Medical Forum / Diseases and Disorders / Alzheimer's / August 2007
I took a day off
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J J - 05 Aug 2007 16:38 GMT I took a day off from going to see mom, I went to the show and saw hairspray but my mind was still on mom. I wish I could shake this guilty feeling off. I have to stop thinking about it as my blood pressure is high and potassium is very low. I didn't realize how much of a toll this took on me. I hope mom will accept this soon. It would make it much more easier on both of us ----I still am confused with the disease they say mom is just really confused and diagnosed her with dementia.yet she doesn't eat much but they keep her up all day to keep her stimulated. also they do not give them much sweets either. I guess that agitates them or stimulates them more. JJ
Baird Stafford - 05 Aug 2007 17:19 GMT > I took a day off from going to see mom, I went to the show and saw > hairspray but my mind was still on mom. I wish I could shake this guilty [quoted text clipped - 7 lines] > give them much sweets either. I guess that agitates them or stimulates > them more. The stimulation is meant to preserve her mind as much as possible: like other muscles, the brain grows flabby with disuse. As for the sweets, I suspect the reason for their non-appearance is that they have a mixed population of diabetics and non-diabetics. It would no more be kind to hand out sweets in and ALF under those circumstances than it would be to hand out sweets to some children in a classroom and not to others.
That being said, check with the ALF but I suspect they wouldn't object in the least if you were to bring a pocketful of sweets for your mother to dole out when you're private with her. I used to take butterscotch to the Dowager until she could no longer handle them, and then caramels until those, too, became too dangerous because she might aspirate the "thin liquids" produced by chewing the candies. The two of us would go out to the front porch of the ALF to watch the world go by (and to keep from raising jealousy among the other residents) and she could have her goodies in privacy.
Blessed be, Baird
stopalz@gmail.com - 15 Aug 2007 18:06 GMT > In article <520-46B5EEFF-...@storefull-3212.bay.webtv.net>, > [quoted text clipped - 29 lines] > Blessed be, > Baird The better stimulation are on those that they have in their brains, as satisfactory life events. This is based on the following alternative theory: THE ALTERNATIVE ALZHEIMER?S THEORY DIFFUSION TEXT ALZHEIMER PROJECT ARGENTINE, AUGUST 2007
The Chronic Progressive Dementization, (CPD), the scientific name of that vulgarly called alzheimer, is a quite different question than depression, different types of psychosis and obviously of sometimes surprising behaviors of the normal aging, and in the long run much more serious. Although the final phase of cerebral disintegration is similar, there are two types of processes: the one that occurs in young adults or greater adults, and another different one that it happens in very greater adults, around 80 years or more. In these, at the final phase the problem it is "simply" the loss of the vital motivation, the exhaustion of desire to continue living. Abandonment of dreams, as Miguel de Unamuno would say on the cession of such dreams that Don Quixote in favor of Sancho did, and then, obviously, dying. Persons with risk for a CPD (alzheimer) are those that generally have an introverted personality, few and restricted social relations, with and isolation tendency, coping deficit for difficulties and losses, tendency to depend on others, to had constructed their personal identity in the shade of another one (the woman of the doctor, the husband of...) or some other equivalent transference, tendency to be obstinate to proper painful events or of the other's life, which is diagnosed in general like depression. THEN, IN ANY WAY IT TOUCHES TO ANYONE. There is nothing of chance's dependence, neither suddenly nor no magician in it. Logically with advance into years the probability that these people suffer a painful loss increases, obviously, like everybody. With its coping deficit the risk increases enormously when they have a painful loss, for example her husband who gave or lent the personal identity, or a son or daughter who gave sense to their life, of their work that justified the existence to him, of their corporal and mental capacity to which he had bet or concentrated, and when not counting on a familiar network and a social network that stopped its fall after the duel impossible to elaborate and to go on, the person collapses. It is the beginning of the aim. It can have 40 years old (the younger case than we have was a woman of 38 years), or 80 yo. It does not related to aging, but only that when they advance the years is more probable that we suffer painful losses. Until this moment its brain is totally normal, does not show absolutely anything abnormal and is totally useless to want to see something in images or less even in electroencephalograms, that it is something so coarse and inadequate as a toad arrives of a luxurious piano of tail. The landslide of the person, its "delivery" as much in the dictionary of the Real Spanish Academy like in the original dictionaries of all the languages, is expressed in the idea to wish to die, in the fixation of the attention in its own one and wished death. Then the abnormal thing begins, the unnatural thing, the destructive thing, because in fact we are programmed biologically, ancestrally, for all the opposite, as it is to explore, to fight, to defend to us, to hunt (in the literal sense and the symbolic sense), to attack, to ask to us, to inquire to us, and our attention concentrated in each objective part of a basic alert status that we never lose, except for when we slept very well. We are not programmed to give to us tamely, as it is not it in any animal.
