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Medical Forum / Diseases and Disorders / Alzheimer's / June 2007

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intro to daycare tomorrow...

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pyrocrasticfro - 30 May 2007 01:16 GMT
My MIL has an appointment tomorrow for a 'volunteer tour and
orientation' at the adult daycare center.  Following that, she will
attend her first 4-hour trial visit then attend one day per week.  My
own tour of the center last week was wonderful, reassuring and quite
impressive.  Not one of my preconceived notions were even slightly
true.

At dinner tonight, we told my MIL that the local rehab hospital had a
kind of club for seniors who need assistance (true enough).  We said
that she has an appointment for a volunteer tour tomorrow (absolutely
true) and that she will be able to volunteer one day per week while I
continue my school (half true).  We said the volunteer job is pleasant
and easy.  She wasn't happy and immediately lost her appetite for the
rest of dinner.  She asked if there were a place to nap.  I assured
her that this place highly values their senior volunteers and they do
provide a comfortable and quiet place to nap (true).  She was silent
for several minutes then asked, "Why did you pick me?"  I honestly
answered, "Because I know you are a sweet, kind and giving person.
When I heard of this opportunity, I thought immediately of you.  They
have such a need for someone like you and I knew that you would want
to help."

I will be writing the checks for the daycare center out of my MIL's
checkbook.  She hasn't been able to manage her finances for several
years now.  But she keeps her checkbook in her purse and looks at the
ledger frequently, reading it aloud but not really understanding what
it means.  I'm sure she'll notice the checks written to the daycare
center and will ask me about it.  How have you all handled things like
this?

There is one other thing that happened this past week that I wanted to
tell you about.  My MIL brought the dog to me to take its collar off.
She was sitting directly across from me, about 6 feet away.  I called
the dog to come to me.  But my MIL, pointing toward the other room,
kept telling the dog to "Go in there, she's calling you!"  I say
"Grandma, I'm right here!  Grandma?  Grandma! Look this way!  Grandma,
I'm sitting right here in front of you!"  She looks straight at me and
makes eye contact-but seems confused.  She gets up and starts for the
other room.  I call after her, "Grandma!  Come back!  I'm right
here!"  She calls out "Where are you?"  When she finally comes back
from the other room, she sees me and I tell her again that I'm right
here.  She kind of nods-but that look of confusion remains.  It seemed
as if she looked at me but didn't see me.  She could hear my voice but
couldn't connect it with my physical body (or didn't recognize me).
This only happened once but I thought I'd mention it to get your
thoughts on it.

I'll let you know how the day goes tomorrow.  Thanks for listening...
just being able to occasionally 'tell my tale' helps immensely.
diane
Evelyn Ruut - 30 May 2007 03:17 GMT
> My MIL has an appointment tomorrow for a 'volunteer tour and
> orientation' at the adult daycare center.  Following that, she will
[quoted text clipped - 46 lines]
> just being able to occasionally 'tell my tale' helps immensely.
> diane

Oh Diane, that is such an awful feeling.   It happened to me too.

I had taken my mother in law with me in the car when I was going to visit my
dad about 100 miles south of here.   It was a nice day, hubby was busy, and
I figured that I could watch her by taking her with me.   When we got to my
fathers house she suddenly became argumentative and nasty,
uncharacteristically so.   She told me  "TAKE ME HOME... NOW!"   I suggested
that after the long ride, she might want to use the toilet.   She refused.

Finally seeing how difficult she was getting, I told her OK, we are going
home, cutting my visit very short.   When she got in the car she totally
forgot who I was.  She seemed to think I was the lady who drove the daycare
center van.   I told her who I was, and it was disregarded, or more likely
unrecognized.   When I finally got home, she asked my husband "who was that
woman?".... Peter told her that was me, and she looked at me with a blank
look.   By then I was exhausted, and he put her to bed.  The next morning
she knew who I was and was her usual self.   It was a terrible experience,
and it only happened that once, though I have heard of people who have
totally forgotten who their loved ones were.

