Medical Forum / Diseases and Disorders / Alzheimer's / October 2006
AFFRAID TO BE ALONE AT NIGHT.
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joaniejle@aol.com - 22 Oct 2006 04:14 GMT MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES AT NIGHT AND IS BECOMING VERY HARD TO DEAL WITH. SHE IS RUDE AND NASTY TO THE STAFF. I HAVE AIDES FROM 10 AM - 7PM BUT CAN NOT AFFORD A NIGHT TIME AIDE. SHE IS CONSTANTLY LEAVING HER ROOM AT NIGHT AND CAUSING PROBLEMS FOR THE STAFF. SHE CLAIMS SHE IS AFFRAID TO BE IN THE ROOM ALONE AND ONLY WANTS ME THERE. MY LIFE FOR THE PAST 10 YRS HAS BEEN HELL DEALING WITH HER. JUST NEED TO HEAR FROM SOMEONE WHO HAS SIMILAR PROBLEMS TO CHAT WITH. THANKS JOANIE
Tumbleweed - 22 Oct 2006 06:40 GMT > MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE > PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES > AT NIGHT AND IS BECOMING VERY HARD TO DEAL WITH. SHE IS RUDE AND NASTY <snip>
Joanje,
Sounds like its time to move your mother to a specilaised alzheimers unit, rather than assisted care, because in assisted care she is expected to do many things herself, and from what you say, she cannot do this any more for key things like taking medication.
also, please turn off your 'cap locks' key, typing in upper case is hard to read and is considered 'SHOUTING'.
 Signature Tumbleweed
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joaniejle@aol.com - 22 Oct 2006 14:40 GMT Thank you for your response. Sorry about the "caps" i did not mean to "shout"' The Alzheimers units are way out of my financial reach and i would lose my aides so she would be alone all day. She has become very dependent on the aides. I am going to start by fixing her meds which they give her and hopefully she will sleep the night through. I know this will not get any better, but the longer I can keep her there I will. Nursing home really gets me upset and I'm not sure how she will react since she is still aware of her surroundings and does know my sister and I. thanks again Joanie
On Oct 22, 12:40 am, "Tumbleweed" <thisaccountneverr...@yahoo.com> wrote:
> <joanie...@aol.com> wrote in messagenews:1161486855.094615.162700@k70g2000cwa.googlegroups.com... > [quoted text clipped - 16 lines] > email replies not necessary but to contact use; > tumbleweednews at hotmail dot com Tumbleweed - 22 Oct 2006 15:08 GMT > Thank you for your response. Sorry about the "caps" i did not mean to > "shout"' [quoted text clipped - 3 lines] > her and hopefully she will sleep the night through. I know this will > not get any better, but the longer I can keep her there I will. Its going to happen one day so you'll have to plan for it in any event, I think most people here find that LO's tend to exhibit a slow decline followed by an abrupt fall to another 'level', sounds like your mother might be experiencing this imn which case you need to be prepared for the reality that assisted living at night isnt feasible any more? what would happen if she got up in the night and did something dangerous like left the apartment and wandered outside, switched on the gas without lighting it etc? What is the cost of aides all day compared to a home, because obviously in a home she wont be alone all day. Are they much cheaper?
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Dennis P. Harris - 23 Oct 2006 05:27 GMT > The Alzheimers units are way out of my financial reach and i would lose > my aides so she would be alone all day. I've got news for you --- if she has no assets, there is no legal requirement in most states that *you* pay for her care. If she has no assets, your state Medicaid program should pay for nursing home or dementia unit care.
John Inzer - 22 Oct 2006 08:05 GMT > MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE > PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES [quoted text clipped - 7 lines] > THANKS > JOANIE ============================ My wife and I had this same type of behavior to deal with when her mother was living with us. We came to a point when we could no longer deal with it and I can certainly sympathize with the staff in your Assisted Living facility.
The only solution we had was to admit her to a nursing home. Once she became adjusted to the new surroundings and her meds were adjusted she became more managable. And of course the NH staff was trained to deal with AD patients.
The day may come when your mother no longer recognizes you so be prepared for it. My wife's brothers quit visiting because they just could not bear the thought that their mother did not know who they were.
Alzheimer's is a viscious disease that robs us of our loved ones and all we can do is try to help them in any way we can.
 Signature John Inzer
Evelyn Ruut - 22 Oct 2006 11:49 GMT > MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE > PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES [quoted text clipped - 7 lines] > THANKS > JOANIE Hi Joanie,
You have gotten good advice from the other posters who have replied, and I just wanted to add my endorsement to what they said. Sounds like it is time for her to go into a place with better supervision. There are medications that can help too, but you need to talk to the doctor about it.
