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Medical Forum / Diseases and Disorders / Alzheimer's / November 2006

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Susannah - 16 Nov 2006 02:31 GMT
Hi.  My mother's doctor has said she has early Alzheimer's and put her on
Reminyl.  She is also having or has had several mini strokes.  She loses an
few minutes to an hour here and there and at times appears to be
intoxicated.  She has also been put on 4 breathing treatments per day and
nightly oxygen.

Normally during the day she is fine. Most of this happens at night.

I live in another state and am unable to be there to witness any of this
face to face.  I get it over the phone.

She gave permission for me to talk to the doctor, which I did today.  She
told me he called it retrograde amnesia in her last appointment, but today
on the phone, he used the term "early Alzheimer's" with me.

Are they the same thing?

I am going home for Thanksgiving this coming weekend, and would like to get
a consultation appointment with him while I am home next week, but I don't
really know what to ask.

Can anyone toss out some questions to ask, please?

Thank you!

Signature

Susannah

Alan Meyer - 16 Nov 2006 15:13 GMT
Hello Susannah,

I am sorry to hear about your mother's problem.

I'm not a doctor or an expert in any way, but my
understanding of the term "amnesia" is that it's the name
of a symptom (memory loss), not the name of a disease.
"Alzheimer's Disease" is the name of a specific disease.
So the doctors two statements sound consistent with each
other to me.  In the first he was just talking about the
symptoms.  In the second he was giving a possible
diagnosis.

If it hasn't been done yet, your mother should probably be
sent to a specialist, a neurologist with experience with
different types of dementia, to confirm the diagnosis.  AD
is said to be the most common cause of dementia, but
there are also some other, more treatable, causes that
could be involved.

Incidentally, the word "dementia" is used by doctors to
mean a loss of intellectual faculties, rather than in the
other sense of "insanity".

As for questions to ask, some others here have better
knowledge of this than I, so I'll wait for them to answer.

One thing that needs to be done is to immediately begin
the legal steps needed to care for your Mom.  While she
is able, she should give someone (you, your Dad, your
siblings - whoever the family things is in the best position
for this) legal and medical powers of attorney.  Financial
assets that are solely in her name should get other names
on them as well.  If there is a will leaving all of your Dad's
assets to your Mom, it might be wise to change that.

If your father is getting on in years, it would be a good idea
for him to take the same steps for himself.

These are problems that everyone in this newsgroup has
faced.  They are difficult, but not insurmountable and there
are people who can help.

Best of luck to your Mom and your family.

   Alan
Susannah - 17 Nov 2006 04:07 GMT
Well, we're dealling with a small town here, so a specialist is a tall
order.  I think there is one in town, though.  The town has a hard time
keeping doctors for several reasons.  If there is not one, we have a problem
because she also has a decades-old traveling phobia.  She can only travel by
train unless given Ativan, at which point she's of no use to anyone at all.

The good news is that, having worked for a funeral home for 20 years, all of
her plans and such are in order for me to just take over.  I've always been
on her checking accounts since young adulthood, as she is also on mine.  The
deed to the property is already filled out to sign over to, and has been
sitting in the safe deposit box for 6 years now.  All I have to do is file
it with the county.

My father was never in the picture, and died 20 years ago, anyway.  I am all
she has as far as any inheritance or taking charge goes.  She has one
surviving brother and sister-in-law, but they are both in their mid-80s,
though they are in good health.  I have one cousin who lives with my mother
who is for all intents and purposes, incompetent, but that's too long of a
story for this NG.

She does need to do the power of attorney, though.

Thanks for your input!

Signature

Susannah

> Hello Susannah,
>
[quoted text clipped - 42 lines]
>
>    Alan
Evelyn Ruut - 17 Nov 2006 11:56 GMT
> Well, we're dealling with a small town here, so a specialist is a tall
> order.  I think there is one in town, though.  The town has a hard time
[quoted text clipped - 20 lines]
>
> Thanks for your input!

Susannah,

You have been getting good advice so far,...... but please don't think that
if you sign over the deed to the property now, that it is safe from being
attached to cover the cost of her care.   If her money runs out (and so many
people experience this with an illness like alzheimers)  few people are
wealthy enough to cover the costs of such a long term illness, and many do
need to go on Medicaid at some point.

Medicaid has very specific rules about the length of time a property must
have been in other hands, to be exempt from being attached.   My mother in
law's home had to be sold to cover the cost of her care.  An attorney who is
a specialist in elder law, should be consulted to look into the
ramifications of this.   An attorney could help you set up an arrangement
that might protect some of the assets, but it must be in place as soon as
possible.   Even if you go alone to talk to the attorney at first, do it
soon.   Trust me that it is really important.   A signed deed won't do the
trick in and of itself.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Susannah - 18 Nov 2006 03:57 GMT
Evelyn,

Interesting.  I didn't know that.  Since we are in different states, and
hopefully she would come to live with me before having to be hospitalized,
does it matter whether I contact a lawyer here or there?  I'm assuming it's
a federal issue and would not matter?

Thank you!

Signature

Susannah

>> Well, we're dealling with a small town here, so a specialist is a tall
>> order.  I think there is one in town, though.  The town has a hard time
[quoted text clipped - 39 lines]
> soon.   Trust me that it is really important.   A signed deed won't do the
> trick in and of itself.
Evelyn Ruut - 18 Nov 2006 12:26 GMT
> Evelyn,
>
[quoted text clipped - 4 lines]
>
> Thank you!

