Bravo!  Well said, and very true.....

Re: Dennis & Evelyn, I'm still waiting  

Group: alt.support.alzheimers Date: Thu, Nov 8, 2007, 7:08am From:
Mary_Gordon@tvo.org
EddyJean wrote:
If you have no desire to find the cause of Alzheimers, why are you here?
Mother, family, relatives and me have dementia , isn't this who this
site is for?
Mary responds:
Its not that we don't care about the research. We all do. However, the
science is still at the point where they don't know what combination of
genetic and environmental factors bring it on, let alone how to stop it
in its tracks. Its obviously not a simple thing, nor is the fix going to
be simple. It is pointless for lay people to argue causation when the
best experts really aren't sure.
I absolutely believe that the day will come when Alzheimer's will be
well understood, and there may be very effective treatments that turn it
from a death sentence to a manageable chronic condition like diabetes.
However, I also know that that day will not come fast enough to save
people who are in the throes of it now. Its 10-20-50 years out. Its not
imminent.
I also know that there are zillions of people who have had the
Alzheimer's label slapped on them (or worse "senile dementia" ) whose
dementia is actually from some other cause entirely.
So, as a caregiver, and volunteer, like Evelyn, my primary concerns have
to be with adequate assessment and diagnosis, so whatever the root
cause, the person gets the best available treatment for their particular
underlying cause, AND the practical every day issues around daily
living, caregiving, coping, handling finances, legal stuff etc.
Thats the stuff we can help each other with.
Mary G.
====================================

Mary, we're no closer to a cure for AD then when it was first
discovered.  We're no closer to a cure for Lou Gehrig's Disease
discovered in the early 1900s.  No cures on the horizon for MS, AlS,
Chronic Fatigue, on and on the list grows, just live with it doctors
say. Yes, science is still at a point where they don't know what
combination of genetic and environmental factors bring it on but this
will never change without serious research. I visited the nation's top
research center and there's no research on AD or other cranial diseases.
It's anyone's guess who's getting the funds from government grants and
private donations directed towards a specific study.  If no one knows
the cause of AD, and no serious studies, where are those "best experts"
your referring to? If you know, please provide me with names and contact
information.

Most know a cold is caused from a virus.  Many complications stem from a
cold: The pharmaceutical companies would lose millions/billions if a
cure were found.  Same scenario for AD.  AD is a complex study but can
be done with a dedicated researcher at the helm.  When it comes to war
and outerspace, money's no object; however, when it comes to the needs
of the people, "Sorry folks, there's no money.

EddyJean

Your family physician can you give a referral.  BTW You don't have to be a
squirrel to recognize a nut.  I'm afraid I too will have to block you.  This
newsgroup is for support for caregivers.  I find nothing productive in your
posts......June

Have you ever cared for an Alzheimer's patient?

The ultimate cure for all disease will not be brought about by man, but by
God.
http://www.watchtower.org/e/20020501/article_02.htm

Meantime, we have to strengthen ourselves to deal as best we can.  And one
of the ways is by sharing support with others who have the same caregiving
issues we do.  After all, this IS an Alzheimer's SUPPORT group.

Peace to you and yours.