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Medical Forum / Diseases and Disorders / Alzheimer's / April 2007

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Last stage

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megthered - 12 Apr 2007 03:15 GMT
How long does the last stage of Alzheimer's last. My mother can't
speak, she hasn't been able to walk for about a year, her arms and
legs have become rigid, she is having trouble sitting up, she is
incontinent. This has lasted about 6 months so far, and I don't know
how much longer my dad can hold up. She is in a lovely Alzheimer's
home, but he goes to see her every day and cries on the way home. He
lives with me, and I have been making sure he eats and sleeps, but
this is wearing him out. About how much longer will it be, at least an
average. I will need to prepare him because he refuses to believe
anything bad will happen.

Thank you for any information.

Megthered
don - 12 Apr 2007 03:40 GMT
> How long does the last stage of Alzheimer's last.

I'm sure there's no easy answer to that.  Many don't last as long as
your mother has, and some live for a year or two.  Her doctor would be
the best person to ask.
Beth Cole - 12 Apr 2007 14:07 GMT
>> How long does the last stage of Alzheimer's last.
>
> I'm sure there's no easy answer to that.  Many don't last as long as
> your mother has, and some live for a year or two.  Her doctor would be
> the best person to ask.

In the worst case, it may last several years.  We're now at almost 3
years in that stage, and my MIL is physically healthier than she was then.

Beth

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don - 12 Apr 2007 15:27 GMT
> In the worst case, it may last several years.  We're now at almost 3
> years in that stage, and my MIL is physically healthier than she was then.

Before dementia set in, my mother was suffering from congestive heart
failure and migraines.  Now that her mind is going, the heart condition
and migraines have disappeared completely.  My biggest fear for years
was that her next heart seizure would kill her, and now, I'm more
worried that she'll live for years in a state of complete confusion.
Chuck Whealton - 13 Apr 2007 01:03 GMT
> How long does the last stage of Alzheimer's last. My mother can't
> speak, she hasn't been able to walk for about a year, her arms and
[quoted text clipped - 10 lines]
>
> Megthered

Meg:

It varies for everybody.  As another poster mentioned, it may be best
to ask her Doctor.  My Aunt could barely talk the last time I went to
visit her and while I was there on vacation, she slipped into a coma
and died a week later.  That quick.  Yet your Mother has lasted in a
state where she can't even talk for 6 months.  It's always different.

I had a colleague who's Father was in the same boat as yours.
Visiting his Wife in the home she was in every day.  She didn't even
know him for the last several years.  It's a no-win situation, that's
for sure.  I know you don't blame your Father for being so upset.
It's gotta be horrible for him to see this happening to the woman he
loves, and not be able to help.

At least you're there for your Father, and that's what matters because
that all anybody can do.

Charles R. Whealton
Charles Whealton @ pleasedontspam.com
don - 13 Apr 2007 02:05 GMT
> I had a colleague who's Father was in the same boat as yours.
> Visiting his Wife in the home she was in every day.  She didn't even
> know him for the last several years.

If it's so hard on the spouse, is it wise to take them to visit every
day?  Or would it be just impossible to convince them to skip a few days
even though their husband or wife doesn't even recognize them or is in a
coma?
Evelyn Ruut - 13 Apr 2007 02:48 GMT
>> I had a colleague who's Father was in the same boat as yours.
>> Visiting his Wife in the home she was in every day.  She didn't even
[quoted text clipped - 4 lines]
> even though their husband or wife doesn't even recognize them or is in a
> coma?

A good reason to visit regularly is to keep an eye on how they are being
treated.

Also, never forget the fact that though they have forgotten who you are, you
haven't forgotten who THEY are.

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Best Regards,

Evelyn

don - 13 Apr 2007 03:38 GMT
> A good reason to visit regularly is to keep an eye on how they are being
> treated.

That makes sense, of course, but does it really matter if it's every
day, every other day, or once or twice a week?

> Also, never forget the fact that though they have forgotten who you are, you
> haven't forgotten who THEY are.

I was just thinking of the spouses crying on the way home each day.  It
seems like it would be more healthy for them not to visit every single
day.  I'd think they'd be better off learning to live without their
spouse.  Otherwise, what are they going to do when the spouse dies?
Evelyn Ruut - 13 Apr 2007 12:42 GMT
>> A good reason to visit regularly is to keep an eye on how they are being
>> treated.
[quoted text clipped - 10 lines]
> day.  I'd think they'd be better off learning to live without their
> spouse.  Otherwise, what are they going to do when the spouse dies?

Ah but that is another issue altogether.   Avoidance of pain might be a good
cause to limit ones visits, but it would probably be a lot wiser to
understand that some things in life are inevitable, and that finding some
way to deal with them would be a good thing to do.

Buddha said that "Everything that is born, also dies.  Everything that
begins, also ends, and that change is the nature of our existence"

Dealing with loss is a tough one.   I have no idea how I will react if I end
up living longer than my husband, or how he will react if he lives longer
than I do.   But it is as sure as can be that one of us will end up dying
first leaving the other alone.

Rather than moan about it, I am going to live life to the fullest and take
each day as it comes.   If he (or I) develop a disease like alzheimers, we
will work with it the best we can.   I don't say that crying is wrong, but
it solves nothing.   Crying every day won't fix it.    You need to find a
way to just cut the emotions that are destructive, and remember that life is
for the living, and proceed the best you can.

