Medical Forum / Diseases and Disorders / Alzheimer's / February 2008
Dementia Caregiver Study
|
|
Thread rating:  |
Caregiver Research - 08 Feb 2008 17:33 GMT Study Participants Needed!
We are developing a new website for caregivers of people with Alzheimer's disease or another form of dementia. The website will provide information and support to caregivers. This project is being developed by Clinical Tools, Inc. (www.clinicaltools.com) and being funded by the National Institute on Aging.
At this time we are seeking caregivers to participate in a phone interview about the website. Participants will be asked to review the website and give their opinions about it. The interview will take approximately one hour and you will be paid $50 for your participation.
The requirements for participating are:
* Assist with a family member or other loved one's care in some way or help make decisions about care * Have access and are able to use the Internet and a phone simultaneously * Not a paid caregiver * U.S. resident
If interested in participating, please call Sara Virgil or Lyla Hance at 919-960-8118 ext. 2, or email Sara at virgil@clinicaltools.com. Please mention that it is for the dementia caregiver study.
Dennis P. Harris - 10 Feb 2008 08:33 GMT On Fri, 8 Feb 2008 09:33:17 -0800 (PST) in alt.support.alzheimers, Caregiver Research <ctiadmin@gmail.com> wrote:
> At this time we are seeking caregivers to participate in a phone > interview about the website. Participants will be asked to review the > website and give their opinions about it. The interview will take > approximately one hour and you will be paid $50 for your > participation. Good luck, because it's obvious you don't have a clue about how little time caregivers have to devote to such tasks, no matter how worthy.
Most unpaid family caregivers don't have an hour to spend on the phone answering some researcher's lengthy questionnaire. Most won't have FIVE minutes to spend on it. The $50 is meaningless to exhausted, overworked caregivers with NO TIME to waste. That means that your sample will not be representative of the caregiver community.
If you want participation, limit the questions so that the the interview takes 5 minutes, or do the interviews in person and provide an hour of respite care for the caregiver.
I suggest that instead you redesign the survey to make it an activity at caregiver support groups organized by local AD association offices, but even then, you will only reach a small proportion of caregivers, since many of them either don't know about the support groups or can't attend for many reasons.
Caregiver Research - 11 Feb 2008 17:08 GMT On Feb 10, 3:33 am, NO_SPAM_TO_dpharris@gci.net (Dennis P. Harris) wrote:
> On Fri, 8 Feb 2008 09:33:17 -0800 (PST) in > alt.support.alzheimers, Caregiver Research <ctiadmin@gmail.com> [quoted text clipped - 26 lines] > proportion of caregivers, since many of them either don't know > about the support groups or can't attend for many reasons. Thanks to Dennis for his suggestions. We certainly understand that many caregivers are overworked and exhausted, with little time to spare for...anything! However, you might be surprised to hear that we have been doing caregiver research for awhile and have located many enthusiastic participants, despite caregivers' often hectic lives. Caregivers do seem to appreciate the opportunity to contribute to development of a worthwhile new resource and to let their voices be heard. And we certainly welcome any of you who would also like to contribute to the project!
We do local recruiting through the Alzheimer's Association office and conduct some in-person interviews. We also are recruiting online (via message boards like this one) to find more computer-savvy caregivers since we are developing a web-based resource.
Anyway, take care, everyone! - Sara Virgil
august - 12 Feb 2008 04:18 GMT > On Fri, 8 Feb 2008 09:33:17 -0800 (PST) in > alt.support.alzheimers, Caregiver Research <ctiadmin@gmail.com> [quoted text clipped - 26 lines] > proportion of caregivers, since many of them either don't know > about the support groups or can't attend for many reasons. My experience is different and I welcome the opportunity. Our LO is now end stage and sleeps 22-23 hrs a day. That leaves me time to answer their questions and make 50 bucks. AW
Nightwing - 12 Feb 2008 08:42 GMT Some things never change, Dennis still thinks his is the only way to do things. If you are lucky he will killfile you, it doesn't hurt a bit.