Also, please don't use all capitals, it is considered as though you were shouting at people. I am sure that isn't how you meant it, but better to release the caps lock and use regular lettering when posting here or on any of the newsgroups to avoid offending anyone, as I am sure it isn't your intent.
Many of us have been in the same situation with loved ones, and you will find plenty of sympathy here for what you are going through. It can be difficult as we all know. Funny how it sometimes helps to have friends to talk to about it. My father is also 93 and he absolutely refuses to go into assisted living (even though he needs it) and imagines he is going to be living independently until he magically passes away without a moment of incapacitation. He has been a difficult man all his life, so this isn't attributable to alzheimers, just more of what he has always been like.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
joaniejle@aol.com - 22 Oct 2006 14:43 GMT Hi Evelyn, Sorry about the "caps", I did not know. Thanks for replying. I feel so lost and alone going through this. I have a sister who does nothing and does"nt care. I will digest what you said and hopefully stay in touch. Thanks again, Joanie
> <joanie...@aol.com> wrote in messagenews:1161486855.094615.162700@k70g2000cwa.googlegroups.com... > [quoted text clipped - 36 lines] > Evelyn > (to reply to me personally, remove 'sox') Evelyn Ruut - 22 Oct 2006 15:19 GMT > Hi Evelyn, > Sorry about the "caps", I did not know. [quoted text clipped - 3 lines] > Thanks again, > Joanie Joanie, in the alzheimer unit you won't need any aides at all. They know that people with alzheimers need extra supervision and they plan for it. I know how you feel, believe me. We couldn't imagine that anyone could take as good care of my mother in law as we did. We were pleasantly surprised. Of course, depending on where you live, if you didn't have the money to pay for her care in an alzheimer unit, she may be eligible for medicaid to pay for it. I hope you look into alternatives. This is as good as it is going to get, it only gets worse as time goes on. I don't mean to depress you, but it is the reality of this illness. There is no getting "better" from it.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Bill Cromwell - 23 Oct 2006 17:18 GMT > Joanie, in the alzheimer unit you won't need any aides at all. They know > that people with alzheimers need extra supervision and they plan for it. I [quoted text clipped - 6 lines] > but it is the reality of this illness. There is no getting "better" from > it. My mother in law spent the last three years of her life in one of those facilities and Medicaid paid for it. They took whatever little she had such as her pension and applied to the bill, then paid the rest. We had her in our home for several years and finally just could not keep up with the growing demands. My wife has a brother and he did nothing to help. He was mostly in denial.
Through a local Alzheimer's support group we found that each patient is different so trying to generalize is difficult. One lady we met there told us that her husband was so mean to her during the middle years of her Alheimers while being kind and polite to strangers. The last year of his life he forgot who seh was and so he began to treat her with respect as well. There are a lot of surprises along the way. If you can find a local support group it would be well worth your time to attend the meetings. That doesn't mean you have to abandon this list.
Bill
genileuqcaj@aol.com - 23 Oct 2006 06:03 GMT > Hi Evelyn, > Sorry about the "caps", I did not know. [quoted text clipped - 3 lines] > Thanks again, > Joanie I too have a sister who refuses to help. On the many occasions I've spoken to her about sharing the responsibility of our mother, she tells me I have "issues" and need (psychiatric) "help". You are not alone.
Lee - 22 Oct 2006 18:54 GMT I'm sure she is afraid to be in the room alone at night - she probably experiences the same sort of anxiety when left for even a short time during the day as well, but just doesn't have enough time to get as worked up about it.
As my MIL progressed, she got to the point where if she could not see someone, they did not exist. She couldn't remember that I was with her, for example, and that I had told her that I was just going into another room for a second and would be right back.
It caused her a great deal of anxiety at times, although there were rather funny (for me) moments as well, when we would have long conversations about 'alone' ... she would insist that she was alone, in spite of my observations that if she was talking to ME to tell me about it, obviously she was not alone. "Yes, I am. I'm all alone and I don't know what I should do. What should I do about it?"
My MIL now actually has her bed in our living room, and we quite deliberately put her to bed a while before we intend to go to ours - it works well for us, as once asleep she sleeps through the night; usually we are up before her as well - so in her reality she is not alone.
Your mother might well find a shared room in a nursing home a huge relief.
> MY MOTHER IS 93 AND LIVING IN ASSISTED LIVING FACILITY IN NY FOR THE > PAST 4 YRS.. SHE IS REFUSING TO TAKE HER MEDS, PUT ON HER BED CLOTHES [quoted text clipped - 7 lines] > THANKS > JOANIE
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