not have these documents, you will have to go to court to have
her declared incompetent when the time comes.  I managed to get the
Dowager to agree by pointing out that if anything *should* happen,
bringing the courts into the matter would serve only to get her name
into the newspaper in a context she wouldn't necessarily like.

For what it's worth, and it isn't the same for everyone, it was three or
four years after she signed them before I had to exercise either of the
documents above.

Baird
Evelyn Ruut - 16 Feb 2008 12:14 GMT
> Hello everyone - thank you for taking the time to read this.
>
[quoted text clipped - 26 lines]
>
> Lynn

Hi Lynn,

Welcome to the club nobody wants to join.

Seriously though, a good many people have reported that their loved one
began showing signs of the illness with seeing imaginary things.   The best
thing you can do is to get her to a doctor to get a full gerontological
workup to find out just how impaired she is.   The reason for that is that
if she does actually have alzheimers, there are medications that can slow
the illness, help control the delusions, and in some cases, treatment of
certain medical conditions (that look just like alzheimers, but aren't)....
can be actually reversed.   This is why it is important for the doctor to
get her tested for the various illnesses to determine which one she actually
has, as well as determine the actual level of her impairment.   Sometimes
people can seem just fine, but they really shouldn't be living alone
anymore.  It's important that you find out so you can protect her.

Another reason is because it is important that you get certain legal
documents in order before the illness advances too much further.

You need to go to the doctor with her.   Write down everything in the
meantime.  Keep a log of the times she imagined people coming in, or having
difficulty with things in the house.

My mother in law turned on a hot water faucet and forgot how to turn it off.
She also forgot that she had food cooking on the stove and burnt the handles
off quite a few pots in her house.   She forgot whether she had taken her
medication and would take a second pill or more.   She was making herself
sick with either none, or too much of her regular medications.   That was
only the tip of the iceberg, it was way worse than we realized.   But when
she spoke to her friends on the phone she seemed just fine.   A
gerontological workup proved that not only did she have memory impairment,
and that the other possible causes were ruled out, but that it was probable
that she had alzheimers.   At that point the doctor told us that we needed
to be sure she wasn't alone anymore.

The rest of the journey was at times tough and at times poignant, but that
is something you can find in the archives.   For now, I hope you do all you
can to get her to the doctor and to get tested.   Also you need to make sure
you have legal power of attorney and health care proxy and all that stuff in
place.

This early stage of the game is by far the very worst, because you don't
have say over how things are handled, and you see this problem developing,
and you don't know what to do about it.

Don't be afraid, you need to get a handle on the problem, and that will
begin with a visit to the doctor with her.   Feel free to come here to ask
questions.   We've all been through the illness here with our loved ones.

Signature

Best Regards,

Evelyn

Barbara H - 16 Feb 2008 17:47 GMT
Hi Lynn,
I've just been here a short time but have learned so much.   My father is 83
and when he first began to show signs of dementia he would tell us that
people would appear in his bedroom or in the doorway and then just disappear
in a poof ...  I guess it's a common symptom.  Once he told me his shower
spoke to him.  Told him to "turn off the water".  He said he replied "It's
my water and if I want to leave it on I will" ... you gotta laugh sometimes.
He's still living alone and caring for himself although we spend 6 to 8
hours each day with him.  Prepare his meals and even eat with him at
breakfast and dinner.  I hope he can continue this regime for a while.  He's
been on aricept since this past July and it seems to have kept him in a
holding pattern without any noticeable progression.  At least we think
that's the case.  He had a head injury from a fall and his symptoms were
horrendous for about a month then subsided.  He doesn't even speak of the
strangers who appeared before.   I'm grateful for this lull in his
progression.

This is a good place to come.  I hope you'll continue to ask questions of
these good people.  They have certainly shared a wealth of knowledge and
experience with me.  Welcome to a place we all wish we didn't have to visit.
Best regards,
Barbara H

> Hello everyone - thank you for taking the time to read this.
>
[quoted text clipped - 26 lines]
>
> Lynn
luv-z@webtv.net - 16 Feb 2008 23:28 GMT
I want to thank you all so much for responding to my post.

Do you feel it is better to see Mom's regular doctor or would it be more
beneficial to see a doctor who specializes in geriatric care?  

We will see an attorney and set up an appointment as soon as possible.
Will keep you posted on any developments.

I would like to visit here often as I really need someone to talk to.
Thank you for being here for me!

Lynn
Evelyn Ruut - 17 Feb 2008 02:18 GMT
>I want to thank you all so much for responding to my post.
>
[quoted text clipped - 8 lines]
>
> Lynn

Lynn,

That would be your decision.  Does her doctor seem like someone you can
really talk to?   Can you call in advance and explain that you suspect
dementia of some kind?   Maybe you could write or bring a letter explaining
what you are seeing?