How takes place then the cerebral damage that leads to the death? To understand this we need to explain some very basic things, although surprising little known. In the first place that we have nine senses: vision, hearing, equilibrium, tact, space perception/orientation, taste, sense of smell, sense of strange it (or familiarity sense) and of the corporal perception. All these senses, and perhaps others more, are active in the basic alert status and they have two components: an automatic one of immediate reaction (one falls in love a light and blinking, it smells sulphydric vapors, the substance that is put to the gas tubes to detect a loss immediately, and I separate, etc.), and another component of recognition, in which the stimuli are sent to the brain and there it is collated if that information has been loaded. They are the sensorial recognition systems we have. Then, EVERYTHING WHAT WE DO, EVERYTHING WHAT WE THOUGHT, BY MORE BANAL OR INSIGNIFICANT THAN IS, IS RECORDED IN THE BRAIN IN FORM OF NEURONAL NETWORK IN WHICH PARTICIPATE NEURONS OF THIS SENSORIAL RECOGNITION ?S SYSTEMS OF THE NINE CHANNELS, INEXORABLY. And those networks that are armed in our brain also were reinforced when we return to make the same act or the same thought. But in addition BECAUSE IN FACT ALL IS CONCECTED WITH ALL, WHICH WE ARE GOING TO DO WAS CONNECTED IN MORE OR LESS STRAIGHT FORWARD FORM WITH WHICH ALREADY WE HAVE DONE AND LOADED LIKE NEURONAL NETWORKS IN OUR BRAIN. Some of those connections have a great importance in the every day actions and others very remotely: although the door seems to be very heavy, already we know that the force that we must make to open it isn't so high. Or for example the natural attraction by rhythm that are multiple or sub multiple of the heart rate (that we listened for the first time in our mother's uterus), seems like related with this indeed. That is to say, to live means to be stimulating everything somehow what we have done, lived and thought. It seems exhausting, but it is a fascinating question. However, when a person fix attention to death, that is something abstract that does not required any motor or cognitive reply, AND RESORTING TO THE NATURAL AND AVAILABLE MECHANISM DISPOSED IN ALL PERSONS THEY TO BLOCK THE RECEPTION OF OTHER STIMULI WHEN WE CONCENTRATED THE ATTENTION IN SOMETHING INTENSIVELY ATTRRACTED, THESE PEOPLE HAPPEN TO BLOCK, at the outset in oscillating form, with variations throughout a day or of days, THE SENSORIAL STIMULI OF THE DIFFERENT CHANNELS. It is a biological basic mechanism since we must be concentrated in the tiger that attacks to us and we cannot disperse with the colored birds that are jumping back: it's a survival principle. Who know more the utility of this principle are the pickpockets of the human agglomerates: one of them produces a smaller but clear aggression on the victim. In reaction the victim is put in guard and concentrates its attention on the aggressor, while his companion removes the wallet or cuts the portfolio's strap, because we have blocked the tact and the corporal perception when putting to us in guard in front of the aggressor and concentrating the attention in him. The displacement of the attention towards different objectives is a normal and a routinely task, but in the people who enter CPD process they are persistently blocking the reception of stimuli by the different sensorial channels and the consequent arrived to the brain, so that the neurons of the sensorial recognition systems that comprise of the sensorial networks doesn't receive stimuli, with which in the long run lose the synaptic connections and the networks are disarmed. Something equivalent to the atrophy of a muscle we never use. This avoid progressively all the recognition tasks. No longer they recognize, no longer have capacity of recovery of recent events (weak neuronal networks, with low sensorial stimulation), and however still can recover events of the past. But not anyone, but THOSE IN WHICH THE LIVED EVENTS (SENSORIAL NETWORKS ARMED IN THE PAST) WERE POSSIBLE WITH A GREAT STIMULATION (EMOTIONAL), PROLONGED REINFORCED AND CONNECTED WITH MULTIPLE OTHER SENSORIAL NETWORKS, LIKE THE DOOR OF OUR HOME AT OUR CHILDHOOD, by where we did not shelter, by where we shook to arrive all smeared, by where we arrived to eat, etc. Thus, those faults of the sensorial recognition systems were the more consistent