>> On Fri, 8 Feb 2008 09:33:17 -0800 (PST) in >> alt.support.alzheimers, Caregiver Research <ctiadmin@gmail.com> [quoted text clipped - 30 lines] > end stage and sleeps 22-23 hrs a day. That leaves me time to answer their > questions and make 50 bucks. AW Dennis P. Harris - 13 Feb 2008 05:43 GMT > Some things never change, Dennis still thinks his is the only way to do > things. I'm glad you have time to waste responding to loonies and trolls. I don't, and neither do most of the regulars here.
If you do, it would be nice if you took it to email so you don't fill the newsgroup full of irrelevant garbage that makes it less useful for folks who don't have the time to waste that you do.
EddyJean - 16 Feb 2008 20:42 GMT Good luck, because it's obvious you don't have a clue about how little time caregivers have to devote to such tasks, no matter how worthy. Dennis Harris wrote---- ==========================================
Evelyn says she was a caretaker for her MIL but posted messages on this newsgroup from morning to night. Hmm. Who does Evelyn work for: the American people or who???? Eddyjean
Evelyn Ruut - 16 Feb 2008 22:28 GMT > Good luck, because it's obvious you don't have a clue about how little > time caregivers have to devote to such tasks, no matter how worthy. [quoted text clipped - 5 lines] > American people or who???? > Eddyjean I am a retired bookkeeper. I HAD to retire early to take care of my mother in law. So did my husband. We both lost plenty for that fact alone.
We took her to live with us in 2000. She died in April 2005. I had to be cooped up in the house for almost the whole time we took care of her. The doctor told us she could not be left alone ever again, and we took him seriously. We needed a sitter even to go out to the store. We almost NEVER got to go out together, because someone had to stay with her.
What would YOU do during all that time? I came to this newsgroup to keep my sanity.
Wonder what you did with yours?
 Signature Best Regards,
Evelyn
deerwoodflower@hotmail.com - 16 Feb 2008 23:24 GMT > > Good luck, because it's obvious you don't have a clue about how little > > time caregivers have to devote to such tasks, no matter how worthy. [quoted text clipped - 24 lines] > > Evelyn Evelyn, You don't have to Prove yourself to Eddy..I asked her quite some time ago if she took care of her mother and she has never replied.Barb
Evelyn Ruut - 17 Feb 2008 02:13 GMT On Feb 16, 4:28 pm, "Evelyn Ruut" <evelyn.r...@gmail.com> wrote:
> "EddyJean" <eddyj...@webtv.net> wrote in message > [quoted text clipped - 28 lines] > > Evelyn Evelyn, You don't have to Prove yourself to Eddy..I asked her quite some time ago if she took care of her mother and she has never replied.Barb
Hi Barb,
Yeah, I know, her paranoia has her by the throat all the time. But it took no effort to tell the truth in a quick reply anyway..... :-)
 Signature Best Regards,
Evelyn
EddyJean - 18 Feb 2008 04:40 GMT Evelyn, You don't have to Prove yourself to Eddy..I asked her quite some time ago if she took care of her mother and she has never replied.Barb ======================================== Barb You didn't respond to mine, or are you trying to make this into a contest of who took care of their LO the longest? I've never had a problem with the caregiving advice given here. I've posted that it was quite good. My problem is with those who "killfile everything they don't agree with, have you heard of the first amendment, Barb: freedom of speech? Eddyjean
deerwoodflower@hotmail.com - 18 Feb 2008 06:14 GMT > Evelyn, > You don't have to Prove yourself to Eddy..I asked her quite some [quoted text clipped - 8 lines] > speech? > Eddyjean Eddy Jean, Did you take care of your mom.
Dennis P. Harris - 18 Feb 2008 08:20 GMT On Sun, 17 Feb 2008 22:14:46 -0800 (PST) in alt.support.alzheimers, "deerwoodflower@hotmail.com"
> My problem is with those who "killfile everything they don't > > agree with, have you heard of the first amendment, Barb: freedom of > > speech? > > Eddyjean Whatta nutcase! Having Eddyjean in my killfile only makes sure that I never see posts written by this loony unless you troll feeders answer him/her.
