My Grandmother is in Assisted Living in Florida & I'm in PA. The Doc ordered
her to move out of AL & into a Nursing Home because she can't swallow with
out someone sitting there to tell her to swallow twice. I'm somewhat miffed
I thought AL would help in those cases. My neighbors father lived there as
well & wasn't eating in the same AL place & died a month later. I'm
confused.
Norm, I know you are upset, but most assisted living places have
limits on the care they provide. The rules vary.
The first one my mother in law was in was not secure, so they expected
the residents to be oriented, not be at risk for wandering, be
ambulatory, able to tell time, be continent etc. They offered
assistance with bathing, and dressing.
When that wasn't enough, mother in law had to go to a special
Alzheimer's unit. They offered more help - it was a locked ward, could
deal with incontinence. However, they expected the person to be
amulatory, and able to eat on their own. They would give a person lots
of extra time, prepare soft foods, and even coax the person - but they
just weren't staffed to deal with someone who needed complete hand
feeding and supervision to prevent choking.
When my mother in law stopped walking, she had to move to the heavy
care floor - essentially the "nursing home" section. They were
equipped to deal with people who were totally dependent and could do
almost nothing for themselves - special equipment, specially trained
staff, and a higher staff to resident ratio.
Your grandmother is at the point where the place she is now really
can't provide the care she needs to stay well and safe. Losing the
ability to chew and swallow properly is part of the disease. Be glad
the assisted living facility staff know their limits.
A dear friend lost her mother who was in mid to later AD - she was on
a soft diet and she was being hand fed. The person feeding her was not
paying close attention, and my friend's mother was chipmonking - just
keeping the food in her mouth and not swallowing - and then she
aspirated the food, and died before help could get there. She was
killed by banana pudding. So the problems your grandmother are having
ARE potentially a real problem, and its better to go somewhere really
equipped to look after her, than to stay where she is now.
M
Norm³ - 21 Apr 2007 02:21 GMT
She is in perfect health otherwise.
> Norm, I know you are upset, but most assisted living places have
> limits on the care they provide. The rules vary.
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>
> M
Mary_Gordon@tvo.org - 22 Apr 2007 01:26 GMT
My mother in law was in perfect physical health as well - no chronic
illness, all her organs working just fine, good heart, good lungs,
just peachy. Being physically well didn't mean the dementia caused her
to need more and more care - the dementia itself causes physical
decline. If she hadn't had Alzheimer's, I'm sure she'd still be with
us.
When she lost her ability to walk, it wasn't from anything other than
the AD - i.e. there wasn't anything wrong with her legs. Its not like
she lost a limb or had a spinal cord injury, or had some arthritic
thing seizing up the joints, or a circulation problem. It was that her
brain just couldn't coordinate the purposeful movement needed to
balance and walk.
I know this is frustrating since it is very, very hard to really "get"
the full implications of progressive brain damage. It isn't just about
memory.
M
LJ - 22 Apr 2007 14:15 GMT
Before my husband was diagnosed I thought Alzheimer's was just a "memory"
problem. Boy have I had a steep learning curve hahaha He already has one leg
that sometimes won't listen when he wants to move it. So far it is a rare
problem but I know it will increase. I am already looking a wheelchairs on
ebay
Linda
> My mother in law was in perfect physical health as well - no chronic
> illness, all her organs working just fine, good heart, good lungs,
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>
> M
SJF - 22 Apr 2007 22:13 GMT
> Before my husband was diagnosed I thought Alzheimer's was just a "memory"
> problem. Boy have I had a steep learning curve hahaha He already has one
> leg that sometimes won't listen when he wants to move it. So far it is a
> rare problem but I know it will increase. I am already looking a
> wheelchairs on ebay
I bought one here. Good chair, fits through normal residential doors. The
price was better when I bought it.