Anyway, I am glad you are looking into daycare, and you can expect that she
will tell you she doesn't want to go.   They often do that.   I hope you
find the strength to stick to your guns about it, because it is YOU who
needs the time to yourself.   Nobody is superhuman, and caregivers are
probably the closest thing to it.   You need the time to shop, sleep, do
whatever.   I know I did.

Good luck, and do keep us appraised of how it goes
Signature

Best Regards,

Evelyn

J J - 31 May 2007 04:03 GMT
pyrocrasticfro" <oskins@bellsouth.net> wrote in message
news:1180484218.807561.81040@p77g2000hsh.googlegroups.com...

My MIL has an appointment tomorrow for a 'volunteer tour and
orientation' at the adult daycare center. Following that, she will
attend her first 4-hour trial visit then attend one day per week. My own
tour of the center last week was wonderful, reassuring and quite
impressive. Not one of my preconceived notions were even slightly true.
At dinner tonight, we told my MIL that the local rehab hospital had a
kind of club for seniors who need assistance (true enough). We said that
she has an appointment for a volunteer tour tomorrow (absolutely true)
and that she will be able to volunteer one day per week while I continue
my school (half true). We said the volunteer job is pleasant and easy.
She wasn't happy and immediately lost her appetite for the rest of
dinner. She asked if there were a place to nap. I assured her that this
place highly values their senior volunteers and they do provide a
comfortable and quiet place to nap (true). She was silent for several
minutes then asked, "Why did you pick me?" I honestly answered, "Because
I know you are a sweet, kind and giving person. When I heard of this
opportunity, I thought immediately of you. They have such a need for
someone like you and I knew that you would want to help."
I will be writing the checks for the daycare center out of my MIL's
checkbook. She hasn't been able to manage her finances for several years
now. But she keeps her checkbook in her purse and looks at the ledger
frequently, reading it aloud but not really understanding what it means.
I'm sure she'll notice the checks written to the daycare center and will
ask me about it. How have you all handled things like this?
There is one other thing that happened this past week that I wanted to
tell you about. My MIL brought the dog to me to take its collar off. She
was sitting directly across from me, about 6 feet away. I called the dog
to come to me. But my MIL, pointing toward the other room, kept telling
the dog to "Go in there, she's calling you!" I say "Grandma, I'm right
here! Grandma? Grandma! Look this way! Grandma, I'm sitting right here
in front of you!" She looks straight at me and makes eye contact-but
seems confused. She gets up and starts for the other room. I call after
her, "Grandma! Come back! I'm right here!" She calls out "Where are
you?" When she finally comes back from the other room, she sees me and I
tell her again that I'm right here. She kind of nods-but that look of
confusion remains. It seemed as if she looked at me but didn't see me.
She could hear my voice but couldn't connect it with my physical body
(or didn't recognize me). This only happened once but I thought I'd
mention it to get your thoughts on it.
I'll let you know how the day goes tomorrow. Thanks for listening...
just being able to occasionally 'tell my tale' helps immensely. diane

Diane,
my mother goes to daycare once a week, she always complains about it
---said it is boring and nothing but old people are there----I told her
I have to go to work and cannot leave her home when I cannot be there.
she said the people were nice and the food is awful!!! but I have
learned to tune it out and let her complain until next week. I need the
respite for me. Then I have volunteers from church and senior centers
that come to give me a few hrs respite during the other days.
as for check book, ID cards, ect I have them all ----she doesn't even
miss them as I pay all her bills with the checks and daycare also.
Expect her to complain but let her she will forget it until the next
time good luck.!!!!
JJ
Mary_Gordon@tvo.org - 30 May 2007 11:44 GMT
On the checkbook front - my suggestion is to give her a dummy
checkbook - one from a defunct account. Its really not a good plan for
her to walk around with actual usable checks.

We mollified my mother in law by letting her carry pieces of expired
or "fake" ID and cards in her wallet. She couldn't tell the
difference. She liked to have money as well, but we found she was just
as happy with a small bill and some coins as a larger bill. I don't
think she understood the difference between a five and a twenty
anyway.

When she's going to daycare, I wouldn't let your mother carry around
anything of significant value or anything that might be used to try
and defraud her. Also - keep an eye on jewellry etc. Think cheap
plastic rather than the real deal if she has anything nice she's in
the habit of wearing.