It has to do with Medicaid which is a federal program.   If she comes to
live in your area, you will probably do best by consulting a local lawyer.
We used a local elder law specialist, who helped us enormously.  I have no
idea how we would have managed without his input.   There were certain
documents that we absolutely needed or it would have been a legal nightmare.
Also just the Medicaid application paperwork alone, was a hassle.  He helped
us with that too.   Even if you are paying privately, many nursing homes
want Medicaid application paperwork in place, because few have enough to pay
privately indefinitely, and when the money runs out, they want assurance
that the process runs smoothly towards getting the person onto Medicaid.

In our case, my mother in law lived two hours away from us, and it was very
difficult dealing with trying to clean out and sell the house and take care
of her at the same time.   We managed, though with a couple of close calls,
not being able to get home in time to meet her after day care.  Fortunately
there were a couple of local people who helped us out.   One time we were
stuck for several hours in traffic, going crazy and worrying ourselves sick.
Believe it or not, we actually once enlisted our realtor to come to the
house and sit to wait for her to arrive home!   We raced like crazy, and we
actually pulled into the driveway the same time as he did!

It is very time consuming to go through a lifetime of possessions, photos,
paperwork, and just plain junk.   If you need to use four hours of travel
time, not accounting for even minor delays, it can be a real juggling act.

But I digress here.   All I can say is that elderlaw is a specific specialty
in the law.   Not just any lawyer can handle it to your best advantage.
The preservation of at least some assets can be a godsend.   You really do
need advice on what you can use the persons money for and what you can't.

Believe me when I tell you that alzheimers is a strange illness, and it can
take strange turns.   All of a sudden you can end up really NEEDING nursing
home care for your loved one, and if you haven't done things right, you can
be really caught up short.

In our case, my mother in law began losing her balance.   She would fall
very easily and need to be picked up and guided and held upright.   It was
very difficult.  We were both exhausted from getting up with her several
times a night, cleaning her up and getting her back into bed.   Then it
would go on all day too.   We were zombies after several years of caring for
her, and had to hurry up and get important paperwork and formalities in
place in order to place her.

We took care of her for about 3 and a half years.    She was not too bad
when we first started caring for her.  She could do a lot for herself at
that time, but was like a little baby by the time we had to place her.
Don't forget that it is a progressive illness and that it doesn't get
better, it gets worse.   You are going to need lots of help and good advice
and support.   This newsgroup is good, but get into a local alzheimer
support group in your town too.   See if you can find an elder law lawyer in
your local phone book, or a referral from a friend.   All those things
helped us so much.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>>> Well, we're dealling with a small town here, so a specialist is a tall
>>> order.  I think there is one in town, though.  The town has a hard time
[quoted text clipped - 39 lines]
>> soon.   Trust me that it is really important.   A signed deed won't do
>> the trick in and of itself.
Mary_Gordon@tvo.org - 18 Nov 2006 21:51 GMT
If she will be coming to you, you need to know what the rules are in
your state as well as the state she lives in now, as both sets of rules
matter.
http://www.cms.hhs.gov/MedicaidGenInfo/
http://www.financial-planning.com/pubs/fpi/20060222103.html

Its incredibly convoluted and you need to plan for it so you can
protect the assets as much as possible.
The loockback period is now 5 years. Get a lawyer involved - the
average family that does that saves as much as 60K.

You may not be able to care for her in your home as things progress, so
start planning for nursing home care right now, even if you can't
imagine needing it.

Mary G.
Mary_Gordon@tvo.org - 16 Nov 2006 23:04 GMT
Susannah, ask your father if she has seen a neurologist for a proper
diagnosis. She has several health issues that are going to affect
cognition. Her breathing problem alone can cause hypoxia and brain
damage. She is also having strokes (the second most common cause of
dementia after Alzheimer's). So never mind Alzheimer's, she's got
enough going on right there.

You need to find out if on top of those two major items she also has
Alzheimer's - or does he just mean she's in the early stages of what he
thinks is progressive dementia from assorted causes.

M
Susannah - 17 Nov 2006 04:16 GMT
I know for a fact she has not seen the neurologist (see response to Alan's
message).  That's one reason I want to talk to her doctor while I am home.
He's a GP, and I want something more in-depth than the hurried phone
conversation I had with him this week.  He was in-between patients and we
could not really talk.  I didn't know what to ask to keep the conversation
going, either.

She's got a LOT of health issues going on here -
smoked for years, so she has respiratory issues
asthma,
the strokes,
periodic atrial fibrilation (last episode was in 2000),
poor circulation in one leg (they are doing ultrasounds to determine where
the blockage is, but have not found it yet)
a numb patch on the foot with poor circulation, and the term for that
escapes me at the moment
AND, a 2 mm meningioma (brain tumor) in the memory and speech area of the
brain......

So, some would say I'm in denial about the Alzheimer's diagnosis, but she's
got so much going on, that I think it's quite possible it's something else.

> You need to find out if on top of those two major items she also has
> Alzheimer's - or does he just mean she's in the early stages of what he
> thinks is progressive dementia from assorted causes.

My thoughts exactly!
Signature

Susannah

> Susannah, ask your father if she has seen a neurologist for a proper
> diagnosis. She has several health issues that are going to affect
[quoted text clipped - 8 lines]
>
> M
 
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