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Medical Forum / Diseases and Disorders / Alzheimer's / January 2008Lewy Body Dementia
My Dad has LBD. If you don't know of it, the symptoms are very similar to Alzheimers, and is very often mis diagnosed, either way. I'm struggling to care for my Dad, and work full time. Fortunately my employer sent me home with a computer, so I can work and take care of Daddy. In an effort to keep my sanity, I started a website that is our daily journey through this disease. When we first got the diagnosis, I needed to know what we were facing. There was clinical information, but not a whole lot about what it would really be like. My husband and I are learning to laugh at some of the things my Dad does. Its really the only way I can cope sometimes. Anyway, we write this diary, and if you think it would help you as a caregiver, or perhaps you've been diagnosed and are wondering....we pretty much tell it like it is. If you stop by, please comment. http://livingwithlewybody.blogspot.com/ > My Dad has LBD. If you don't know of it, the symptoms are very > similar to Alzheimers, and is very often mis diagnosed, either way. one of the things about lewy body and other frontal lobe dementias is that tranquilizers that can help with delusions and auditory & visual hallucinations in AD patients not only don't work, but can make symptoms worse. best of luck in coping. been there, done that (with a mother with vascular dementia). a suggestion: if you haven't already, go buy a copy of "the 36 hour day" by mace & rabin. you will find a lot of useful info there. welcome to the club none of us wanted to join. feel free to come here when you need to do so. > a suggestion: if you haven't already, go buy a copy of "the 36 > hour day" by mace & rabin. you will find a lot of useful info > there. > > welcome to the club none of us wanted to join. feel free to come > here when you need to do so. Thanks Dennis. I will look for the book. You are so right about the meds. Our Nuerologist cut daddy loose a year ago, and said there was nothing more to do. They did all the drugs, ran all the tests... Now we wait. SJM sjm, you're smart to look for the funny side of the situation. one day when we were expecting company, grayson was taking a shower. he asked if he could help do anything and i told him just to wipe down the shower. he stayed so long i went back and he had the blue toilet bowl cleaner all over the walls and floor in the shower and on himself. i had to laugh, after i got it cleaned up. gwen > My Dad has LBD. If you don't know of it, the symptoms are very > similar to Alzheimers, and is very often mis diagnosed, either way. [quoted text clipped - 12 lines] > > If you stop by, please comment. http://livingwithlewybody.blogspot.com/ On Jan 24, 11:18 am, <sweetpickl...@SPAMknology.net> wrote: > sjm, you're smart to look for the funny side of the situation. one day when > we were expecting company, grayson was taking a shower. he asked if he [quoted text clipped - 3 lines] > got it cleaned up. > gwen Now that would make a good Living with Lewy story. |
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