Putting Eddyjean in my killfile has nothing to do with the First Amendment, because THE CONSTITUTION DOES NOT REQUIRE ME TO READ WHAT SHE/HE POSTS. When will she/he get it through her/his thick skull that NO ONE IS REQUIRED TO READ WHAT SHE/HE WRITES AND THAT NO ONE CAN BE FORCED TO REPLY TO HIS/HER DRIVEL?
Folks, it's time to stop feeding this troll. If you ignore him/her, she/he will go away. Replying is a waste of time because Eddyjean obviously is incapable of reason or logic.
Tim - 18 Feb 2008 12:26 GMT > On Sun, 17 Feb 2008 22:14:46 -0800 (PST) in > alt.support.alzheimers, "deerwoodflower@hotmail.com" [quoted text clipped - 17 lines] > him/her, she/he will go away. Replying is a waste of time > because Eddyjean obviously is incapable of reason or logic. Irritating as his/her posts are it should be obvious to anyone with a modicum of intelligence that Eddyjean is not well be it dementia or some other form of mental illness. Killfiling her is one thing as he/she doesn't seem to contribute much of value but using comments like 'Whatta nutcase!' and 'loony' about a person who is mentally not well(be it due to dementia or not) is completely out of order.
Tim
Mental health problems since mid teens. Lived with and married to a wonderful woman called Brenda for 22 and 19 years respectively. For the last three years before she died she suffered from vascular dementia.
Evelyn Ruut - 18 Feb 2008 13:36 GMT > On Sun, 17 Feb 2008 22:14:46 -0800 (PST) in > alt.support.alzheimers, "deerwoodflower@hotmail.com" [quoted text clipped - 17 lines] > him/her, she/he will go away. Replying is a waste of time > because Eddyjean obviously is incapable of reason or logic. Dennis,
99% of the time I don't reply to a troll. In the recent case where I did, Eddyjean, in her paranoid fantasy questioned my presence here. I gave her my 'credentials,' that's all. I will do that occasionally if I feel inclined.
We are NOT the only people who read here. Newcomers and lurkers stop by all the time. I reserve the right when addressed personally, to reply to whomever I wish. If you want to killfile me, so be it, but if not, be aware you may be exposing yourself to whatever I felt moved to reply to. It could be anything.
I like jokes and sometimes I give the benefit of the doubt to a possible troll. I do NOT take direction from anyone and reply to whomever, whenever I feel like it.
This newsgroup is not overwhelmed with high activity posting. It doesn't take but a minute to check this entire newsgroup and read all the new posts here, including the trolls, the occasional humorous bit, or whatever. It isn't like one has to wade through 500 posts to catch up around here.
Discouraging anyone who posts here (other than the real trolls and we all know who they are) isn't really necessary. I don't care if someone replies and puts a troll down royally. In fact I rejoice in it.
 Signature Best Regards,
Evelyn
A R Pickett - 18 Feb 2008 23:29 GMT Evelyn wrote in part - > We are NOT the only people who read here. Newcomers and lurkers stop by
> all the time. I think that some of the time it IS a good idea to reply to an egregious misstatement of what most caregivers know to be true. Keeping in mind that not everyone who reads will post something, it's helpful to get a general tone of the level of common sense, and not responding to every troll as an unbendable rule would often give the wrong impression.
I lurked for 4-5 months before I posted anything. I got to observe the regulars in action, with each other, with new inquiries, and with off the wall comments. What I saw, in total, told me a lot about what type of response I could look forward to.
 Signature A R Pickett aka Woodstock
"Sometimes the facts threaten the truth" Amos Oz, prize winning Israeli author
Read my book reviews at: http://www.booksnbytes.com/reviews/_idx_ws_all_byauth.html
Now blogging! http://www.journalscape.com/woodstock/
Remove lower case "e" to respond
Evelyn Ruut - 19 Feb 2008 00:30 GMT Hi Woodstock,
In usenet, silence is often interpreted as assent. Don't want to endorse such cockeyed views, then it is better to say something, even if some see the person as a troll.
