Sorry,I haven't been around here in a long time! I'm still very grateful
though for the help and encouragement I got here. :-)
I saw someone on a TV program this week and the guy talked about a
friend of him and his wife and how the man now had Alzheimers. He said
he looked at the last picture they had taken of their friend, when they
saw him last and the sad part was the dead eyed look in his eyes. Just
no sign of life there at all,even though the man was still living
physically.
That part,that description of how the guy looked or rather didn't look
out of his eyes was what got to me. I thought of Mom and how she is a
certain percent of the time. I can't really say how much. But y'all know
what I mean when I say so much of the time when I do see her,her mind
just isn't there and I have no idea where it's at? It just seems to be
gone at times or way,
way,way out there somewhere and I have no idea in the world where that
somewhere is. That's the painful part in seeing a loved one like that.
They're here physically;but then you see they are not really here
otherwise.
And sometimes when I talk to Mom,it's like I just can't get her
attention. Or I do get her attention some and right in the middle of my
talking to her,she's just gone again. Very frustrating at times and of
course I'm not blaming her because I know she can't help it or do
anything about it. It's just frustrating,you can't blame anyone for
causing the problem and things are just the way they are and that's just
it. And I know this isn't just a guy thing;but there's a pretty big deal
with guys in general where they see a problem,they don't talk about it
much if at all;but instead they think on the problem a bit and then set
out to fix it,as best they can see how. And if the first thing doesn't
work,then they try something else. In general,I would say it's just very
frustrating for a guy to see a problem that needs fixing and there's
just nothing he can do to fix it. I mean nothing,zero,no way. And of
course,that's exactly the way it is with my Mom and Alzheimers. I can
want to fix it all I want,I can greatly desire to do something that will
just make things a little better and yet there is nothing that will make
things even just a little better. There's just nothing that's going to
bring Mom's mind back to what it once was or even close to it. And
that's very hard to accept and that so even though you know such is
true. It seems that so much of our life is based on home. Like OK,this
is bad now;but by and by things will get a bit better and later
on,things might even be good. But then there's none of that in my Mom's
case,given the stage she's in now.
I haven't even checked lately to see if she knows me at times? I think
perhaps she does;but then I don't know for sure and I don't want to push
at her about it to even perhaps find out one way or the other. I'm just
afraid my even doing that a little might upset her too much. And no
doubt,I also have fears that I might learn that she doesn't know me at
all anymore. So it's easier to live with the I don't know for sure,than
to press somethings and maybe find out for sure.
Mostly I've seen Mom in the lunchroom this last winter. I would get to
the nursing home at first,30 to 45 minutes or so before a
mealtime,thinking she would probably be in her room or maybe in her
wheelchair,in the hall or lobby;but she's always been in the lunchroom
and others there too. It took me awhile to figure out, :-) that they had
to do that because it took time to get everyone there,so all would be
there and ready when it was time to start eating and feeding.
One of the times I was with Mom was on her birthday. Took her a little
stuffed doll because I know she likes those. :-) Right away she started
talking to that doll :-) and even started singing a little song to it!
LoL Then I finally got her attention as I gave her her birthday card and
she looked at that. Then after a bit I asked her,do you like that card?
She looked at it,sort of wrinkled up her nose and said no! LoL That I
had to get tickled at! :-) And she soon seemed to be having a good time
with one fold of the card,peeling that apart! :-) It amazes me how well
she can do that! And I think I might very well have a problem getting
that done,if I tried to do it myself! (ha)
Gotta go back and see Mom soon. I've been putting that off for awhile
now,since I got bronchitis a couple of weeks ago. Things are a lot
better now;but I want to be sure that's all cleared up before I go back
to the nursing home. Don't want to maybe carry something like that to
Mom or anyone else there. They've got enough problems without having
something like that added on to the rest.
Getting daylight here this morning. I had a good 2 hours or so of sleep
before a bad dream woke me up last night. Haven't had one of those in
awhile and it was a doozy! The kind of dream where you don't want to go
back to sleep right then :-) and when I got up I even checked the doors
to make sure they were locked! LoL Then let Baby pup out of his pen and
played with him a bit. He's my big protector :-) 'cause he probably
weighs all of 5 pounds sopping wet! LoL
But in my dream I was in a grocery type store,with my older cousins
wife. We got separated when I decided I needed to buy somethings too.
And the next thing I knew I heard her calling me,I woke up,there were
only dim lights left on in the store, pretty dark and the store had
obviously closed and I had fallen asleep there! (ha) Finally went up to
the front of the store and found my cousins wife. Then my dream switched
over to an old TV program I'd saw years ago. The main part was one guy
who was a horrible murderer. He was in town waiting for a guy to get
back so he could kill him. In the meantime 3 or 4 guys came up from
somewhere,he shot one and was getting ready to kill the others and
that's when I woke up for real! LoL Stayed up a couple of hours or so
and finally decided I might as well go take a shower. Got in the
shower,pulled the curtain shut and wouldn't you know it,I started
thinking about that old Alfred Hitchcock movie Psycho,where the woman
was brutally murdered in the shower! :-) So I opened the shower curtain
up a bit,just to assure myself that no one was in the bathroom but me!
