Medical Forum / Diseases and Disorders / Alzheimer's / November 2006
Another new member
|
|
Thread rating:  |
Susannah - 16 Nov 2006 02:31 GMT Hi. My mother's doctor has said she has early Alzheimer's and put her on Reminyl. She is also having or has had several mini strokes. She loses an few minutes to an hour here and there and at times appears to be intoxicated. She has also been put on 4 breathing treatments per day and nightly oxygen.
Normally during the day she is fine. Most of this happens at night.
I live in another state and am unable to be there to witness any of this face to face. I get it over the phone.
She gave permission for me to talk to the doctor, which I did today. She told me he called it retrograde amnesia in her last appointment, but today on the phone, he used the term "early Alzheimer's" with me.
Are they the same thing?
I am going home for Thanksgiving this coming weekend, and would like to get a consultation appointment with him while I am home next week, but I don't really know what to ask.
Can anyone toss out some questions to ask, please?
Thank you!
 Signature Susannah
Alan Meyer - 16 Nov 2006 15:13 GMT Hello Susannah,
I am sorry to hear about your mother's problem.
I'm not a doctor or an expert in any way, but my understanding of the term "amnesia" is that it's the name of a symptom (memory loss), not the name of a disease. "Alzheimer's Disease" is the name of a specific disease. So the doctors two statements sound consistent with each other to me. In the first he was just talking about the symptoms. In the second he was giving a possible diagnosis.
If it hasn't been done yet, your mother should probably be sent to a specialist, a neurologist with experience with different types of dementia, to confirm the diagnosis. AD is said to be the most common cause of dementia, but there are also some other, more treatable, causes that could be involved.
Incidentally, the word "dementia" is used by doctors to mean a loss of intellectual faculties, rather than in the other sense of "insanity".
As for questions to ask, some others here have better knowledge of this than I, so I'll wait for them to answer.
One thing that needs to be done is to immediately begin the legal steps needed to care for your Mom. While she is able, she should give someone (you, your Dad, your siblings - whoever the family things is in the best position for this) legal and medical powers of attorney. Financial assets that are solely in her name should get other names on them as well. If there is a will leaving all of your Dad's assets to your Mom, it might be wise to change that.
If your father is getting on in years, it would be a good idea for him to take the same steps for himself.
These are problems that everyone in this newsgroup has faced. They are difficult, but not insurmountable and there are people who can help.
Best of luck to your Mom and your family.
Alan
Susannah - 17 Nov 2006 04:07 GMT Well, we're dealling with a small town here, so a specialist is a tall order. I think there is one in town, though. The town has a hard time keeping doctors for several reasons. If there is not one, we have a problem because she also has a decades-old traveling phobia. She can only travel by train unless given Ativan, at which point she's of no use to anyone at all.
The good news is that, having worked for a funeral home for 20 years, all of her plans and such are in order for me to just take over. I've always been on her checking accounts since young adulthood, as she is also on mine. The deed to the property is already filled out to sign over to, and has been sitting in the safe deposit box for 6 years now. All I have to do is file it with the county.
My father was never in the picture, and died 20 years ago, anyway. I am all she has as far as any inheritance or taking charge goes. She has one surviving brother and sister-in-law, but they are both in their mid-80s, though they are in good health. I have one cousin who lives with my mother who is for all intents and purposes, incompetent, but that's too long of a story for this NG.
She does need to do the power of attorney, though.
Thanks for your input!
 Signature Susannah
> Hello Susannah, > [quoted text clipped - 42 lines] > > Alan Evelyn Ruut - 17 Nov 2006 11:56 GMT > Well, we're dealling with a small town here, so a specialist is a tall > order. I think there is one in town, though. The town has a hard time [quoted text clipped - 20 lines] > > Thanks for your input! Susannah,
You have been getting good advice so far,...... but please don't think that if you sign over the deed to the property now, that it is safe from being attached to cover the cost of her care. If her money runs out (and so many people experience this with an illness like alzheimers) few people are wealthy enough to cover the costs of such a long term illness, and many do need to go on Medicaid at some point.
Medicaid has very specific rules about the length of time a property must have been in other hands, to be exempt from being attached. My mother in law's home had to be sold to cover the cost of her care. An attorney who is a specialist in elder law, should be consulted to look into the ramifications of this. An attorney could help you set up an arrangement that might protect some of the assets, but it must be in place as soon as possible. Even if you go alone to talk to the attorney at first, do it soon. Trust me that it is really important. A signed deed won't do the trick in and of itself.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Susannah - 18 Nov 2006 03:57 GMT Evelyn,
Interesting. I didn't know that. Since we are in different states, and hopefully she would come to live with me before having to be hospitalized, does it matter whether I contact a lawyer here or there? I'm assuming it's a federal issue and would not matter?
Thank you!