 Signature Best Regards,
Evelyn
> Evelyn wrote in part - > We are NOT the only people who read here. > Newcomers and lurkers stop by [quoted text clipped - 10 lines] > wall comments. What I saw, in total, told me a lot about what type of > response I could look forward to. EddyJean - 21 Feb 2008 08:45 GMT I am a retired bookkeeper. I HAD to retire early to take care of my mother in law. So did my husband. We both lost plenty for that fact alone. Evelyn wrote....
Evelyn You were posting messages on this newsgroup from morning to night but wrote, you and your husband, HAD to take early retirement to care for your mother in law???? I have no interest in your past employment but I'm sure interested in WHO you work for NOW. EddyJean
Evelyn Ruut - 21 Feb 2008 11:45 GMT I am a retired bookkeeper. I HAD to retire early to take care of my mother in law. So did my husband. We both lost plenty for that fact alone. Evelyn wrote....
Evelyn You were posting messages on this newsgroup from morning to night but wrote, you and your husband, HAD to take early retirement to care for your mother in law???? I have no interest in your past employment but I'm sure interested in WHO you work for NOW. EddyJean
EddyJean,
I don't need to explain a thing to you, as you are obviously more than a little bit paranoid as a part of your illness, But I am RETIRED. I don't work for anyone, and haven't since 2000. (Unless you count being the treasurer for my local Rotary Club, that is). Having worked all my life, I think I earned my retirement, and I hope I never have to go to work again at a job.
As for what hours I posted to this group,...... yes, I have had a lot of time on my hands, and fortunately I could keep an eye on my mother in law while I posted. I was up a lot at night with her, and would post if I couldn't sleep. I have an active mind and after a lifetime of full time employment, I enjoyed the conversation and friendships I made online.
The people on this group, most of the regulars, are my friends, and we have all been through a lot with each other. They saw me through a few tough years and I saw them through a few tough years. We all comforted one another through our loved ones illnesses and in many cases, through their deaths. I have had personal correspondence with many people here, and count them among my friends.
You would be lots better off if you stopped wondering about other people and took care of your illness. Do you have family looking after you? Or is it as I suspect, that your paranoia drove them all off? Are you under a doctors care? Or is it as I suspect that you don't take your prescribed medications?
Take better care of yourself, EddyJean. This is not a time to go off half cocked with ideas about some long gone doctor. You need to trust your loved ones and take care of yourself with the resources around you today. Do you have plans for your future with this illness when it inevitably takes a really bad turn? It does tend to do that, you know. You need to plan for that. Turn that paranoia around and think about where YOU are going and what will happen to YOU. You had better make your plans while you are still able.
Thank goodness my mother in law did that, and she was paranoid too, but it was to her great benefit that she did.
 Signature Best Regards,
Evelyn
EddyJean - 23 Feb 2008 09:38 GMT This is not a time to go off half cocked with ideas about some long gone doctor. You need to trust your loved ones and take care of yourself with the resources around you today. Evelyn wrote..... ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Evelyn, There are no effective resources or treatments for dementia and AD. It's just a trial and error guessing game all the way. Depending on the patient's body chemistry, some medications may relieve symptoms but do not slow or stop the progression of the disease. The only one who knew what to do was the late Dr. James R. Hunt. He treated patients with facial/cranial diseases for 30 years before his death in 1937. Dr. Hunt was the father of neurology in the United States, and Director of the Neurology Department at Columbia University in NYC. This IS NOT a half-cocked idea about some long gone doctor. Dr. Hunt was an "icon" listed in the book of WHO'S WHO IN AMERICA. Read it for yourself and check with the American Medical Association. The AMA keeps a list of all discovered viruses in their files. The late Dr. Hunt discovered the viruses that cause facial cranial diseases. If Dr. Hunt's books, research and records had no value, why did much of his work disappear??? I strongly suspect some viruses are contagious, has anyone noticed the many hospital expansions and new medical clinics built recently nationwide? From the younget to the oldest, it's rare to find someone in good health. Americans pay the highest healthcare costs in the world, outrageous medical insurance premiums, but what do we get in return, especially on chronic diseases? Guesswork! If there's serious research on facial cranial diseases, I've not found it in the entire U.S.A. I've been searching for many years....... Eddyjean
Evelyn Ruut - 23 Feb 2008 15:49 GMT This is not a time to go off half cocked with ideas about some long gone doctor. You need to trust your loved ones and take care of yourself with the resources around you today. Evelyn wrote..... ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Evelyn, There are no effective resources or treatments for dementia and AD. It's just a trial and error guessing game all the way. Depending on the patient's body chemistry, some medications may relieve symptoms but do not slow or stop the progression of the disease.
