...from alzheimer's? How long did they live with it? My dad was
diagnosed with alzheimer kind of young...he was 58...I was 28 and had
just moved back in after quiting a job. I'm 32 now and Dad is 63... It
is my mother and I who've been taking care of him day and night. Hospice
started coming to our house a little over 4 weeks ago...the alzheimer's
caught up with him so fast. Last week the hospice doctor came to our
house to check on him and we had two aunts (dad's sisters) visiting from
puerto rico. They asked about how long before he would be gone..I wasn't
ready to hear it so I'd stepped out of the room...but still over heard.
It crushed my heart to listen to the doctor explain to them that it
could be anywhere from 2 to 3 weeks..as he is not doing well taking
liquids. Today was bad..he wouldn't wake up at all and there where times
that he would open his eyes but sound like he was snoring and asleep, it
ws very hard to see him this way. No one here comes to visit us and I
feel awfully alone even with my mom here and my brother who comes over
alot. I never thought it would be this way. I know alzheimer is
different for everyone. I wish I new how to feel. What I'm supposed to
do. What to say to mom. How to say goodbye to Dad...I don't want to have
these questions. I don't know what to do,,,this happend way too fast for
me..or maybe not..maybe it's just a 'long goodbye" as they say. I don't
know what to say anymore..I'm kinda scared. I just needed to talk to
someone so I posted here..I've posted a few times before. Well
thanks..I'm glad this group is here...I don't know anyone else I could
say this to.
Johnny
Evelyn Ruut - 10 Dec 2006 14:18 GMT
> ...from alzheimer's? How long did they live with it? My dad was
> diagnosed with alzheimer kind of young...he was 58...I was 28 and had
[quoted text clipped - 22 lines]
>
> Johnny
Dear Johnny,
Oh yes! Almost all the regulars on this newsgroup have lost someone.
Those whose loved ones haven't passed on, may still have lost them in
another way, to the illness itself, since this illness robs a person of
their very personality. I believe I remember you posting earlier, so
welcome back.
Johnny, my mother in law will be gone two years next April, and I was her
caregiver for several years before she died. She spent nearly the last
year of her life in a local nursing home, since she was too ill for me to
manage with her at home by that time.
I have heard that early onset alzheimers, the kind that affects people at a
much younger age than you would expect, often goes through all the stages
much more quickly and pass on earlier, than the form of the illness which
comes on later. From what you say, your dad may have early onset.
63 is quite young to be going through his final days, but this is truly a
rotten illness, and it could be a viewed as a blessing that if he cannot be
cured, at least his suffering will not be prolonged.
Don't feel bad that people don't visit, they may feel that they might be
imposing on your family's private moments now at the end of your dad's life.
I just wanted to reply to you to let you know that you aren't alone in this,
that many people have gone through this terrible family tragedy, and that we
wish you strength and send you good wishes to get through the next few
weeks. I hope your dad's passing is peaceful, and that you and your mom
find the courage and love to be a comfort to one another at this difficult
time.
I am glad you have hospice there, I hear they are wonderful and a great
source of comfort to families going through this.

Signature
Best Regards,
Evelyn
(to reply to me personally, remove 'sox')
ladylove77 - 10 Dec 2006 18:09 GMT
Johnny, I wish I could offer something to help you through this. It is a
terrible disease that causes all kinds of problems for the patient, and for
the caregivers. At this point with your dad, the caregivers are the ones
who are suffering. Hospice was with my husband and the final couple of
weeks, they were there 24/7 at the nursing home. I'm sure they have a
chaplain and you might talk to him/her. You will be in my prayers.
Gwen
> ...from alzheimer's? How long did they live with it? My dad was
> diagnosed with alzheimer kind of young...he was 58...I was 28 and had
[quoted text clipped - 22 lines]
>
> Johnny
Johnny B. - 12 Dec 2006 16:01 GMT
Thank You. It realy is comforting to know we are not alone. Thanks!!
Johnny
Evelyn Ruut - 12 Dec 2006 18:40 GMT
> Thank You. It realy is comforting to know we are not alone. Thanks!!
>
> Johnny
Johnny, the newsgroup has gone a bit quiet of late, but I assure you that
there are quite a few really nice people who post here from time to time.
This is one newsgroup that really is populated for the most part by kind
individuals who have been through a lot with their loved ones who suffered
from this illness.

Signature
Best Regards,
Evelyn
(to reply to me personally, remove 'sox')
ladylove77 - 12 Dec 2006 18:57 GMT
Johnny, some of us don't post too much unless we think we can add something
that no one else has said.
But I always read the newsgroup and do add my thoughts at times. Please
come here any time you have an observation or a question. There are a lot
of experienced caretakers around and we certainly extend our best wishes to
anyone who has to join that group.
Gwen
>> Thank You. It realy is comforting to know we are not alone. Thanks!!
>>
[quoted text clipped - 5 lines]
> individuals who have been through a lot with their loved ones who suffered
> from this illness.
wrcromwell@gmail.com - 13 Dec 2006 20:17 GMT
> ...from alzheimer's? How long did they live with it? My dad was
> diagnosed with alzheimer kind of young...he was 58...I was 28 and had
[quoted text clipped - 22 lines]
>
> Johnny
Hi Johnny,
We cared for my mother in law at her home during the early years of her
AD, at our home for some years after that and finally had her in a
nursing home for 24/7 care the last couple years. It took her a long
time to go and it was very hard on the family. I understand how you are
feeling and I will have you and your family in my prayers. That is
about all I can really do for you.
Bill