LoL
Ah,maybe that's what I get,for eating such a big piece of highly spiced
steak,so late last night! :-) I haven't had a good beefsteak in a long
while;but I cooked and ate a very big one late last night,before going
to bed! LoL
June - 21 Mar 2007 16:44 GMT
Hi Ronny.....Good to see you posting again. I know the look you describe.
The lights are on and nobody's home. So sad. The news these days is
filled with Alz data. They say it could bankrupt the Medicare system here
in the US eventually. The Government should fund more research. I know
they have increased it a little but considering ramifications of this
disease on a society that is living longer it seems like it should be,if not
number 1 at least in the top 5 priorities.
Your dream brought back memories. A few years back when my grandson was
spending a lot of time in the hospital, I would stay during the day to give
my daughter a break. When children are little they need a family member
there all the time in the hospital. Anyway there was a book fair in the
lobby and I got a book on interpreting dreams to read while there. It's an
interesting subject. In your dream you're a victim and you're alone and
being hunted down. I used to dream of the street the house where I grew up
night after night. A house is supposed to represent you, and you can
usually put things together depending on what's going on in your life. I
think we're all victims here. Of a disease that is attacking our loved
ones. Knowing that if we live long enough, that it will probably get us
too. Add a little stress and it's no wonder our dreams sometimes go into
overdrive.
My mother's dementia hasn't really changed much in years. Dementia or
Alz --- it's so devastating.......June
> Sorry,I haven't been around here in a long time! I'm still very grateful
> though for the help and encouragement I got here. :-)
[quoted text clipped - 105 lines]
> while;but I cooked and ate a very big one late last night,before going
> to bed! LoL
Limestone-Cowboy - 22 Mar 2007 01:22 GMT
Ronny,
I know just what you mean. There were many times in the last year of my
dads life when the lack of life in Dads eyes showed that he was ready to
let go, then a glimmer of fire would appear, a glimmer of hope or
desperation and then a few minutes later would fade again. Variations
of medication and a few moments of either fear from him or a short chat
between us. you had to take what you could get.
I would occasionally try to challenge him or goad him into trying to
find his memories and sometimes it worked, of those times about 30% made
him happy, 30% sad and the rest were either bewilderment or sheer anger.
I thought it was worth it to see the grey matter trying to work.
Before Christmas he had a few beers at the hospital and a big smile came
over his face, he was never a drinker but it seemed to relieve the
stress for a few hours.
He was my Dad....that's what I remember.
www.latheron.free-online.co.uk/kenlatheron.htm
Alan Meyer - 21 Mar 2007 20:29 GMT
> ...
> I haven't even checked lately to see if she knows me at times? I think
[quoted text clipped - 5 lines]
> to press somethings and maybe find out for sure.
> ...
I've pondered that question. It seems to me that there is no
answer. One minute she knows you, one minute she doesn't.
One minute you're her grown son, one minute you're her little
boy, and some other minute you're her brother, her father, a
good friend from childhood, or all of the above all mixed together.
Don't bother to press the question because whatever answer
you get, if you can get one at all, is only valid for the minute
that you get it.
But even that doesn't seem to me to fully characterize the
confusion. When I think of my son or my father I have a whole
complex of memories, associations, and concepts of all kinds
about who those people are or were and what their relationships
are or were to me. For the Alzheimer's patient, I think these
memories, associations and concepts come and go in the
conscious mind. When your mother recognizes you as her son
at some time that may mean something quite different and only
tenuously related to what it means when she recognizes you as
her son at another time.
As you say, we can't fix any of this. We can't explain anything
to Mom because the explanation is only partly understood, and
only for a short time - at least when the disease becomes
relatively advanced.
All of this is terribly sad and terribly hard to come to terms with.
But I guess we just have accept them as they are now, and
remember them as they once were. We, and our children,
are now the repositories of the family's memories.
Alan
Chuck Whealton - 23 Mar 2007 18:35 GMT
Ronny:
There are just so many sad things with dementia, that it's impossible
to list them all.
I will say that the lifeless look you describe is heart breaking.
At this point, just doing whatever makes your Mother happy is probably
about as good as it will get for both of you. Don't count on her
remembering who you are. That's one of the worst parts. You think
your loved one is actually having a good day where they remember you
and then when you ask them if they know who you are, you find out
they really don't. That's such a downer that it's not even funny.
As you mentioned, it's not her fault. It's nobody's fault.
Unfortunately, that's just the way dementia works. I just hope to
live long enough to see a day where they begin to develop treatments
for the various types. I'm afraid that's probably a long ways away.
Let us know how your Mother is doing after you've gotten to visit
her.
Charles R. Whealton
Charles Whealton @ pleasedontspam.com