**************
EddyJean,
That is not correct. With all due respect, your knowledge is a bit dated. We have better understanding of the disease, and better medications now, than even just a couple of years ago when my mother in law was alive. Since she died, Namenda is now available, for instance. It works with a different brain chemical that is necessary for cognition than Aricept does. Together they can slow the progression and make life more liveable for patient and family.
She was on Aricept and Zoloft and she was much closer to "normal" on those meds than without. She stopped threatening daily to kill herself, and she was able to function much better while on them. There is good evidence to believe that Aricept actually SLOWS the process of the illness, and new studies are being done all the time. I saw with my own eyes, how much better she was on it, than without it. It was dramatic!
*********** The only one who knew what to do was the late Dr. James R. Hunt. He treated patients with facial/cranial diseases for 30 years before his death in 1937. Dr. Hunt was the father of neurology in the United States, and Director of the Neurology Department at Columbia University in NYC. This IS NOT a half-cocked idea about some long gone doctor. Dr. Hunt was an "icon" listed in the book of WHO'S WHO IN AMERICA. Read it for yourself and check with the American Medical Association. The AMA keeps a list of all discovered viruses in their files. The late Dr. Hunt discovered the viruses that cause facial cranial diseases. If Dr. Hunt's books, research and records had no value, why did much of his work disappear??? ***************
Eddyjean,
I would strongly suspect that many new advances have been made since 1937 especially in the areas of virology. I mean no insult to this great doctors work, but I think that by limiting your understanding of an illness to things done over 70 years ago, you are doing yourself a great disfavor. If you are suffering from dementia of some kind TODAY it would be completely foolish to dismiss the enormous advances in understanding brain chemistry and the results of Seventy years of serious studies since then.
Also I want you to consider that Alzheimers touches almost every family. There are two members of my own family who died of it, as well as my mother in law. Think about all the people who work in hospitals and universities and such. THEIR families suffer from alzheimers too. If you go into a room of strangers and ask, it is almost impossible to find someone who doesn't have a relative who has it. It is an enormous problem. Think of millions of people needing constant care and supervision! It's mind boggling, and it will only get worse with average longevity increasing every year.
***************
I strongly suspect some viruses are contagious, has anyone noticed the many hospital expansions and new medical clinics built recently nationwide? From the younget to the oldest, it's rare to find someone in good health. Americans pay the highest healthcare costs in the world, outrageous medical insurance premiums, but what do we get in return, especially on chronic diseases? Guesswork! If there's serious research on facial cranial diseases, I've not found it in the entire U.S.A. I've been searching for many years....... Eddyjean
**************
Eddyjean, I suggest you may be looking in the wrong places. Due to AIDS, Herpes and other viral diseases, there are MANY new antiviral products are out there. There is enormous pressure to find products that work against viral illnesses, not only vaccines, but drugs that suppress virus replication etc.
Eddyjean, I honestly fear that in making a saint of a doctor from 70 years ago, you are doing yourself a terrible disfavor, not to mention misleading others, in going down a blind alley.
Learn about and embrace the new drugs and new technologies. People in the medical fields have relatives with alzheimers too. There are MANY devoted and caring people working very hard to find effective medications to help patients with alzheimers.
There is a tremendous push to find a cause and a cure for it. With all the newer medications making people live longer, alzheimers is a serious growing concern for the whole world. Find yourself the best geriatric doctor you can find. Get every test they can give you, and identify exactly what kind of dementia you have. Trust the professionals and treat your illness with the latest knowledge and technologies. It is your best chance to have some quality of life.
