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Medical Forum / Diseases and Disorders / Alzheimer's / October 2006

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AFFRAID TO BE ALONE AT NIGHT.

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joaniejle@aol.com - 22 Oct 2006 04:14 GMT
MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE
PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES
AT NIGHT AND IS BECOMING VERY HARD TO DEAL WITH. SHE IS RUDE AND NASTY
TO THE STAFF. I HAVE AIDES FROM 10 AM - 7PM BUT CAN NOT AFFORD A NIGHT
TIME AIDE. SHE IS CONSTANTLY LEAVING HER ROOM AT NIGHT AND CAUSING
PROBLEMS FOR THE STAFF. SHE CLAIMS SHE IS AFFRAID TO BE IN THE ROOM
ALONE AND ONLY WANTS ME THERE. MY LIFE FOR THE PAST 10 YRS HAS BEEN
HELL DEALING WITH HER. JUST NEED TO HEAR FROM SOMEONE WHO HAS SIMILAR
PROBLEMS TO CHAT WITH.
THANKS
JOANIE
Tumbleweed - 22 Oct 2006 06:40 GMT
> MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE
> PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES
> AT NIGHT AND IS BECOMING VERY HARD TO DEAL WITH. SHE IS RUDE AND NASTY

<snip>

Joanje,

Sounds like its time to move your mother to a specilaised alzheimers unit,
rather than assisted care, because in assisted care she is expected to do
many things herself, and from what you say, she cannot do this any more for
key things like taking medication.

also, please turn off your 'cap locks' key, typing in upper case is hard to
read and is considered 'SHOUTING'.
Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

joaniejle@aol.com - 22 Oct 2006 14:40 GMT
Thank you for your response. Sorry about the "caps" i did not mean to
"shout"'
The Alzheimers units are way out of my financial reach and i would lose
my aides so she would be alone all day. She has become very dependent
on the aides. I am going to start by fixing her meds  which they give
her and hopefully she will sleep the night through. I know this will
not get any better, but the longer I can keep her there I will. Nursing
home really gets me upset and I'm not sure how she will react since she
is still aware of her surroundings and does know my sister and I.
thanks again
Joanie

On Oct 22, 12:40 am, "Tumbleweed" <thisaccountneverr...@yahoo.com>
wrote:
> <joanie...@aol.com> wrote in messagenews:1161486855.094615.162700@k70g2000cwa.googlegroups.com...
>
[quoted text clipped - 16 lines]
> email replies not necessary but to contact use;
> tumbleweednews at hotmail dot com
Tumbleweed - 22 Oct 2006 15:08 GMT
> Thank you for your response. Sorry about the "caps" i did not mean to
> "shout"'
[quoted text clipped - 3 lines]
> her and hopefully she will sleep the night through. I know this will
> not get any better, but the longer I can keep her there I will.

Its going to happen one day so you'll have to plan for it in any event, I
think most people here find that LO's tend to exhibit a slow decline
followed by an abrupt fall to another 'level', sounds like your mother might
be experiencing this imn which case you need to be prepared for the reality
that assisted living at night isnt feasible any more?  what would happen if
she got up in the night and did something dangerous like left the apartment
and wandered outside, switched on the gas without lighting it etc? What is
the cost of aides all day compared to a home, because obviously in a home
she wont be alone all day. Are they much cheaper?

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Dennis P. Harris - 23 Oct 2006 05:27 GMT
> The Alzheimers units are way out of my financial reach and i would lose
> my aides so she would be alone all day.

I've got news for you --- if she has no assets, there is no legal
requirement in most states that *you* pay for her care.   If she
has no assets, your state Medicaid program should pay for nursing
home or dementia unit care.
John Inzer - 22 Oct 2006 08:05 GMT
> MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE
> PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES
[quoted text clipped - 7 lines]
> THANKS
> JOANIE
============================
My wife and I had this same type of
behavior to deal with when her mother
was living with us. We came to a point
when we could no longer deal with it
and I can certainly sympathize with the
staff in your Assisted Living facility.

The only solution we had was to admit
her to a nursing home. Once she became
adjusted to the new surroundings and
her meds were adjusted she became
more managable. And of course the NH
staff was trained to deal with AD patients.

The day may come when your mother no
longer recognizes you so be prepared for
it. My wife's brothers quit visiting because
they just could not bear the thought that
their mother did not know who they were.

Alzheimer's is a viscious disease that
robs us of our loved ones and all we can
do is try to help them in any way we can.

Signature

John Inzer

Evelyn Ruut - 22 Oct 2006 11:49 GMT
> MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE
> PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES
[quoted text clipped - 7 lines]
> THANKS
> JOANIE

Hi Joanie,

You have gotten good advice from the other posters who have replied, and I
just wanted to add my endorsement to what they said.    Sounds like it is
time for her to go into a place with better supervision.    There are
medications that can help too, but you need to talk to the doctor about it.

