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Medical Forum / Diseases and Disorders / Alzheimer's / May 2007

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when your mom says she wants to live with you but doesn't

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conezfashionblends@hotmail.com - 12 May 2007 13:49 GMT
my mom is from california and i have lived in Hawaii for over 20
years.. we got along but always had our problems, she never agreed
totally how i lived my life.
as the past five years have progressed she has had many problems and
now has been diagnosed with Alzheimerslewy disease.
she called me from calif. and wanted to live with me as she needs more
care. She knew my circumstances in my household that i baby sit my
four grandchildren during the day, but that my husband and i are the
only ones actually living in our house. Our four children have moved
out. Yet it can be very busy, she still insisted that she would like
to come live with me.
Now she insists I told her to come live with me and its very difficult
because my house is so busy. I tell her she knew that yet she says she
never knew.
I have four other siblings but none are in the position to care for
her. I have an oldest sister that has left the family, and carries a
hate for my mother and won't even speak to her.  When the doctors ask
her where she wants to live she brings up the missing daughter, I know
deep down she thought that is who she wanted to live with. But it will
never be.
She knows I am the only one who will take care of her and sometimes is
so appreciative and then complains how she doesn"t like being here.
Is this normal or should i tell her to make a decision as to what she
wants, however the only other choice she has is a nursing home? And is
she really capable of making this decision?
She needs 24 care, but is really unhappy because she hates where her
life has ended up. She used to be so active and self sufficient.
I guess becides the above questions, i would like to know is this how
it is they are just sometimes happy where they are and sometimes not.
And what do i do when she complains so intently about living here, but
she was just as unhappy where she was in Calif.
I hope this all makes sense what i am saying, I just need to talk to
someone who is in the same position.

thanks
connie in hawaii
Tumbleweed - 12 May 2007 16:43 GMT
> my mom is from california and i have lived in Hawaii for over 20
> years.. we got along but always had our problems, she never agreed
[quoted text clipped - 10 lines]
> because my house is so busy. I tell her she knew that yet she says she
> never knew.
<snip>
> And what do i do when she complains so intently about living here, but
> she was just as unhappy where she was in Calif.
[quoted text clipped - 3 lines]
> thanks
> connie in hawaii

many here have been in this or similar positions :-(

Your mother has a damaged brain, so its not at all unlikely she really
believes the things she is saying. There really is no point arguing with
her, even if you convince here she is wriong, 5 minutes later she'll have
forgotten that, and be back to where she was :-)

Bottom line is, yes you can care for your mother but be aware its truly 24
hour care, no time off, day or night, no holidays, no time to yourslef, and
that at some point it will become too much even for two people and she will
_have_ to go into a home. How far off that point is is impossible to say, it
could be a year it could be 10. Also, she may come to stay with you, and you
may then find that in fact she wants/demands to go back to her home in
california and wont take no for an answer, and may not settle at all, she
may even ask why she is there and say she didnt ask to go! Almost anything
is possible with this cursed condition.

The only thing that is certain, is that things will get worse, MUCH worse,
and you have to act to do something very soon;
take her in yourself (you'll have to go get her),
or put her in care.
Leaving here where she is wont be an option for much longer.

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Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

June - 12 May 2007 18:35 GMT
> my mom is from california and i have lived in Hawaii for over 20
> years.. we got along but always had our problems, she never agreed
[quoted text clipped - 32 lines]
> thanks
> connie in hawaii