 Signature Best Regards,
Evelyn
deerwoodflower@hotmail.com - 23 Feb 2008 17:49 GMT > This is not a time to go off half cocked with ideas about some long gone > doctor. You need to trust your loved ones and take care of yourself [quoted text clipped - 101 lines] > > Evelyn Eddy Jean, Seriously ,do you have dememtia? And did you take care of your mom when she had it?Barb
EddyJean - 24 Feb 2008 10:29 GMT Re: Dementia Caregiver Study Group: alt.support.alzheimers Date: Sat, Feb 23, 2008, 10:49am (PST+3) From: evelyn.ruut@gmail.com (Evelyn Ruut) "EddyJean" <eddyjean@webtv.net> wrote in message news:15961-47BFE97A-272@storefull-3176.bay.webtv.net... This is not a time to go off half cocked with ideas about some long gone doctor. You need to trust your loved ones and take care of yourself with the resources around you today. Evelyn wrote..... ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Evelyn, There are no effective resources or treatments for dementia and AD. It's just a trial and error guessing game all the way. Depending on the patient's body chemistry, some medications may relieve symptoms but do not slow or stop the progression of the disease. ************** EddyJean, That is not correct. With all due respect, your knowledge is a bit dated. We have better understanding of the disease, and better medications now, than even just a couple of years ago when my mother in law was alive. Since she died, Namenda is now available, for instance. It works with a different brain chemical that is necessary for cognition than Aricept does. Together they can slow the progression and make life more liveable for patient and family. She was on Aricept and Zoloft and she was much closer to "normal" on those meds than without. She stopped threatening daily to kill herself, and she was able to function much better while on them. There is good evidence to believe that Aricept actually SLOWS the process of the illness, and new studies are being done all the time. I saw with my own eyes, how much better she was on it, than without it. It was dramatic! *********** The only one who knew what to do was the late Dr. James R. Hunt. He treated patients with facial/cranial diseases for 30 years before his death in 1937. Dr. Hunt was the father of neurology in the United States, and Director of the Neurology Department at Columbia University in NYC. This IS NOT a half-cocked idea about some long gone doctor. Dr. Hunt was an "icon" listed in the book of WHO'S WHO IN AMERICA. Read it for yourself and check with the American Medical Association. The AMA keeps a list of all discovered viruses in their files. The late Dr. Hunt discovered the viruses that cause facial cranial diseases. If Dr. Hunt's books, research and records had no value, why did much of his work disappear??? *************** Eddyjean, I would strongly suspect that many new advances have been made since 1937 especially in the areas of virology. I mean no insult to this great doctors work, but I think that by limiting your understanding of an illness to things done over 70 years ago, you are doing yourself a great disfavor. If you are suffering from dementia of some kind TODAY it would be completely foolish to dismiss the enormous advances in understanding brain chemistry and the results of Seventy years of serious studies since then. Also I want you to consider that Alzheimers touches almost every family. There are two members of my own family who died of it, as well as my mother in law. Think about all the people who work in hospitals and universities and such. THEIR families suffer from alzheimers too. If you go into a room of strangers and ask, it is almost impossible to find someone who doesn't have a relative who has it. It is an enormous problem. Think of millions of people needing constant care and supervision! It's mind boggling, and it will only get worse with average longevity increasing every year. *************** I strongly suspect some viruses are contagious, has anyone noticed the many hospital expansions and new medical clinics built recently nationwide? From the younget to the oldest, it's rare to find someone in good health. Americans pay the highest healthcare costs in the world, outrageous medical insurance premiums, but what do we get in return, especially on chronic diseases? Guesswork! If there's serious research on facial cranial diseases, I've not found it in the entire U.S.A. I've been searching for many years....... Eddyjean ************** Eddyjean, I suggest you may be looking in the wrong places. Due to AIDS, Herpes and other viral diseases, there are MANY new antiviral products are out there. There is enormous pressure to find products that work against viral illnesses, not only vaccines, but drugs that suppress virus replication etc. Eddyjean, I honestly fear that in making a saint of a doctor from 70 years ago, you are doing yourself a terrible disfavor, not to mention misleading others, in going down a blind alley. Learn about and embrace the new drugs and new technologies. People in the medical fields have relatives with alzheimers too. There are MANY devoted and caring people working very hard to find effective medications to help patients with alzheimers. There is a tremendous push to find a cause and a cure for it. With all the newer medications making people live longer, alzheimers is a serious growing concern for the whole world. Find yourself the best geriatric doctor you can find. Get every test they can give you, and identify exactly what kind of dementia you have. Trust the professionals and treat your illness with the latest knowledge and technologies. It is your best chance to have some quality of life.