biological indicators to detect that a person is in a dementia of this type.Chemicals or physical parameters aren?t the unique biological indicators THE PROGRESSIVE DISINTEGRATION OF THE NEURONAL NETWORKS IN OUR BRAIN BY STIMULATION DEFICIT OF THE RECOGNITION SENSORIAL SYSTEMS IS THE ESSENCE OF THE DEMENTIZATION PROCESS, AND LEADS TO THE DEATH BECAUSE AN AUTOMATIC ESSENTIAL SYSTEM HAS CONNECTIONS WITH SENSORIAL NETWORKS, THAT WHEN ALSO THEY GET TO BE AFFECTED, CAUSES THE DEATH. Then isn't properly a disease ("signs and symptoms that responds to a well-known cause"), isn't genetic, it doesn't have relation with aging (frequent confusion comes from that to greater age is the probability of suffering painful losses, that are a very frequent trigger one, since we have already said), does not begin with any damage in the brain but that concludes in the long run in this, isn't a problem of the memory but of the attention, and before this one of the desire, and before this one of the satisfaction search, and before this one of the biological and psychological impulsions arranged by the will, and even before the basal state of alert that characterizes to us. One of the last forms of the expression of the process is the problem with the memory, but in fact the difficulty to recover events is the last link of a very long chain, and to have concentrated in it and not in the attention's deficit of can be the reason of the delayed to understand the process, and the habitual confusion with several behaviors proper of aging. And finally, isn't irreversible, since it is possible and it gives clear and forceful result, to elevate to those people the self-esteem and the attention to him, and to permute the abstract idea of wished death by the one of a real life that surrounds it, the shade by the light that surrounds us to all to little that we lend a little attention, taken care of and love, and inserting it in a new extolling routine for the dairy life. It is not easy, is an abyss of difference with giving a tablet, but it is tremendously positive as much for the affected ones as for which we worked with the protocols derived from the psycho-social neuro sensorial disintegrative theory of the chronic progressive dementization.
Prof.Lic.Luis Mar?a S?nchez de Machado, Neurobiologist, Director, Alzheimer?s Project Argentina TE 0054 3442 431442 stopalz@gmail.com www.stopalz.org
Few references:
Sanchez de Machado LM et al., Rev Neurol 2007; 44(4): 198-202. Sanchez de Machado LM, I J World Health and Societal Politics 2005, Vol. 2 (1) Sanchez de Machado LM, Rev Esp Geriatr Gerontol 2004; 39(6):371-80. Sanchez de Machado LM, Geriatrianet 2004, Vol. 6(1)
Evelyn Ruut - 05 Aug 2007 18:13 GMT >I took a day off from going to see mom, I went to the show and saw > hairspray but my mind was still on mom. I wish I could shake this guilty [quoted text clipped - 8 lines] > them more. > JJ JJ, stop torturing yourself. She is probably doing fine. The most important thing you can do for both of you is to leave her completely for a few days without visiting, preferably at least a week. That way she HAS to adjust, and will settle in better. I never thought my mother in law would ever settle in, but she did, and we were worried for nothing.
They keep them active and they keep them busy in the day, because it most resembles normal patterns. Keeping their brain active preserves their abilities longer. Also they are more tired at night and will sleep better, more like a normal person.
 Signature Best Regards,
Evelyn
Dennis P. Harris - 06 Aug 2007 22:41 GMT > JJ, stop torturing yourself. She is probably doing fine. The most > important thing you can do for both of you is to leave her completely for a > few days without visiting, preferably at least a week. That way she HAS to > adjust, and will settle in better. what she said. seriously. go away, i mean take a real vacation SOMEWHERE ELSE for a whole week. go to a spa or resort and just soak or sunbathe.
Mary_Gordon@tvo.org - 05 Aug 2007 21:00 GMT JJ, its early days yet. You are so totally enmeshed with your mother - in an unhealthy way - that it will take some time to disengage. Limit your visits to a couple of short ones per week. The rest of your life has withered away while you were caregiving, and it will take time for it to start to flourish again. Take a trip, visit some friends, go away for a weekend, sign up for something.
