http://www.msnbc.msn.com/id/22598863/
Dementia patients live about 4 1/2 years
Study could help caregivers plan for patients with Alzheimer's
Reuters
updated 8:27 a.m. CT, Fri., Jan. 11, 2008
LONDON - People with dementia survive an average 4 1/2 years after
diagnosis, researchers said on Friday in a study they hope might help
caregivers plan for patients with Alzheimer’s and other, similar illnesses.
Researchers know dementia raises the risk of dying early, but the study
is the first to estimate how long people are likely to survive with the
condition, said Carol Brayne, a researcher at the Institute of Public
Health at the University of Cambridge.
“This gives people a rough idea of how long they are looking at,” said
Brayne, who led the study published in the British Medical Journal.
“This can add more to the information that physicians and families have.”
An estimated 24 million people worldwide have the mental confusion
marked by memory loss and problems with orientation that signals
Alzheimer’s disease and other forms of dementia.
The researchers, who said the number of people with dementia was
expected to rise to 81 million globally by 2040, studied 13,000 people
aged 65 or older who were assessed for the condition at regular
intervals between 1991 to 2005.
During this time, 438 people developed dementia, of whom 81 percent
died. Age, gender and disability were the main factors determining how
long a person survived, the researchers said.
Women lived for 4.6 years compared to 4.1 years for men. There was
nearly seven years difference in survival between the youngest and
oldest, with people aged 65 to 69 living 10.7 years and those over 90
living 3.8 years, the researchers found.
“The type of care and the environment where a person is living is also
important,” Brayne said in a telephone interview.
The study also found that the most frail patients died on average three
years sooner than people who are more robust, even with age factored in.
The findings might help policy makers, families and health professionals
better plan and care for people with dementia to determine things such
as how long a person might be in an institution, the researchers said.
“Some of these results may seem self-evident but they answer questions
asked by those caring for and advising people with dementia,” the
researchers wrote.
“We hope the estimates will be valuable to patients, clinicians, carers,
service providers and policy makers.”

Signature
Don't go around saying the world owes you a living. The world owes you
nothing. It was here first. ~Mark Twain
august - 11 Jan 2008 19:55 GMT
> http://www.msnbc.msn.com/id/22598863/
>
[quoted text clipped - 50 lines]
> “We hope the estimates will be valuable to patients, clinicians, carers,
> service providers and policy makers.”
Yes, I saw this article.
My MIL has skewed the statistics in that she has had vascular dementia for
15 years or longer. I am now starting my 8th year as 24/7 caregiver. These
eight years do not even count the full time periods spent nursing her
through a broken hip, temporal arteritis or compression fractures when she
still lived alone but needed intensive daily care to do so. I've learned
that a long life is highly overrated if you do not have a clear mind. AW
Beth Cole - 11 Jan 2008 20:36 GMT
> My MIL has skewed the statistics in that she has had vascular dementia for
> 15 years or longer. I am now starting my 8th year as 24/7 caregiver. These
> eight years do not even count the full time periods spent nursing her
> through a broken hip, temporal arteritis or compression fractures when she
> still lived alone but needed intensive daily care to do so. I've learned
> that a long life is highly overrated if you do not have a clear mind. AW
My MIL is skewing them as well. She was diagnosed in December, 2000,
and she entered the nursing home in November, 2001. Thanksgiving week
this year was the sixth anniversary. I wish I could say there was an
end in sight, but that would be lying.
There are days I feel that we're living in purgatory. I miss the woman
she was, who was one of my best friends. She will never know that my
career has taken off (something she would be very proud of), that we
have just bought a house, that we have a cat who likes to snuggle with
us. She doesn't know that her cat died or that her husband has had
cancer for a third time. And yet, she's continued to live through it
all, perfectly healthy other than the fact her mind is gone.
My FIL says that the one thing he wishes for is that they could
communicate. He misses talking with her, even though he admits she
could talk far more than he could listen.
If there is anything good to have come out of this, it is that my
husband and his father are close for the first time in my husband's
life. My husband was an only child of older parents, whose father
worked very hard to provide a home for his wife & son. My husband was
always close to his mother, not nearly as much with his father. The
last six years have given them an opportunity to relate to one another
as adult men with common interests, something I'm grateful for.
Every time my FIL calls my husband in the middle of the day, my husband
tenses up, expecting to hear that the wait is over. It seems at times
as if that call will never come.
Beth

Signature
Don't go around saying the world owes you a living. The world owes you
nothing. It was here first. ~Mark Twain
deerwoodflower@hotmail.com - 12 Jan 2008 01:45 GMT
> >http://www.msnbc.msn.com/id/22598863/
>
[quoted text clipped - 63 lines]
> still lived alone but needed intensive daily care to do so. I've learned
> that a long life is highly overrated if you do not have a clear mind. AW
As has my mom.She has ad AD almost 10 yrs.now.Barb
sweetpickleNO@SPAMknology.net - 12 Jan 2008 05:08 GMT
I think it is also overrated if you don't have a half-way healthy body!
Gwen
>> http://www.msnbc.msn.com/id/22598863/
>>
[quoted text clipped - 60 lines]
> learned that a long life is highly overrated if you do not have a clear
> mind. AW
Mary_Gordon@tvo.org - 12 Jan 2008 18:50 GMT
The real problem with the statistics from a study like this one
(saying AD sufferers live on average 4 years or so after diagnosis) is
that the information is really only valuable in the aggregate - for
policy makers. It has no value for individual families.
When you take the aggregate apart you see exactly what you expect -
the more advanced your AD at time of diagnosis, the shorter the time
you survive, the older you are at time of diagnosis, the shorter the
time you survive - and that if you have a constellation of other
health issues, you live less time after diagnosis than if you are
radiantly healthy other than your AD. So, a family whose loved one is
very elderly and sickly when diagnosed can expect them to die much
sooner than someone whose loved one is in their 60's and healthy.
When I answer AD questions at allexperts.com, I always tell people to
be pessimistic and plan for worst case. Get all the legal and
financial ducks in a row, investigate all the services and facilities
available in their area, and have care plan B, C and D investigated
and ready to implement when Plan A stops working for everyone. That
way they are prepared for anything that comes - and if the disease
moves slower, they can be pleasantly relieved.
I thought this was a good article about a 2004 study - the general
conclusion was that life expectancy with AD is about halved, when
compared to a person the same age without dementia. Still not
definitive, but the article makes clear how variable the outcomes
are.
http://www.webmd.com/alzheimers/news/20040405/alzheimers-disease-predicting-survival
M
Alan Meyer - 14 Jan 2008 04:53 GMT
> .... So, a family whose loved one is
> very elderly and sickly when diagnosed can expect them to die much
> sooner than someone whose loved one is in their 60's and healthy.
> ...
My Mom was a case like this. Diagnosed at age 64, she only died
at age 80. She functioned reasonably well until the last 5-6 years
of her illness.
Alan