Some have reported good results with a geriatric specialist and some have
not.   Believe it or not I had a P.A. (physicians assistant) which in my
state, in most circumstances is just as good as a regular doctor, and all
his decisions are reviewed by the real doctor who oversees the practice.

But before all that, my mother in law was tested with a variety of tests to
determine what the cause of her dementia was.   They did a thyroid test, a
PET scan, and a psychiatric exam to determine if she was experiencing any
cognitive deficits.   She was.

Seeing the attorney is a very good idea.   If she has assets, you may want
to work with him to set up a way to protect them the best you can.

Signature

Best Regards,

Evelyn

Dennis P. Harris - 17 Feb 2008 03:42 GMT
>  want to thank you all so much for responding to my post.
>
> Do you feel it is better to see Mom's regular doctor or would it be more
> beneficial to see a doctor who specializes in geriatric care?  

What you need to do is ask her doctor for a referral for a full
neuropsychiatric test workup, preferably at a facility where they
are experienced in dealing with dementias.  If she/he tries to
put you off by saying that the problems are due to "normal
aging", CHANGE DOCTORS.  It's important that you find a doc that
is well informed about geriatric problems.

As Evelyn said, there are a number of problems that can cause
symptoms similar to dementias, but which can be treated.  They
include thyroid problems, hydrocephalus (water on the brain),
vitamin deficiencies, anemia, and problems with medications,
including statins like Lipitor.  You need those tests to
determine what is causing her impairment and how to treat it.

Since she is having memory problems you need to start doing
things for her whether she agrees or not, including making doctor
appointments for her.  You can take advantage of her faulty
memory by making her think that she made the appointment but
forgot about it.  Don't think of it as lying, but rather as
"loving deception" which we often use to keep our LOs (loved
ones) happy and safe.

> We will see an attorney and set up an appointment as soon as possible.
> Will keep you posted on any developments.

One thing we did was have my mother sign a release allowing any
of her doctors to discuss her condition and treatment with any of
her children, even though only two of the four had durable power
of attorney for health care.  We asked her sign one original for
each child to have.

> I would like to visit here often as I really need someone to talk to.
> Thank you for being here for me!

Go immediately to the nearest large bookstore and purchase a copy
of "The 36 Hour Day" by Mace and Rabin (it will be in the health
section).  You will need it.

Go to www.alz.org and find the location of your nearest
Alzheimers Association office and call them and ask about
caregiver support groups in your area.  They are great ways to
obtain locally relevant information and referrals about resources
available in your area.

Don't be surprised if friends or siblings oppose any intervention
on the grounds that everything is "normal".  Denial isn't a river
in Egypt.

Feel free to come here and ask questions or to vent any time.
deerwoodflower@hotmail.com - 17 Feb 2008 04:58 GMT
On Feb 16, 9:42 pm, NO_SPAM_TO_dphar...@gci.net (Dennis P. Harris)
wrote:
> On Sat, 16 Feb 2008 18:28:55 -0500 in alt.support.alzheimers,
>
[quoted text clipped - 53 lines]
>
> Feel free to come here and ask questions or to vent any time.

Lynn,
I really can't add anything that someone has not already done.But i
wish you luck with your loved one.My mom just died less than a month
ago.Welcome and ask anything,Barb
Baird Stafford - 17 Feb 2008 10:29 GMT
<snip>

> One thing we did was have my mother sign a release allowing any
> of her doctors to discuss her condition and treatment with any of
> her children, even though only two of the four had durable power
> of attorney for health care.  We asked her sign one original for
> each child to have.

Given that I have the Dowager's Health Care Surrogate (what the State of
Florida calls the Durable Power of Attorney for Health Care), I have
been able to specify that any question from my sister, also, is to be
answered.  I gave written instructions to that effect, of course, and
Sis has had no trouble getting any information she wanted.

Baird
Mary_Gordon@tvo.org - 17 Feb 2008 03:42 GMT
Lynn, there is a specific kind of dementia called Lewy Body, whose
first symptom is often very vivid visual hallucinations. It ultimately
ends up in the same place as Alzheimer's, but it has some distinctive
features. It always helps to know what the cause of dementia is, so
you can prepare for what may happen. Knowing what to expect can take
some of the shock out of behaviors as they may develop.

M.
Adelle - 19 Feb 2008 06:34 GMT
> Lynn, there is a specific kind of dementia called Lewy Body, whose
> first symptom is often very vivid visual hallucinations. It ultimately
[quoted text clipped - 4 lines]
>
> M.

Mary -

I was thinking about this as well. The not remembering words is a neon sign
that what is happening is affecting the frontal lobes more than the rest of
the brain. Knowing this affects the kinds of medications the doctors can use
for controlling the hallucinations/reactions to them. Reminds me so much of
my late FIL.

