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Medical Forum / Diseases and Disorders / Alzheimer's / July 2007

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what a horrible day

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J J - 17 Jul 2007 07:30 GMT
it was the most awful day in my life. mom was so agitated about wanting
to get up and go
home I gave her two chill pills( for agitation) and that didn't settle
her down. she kept pulling and tugging at the sheets and blankets. I
called my neighbor over to try and distract her then she helped  me
dress mom for bed and I dosed her up with two sleeping pills. she kept
fighting going to sleep ---she was awake all day long didn't sleep. I
don't know what triggered her off today. she did this once before in the
hospital about staying up all day and almost all night. I was about
ready to get a gun and shoot her today. I `couldn't walk away as she
kept trying to get out of bed and I was afraid she would fall and hurt
herself I couldn't get anything done all day long today. I don't know
how much more I can take I will be so glad when I can get 5 days respite
from her and I don't think I will go to see her everyday like I did
before. this time maybe I will go twice and let myself get some rest
away from her. I will hate to do it but it is getting easier for me to
start to leave her more and more. before I kept struggling with doing
that was having guilty feelings and now it is getting easier and easier
to leave her there where someone else can take care of her.  I am
getting to the point of selling her house and have her go to a nursing
home. she is really getting me worn out not to mention the high blood
pressure that is giving me a time trying to get down.
doc has me on anti depressants to try and calm me down. I am really to
throw in the towel and put her in a nursing home as it is killing me to
try and deal with her and her disease. she seems to keep fighting it and
won't give up she is 92 1/2 years old.
JJ
Steve...has tiger firmly by tail - 17 Jul 2007 14:33 GMT
JJ,
 You are doing great by your mother, a lesser person would have caved
in by now. I know that it takes a toll on you but you have made your
mom's later years so much better. Sometimes we have to realize that we
have done everytthing that me can and leave it to the faiths, and
sometimes we need to back off, regroup, reaccess and approach the
problem from another angle. I have a feeling that today will be better
than yesterday. You are doing your best, that is all that anyone can
do. best wishes on your journey.
Steve... wants a different hold on the tiger
Alan Meyer - 19 Jul 2007 03:17 GMT
> JJ,
>  You are doing great by your mother, a lesser person would have caved
[quoted text clipped - 6 lines]
> do. best wishes on your journey.
> Steve... wants a different hold on the tiger

That's a great way to think about this Steve.

Well said.

   Alan
Beth Cole - 17 Jul 2007 14:56 GMT
> I am really to
> throw in the towel and put her in a nursing home as it is killing me to
> try and deal with her and her disease.

This struck me the most.

Remember that you can't take care of her if you're ill.  If you are
becoming ill because you're caring for her, you need to take care of
yourself first.  If it means that you need to find respite care or a
nursing home for her, that's not a failure.  It is recognition that one
person cannot do everything without an eventual disaster.

Beth

Signature

Don't go around saying the world owes you a living. The world owes you
nothing. It was here first. ~Mark Twain

J J - 18 Jul 2007 01:57 GMT
Beth wrote:
Remember that you can't take care of her if you're ill. If you are
becoming ill because you're caring for her, you need to take care of
yourself first. If it means that you need to find respite care or a
nursing home for her, that's not a failure. It is recognition that one
person cannot do everything without an eventual disaster.

Thank you all for your support ---I am waiting to get 5 days respite in
about 21/2 weeks Hospice came out today and thinks mom is getting near
the end of her journey as she called it terminal agitation --something
they all do when when pull at their clothes and sheets and blankets.
said she wants to go home to where she is at peace and comfortable,
meaning heaven ---but I do not know mom seems to be fighting it
thanks again it helps to vent
JJ
Evelyn Ruut - 18 Jul 2007 02:14 GMT
> Beth wrote:
> Remember that you can't take care of her if you're ill. If you are
[quoted text clipped - 11 lines]
> thanks again it helps to vent
> JJ

Perhaps her doctor might be able to give her something to help her calm
down?
I hope they can.   I do know how it is, JJ.   My heart goes out to you.
Signature

Best Regards,

Evelyn

Mary_Gordon@tvo.org - 19 Jul 2007 11:27 GMT
Wellll, the hospice person may have a clue, but having been through
the last stages of AD with my MIL, and gotten literally hundreds of
letters about the same stage from my volunteer work at
allexperts......never heard of "termination agitation" in reference to
AD.

Much more typical of someone actually passing from their AD was my
MIL. Stopped walking and talking about 1.5-2 years before her death,
became totally incontinent, and from there, less and less of
everything. Agitation passed off, she moved less, slept more, and
became totally helpless and vacant, and had to be spoon fed with a lot
of coaxing and patience. Got to the point where she was propped in bed
or propped in the chair, with no attempts to get up (if you put her in
a chair without propping, she'd fall over). Started eating and
drinking less and less despite coaxing, and went into a final 6-8 week
spiral, at the end of which, she finally passed away.

