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Medical Forum / Diseases and Disorders / Alzheimer's / September 2006

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Is this the right group?

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Donna in Texas - 15 Sep 2006 19:42 GMT
This seems to be a supportive and kind group for care givers.

Is there a group or message board for those who have yet to receive the
diagnosis but think that it's coming when this testing is completed?

Another question:  do any of your parents have long term medical care?  I
have good health insurance, but I don't believe it covers the long term care
that might be needed.  We can afford the insurance, but we can't afford the
care for such a prolonged need.

I would probably need to get the insurance before a diagnosis is made.

I really appreciate any of your answers.

Donna
Mary_Gordon@tvo.org - 15 Sep 2006 20:17 GMT
Yes, absolutely the right place.

If you are in the process of getting a diagnosis, you are probably too
late to consider the purchase long term care insurance.

My advice is to immediately book an appointment with a lawyer who
specializes in estate issues - you need some help to ensure you've got
everything you will need in place NOW while your loved one is still
able to sign legal documents. Things to discuss include

Medicaid Planning (This is HUGE -learn the rules for qualifying sooner
than later, and save yourself a lot of heartaches by finding out what
the pitfalls are. You can save a lot of money with good planning and
expert advice).
Medicare Planning
Wills & Trusts
Asset Protection (i.e. protecting the family home from long term care
costs)
Estate and Gift Taxes
Living Wills
Powers of Attorney
Guardianships/Conservatorships

In other words, talk about all the tools you need now to make things go
fast, easy and affordably for your family later.

Now is also a good time to work on getting a very good understanding of
all of your loved ones assets - hopefully with their help - and you
might also want to do some restructuring, consolidating etc. to make
things as simple to manage as possible (i.e. I say this because when we
waded into my MIL's stuff, it was quite a scattered muddle - all kinds
of little bank accounts and policies and you name its,  money in
non-productive places.

I know its unthinkable now, but the odds are better than good that your
loved one will need institutionalized care. See a lawyer - some good
advice can save you money and trouble later.

M
ladylove77 - 16 Sep 2006 01:55 GMT
Donna, this is a good group to join, even if you're just waiting for a
diagnosis.  Evidently problems have already arisen, and there may be someone
here who can offer good information.  As to long term care insurance,
neither of my parents, who died in nu
Gwenrsing homes, had any and both were on Medicaid (medicade); right now I
can't thing which is correct spelling!   I did have long term ins. for my
husband who also died in a nursing home after 8 months.  I have been turned
down three times so my children will just be stuck with doing the best they
can with what money I have left (if any).  It sure doesn't take long to eat
up a pile of money!

> This seems to be a supportive and kind group for care givers.
>
[quoted text clipped - 11 lines]
>
> Donna
Donna in Texas - 16 Sep 2006 02:23 GMT
"ladylove77" wrote:.

>I did have long term ins. for my
> husband who also died in a nursing home after 8 months.>

I guess a naive question, but was your husband's long-term insurance
significantly better than the Medicaid services?  I'm just thinking in terms
of having someone to come in our home to provide periodic care while my
husband tries to get out to visit family and friends, go to his part-time
retirement job, take an extended break, etc.  He says he will care for me
forever, but forever is a long time, and he doesn't know what he's signing
on for.   And then I'm thinking of the institutionalization part later.  I
just hate for him to lose all our [very modest] assets that he will need for
his own old age.  I am quite yonung for this to be appearing---57, and we
have no history of this happening to a young person in our families, so the
symptoms are quite a surprise.

Is there a place on the internet for the alzheimer's patient?

Thanks so much----

Donna
ladylove77 - 17 Sep 2006 02:40 GMT
Donna, we did not apply for Medicaid because we had some interest bearing
savings, so we would not have qualified.  We had not purchaed the most
expensive, so I had a very small amount to pay each month besides what the
insurance paid.  It sure did make a difference to have it though.
Gwen

> "ladylove77" wrote:.
>>
[quoted text clipped - 18 lines]
>
> Donna
Dennis P. Harris - 16 Sep 2006 07:07 GMT
> I would probably need to get the insurance before a diagnosis is made.

you most certainly will NOT be able to get it once you have a
diagnosis.
Evelyn Ruut - 16 Sep 2006 12:01 GMT
>> I would probably need to get the insurance before a diagnosis is made.
>>
> you most certainly will NOT be able to get it once you have a
> diagnosis.

Some insurance companies may require a test beforehand, or to have a set
time period that must elapse before the policy goes into effect.    Look
into their requirements and see what they need before you do anything else.
--

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')
Susan Kohn - 16 Sep 2006 21:22 GMT
I am a medical social worker so what I say about long-term care insurance
comes from that perspective:

first -- there is generally a 100 day exclusion -- for home care or for
nursing home care -- under the guise that Medicare will pay for the first
100 days -- that's wrong, Medicare pays for 100 days of care if there is an
acute-care need (open wounds, things like that) or a rehab need (rehab from
a stroke or hip fracture or hip replacement) other than those things,
Medicare doesn't cover much.  Anything that will be considered "custodial
care" is not covered by Medicare and if you are in a NH for rehab and get to
the point where you are no longer making rehab progress, Medicare is done
paying whether the 100 days are up or not.

second -- Long term care policies often require that you hire a ceritified
aide or someone through an agency -- in Buffalo NY that will run somewhere
between $15 and $20 per hour -- you must pay and the insurance company
reimburses you up to the daily amount that the policy stipulates -- so if
the policy stipulates $75 per day of coverage at $15 per hour, that's 7
hours of care at $15 per hour and less than 4 hours of care at $20 per
hour -- who covers the rest of the hours??  And if you live somewhere that
the economy is better and the per hour cost is higher, then what?  Most
policies won't allow you to hire private duty people that you know --  
although that has changed with a couple of insurers -- but they still have
to be certified not just someone you know.

third -- does the person who will be handling the paperwork to hire the
caregivers understand all this paperwork?  I can't tell you how many times
the person who has to hire the caregivers can't understand what they have to
do in order to get reimbursed.

In the last 2 or 3 years I have seen 4 or 5 people who spent $35,000 or more
paying the premiums on these policies and then never receiving any benefits
because they died within the 100 day elimination period.  Many financial
planners will now recommend that if you have the money to spend on a Long
Term Care policy (which is more expensive the older you are), you are better
off to put that money away and be able to spend it on whatever care you
need, not the care the insurance companies want you to have.

HTH
Susan

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>
>>> I would probably need to get the insurance before a diagnosis is made.
[quoted text clipped - 12 lines]
> Evelyn
> (to reply to me personally, remove 'sox')
Donna in Texas - 16 Sep 2006 23:33 GMT
Thank you all so very much for all the comments and information..  This is
going to be complicated just when I'm going to be least able to deal with
complications.  But that's true about many things.  I've often wondered how
the very elderly, the very sick, and the mentally challenged get along in
this world.

Thanks again,

Donna
Dennis P. Harris - 17 Sep 2006 06:00 GMT
> I've often wondered how
> the very elderly, the very sick, and the mentally challenged get along in
> this world.

unfortunately, with very little help from insurance companies and
the medical industry, which is why we need single payer universal
health care like every other cvilized industrial country has.

the first thing we should do IMHO is throw out every incumbent in
congress (except maybe bernie sanders and ross feingold), since
they have demonstrated that they can't be trusted to ignore
lobbyists and the "campaign contributions" (in other words,
bribes) they offer.
 
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