There is no specific way to diagnose these dementias with absolute certainty
(during our loved one's lifetime). But a really good neuro-psychiatric exam
coupled with a PET scan would give the a pretty good picture of where she is
right now in terms of abilities, and give some hints as to how this might
progress.
luv-z@webtv.net - 18 Feb 2008 18:52 GMT
First, may I ask you.....since I am on web tv I cannot include all the
previous posts unless I CCP them.  Is that what you would prefer me to
do?

Secondly, I wanted you to know papers are being drawn up by the Attorney
and will be ready to sign next week.

Now I will contact the doctor and go from there.

Thanks for giving me the "nudge" I needed to move forward.  I already
feel a tiny bit of weight off my shoulders even though I know a bigger
load is forthcoming!  One day at a time!

Lynn
Evelyn Ruut - 18 Feb 2008 21:41 GMT
> First, may I ask you.....since I am on web tv I cannot include all the
> previous posts unless I CCP them.  Is that what you would prefer me to
[quoted text clipped - 10 lines]
>
> Lynn

Lynn,

Don't worry about the archives then, just ask what ever you need to know.
The people here are kind and will answer.

Good luck with your doctor visit !

:-)
Signature

Best Regards,

Evelyn

Dennis P. Harris - 20 Feb 2008 02:54 GMT
> First, may I ask you.....since I am on web tv I cannot include all the
> previous posts unless I CCP them.  Is that what you would prefer me to
> do?

oh, please don't.  correct usenet netiquette is to selectively
quote the portion to which you are replying, as i'm doing here.

you should be able to highlight text and copy it, and then paste
it into a message.
luv-z@webtv.net - 20 Feb 2008 14:33 GMT
First, may I ask you.....since I am on web tv I cannot include all the
previous posts unless I CCP them. Is that what you would prefer me to
do?

oh, please don't. correct usenet netiquette is to selectively quote the
portion to which you are replying, as i'm doing here.
you should be able to highlight text and copy it, and then paste it into
a message.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Thanks, Dennis!

Something like this OK?

Lynn
EddyJean - 20 Feb 2008 07:06 GMT
Question Please  

Group: alt.support.alzheimers Date: Sat, Feb 16, 2008, 1:42am (PST+3)
From: luv-z@webtv.net
Hello everyone - thank you for taking the time to read this.
My mother is 91 lives alone and cares for herself. However, she has been
"seeing" people come in her apartment, mostly during the night but
recently in the daytime too.
She says they seem to come in thru the walls and disappear the same way.
She "sees" a man, woman and two little children.
At first I thought she was dreaming but now I am wondering if it is
dementia. She makes perfect sense all other times.
I should add, though, she is having trouble remembering words and
sometimes gets confused with the TV remote.
I spend a lot of time crying and wondering what to do.
I tried to tell her there are no "people" coming in her apartment and
she will agree but in the next sentence tells me something they did.
Anyone have any experience like this?
I told her we need to make a special appointment with her Doctor but she
doesn't want to go talk about this.
I would appreciate any advice you can give me.
Thank you so much for listening!
Lynn
++++++++++++++++++++++++++++++++++++++++
Lynn--
Is she taking medications, and when she tells you about the people
coming through the walls, does she appear fearful or calm?
Eddyjean
luv-z@webtv.net - 20 Feb 2008 14:31 GMT
"Is she taking medications, and when she tells you about the people
coming through the walls, does she appear fearful or calm? Eddyjean"

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

She is calm when she tells me about the "people".  They do not scare her
but she is getting frustrated now and feels as though they are trying to
take her apartment away from her.

She IS on medication and has been on the same ones for a long time.

These are the meds -

Plavix - 75 mg
Cartia - 240 mg
Digoxin 0.125 mg (two one day/one the next)
Simvastatin - 10 mg
Lorazepam 0.5 mg (as needed)

I might add she only weighs about 86 lbs.

Lynn
Dennis P. Harris - 21 Feb 2008 02:52 GMT
> She IS on medication and has been on the same ones for a long time.
>
[quoted text clipped - 7 lines]
>
> I might add she only weighs about 86 lbs.

When you take her in, BE SURE TO TELL THE DOCS THAT STATINS ARE
KNOWN TO CAUSE MEMORY PROBLEMS and can make them worse in someone
with a dementia!  It's far better to try to reduce chloresterol
levels with diet than with statins.  Drug companies push them on
doctors, but never mention the well known and documented memory
problems they can cause in some patients.

I had a neighbor whose kids thought he had beginning Alzheimers
until I told them about this and they persuaded his doctor to
stop prescribing Lipitor.  Within two weeks, his memory problems
disappeared.

Long term use of lorazepam can also cause ataxia (uncoordinated
movement, as in drunks) and cognitive problems.  If she is
confused about her meds and overdoses, these could be one cause
of her problems.

As others have mentioned, delusions are a common symptom with
frontal lobe dementias, and many psych meds like lorazepam can
have unexpected results with frontal lobe dementias.

These are all reasons why you need to get her referred for a full
neuropsych workup, and you should raise these concerns at that
time.
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.