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Medical Forum / Diseases and Disorders / Alzheimer's / June 2007

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Brother.............

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June - 19 Jun 2007 19:48 GMT
Hi.....Evelyn asked me in a previous post about my brother's denial.   I
don't think he will ever realize how dementia works.   After so many years
of dealing with our mother he still doesn't get it.   I was so frustrated
with him on Sunday.   I went to my grandson's little league game and here
comes my brother with my mother in tow.   Mom is 87 now and like a 4 year
old.   The temperature was 92 degrees.   He did bring an umbrella for her
but still if she were in her right mind, she wouldn't have been there.   I
gave him the lecture about Mom's age and the temperature.  He moved her to
the shade and got her drinks and a sandwich.   He really tries to do the
right thing which is why its so hard deal with his lack of empathy for her.
Then after the game he asked her if she wanted to go to the beach with him
and my daughter's family.  I looked at him and said it's too hot for her to
go to the beach. Plus I knew he wouldn't watch her because he had his 2 jet
skis with him.   I took her back to her assisted living apartment which was
just a mile away and she didn't make it in time to go to the bathroom.   She
doesn't really understand using restrooms in strange places and in hind
sight I should have taken her even though she said she didn't need to go.
Since he doesn't understand dementia I thought maybe he would understand
incontinence. I called and told him about her mishap and that she really
doesn't always understand using the restroom.  I also told him that if he
continued to take her to public places for more than an hour, he would
probably have to deal with some messy problems.  Last week all of her slacks
and most of her underwear were in the laundry and she has many, many pairs
especially underwear.  She's starting to have incontinence problems now.
This got his attention.  He said that she would wonder off in the grocery
store and he couldn't understand why she wouldn't stay in one place when he
asked her to.   I wanted to reach thru the phone and thump him upside the
head.  Now he says that perhaps maybe he would only take her out to dinner
and to his house.   I told him that sounded like a good idea.  He's so good
about visiting her and helping with things, but he expects her to make small
decisions.  She agrees to anything he suggests which isn't always in her
best interest.  Like the baseball game and going to the beach.   She would
have gone to the beach if I hadn't been there.
I'm going on vacation for a week (tomorrow) and he's going to do her laundry
and go over to visit her a few extra days to cover the days that I usually
go over to see her.  He spends a lot of time with her which makes it harder
to understand why he doesn't get it.
Meanwhile when I get back I'm going to start checking into a another
placement where they have the two levels of care for dementia patients.
When the time comes that she can't deal with her incontinence, she can't
stay in her independent assisted living apartment.  I need to get prepared
for what's to come......June
august - 19 Jun 2007 22:32 GMT
> Hi.....Evelyn asked me in a previous post about my brother's denial.   I
> don't think he will ever realize how dementia works.   After so many years
[quoted text clipped - 40 lines]
> stay in her independent assisted living apartment.  I need to get prepared
> for what's to come......June

If he won't read and comprehend The 36 Hour Day, then maybe you should make
a one page cheat sheet list for him listing the type decisions your mother
can not make on her own and also a list of common things that he needs to be
responsible for when she is in his care (bathroom, clean clothes, fluids,
wandering, heat prostration, etc). He should not be dragging her around
everywhere he goes just because she agrees to go. This list might not work
but maybe the light will come on. We used to leave long lists with my BIL
when he was doing respite care for us and he did ok with the cheat sheets.
good luck    AW
June - 19 Jun 2007 22:41 GMT
> If he won't read and comprehend The 36 Hour Day, then maybe you should
> make a one page cheat sheet list for him listing the type decisions your
[quoted text clipped - 5 lines]
> long lists with my BIL when he was doing respite care for us and he did ok
> with the cheat sheets. good luck    AW

Well as I have posted previously, it's been almost 14 years since she was
diagnosed.   The cheat sheets might work for someone who isn't as dense as
my brother but he's so far down the denial river that I doubt that there's
any hope.  Thanks for the thought.....June
Evelyn Ruut - 19 Jun 2007 23:35 GMT
>> If he won't read and comprehend The 36 Hour Day, then maybe you should
>> make a one page cheat sheet list for him listing the type decisions your
[quoted text clipped - 10 lines]
> my brother but he's so far down the denial river that I doubt that there's
> any hope.  Thanks for the thought.....June

Hi June, it is proably well worth a try anyway :-)

The other thing is that if he is left with her in his care, he may get a
rude awakening.   Ultimately this illness gets to the point where even the
densest person has got to see there is serious impairment going on.
Although I have to admit, my aunt never did get it with her husband.

BTW, is she using depends  yet?   Sounds like it may be about time.

Signature

Best Regards,

Evelyn

Mary_Gordon@tvo.org - 21 Jun 2007 22:19 GMT
I think sons (quite understandably) have caregiving problems when mom
starts to need help dressing or toileting.

My husband would blanche entirely and flee from the room when his mom
got to the point where she lost her social inhibitions about yanking
at her underwear, hauling up her skirt, adjusting her bra etc. in
front of him. He just could NOT deal with it - even though it was like
a 3 year old who doesn't know any better than to pull their dress up
over their head while they are talking to you.

M.
 
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