 Signature Best Regards, Evelyn ========================================== Evelyn, I appreciate the suggestions, and with all due respect, I must say, there is no better understanding of AD and dementias since 1937. It's 68 years after Dr. Hunt's death, and still no cure in sight. Nothing's been done except to let the patients fend for themselves the best they can. What works for one may not work for another. I was on Zoloft and Paxil but won't take them again because of the tremors and nausea they caused. I'm on Famvir which has helped some but a far cry from a cure. I don't know which new studies you are referring to, but most don't amount to a hill of beans. I'm glad the Aricept worked for your MIL, but the fact is, she still remained incapacitated needing 24/7 care and passed away in five years. If new advances in virology have been made since 1937, would you kindly let me know who has done this and where? Early physicians didn't have access to all of the sophisticated medical equipment available to researchers now so what's the holdup on finding cures? I agree, understanding the brain and chemistry is very important, but once again, where are the enormous brain advances of the past 70 years? I believe diabetes was also discovered in the early 1900s and this too, has no cure in sight. Just live with it they say. Yes AD and dementias are an enormous problem that continues to grow, however, had the medical professions followed up on the late Dr. Hunt's work instead of covering it up, I doubt we'd see the large numbers of sickness we're seeing now. If I'm looking for help in the wrong places, tell me where I should look? I've been to the most prestigious medical schools in the land and doctors don't know what to do except guess. We wonder what students are taught in medical schools. The U.S. has no problem destroying a non-functioning satellitte with a missile but can't cure diseases. Should we contact little Cuba to help us out? If letting others know an answer to AD already existed since the early 1900s, how is that misleading the public? We can't keep our heads in the sand forever, eventually the chickens come home to roost as we're seeing the many folks with AD now. The virus that causes AD has far-reaching consequences. Dr. Hunt was a consultant to ten or more NYC hospitals and mental institutions. His name is in the records but his work covered up. That's a crime to all humanity. Eddyjean
Sarah Kanary - 25 Feb 2008 23:09 GMT Evelyn, my friend, please don't bother feeding the trolls. It demeans you. That's what killfilters are for. :-)
> "EddyJean" <eddyjean@webtv.net> wrote in message
> I am a retired bookkeeper. I HAD to retire early to take care of my > mother in law. So did my husband. We both lost plenty for that fact [quoted text clipped - 10 lines] > > Wonder what you did with yours? Evelyn Ruut - 26 Feb 2008 11:35 GMT > Evelyn, my friend, please don't bother feeding the trolls. It demeans > you. That's what killfilters are for. :-) Sarah, thank you for the suggestion, but I tend to reply when the mood moves me, and it may be to a troll, on the rare occasion. Strictly speaking I am not certain that Eddyjean is actually a troll, although she does seem to have certain obsessions, she has stated that she suffers from a form of dementia, though she hasn't been specific about which kind.
 Signature Best Regards,
Evelyn
>> "EddyJean" <eddyjean@webtv.net> wrote in message > [quoted text clipped - 13 lines] >> >> Wonder what you did with yours? august - 22 Feb 2008 05:33 GMT > Study Participants Needed! > [quoted text clipped - 22 lines] > at 919-960-8118 ext. 2, or email Sara at virgil@clinicaltools.com. > Please mention that it is for the dementia caregiver study. Thanks for the fifty bucks.
Good luck with your new dementia web portal. AW
|
|
|