You are not responsible for how your mother feels. She has a damaged brain and life is a complete jumble to her. They could be treating her like she's a queen at a spa, and she still wouldn't be happy. I know with my mother in law, the short term memory issues meant she would complain she wasn't fed, even if you'd eaten lunch with her half an hour earlier. She'd say she'd done nothing all day when you knew she'd been at interesting activities. She'd kvetch that no one came to see her when friends had been there earlier that same day. She wouldn't remember the trip to the hairdressers, the treats from the tuck shop, the snacks in the kitchenette. And worse, she invented miseries to torture herself with - she thought the short haired ladies who helped her dress (and she needed help, or she'd go out in various layers including a bra on top of her blouse) were men trying to assault her. When she wouldn't wear her teeth, she explained her lack of teeth by saying she'd been attacked by bad boys. She claimed the ladies who ate lunch with her said mean things to her, but she was very deaf and the things she claimed they said included complex details of family events from 60 years previous that no one else could know about. It was delusions, confusion, and confabulation. m
It would not have mattered where she was, she wouldn't have been happy because nothing in her life made sense anymore, and it was stressful to get through a day when everything was a confusing awful swirl. We moved her from one facility to another across town when she needed more help than the first place could supply and she didn't even realize she was in a new place, although it was very radically different in layout etc. The point is - it wasn't the place, it wasn't the people around her. She wanted to go home - but if you asked her, she wanted to go to her parents house, gone for 60 years. She'd forgotten she was ever married.
You are not responsible for how your mother feels. It is not your fault in any way, and you cannot fix it. It is her disease. She may nor may not ever get used to where she is because her brain cannot learn new things, and is losing its ability to recognize places.The key point for you now is that there is not a viable alternative. You cannot, cannot, cannot look after her yourself. It is killing you, and your mother needs you healthy and well.
"Dementia" is a garbage pail diagnosis. It is a term like "fever" that describes a set of symptoms. In other words, they are saying she has cognitive impairments, which you already know, but they are not saying what it is FROM. Its always caused by something, whether that something is Alzheimer's, strokes, tumours, or any of the dozens of other diseases that cause brain damage resulting in mental impairments.
They are keeping her up all day because people with dementia of various types routinely have sleep disturbances - as you yourself have observed. They get their days and nights mixed up, and if they sleep during the day, they will not be tired at bedtime, or worse, they will wake up in the middle of the night and be ready to rock and roll. Or get up 17 times, disturbing everyone else in the place. They keep her moving around, and stop her from napping during the day, so she stays on regular hours and is more in sync with the routines of the day.
One reason not to give them too many sweets is that many of the dementias cause problems with appetite and if a person will only eat so much, you want to make every bite count in terms of nutrition - you don't want their health to deteriorate due to not eating a balanced diet if they have a marked preference for sweets. With Alzheimer's, the appetite problem may be caused by the loss of sense of smell early in the illness, which in turn impacts how things taste and causes a reduction in appetite. Other causes of dementia can cause uncontrollable eating, and a terrible sweet tooth. Not good if they snack on sugary stuff and then won't eat their dinner. If she is losing weight, they will want to try her on some supplements like Ensure, Boost or Gain, that have a lot of nutrition as well as extra calories.
Hang in JJ. Stop looking to her for approval and acceptance. The days for that are over. You are in effect the parent now, and have to do what is best for both of you, and believe me, I know this is tough. I'd strongly recommend you reconsider the plan to volunteer at the place, as for the time being, you need to focus on getting your own life back, rather than continue to let it be consumed by your mother's illness.
Mary G.
Tumbleweed - 05 Aug 2007 21:25 GMT > JJ, its early days yet. You are so totally enmeshed with your mother - > in an unhealthy way - that it will take some time to disengage. Limit [quoted text clipped - 6 lines] > brain and life is a complete jumble to her. They could be treating her > like she's a queen at a spa, and she still wouldn't be happy. <snip>
Well said Mary.......JJ, Mary is absolutely right, and especially understand her words "You are not responsible for how your mother feels. She has a damaged brain and life is a complete jumble to her."
You CANNOT make things better for your mother in the way she wants, you cant answer her questions in such a way she will be happy, all you can do is make sure she is cared for as well as possible, which iswhat you have done.
Let go, go back to your life, and visit her when you want to BUT NOT EVERY DAY...its not doing you any good and it certainly isnt doing her any good either.
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Evelyn Ruut - 05 Aug 2007 22:21 GMT > JJ, its early days yet. You are so totally enmeshed with your mother - > in an unhealthy way - that it will take some time to disengage. Limit [quoted text clipped - 82 lines] > > Mary G. Mary said it best.....
JJ, I just wanted you to know that I agreed with Mary 100%
 Signature Best Regards,
Evelyn
June - 05 Aug 2007 22:49 GMT >> Hang in JJ. Stop looking to her for approval and acceptance. The days > for that are over. You are in effect the parent now, and have to do [quoted text clipped - 5 lines] > > Mary G. JJ, Mary has said it very well. Perhaps there's a bit of denial still left over and time will help. Hope you can find some peace. You deserve it......June
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