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Best Regards,

Evelyn

sweetpickleNO@SPAMknology.net - 13 Apr 2007 17:00 GMT
Don, I agree with you.  Right now it is harder on the husband than it is on
the patient, and though the patient forgets things, the husband probably
does not.  My husband's neurologist always told me to look after myself
first.  I think in this case, it would be better too look after the husband
first.  I went to see my husband almost every day when he was in the nursing
home but I didn't cry all the way home.  I did my crying while he was there
so I didn't cry when I knew he had passed on, but God helped me to always be
cheerful and strong when I went to see him.  Only one time did I become
upset while trying to feed him, and asked the attendant to feed him and I
went home.  I think that two or three times a week would be good for him to
go, but others should see him more often.
Gwen

>> A good reason to visit regularly is to keep an eye on how they are being
>> treated.
[quoted text clipped - 10 lines]
> day.  I'd think they'd be better off learning to live without their
> spouse.  Otherwise, what are they going to do when the spouse dies?
Dennis P. Harris - 14 Apr 2007 05:09 GMT
> This has lasted about 6 months so far, and I don't know
> how much longer my dad can hold up. She is in a lovely Alzheimer's
[quoted text clipped - 3 lines]
> average. I will need to prepare him because he refuses to believe
> anything bad will happen.

Call your local hospice and talk to a grief counselor to set up
an appointment for your father.  Your whole family needs help in
dealing with grieving, and they are set up to do that.  Many AD
caregivers have found them very helpful.

Hospice services are usually free or have a nominal income-based
fee, or can be billed to Medicare if the patient is terminal.  If
your mother starts to fail, they can help by providing nurse
visits as well as volunteer caregivers, helpers, and counselors.

Just check your Yellow Pages for "Hospice" or ask your doctor or
pastor.
megthered - 20 Apr 2007 03:10 GMT
mom has been in hospice care for about a year now. The home she is in
provides hospice care and social workers and special hospice nurses for the
AD patients.

I have thought about limiting my dad's visits, but that is impossible. Some
days he goes later, maybe just for lunch. Other days he wants to be there
early and stay all day.

>> This has lasted about 6 months so far, and I don't know
>> how much longer my dad can hold up. She is in a lovely Alzheimer's
[quoted text clipped - 16 lines]
> Just check your Yellow Pages for "Hospice" or ask your doctor or
> pastor.
Dennis P. Harris - 20 Apr 2007 05:42 GMT
> I have thought about limiting my dad's visits, but that is impossible. Some
> days he goes later, maybe just for lunch. Other days he wants to be there
> early and stay all day.

I will only repeat this once:  call Hospice and discuss this with
a grief counselor.  This is not normal behavior, and he needs
help.
japhe2006@gmail.com - 20 Apr 2007 11:51 GMT
An alternative view is to consider what will he regret more after your
mother passes -  spending as much time as possible with his wife or
limiting his visits to keep others' happy?

> On Thu, 19 Apr 2007 22:10:31 -0400 in alt.support.alzheimers,
>
[quoted text clipped - 5 lines]
> a grief counselor.  This is not normal behavior, and he needs
> help.
J J - 20 Apr 2007 21:30 GMT
An alternative view is to consider what will he regret more after your
mother passes - spending as much time as possible with his wife or
limiting his visits to keep others' happy?

I agree!!!! your father is already grieving the loss of his wife, just
as I am with my mother. so when it does happen I know in my heart and
same with your father that there will be no regrets on how much he was
there for her. JMO let the man do what makes him happy even if he does
cry it is his grieving that is coming out. But also ----in his own way
he is not abandoning his wife and still making him feel better inside
that he is still there for her.
JJ
Tumbleweed - 20 Apr 2007 16:05 GMT
>> I have thought about limiting my dad's visits, but that is impossible.
>> Some
[quoted text clipped - 4 lines]
> a grief counselor.  This is not normal behavior, and he needs
> help.

I disagree, I know someone who visits his wife every single day at the home
(its the same home my father is in).

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Tumbleweed

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Dennis P. Harris - 21 Apr 2007 05:05 GMT
> I disagree, I know someone who visits his wife every single day at the home
> (its the same home my father is in).

There is a difference between visiting daily (or even more than
once a day) and doing as the OP says he is, which is spending
every waking hour there.  I don't think that's healthy, mentally
or physically.  I believe that Hospice grief counseling might
help him through this crisis.
Tumbleweed - 21 Apr 2007 21:35 GMT
>> I disagree, I know someone who visits his wife every single day at the
>> home
[quoted text clipped - 5 lines]
> or physically.  I believe that Hospice grief counseling might
> help him through this crisis.

I didnt pick that up. certainly, even if he wants to do that, counselling
cant hurt.

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Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 20 Apr 2007 12:19 GMT
> mom has been in hospice care for about a year now. The home she is in
> provides hospice care and social workers and special hospice nurses for
[quoted text clipped - 3 lines]
> Some days he goes later, maybe just for lunch. Other days he wants to be
> there early and stay all day.

Let him do what he wants.   It is his wife and he is her husband.   He is
completing a process and probably needs to do what he does.   IMHO, it harms
no one.   Perhaps he just wants to see the whole thing through to its
natural conclusion and regards it as his duty?   If you tried restricting
his visits you would be seen as a villain of some kind.   It might be cruel
not to let him do what he wants with this.   I say it is wiser and kinder to
let him do what he wants in this instance.

Signature

Best Regards,

Evelyn

>>> This has lasted about 6 months so far, and I don't know
>>> how much longer my dad can hold up. She is in a lovely Alzheimer's
[quoted text clipped - 16 lines]
>> Just check your Yellow Pages for "Hospice" or ask your doctor or
>> pastor.
 
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