Hi Connie.....After reading your post I know that you are not prepared to
take care of your mother and quite frankly probably won't ever be able to.
Talk to your siblings and find a place for your mother.   Preferably an
Alzheimer's unit.   Most have two levels of care.   One for when the patient
is still somewhat cognizant of things and the other for when things get
really bad.  Someone needs to get  Durable Power of Attorney and/or consult
an elder care attorney about your options.  I didn't always get along with
my Mom but really most parents do the best they know how.  Your mother can
no longer make decisions for herself.  Repeat this to yourself until you
believe it because it's true.   I'm sure others will have more good advice.
It's a rough time for you but the sooner you resolve this issue, the better
for your mother and for you.....June
sweetpickleNO@SPAMknology.net - 12 May 2007 19:25 GMT
Connie, you have been given good advice.  Your mother's brain is damaged and
she is not responsible for all the things she says and does.  It is never
advisable to argue with her because she lives in her own reality, she cannot
live in yours (the real world).  My advice is to find a place for her as
soon as possible in an area where your siblings will be able to visit her
and keep up with what is going on.  She is not capable of making a decision;
she is more like a two year old than an adult.  Do what you need to do, and
keeping 4 children during the day is not the place for her.  Noise and
activity make alzheimers patients very nervous.  And please, never, ever
feel guilty for whatever you have to do.  Guilt is actually not allowed on
this newsgroup!!!  Let us know how things go.
Gwen

>> my mom is from california and i have lived in Hawaii for over 20
>> years.. we got along but always had our problems, she never agreed
[quoted text clipped - 45 lines]
> have more good advice. It's a rough time for you but the sooner you
> resolve this issue, the better for your mother and for you.....June
Alan Meyer - 12 May 2007 21:31 GMT
Connie,

I agree with what others have said.

I assume from my reading of your posting that your Mom
is already in Hawaii and living with you - though maybe I've
got that wrong.

All of us in this group have been through this sort of thing.
The situation is difficult to start with, and gradually gets
worse and worse.  The strain builds up and everyone
suffers.  Soon you begin to feel trapped in a hopeless
situation.

The way out, I think, is to plan to move your Mom into
assisted living (AL) - assuming that is possible.  If your Mom
doesn't have enough money to pay for it, then you
probably need to discuss the situation with your siblings
to find out if there is some way to collectively handle the
load.

If your Mom moves into AL in Hawaii, it won't end the
burden on you, but it will make things vastly easier.  If
you can find a good place, it will also be easier on your
Mom.  She will find some same-age companionship
and some group activities that may appeal to her.  You'll
still be able to visit her often, bring her home for
occasional dinners with family, or take her out on various
outings.  But you won't have the continuous drain of
of having another person in your home with whom you
don't see eye to eye, but whom you must placate and
provide with ever increasing amounts of care.

As June suggested, look for a place with two levels of
care - one for high functioning residents and one for
those needing more care.  High functioning AL units
can be very attractive - almost like hotels.

Be prepared to use whatever persuasion or even trickery
it requires to win your Mom's assent to the move.  It
feels wrong to trick your Mom into something but we've
all been there and we can all guarantee you that it is
much worse to do what you know is wrong for her, for
yourself, for your husband, and for the rest of your family
just because she is unable to cope with the decision.

Best of luck to you and don't hesitate to relate your
experiences or ask questions here.

    Alan
Evelyn Ruut - 12 May 2007 22:00 GMT
> my mom is from california and i have lived in Hawaii for over 20
> years.. we got along but always had our problems, she never agreed
[quoted text clipped - 32 lines]
> thanks
> connie in hawaii

Hi Connie,

In reading what the others have said, I can only concur.  You have gotten
some excellent advice.

It sounds as though she is already living with you, is that correct?   Check
with your local office of the aging to see if they have any daycare programs
or other activity groups for elderly people with alzheimers in your area.
It was a big help to us to send my mother in law to daycare during weekdays.

Please don't take anything to heart that she says.  She isn't really capable
of thinking things out for herself anymore.   Her reality may have nothing
to do with what is going on in the real world.

As others have suggested, you may want to look into what facilities are
available in your area.    It only goes downhill you know.   Don't want to
make it sound worse than it is, but it is the truth.

Signature

Best Regards,

Evelyn

sweetpickleNO@SPAMknology.net - 13 May 2007 18:42 GMT
She said her mother called her from California.
Gwen

>> my mom is from california and i have lived in Hawaii for over 20
>> years.. we got along but always had our problems, she never agreed
[quoted text clipped - 51 lines]
> available in your area.    It only goes downhill you know.   Don't want to
> make it sound worse than it is, but it is the truth.
 
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