M
Evelyn Ruut - 30 May 2007 12:09 GMT
> On the checkbook front - my suggestion is to give her a dummy
> checkbook - one from a defunct account. Its really not a good plan for
[quoted text clipped - 14 lines]
>
> M

Omigoodness yes!  I forgot about that part.

My mother in law used to give away her jewelry at daycare, and even would
try to barter it to get someone to take her "home".... which was more than
100 miles away from here, in a house she didn't own anymore.    We kept it
up (empty) for about 3 years, but finally had to sell it.  (No miracle was
going to come along and save her from Alzheimers disease).

And Mary is right about the money too.  No matter how much money she had in
her wallet, she'd give it away too and come home with none, whether it was
$80.00 or $5.00.
Signature

Best Regards,

Evelyn

Mary_Gordon@tvo.org - 31 May 2007 00:06 GMT
True about the cash. When Dolli (my late MIL) went to her first
assisted living facility, they had a lovely tuck shop in the lobby
that sold all kinds of stuff - not just small necessities like
toiletries, but magazines, books, candies, cookies, cards, little
gifts and ornaments etc. (which, incidentally included hand knit baby
sets to die for that were made by the residents). We thought Doll
might like to get herself some treats - but we quickly observed,
whether we left her with $5 or $50 in her purse, it disappeared just
as fast, and with nothing to show for it (i.e. there was no sign she
was buying actual "stuff", and there was no way she was going through
$50 in food treats every few days). She couldn't ever remember where
it went - - in fact, she couldn't ever remember she could buy things
in the tuck shop, where in fact she could just charge to her room.

We have to conclude she was either being robbed, was giving it away,
or was hiding it somehow (which could have meant it was being put in
the garbage can). I did take her engagement ring away after I
discovered she had balled it up in kleenex and wound sticky tape
around the wad and shoved it in the bottom of the pocket in her
sweater. I've told the story here of my friend's mom who developed an
obsession with flushing the toilet, and flushed her beautiful heirloom
ring down the loo.

It was a sad day to see Doll without her ring, but surprisingly, she
gave it up willingly  - she had gotten herself worried she would lose
it, so when I told her I'd put it in the safety deposit box, she was
willing.  We took away everything of value, but made sure she had pins
and necklaces aplenty - lots of inexpensive, attractive costume
jewellry, but not the few "good" items.

Mary
Evelyn Ruut - 31 May 2007 02:27 GMT
> True about the cash. When Dolli (my late MIL) went to her first
> assisted living facility, they had a lovely tuck shop in the lobby
[quoted text clipped - 27 lines]
>
> Mary

Yes, Ida loved her costume jewelry and I made sure she had lots of it.   The
one or two good pieces she owned I gave to her beloved grandaughter.   She
never missed any of it, since she seldom wore the good stuff.   She sort of
preferred having the nice variety in her costume jewelry, and loved having
matching colors to her outfits etc.   She was quite artful in doing that.
Signature

Best Regards,

Evelyn

august - 30 May 2007 20:37 GMT
> My MIL has an appointment tomorrow for a 'volunteer tour and
> orientation' at the adult daycare center.  Following that, she will
[quoted text clipped - 25 lines]
> center and will ask me about it.  How have you all handled things like
> this?

Tell her the "truth" by saying that using checks is now obselete and that
bills are now paid with a debit card and the check register kept on the
computer. Offer to let her keep track of monetary things on her check
register if she wants. She will probably check it every couple of
weeks-months-years depending on how things are going. Do not leave any real
checks in there. Since we are with our LO 24/7 it is ok for her to keep her
own checkbook but in your case if your MIL was going to be out of your
sight, I would substitute old checks and register that could not be used.
After you repeat a few times that checks are no longer used to pay bills the
interest in a checkbook might wane. If she asks where her debit card is
located simply say that she asked you to keep track of it since using it
involved a computer and she doesn't know how to use the computer.

Don't expect her to want to stay at daycare initially. The first weeks will
be the worst until a routine is established.  good luck

AW
don - 01 Jun 2007 04:34 GMT
> Tell her the "truth" by saying that using checks is now obselete and that
> bills are now paid with a debit card and the check register kept on the
> computer.

