Alan,

The alzheimer association is just made up of people like you are talking to
right here.   I know just from reading here for a couple of years, that it
isn't a bit uncommon, in fact it is common enough that it just could be part
of the deterioration of the brain that happens in this particular illness.

Also, not every person has the same symptoms you know, and not every person
gets this particular one.   My mother in law did not experience it, though
she did have urinary incontinence for several years.

The best bet would be to talk to her doctor, but again, I would draw the
line if any fancy testing was suggested, for reasons I already mentioned.

Here are the stages of Alzheimers. Not everyone's course follows the
description exactly (i.e. some people seem to straddle various stages,
having characteristics of more than one, and holding on to some
abilities longer than others). I've been answering Alzheimer's
questions for allexperts for many years, and everyone who survives
long enough to get into the later stages becomes incontintinent. its
just reality. They lose their ability to recognize what the sensation
of having to "go" means, as well as any understanding of what a toilet
is for and how to use it.

In 1982 Dr. Barry Reisberg published what was to become the best and
most widely accepted
description of the stages of Alzheimer's disease. Even today, years
later, when experts referto a person being in stage 5 or stage 6, they
are referring to Dr. Reisberg's scale of seven stages.

Adapted from Reisberg, B., Ferris, S.H., Leon, J.J. & Crook, T. The
global deterioration scale for the assessment of primary degenerative
dementia. American Journal of Psychiatry, 1982

Level 1

No cognitive decline - (or Normal Adult). No subjective complaints of
memory deficit. No memory deficit evident on clinical interviews.

Level 2
Very mild cognitive decline (forgetfulness or normal older adult).
Subjective complaints of memory deficit, most frequently in the
following area:
(a) forgetting where one has placed familiar objects;
(b) forgetting names on formerly knew well.
No objective evidence of memory deficit on clinical interview. No
objective deficits in employment or social situations. Appropriate
concern regarding symptoms.

Level 3
Mild cognitive decline (early confusional or Early AD). Earliest clear-
cut deficits. Manifestations in more than one of the following areas:
(a) patient may have gotten lost when traveling to an unfamiliar
location;
(b) co-workers become aware of patient's relatively low performance;
(c) word and name finding deficit becomes evident to intimates;
(d) patient may read a passage of a book and retain relatively little
material;
(e) patient may demonstrate decreased facility in remembering names
upon introduction to new people;
(f) patient may have lost or misplaced an object of value;
(g) concentration deficit may be evident on clinical testing.
Objective evidence of memory deficit obtained only with an intensive
interview. Denial begins to become manifest in patient. Mild to
moderate anxiety accompanies symptoms.Deficits noticed in demanding
employment situations.

Level 4
Moderate cognitive decline (Late Confusional or Mild AD). Clear-cut
deficit on careful clinical interview. Deficit manifest in following
areas:
(a) decreased knowledge of current and recent events;
(b) may exhibit some deficit in memory of one's personal history;
(c) concentration deficit elicited on serial subtractions;
(d) decreased ability to travel, handle finances, etc.

Frequently no deficit in the following areas:
(a) orientation to time and person;
(b) recognition of familiar persons and faces;
(c) ability to travel to familiar locations.
Inability to perform complex tasks. Denial is dominant defense
mechanism. Flattening of affect and withdrawal from challenging
situations occur.

Level 5
Moderately severe cognitive decline (Early Dementia or moderate AD).
Patient can no longer survive without some assistance. Patient is
unable during interview to recall a major relevant aspect of their
current lives, e.g., an address or telephone number of many years, the
names of close family members (such as grandchildren), the name of the
high school or college from which they graduated. Frequently some
disorientation to time (date, day of week, season, etc.) or to place.
An educated person may have difficulty counting back from 40 by 4s or
from 20 by 2s. Persons at this stage retain knowledge of many major
facts regarding themselves and others. They invariably know their own
names and generally know their spouse's and children's names. They
require no assistance with toileting and eating, but may have some
difficulty choosing the proper clothing to wear.

Level 6
Severe cognitive decline (Middle Dementia or Moderately Severe AD).
May occasionally forget the name of the spouse upon whom they are
entirely dependent for survival. Will be largely unaware of all recent
events and experiences in their lives. Retain some knowledge of their
past lives but this is very sketchy. Generally unaware of their
surroundings, the year, the season, etc. May have difficulty counting
from 10, both backward and sometimes forward. Will require some
assistance with activities of daily living, e.g., may become
incontinent, will require travel assistance but occasionally will
display ability to orient in familiar locations. Diurnal rhythm
frequently disturbed. Almost always recall
their own name. Frequently continue to be able to distinguish familiar
from unfamiliar persons in their environment. Personality and
emotional changes occur. These are quite variable and include
(a) delusional behavior, e.g., patients may accuse their spouse of
being an impostor, may talk to imaginary figures in the environment,
or to their own reflection in the mirror;
(b) obsessive symptoms, e.g., person may continually repeat simple
cleaning activities;
(c) anxiety symptoms, agitation, and even previously nonexistent
violent behavior may occur;
(d) cognitive abulla, i.e., loss of willpower because an individual
cannot carry a thought long enough to determine a purposeful course of
action.

6a - Requires Assistance dressing
6b - Requires Assistance bathing properly
6c - Requires Assistance with mechanics of toileting
6d - Urinary incontinence
6e - Fecal incontinence

Level 7
Very severe cognitive decline (Late Dementia or Severe AD). All verbal
abilities are lost. Frequently there is no speech at all - only
grunting. Incontinent of urine, requires assistance toileting and
feeding. Lose basic psychomotor skills, e.g., ability to walk, sitting
and head control.The brain appears to no longer be able to tell the
body what to do. Generalized and cortical neurologic signs and
symptoms are frequently present.

7a - Speech ability limited to about a half-dozen intelligible words
7b - Intelligible vocabulary limited to a single word
7c - Ambulatory ability lost
7d - Ability to sit up lost
7e - Ability to smile lost
7f - Ability to hold up head lost

Well, its not *necessarily* related, in the sense that someone with Az
*might* also have another condition that causes memory loss as well, but by
far the likeliest cause is the natural progession of the condition as per
MG's post. AFAIK the only reason it wouldnt eventually be part of Az is that
you might die before you reach that stage. Sounds to me like the person you
spoke to really wasnt very well informed. Have you been to a home with Az
patients and taken a deep sniff?

In the home my father is in, I would guess 50% are at some stage of
incontinence, and my dad is headed in that direction.