Also, please don't use all capitals, it is considered as though you were
shouting at people.   I am sure that isn't how you meant it, but better to
release the caps lock and use regular lettering when posting here or on any
of the newsgroups to avoid offending anyone, as I am sure it isn't your
intent.

Many of us have been in the same situation with loved ones, and you will
find plenty of sympathy here for what you are going through.   It can be
difficult as we all know.  Funny how it sometimes helps to have friends to
talk to about it.    My father is also 93 and he absolutely refuses to go
into assisted living (even though he needs it)  and imagines he is going to
be living independently until he magically passes away without a moment of
incapacitation.    He has been a difficult man all his life, so this isn't
attributable to alzheimers, just more of what he has always been like.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

joaniejle@aol.com - 22 Oct 2006 14:43 GMT
Hi Evelyn,
Sorry about the "caps", I did not know.
Thanks for replying. I feel so lost and alone going through this. I
have a sister who does nothing and does"nt care. I will digest what you
said and hopefully stay in touch.
Thanks again,
Joanie

> <joanie...@aol.com> wrote in messagenews:1161486855.094615.162700@k70g2000cwa.googlegroups.com...
>
[quoted text clipped - 36 lines]
> Evelyn
> (to reply to me personally, remove 'sox')
Evelyn Ruut - 22 Oct 2006 15:19 GMT
> Hi Evelyn,
> Sorry about the "caps", I did not know.
[quoted text clipped - 3 lines]
> Thanks again,
> Joanie

Joanie, in the alzheimer unit you won't need any aides at all.   They know
that people with alzheimers need extra supervision and they plan for it.   I
know how you feel, believe me.   We couldn't imagine that anyone could take
as good care of my mother in law as we did.   We were pleasantly surprised.
Of course, depending on where you live, if you didn't have the money to pay
for her care in an alzheimer unit, she may be eligible for medicaid to pay
for it.   I hope you look into alternatives.  This is as good as it is going
to get, it only gets worse as time goes on.   I don't mean to depress you,
but it is the reality of this illness.   There is no getting "better" from
it.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Bill Cromwell - 23 Oct 2006 17:18 GMT
> Joanie, in the alzheimer unit you won't need any aides at all.   They know
> that people with alzheimers need extra supervision and they plan for it.   I
[quoted text clipped - 6 lines]
> but it is the reality of this illness.   There is no getting "better" from
> it.

My mother in law spent the last three years of her life in one of those
facilities and Medicaid paid for it. They took whatever little she had
such as her pension and applied to the bill, then paid the rest. We
had her in our home for several years and finally just could not keep up
with the growing demands. My wife has a brother and he did nothing to
help. He was mostly in denial.

Through a local Alzheimer's support group we found that each patient is
different so trying to generalize is difficult. One lady we met there told
us that her husband was so mean to her during the middle years of her
Alheimers while being kind and polite to strangers. The last year of his
life he forgot who seh was and so he began to treat her with respect as
well. There are a lot of surprises along the way. If you can find a local
support group it would be well worth your time to attend the meetings.
That doesn't mean you have to abandon this list.

Bill
genileuqcaj@aol.com - 23 Oct 2006 06:03 GMT
> Hi Evelyn,
> Sorry about the "caps", I did not know.
[quoted text clipped - 3 lines]
> Thanks again,
> Joanie

I too have a sister who refuses to help.  On the many occasions I've
spoken to her about sharing the responsibility of our mother, she tells
me I have "issues" and need (psychiatric) "help".  You are not alone.
Lee - 22 Oct 2006 18:54 GMT
I'm sure she is afraid to be in the room alone at night - she probably
experiences the same sort of anxiety when left for even a short time during
the day as well, but just doesn't have enough time to get as worked up about
it.

As my MIL progressed, she got to the point where if she could not see
someone, they did not exist. She couldn't remember that  I was with her, for
example, and that I had told her that I was just going into another room for
a second and would be right back.

It caused her a great deal of anxiety at times, although there were rather
funny (for me) moments as well, when we would have long conversations about
'alone' ... she would insist that she was alone, in spite of my observations
that if she was talking to ME to tell me about it, obviously she was not
alone. "Yes, I am. I'm all alone and I don't know what I should do. What
should I do about it?"

My MIL now actually has her bed in our living room, and we quite
deliberately put her to bed a while before we intend to go to ours - it
works well for us, as once asleep she sleeps through the night; usually we
are up before her as well - so in her reality she is not alone.

Your mother might well find a shared room in a nursing home a huge relief.

> MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE
> PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES
[quoted text clipped - 7 lines]
> THANKS
> JOANIE
 
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