 Signature Susannah
>> Well, we're dealling with a small town here, so a specialist is a tall >> order. I think there is one in town, though. The town has a hard time [quoted text clipped - 39 lines] > soon. Trust me that it is really important. A signed deed won't do the > trick in and of itself. Evelyn Ruut - 18 Nov 2006 12:26 GMT > Evelyn, > [quoted text clipped - 4 lines] > > Thank you! It has to do with Medicaid which is a federal program. If she comes to live in your area, you will probably do best by consulting a local lawyer. We used a local elder law specialist, who helped us enormously. I have no idea how we would have managed without his input. There were certain documents that we absolutely needed or it would have been a legal nightmare. Also just the Medicaid application paperwork alone, was a hassle. He helped us with that too. Even if you are paying privately, many nursing homes want Medicaid application paperwork in place, because few have enough to pay privately indefinitely, and when the money runs out, they want assurance that the process runs smoothly towards getting the person onto Medicaid.
In our case, my mother in law lived two hours away from us, and it was very difficult dealing with trying to clean out and sell the house and take care of her at the same time. We managed, though with a couple of close calls, not being able to get home in time to meet her after day care. Fortunately there were a couple of local people who helped us out. One time we were stuck for several hours in traffic, going crazy and worrying ourselves sick. Believe it or not, we actually once enlisted our realtor to come to the house and sit to wait for her to arrive home! We raced like crazy, and we actually pulled into the driveway the same time as he did!
It is very time consuming to go through a lifetime of possessions, photos, paperwork, and just plain junk. If you need to use four hours of travel time, not accounting for even minor delays, it can be a real juggling act.
But I digress here. All I can say is that elderlaw is a specific specialty in the law. Not just any lawyer can handle it to your best advantage. The preservation of at least some assets can be a godsend. You really do need advice on what you can use the persons money for and what you can't.
Believe me when I tell you that alzheimers is a strange illness, and it can take strange turns. All of a sudden you can end up really NEEDING nursing home care for your loved one, and if you haven't done things right, you can be really caught up short.
In our case, my mother in law began losing her balance. She would fall very easily and need to be picked up and guided and held upright. It was very difficult. We were both exhausted from getting up with her several times a night, cleaning her up and getting her back into bed. Then it would go on all day too. We were zombies after several years of caring for her, and had to hurry up and get important paperwork and formalities in place in order to place her.
We took care of her for about 3 and a half years. She was not too bad when we first started caring for her. She could do a lot for herself at that time, but was like a little baby by the time we had to place her. Don't forget that it is a progressive illness and that it doesn't get better, it gets worse. You are going to need lots of help and good advice and support. This newsgroup is good, but get into a local alzheimer support group in your town too. See if you can find an elder law lawyer in your local phone book, or a referral from a friend. All those things helped us so much.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
>>> Well, we're dealling with a small town here, so a specialist is a tall >>> order. I think there is one in town, though. The town has a hard time [quoted text clipped - 39 lines] >> soon. Trust me that it is really important. A signed deed won't do >> the trick in and of itself. Mary_Gordon@tvo.org - 18 Nov 2006 21:51 GMT If she will be coming to you, you need to know what the rules are in your state as well as the state she lives in now, as both sets of rules matter. http://www.cms.hhs.gov/MedicaidGenInfo/ http://www.financial-planning.com/pubs/fpi/20060222103.html
Its incredibly convoluted and you need to plan for it so you can protect the assets as much as possible. The loockback period is now 5 years. Get a lawyer involved - the average family that does that saves as much as 60K.
You may not be able to care for her in your home as things progress, so start planning for nursing home care right now, even if you can't imagine needing it.
Mary G.
Mary_Gordon@tvo.org - 16 Nov 2006 23:04 GMT Susannah, ask your father if she has seen a neurologist for a proper diagnosis. She has several health issues that are going to affect cognition. Her breathing problem alone can cause hypoxia and brain damage. She is also having strokes (the second most common cause of dementia after Alzheimer's). So never mind Alzheimer's, she's got enough going on right there.
You need to find out if on top of those two major items she also has Alzheimer's - or does he just mean she's in the early stages of what he thinks is progressive dementia from assorted causes.
M
Susannah - 17 Nov 2006 04:16 GMT I know for a fact she has not seen the neurologist (see response to Alan's message). That's one reason I want to talk to her doctor while I am home. He's a GP, and I want something more in-depth than the hurried phone conversation I had with him this week. He was in-between patients and we could not really talk. I didn't know what to ask to keep the conversation going, either.
She's got a LOT of health issues going on here - smoked for years, so she has respiratory issues asthma, the strokes, periodic atrial fibrilation (last episode was in 2000), poor circulation in one leg (they are doing ultrasounds to determine where the blockage is, but have not found it yet) a numb patch on the foot with poor circulation, and the term for that escapes me at the moment AND, a 2 mm meningioma (brain tumor) in the memory and speech area of the brain......
So, some would say I'm in denial about the Alzheimer's diagnosis, but she's got so much going on, that I think it's quite possible it's something else.
> You need to find out if on top of those two major items she also has > Alzheimer's - or does he just mean she's in the early stages of what he > thinks is progressive dementia from assorted causes. My thoughts exactly!
 Signature Susannah
> Susannah, ask your father if she has seen a neurologist for a proper > diagnosis. She has several health issues that are going to affect [quoted text clipped - 8 lines] > > M
|
|
|