SJF
SJF - 23 Apr 2007 03:59 GMT
>> Before my husband was diagnosed I thought Alzheimer's was just a "memory"
>> problem. Boy have I had a steep learning curve hahaha He already has one
[quoted text clipped - 6 lines]
>
> SJF
SJF - 23 Apr 2007 04:13 GMT
>> Before my husband was diagnosed I thought Alzheimer's was just a "memory"
>> problem. Boy have I had a steep learning curve hahaha He already has one
[quoted text clipped - 6 lines]
>
> SJF
Sorry about that.
http://search.harborfreight.com/cpisearch/web/search.do?keyword=wheelchair
The large wheeled job is best for someone with good arms who can move
themselves about. Also it rolls better over carpets. The small wheeled job
is usually called a transporter and is usually better for moving a person
who cannot move themselves. It is much lighter and more compact. Works
good around the house and is especially advantageous when you take the
person somewhere in the car -- folds easily into the trunk and is more
compact in restaurants and other public areas.
SJF
LJ - 23 Apr 2007 14:35 GMT
thanks for the tips. I doubt he would be able to move himself for long
Linda
>>> Before my husband was diagnosed I thought Alzheimer's was just a
>>> "memory" problem. Boy have I had a steep learning curve hahaha He
[quoted text clipped - 20 lines]
>
> SJF
Adelle - 24 Apr 2007 18:10 GMT
>>> Before my husband was diagnosed I thought Alzheimer's was just a
>>> "memory" problem. Boy have I had a steep learning curve hahaha He
[quoted text clipped - 20 lines]
>
> SJF
One last thought.
We rented a wheelchair for my Mom's visit last week and also used one a
friend had bought for their (now late-) mother. Both had large wheels (also
smoother on sidewalks, over thresholds, etc.). My mom said there was a huge
difference in comfort between the two, with the rental having a slightly
wider and better padded seat. But that small difference was also the
difference between her being in pain from sitting and not being in pain.
Adelle
LJ - 24 Apr 2007 20:14 GMT
Now that aspect I hadn't thought of. Thanks, how large a woman is she? My
husband is kinda thin so a wider seat might not matter ?
Linda
> One last thought.
>
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>
> Adelle
Adelle - 24 Apr 2007 22:24 GMT
My Mom is about 5'2" now and wears a size 16. The issue was a woman's
broader hips and leg pains from the seat being uncomfortable and putting
pressure on nerves (the seat of the rental had more padding, but was still
less than one half inch thick). And the rental wasn't designated as a 'wide'
chair for heavier people. It's just the purchased one was narrower than the
rental (and maybe more than typical - I don't know).
My guess is there are 'economy' models and more expensive models; a 'you get
what you pay for' thing. Our experience shows that there are some small
differences in the chairs that make ones at the bottom of the price
structure to be less desirable if the person is going to be sitting in it
for a length of time, as opposed to just being transported from house to
car.
Adelle
> Now that aspect I hadn't thought of. Thanks, how large a woman is she? My
> husband is kinda thin so a wider seat might not matter ?
[quoted text clipped - 11 lines]
>>
>> Adelle
Evelyn Ruut - 25 Apr 2007 01:06 GMT
> My Mom is about 5'2" now and wears a size 16. The issue was a woman's
> broader hips and leg pains from the seat being uncomfortable and putting
[quoted text clipped - 11 lines]
>
> Adelle
Couldn't you buy a thick foam pad or something?
Evelyn
Adelle - 25 Apr 2007 02:18 GMT
>> My Mom is about 5'2" now and wears a size 16. The issue was a woman's
>> broader hips and leg pains from the seat being uncomfortable and putting
[quoted text clipped - 13 lines]
>
> Couldn't you buy a thick foam pad or something?
Thanks for the suggestion. Not necessary for us. But certainly something LJ
will want to consider what is most cost effective. My first thought was that
an additional foam pad might be hard to launder if there are toileting
issues.
Adelle
Evelyn Ruut - 25 Apr 2007 14:20 GMT
>>> My Mom is about 5'2" now and wears a size 16. The issue was a woman's
>>> broader hips and leg pains from the seat being uncomfortable and putting
[quoted text clipped - 20 lines]
>
> Adelle
Hi Adelle,
They do sell waterproof pads for wheelchairs. Also washable fleece ones.