My mother has a debit card in her purse, but she doesn't know the PIN
number.  I don't worry about her losing her purse because she won't let
go of it when she's out.
Dennis P. Harris - 02 Jun 2007 06:34 GMT
> My mother has a debit card in her purse, but she doesn't know the PIN
> number.  I don't worry about her losing her purse because she won't let
> go of it when she's out.

NOT a good idea if it's an active account!  thieves would try to
use it as a credit card (signature instead of PIN number) at a
retailer that doesn't have PIN pads on their card machines.
Dennis P. Harris - 31 May 2007 04:43 GMT
> But she keeps her checkbook in her purse and looks at the
> ledger frequently, reading it aloud but not really understanding what
> it means.  I'm sure she'll notice the checks written to the daycare
> center and will ask me about it.  How have you all handled things like
> this?

let her have the dead checkbook, because you are going to close
the account and void all the remaining checks.  for all you know,
she could happily hand the book over to someone who loves to take
advantage of folks like her.

open a different account.  she is at the point where she doesn't
need to be bothered by all those confusing details, so DON'T
BOTHER HER WITH THEM.  she will soon forget about her finances.

really, it's a kindness to simplify her life by just taking care
of all the details and not bothering her with them, since she
won't remember them anyway.

that goes for informing her in advance about anything you're
going to do together.  it's makes things easiest for AD folks if
they only have to think about what they're doing right now, or at
the most what they will be doing next, but only when next is
imminent.

that's especially true for doing things they may not like or may
avoid, whether it's bathing (where sensory overload and
sequential steps are the problems), doctor visits, or going to
day care.

life, as you will find out, is much simpler when you don't tell
them they will be going somewhere or doing something until it's
time to get ready to do it.
J J - 31 May 2007 14:22 GMT
Wed, May 30, 2007, 7:43pm (PDT-1) From: NO_SPAM_TO_dpharris@gci.net
(Dennis P. Harris)

that's especially true for doing things they may not like or may avoid,
whether it's bathing (where sensory overload and sequential steps are
the problems), doctor visits, or going to day care.
life, as you will find out, is much simpler when you don't tell them
they will be going somewhere or doing something until it's time to get
ready to do it.

Amen to that !!!! I finally learned the hard way, now I don't tell her
anything any more until the last min--I would tell her we are going to
get her hair done which is true !!! the day care has a hair dresser
there so she gets her hair done, or I have been letting her caregiver
take her for me as mom complains if I am to drop her off, seems like she
won't say any thing to a stranger. so she goes without complaining. I
just hear about it when I pick her up. Then I tell her I was at work all
day.
pyrocrasticfro - 01 Jun 2007 04:03 GMT
Thanks so very much Evelyn, Mary, AW, Dennis, JJ
You know I don't even know you guys but I'm beginning to view you as a
"Board of Wisdom".  The dead checkbook and ledger is such a smart
idea!  And I guess because she lives with us, I didn't consider her
giving away her money or turning over her checkbook to someone
else....but boy I can easily see that happening now.  Interesting you
should mention giving away valuables--I did spot one of her very nice
heirloom tea sets at her friends house (nice lady, 94 and blind).  And
we also can't find her set of autographed books by Fulton Sheen.
Anyway, we had some good, alot of bad, alot of....oh what's that term
from "The 36-Hour Day"?...catastrophic reactions.  But any imagined
honeymoon about her going to daycare happily and willingly is
over.....I'm too emotionally drained and physically pooped to write
about it now.  Stay tuned....
diane
Evelyn Ruut - 01 Jun 2007 15:36 GMT
> Thanks so very much Evelyn, Mary, AW, Dennis, JJ
> You know I don't even know you guys but I'm beginning to view you as a
[quoted text clipped - 11 lines]
> about it now.  Stay tuned....
> diane

Hang in there Diane.   I do understand how it is.   Both my husband and I
were totally burnt out for amost 4 years.   It took us a good 6 mos. to get
our own lives back to normal after she was placed in a nursing home.
Caregiver burnout is very real.

Signature

Best Regards,

Evelyn

 
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