The thing in is, JJ, that if your mother's overall health is poor, and
there is something significant waiting to mercifully carry her off
before the AD reaches its natural conclusion, I could see the hospice
worker's idea being plausible.  However, if her current major health
issue is the AD itself, it could literally be years before she goes.
My MIL was overall quite healthy and robust, so sadly there were no
complicating factors to help her out of the twilight zone, like a
cancer or heart condition. If she hadn't had AD, she would have died
at 9o-something instead of right before her 80th birthday.

This last part was a nightmare, given that the person has vacated
their body, but lives on, and requires very heavy care - its like
having a 120 lb newborn on your hands that needs constant care. Like
other posters, I'd strongly recommend institutional care. The last
stage is a killer for the carer trying to do it alone at home because
the person not only is totally, 100% helpless and dependent, but they
don't know who you are, you can't talk to them, there is no positive
interaction and feedback - you stop getting those moments when you get
a flicker of recognition, a smile that is meant for you, the grasp of
a hand. It just can become a brutal slog, and that is not what your
mother would have wanted for either of you. She needs you in good
shape to look out for her - she doesn't necessarily need YOU to do all
the heavy care. Your job is to love her and make sure she's well
looked after - not do it all yourself.

Mary G.
Evelyn Ruut - 17 Jul 2007 20:10 GMT
> it was the most awful day in my life. mom was so agitated about wanting
> to get up and go
[quoted text clipped - 23 lines]
> won't give up she is 92 1/2 years old.
> JJ

JJ, hang in there.   (((((((( JJ )))))))))  hugs.

First please consider.... it is no crime to put your loved one in a nursing
home.   It is VERY hard to take care of someone who is confused about
everything, argues constantly, and all the other problems associated with
it.

When a child acts irrational or difficult it is different, because you are
the adult and they are little.   With an irrational adult, it is a whole
different ballgame.   If you find it is too hard to do, or too stressful, or
it is wrecking your nerves and health, then do what you need to do for
placement.

At least get the paperwork in place, the various tests etc. so that if you
do get too burnt out, you have an option.   I do understand, believe me and
there were TWO of us taking care of my mother in law and we were both
totally burnt out by the time we finally placed her.   It took us at least 6
months to learn to live our own lives again.

The big thing about a nursing home, is that someone else is getting up with
them in the middle of the night, they are usually in a locked ward where
they can wander around all they want without getting outside, or getting
lost.   There is someone there to clean up if they wet the bed, and that
someone is NOT you.   You get to come and see them at their very best and
yours, and to bring treats, and to at last go home and get some sleep.

Signature

Best Regards,

Evelyn

Tumbleweed - 20 Jul 2007 05:52 GMT
>. I am really to
> throw in the towel and put her in a nursing home as it is killing me to
> try and deal with her and her disease. > JJ

Its not a competition where you 'lose' if she goes into a home, its just not
physically or mentally possible for someone to look after an Az sufferer
24x7, you've done the best you can, and probably, like many people, more
than you can, or should have done, because it takes its toll on you, and as
I think E said, you cant look after someone if you are ill. You know what
needs to happen.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Dennis P. Harris - 20 Jul 2007 17:36 GMT
> I will be so glad when I can get 5 days respite
> from her and I don't think I will go to see her everyday like I did
> before. this time maybe I will go twice and let myself get some rest
> away from her.

do yourself a favor.  GET OUT OF TOWN.  go somewhere else, visit
a relative, take a camping trip, but simply stay away for the
entire 5 days.

you owe it to yourself, and you cannot feel guilty.  that's not
allowed here.

checking up on her isn't respite.  getting entirely away is. JUST
DO IT.
Dennis P. Harris - 20 Jul 2007 17:54 GMT
> I am really to
> throw in the towel and put her in a nursing home as it is killing me to
> try and deal with her and her disease.

she would not want you to ruin your health caring for her, an
almost impossible task for a couple or family, not just one
person.  remember that professional carers get to go home and
leave the job behind at the end of their shift.

i echo everything evelyn said.  take that 5 days entirely away
and if you won't have time otherwise, visit homes in your area
and start submitting applications so that you can get on their
waiting lists.

make sure that you talk to an elder care attorney about
accounting and disposal of assets to ensure that there are no
medicaid problems once her funds are exhausted.
NMasters - 21 Jul 2007 19:04 GMT
> it was the most awful day in my life. mom was so agitated about wanting
> to get up and go
[quoted text clipped - 23 lines]
> won't give up she is 92 1/2 years old.
> JJ

JJ,

I know it is difficult. There is only so much you can do. Take care of
yourself. If you need to take time away for yourself, you know what
you need to recuperate. You will not be any use to yourself or your
mother if you are also sick.

NMasters
 
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