Signature
Best Regards,
Evelyn
LJ - 25 Apr 2007 14:20 GMT
thank you for the advice. You have helped me.
Linda
> My Mom is about 5'2" now and wears a size 16. The issue was a woman's
> broader hips and leg pains from the seat being uncomfortable and putting
[quoted text clipped - 27 lines]
>>>
>>> Adelle
LJ - 21 Apr 2007 16:50 GMT
Hello,
Do I understand correctly that choking can be a problem mid stage? My
husband is 57 and about stage 5. In the last couple of months he has had
choking problems with liquids.
Linda
> A dear friend lost her mother who was in mid to later AD - she was on
> a soft diet and she was being hand fed. The person feeding her was not
[quoted text clipped - 6 lines]
>
> M
Evelyn Ruut - 21 Apr 2007 17:59 GMT
> Hello,
> Do I understand correctly that choking can be a problem mid stage? My
> husband is 57 and about stage 5. In the last couple of months he has had
> choking problems with liquids.
> Linda
Try giving him liquids through a straw. It might help that a little.

Signature
Best Regards,
Evelyn
>> A dear friend lost her mother who was in mid to later AD - she was on
>> a soft diet and she was being hand fed. The person feeding her was not
[quoted text clipped - 6 lines]
>>
>> M
LJ - 21 Apr 2007 19:08 GMT
thank you for the thought but he is only using straws and it just seems to
happen.
Linda
> Try giving him liquids through a straw. It might help that a little.
>
[quoted text clipped - 8 lines]
>>>
>>> M
Evelyn Ruut - 21 Apr 2007 20:40 GMT
> thank you for the thought but he is only using straws and it just seems to
> happen.
>
> Linda
In nursing homes they have some kind of a thickener so that the liquids are
less inclined to cause choking. Not sure about it, maybe someone else here
may have knowledge to share on it.

Signature
Best Regards,
Evelyn
>> Try giving him liquids through a straw. It might help that a little.
>>
[quoted text clipped - 8 lines]
>>>>
>>>> M
sweetpickleNO@SPAMknology.net - 21 Apr 2007 23:44 GMT
About the last two months before Grayson died, thickner was added to any
liquid he had to drink.
Gwen
>> thank you for the thought but he is only using straws and it just seems
>> to happen.
[quoted text clipped - 17 lines]
>>>>>
>>>>> M
LJ - 22 Apr 2007 14:15 GMT
so for you it only happened near the end?
Linda
> About the last two months before Grayson died, thickner was added to any
> liquid he had to drink.
[quoted text clipped - 22 lines]
>>>>>>
>>>>>> M
LJ - 22 Apr 2007 14:15 GMT
thanks for the help. I had thought choking was an end stage symptom but
looks like I might be wrong ;-)
Linda
>> thank you for the thought but he is only using straws and it just seems
>> to happen.
[quoted text clipped - 17 lines]
>>>>>
>>>>> M
Mary_Gordon@tvo.org - 22 Apr 2007 01:15 GMT
Yup, in the later stages many people develop problems with chewing and
swallowing. Its called dysphagia. They have problems manipulating food
in the their mouths. Mixed textures can be a real problem (i.e. cereal
with solid bits and liquid milk). Thin liquids are also a problem.
They make thickeners like this one for this very reason
http://www.thickitretail.com/nutrition-thickit.html (there are others
out there)
You can use these products to make hot or cold thin liquids the
consistency of apricot juice, like honey, or as thick as pudding.
Dysphagia doesn't only cause choking - it can cause aspiration
pneumonia.
Nasty.
M
LJ - 22 Apr 2007 14:15 GMT
thank you so much for the link. The first time it happened I just figured it
was a normal thing but now that it has happened a couple of times I am
getting worried.
Linda
> Yup, in the later stages many people develop problems with chewing and
> swallowing. Its called dysphagia. They have problems manipulating food
[quoted text clipped - 10 lines]
>
> M