Re: My Posts Were Blocked  

Group: alt.support.alzheimers Date: Tue, Jan 15, 2008, 9:42pm From:
deerwoodflower@hotmail.com
On Jan 15, 3:13 am, eddyj...@webtv.net (EddyJean) wrote:
Re: My Posts Were Blocked
Group: alt.support.alzheimers Date: Sun, Jan 13, 2008, 7:38pm From:
deerwoodflo...@hotmail.com
On Jan 13, 8:01 pm, eddyj...@webtv.net (EddyJean) wrote:
am
not responsible for Jules agony, sorrow and sense of loss. Eddy Jean you
may not be responsible but compassion is what you lack.barb
======================================
Barb,
Apparently you didn't read the foul-mouthed post Jules sent me?
Apparently, he's the saint and I'm the villian now? Before Jules post, I
knew nothing about Jules and his circumstances. Jules accepted
responsibility and apologized for his post. I thought the apology was
sincere and sent Jules a response. You just never know nowadays, it
could have been you, Evelyn, or her groupee who may have incited Jules
to write. Dear lady, I'm trying to let people know the late Dr. Hunt
discovered the viruses that cause facial/cranial diseases but COVERED UP
and all I get is ravenous, hateful wolves coming out of the woodwork
since DAY ONE!. What is it your little groupee is trying to hide or
accomplish? Could anyone be so uncompassionate and not want a cure to AZ
as you seem to want? In other words, as long as you don't have the
disease, you want the rest of us to needlessly suffer and prematurely
die, is that what you mean by "compassionate?" I wait for your answer,
Barb?
EddyJean
Eddy Jean,
                              My
mother has the disease and
if i thought for 1 second i could find a cure for her i would not
hesitate.I as everyone else in this group would love a cure.But your NOT
offering one.You give us this info and theres no place to go with it
even if it were true.Now that you   have given us the info I will
thank you and suggest that we now move on to helping you cope with your
dementia while you are capable of doing that.And thats where my
compassion comes in,Barb
======================================
Barb---
I appreciate hearing from you and sorry your mother has AD. My mother
died from AD, other family members suffered and died from it and eight
living relatives have it now seeing doctors for YEARS with no medical
help in sight. When is enough, --enough??? I differ with your views
however, not everyone in this group want a cure. Far from it. People pay
a lot of money into healthcare and insurance premiums but what's
available for chronic diseases? It's guesswork and bandaid medicine.
Millions wasted on "useless" lab tests unable to detect viruses.
Researchers can't seem to get beyond the plaque and tangles but capable
of going to the moon and send little gold robots to Mars to find water
but have water here as folks die right and left from an explosion of
brain diseases over the last two decades. Governments won't help. If we
want a cure, its up to the people to demand it. Afterall, isn't it the
taxpayer who pay the bills? It takes effort to make things happen. As
I've explained before. The late Dr. James R. Hunt discovered the viruses
in 1907 (A HUNDRED YEARS AGO) that cause facial/cranial diseases but a
group, or individuals, covered up his work. Studying the facial nerves
was an obssession with Dr. Hunt and must be turning in his grave now.
Where do you go from here? Write to the Director of Neurology at the
Columbia Presbyterian University in New York City and ask where you can
find Dr. Hunt's books and his research papers on cranial diseases. Its a
start. If you've already decided nothing can change for the better and
do nothing, nothing will change.   I'm sick and tired of being sick
and tired.
Best wishes,
EddyJean
Eddy Jean,
      Have you written and asked for the doc's papers? And
where did you get the info about this doctor that you already have?  
Deerwoodflower wrote
=========================================
Question 1: Yes
Question 2:  Bits and pieces from a number of sources.
To help make my point, the American Medical Association has the names of
all the discovered viruses on file. Write to them and ask why was there
no followup of the virus discovered  by the late Dr. James Ramsay Hunt
that causes facial/cranial diseases? Their address is as follows:

               American Medical Association
               Ronald M. Davis, President
               515 N. State Street
               Chicago, Illinois 60610

Request copies of Dr. Hunt's research and books from the Columbia
University Medical Center. Their address is:

                  Columbia University Medical Center
                  Timothy A. Pedley, Neurology-in-Chief
                   630 W. 168th Street
                   New York, NY 10032

Although Ramsay-Hunt Syndrome was discovered in 1907 and treated
patients 30 years before his death, the disease was not listed with NORD
(National Organization of Rare Disorders) until after I contacted NORD
in 1996.

EddyJean