Medical Forum / Diseases and Disorders / Alzheimer's / September 2006
Query from my sister
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A R Pickett - 02 Sep 2006 23:58 GMT My father is aged 91, and increasingly in some other dimension of time and communication as a result of vascular dementia. My sister lives and works near his residence and the only family member close by. I am about two days drive away, and try as hard as I can to be a support for her.
Several years ago Dad met a man who works as a freelance carpenter. Dad hired him for a series of renovation and handyman type jobs and they became good friends. The friend Vince (not his real name) is much less sophisticated than my Dad was in his best days. Now that Dad no longer lives in my hometown, Vince continues to keep in touch, and has been very very willing to visit, drive my Dad around, take him to lunch and other social events of that type. Dad now regards Vince as an integral part of every family event. The rest of us have not been able to develop any kind of easy communication with Vince, and as a result holidays are a problem for my sister. What follows is from a recent email from her. I've told her about ASA, and have her permission to quote from her email. All names of all individuals are pseudonyms.
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This coming Christmas is an event I dread. I can't imagine leaving Dad by himself. He will want Vince included in our plans. I am tired of entertaining Vince and suspect that he is keenly aware that the work at Smith's house went to someone else. {{Insert from Woodstock - we hired another local carpenter for some bathroom work on a rental Dad owns. Vince would not provide us an estimate}} I don't mind inviting Vince to join the family at the funeral [when the time comes]but I feel imposed upon when it comes to socializing with him now, and having him at my house. Furthermore, the last time Dad was here getting him inside safely was a pins and needles event for me. We succeeded but just barely. Both Anne and Doug will be busy with newborns; if we were to visit either of them I couldn't possibly have Dad in tow. It just wouldn't work.
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The Anne and Doug my sister refers to are two of her children - each young family is expecting a new arrival in early November. They both live in areas geographically distant from my sister. Visiting them involves plane travel or a day's trip by car.
What do those of who read this suggest? My husband and I have similar experience with my mother-in-law who had no dementia but extremely limited physical abilities. In the last few years of her life we moved all family get togethers to a party room at her nursing home. We arranged for pot luck refreshments, served a meal, invited all and sundry to come for Mother's Day, for Thanksgiving, for a Christmas celebration, and so on. My mother in law who in her illness became very very silent was still able to follow and enjoy our conversation (she gave intriguing feedback to the staff, who shared with us) and we still had a "party" which included her.
I have suggested that my sister consider something similar at my Dad's apartment complex, and invite Vince, friends Dad has made at the complex, family members nearby, others who may be in the area for Christmas, and so on.
Any other ideas or reflections? One of my brothers suggests that my sister just plan the type of holiday she will enjoy and let all concern for Dad go by the board. My sister is a little too soft hearted to be comfortable with that advice.
Thanks for any feedback
 Signature A R Pickett aka Woodstock
"Sometimes the facts threaten the truth" Amos Oz, prize winning Israeli author
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Beth Heimlich - 03 Sep 2006 00:43 GMT Woodstock, I like your idea. Depending on your Dad's awareness of the holiday-have a separate celebration at his facility and invite Vince. If your Dad comprehends the holiday on the actual day, then if your sister wants just him over -that's her decision. My experience with my MIL was that she had no comprehension of the holiday(she did not know what do do with wrapped gifts, could not recognize the contents and was upset about all the "trash" lying around) and was anxious by the change in routine. For me, her confusion and agitation ruined the celebration and exhausted me. After that first year she was in the ALF, we now visit her at her place instead. 3 years later, she's pretty much oblivious to our visits. Sad, but it does become easier to accept the reality. Beth
Evelyn Ruut - 03 Sep 2006 14:57 GMT > My father is aged 91, and increasingly in some other dimension of time and > communication as a result of vascular dementia. My sister lives and works [quoted text clipped - 69 lines] > > Thanks for any feedback Woodstock, since your sister is too softhearted to consider other plans, it may not be productive to suggest any to her, but since you ask, I do like the idea of having separate parties.
You may recall that my father is quite elderly too (93) and bordering on vascular dementia as well. We occasionally do go to his house for events and holidays, and then go out to the Chinese Buffet he likes so much which is only a few minutes from his house. But the actual holiday is spent elsewhere, and we don't take him out to those events. There is a good reason for this.
He actually doesn't like going to events away from home anymore, and finds all the "commotion" as he calls it, unnerving. You might suggest to your sister that going one day to his place, and the next having a family gathering at hers, might work out well without offending anyone. Being around new infants and the crowd and attendant excitement might be harder on him than he will admit to.
We have someone much like your father's "Vince" in the picture. A lady who was half of a couple my parents socialized with for many years who is also widowed, was living in his home and helping him. She took him to doctors appointments and to the store and whatever. This involved rather a lot and we were all very grateful for her involvement.
Unfortunately along with her help came a lot of family troublemaking. The woman has turned out to be a very nasty and contentious person bent on making difficulties with me and my siblings. She recently moved out in a huff and blamed me for something she thought I might have said, even though she never actually heard me say anything. In truth I have never said a word against her, and have always been extremely kind and respectful to her. This has left my elderly father in a bind, and also created a lot of bad blood with threats to change the will, etc.
A lot of her resentment has to do with his miserliness and quality of life issues that my father denied her when she lived in that house. But none of his children have control over any of that, though I am personally and unfairly getting the brunt of his rage that she moved out.
So at the present moment I am dealing with a situation with some similarity to what you are going through. I can tell you that there is nothing in the world that would convince me to bring my father in to family celebrations that would include this woman, since she is an active troublemaker, not just a boorish lower class person, which you seem to indicate Vince might be.
Fortunately I am not under any pressure from my father to be included in holiday doings either alone or with the woman in question. As I mentioned, he prefers not to go out in the traffic on holidays and prefers to stay at home.
I don't know if I ever want to even speak to the woman again, considering all the trouble she started without cause at all, much less to welcome her into our family celebrations, although I am notoriously easy going if pressed about such things. I'd probably cave in if I were in a pinch about it, or especially if my father insisted. I'd want to please him.
So speaking from my own side, I personally don't think your family should be subjected to Vince's company if they don't enjoy him. Is there any way you could take your father to your sisters without Vince? Can you use the excuse that there won't be room? Your gratitude to Vince for squiring your Dad around should not necessarily include bringing him into the family circle for holidays, especially since your sister will have two new grandbabies and a very full house at that time.
Can you have a brief party one day at your fathers place with him which includes Vince, and then do the full treatment with the younger generation the next day at your sisters place without him? Would your father go along with that? Would your sister?
I think you and your sister ought to think about other options now, see how it could be managed without Vince, and if it turns out that you really must include him, then just hope he gets lost in the family crowd and all the holiday busy-ness and chalk it up to being nice to a stranger who helps your dad out a lot, on a holiday, as so many people do that in keeping with the season.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Mary_Gordon@tvo.org - 04 Sep 2006 16:40 GMT The last time we had my MIL to our house for a holiday meal was more than 2 years before she died. I've told the story here before - suffice it to say, it was a nightmare getting her from the AD unit to our house, and everyone was completely frazzled. Just trying to get her out the door and into the car to come to our place caused a catastrophic reaction for her. We decided she just wasn't well enough to put her (and everyone else involved) through the whole ordeal - particularly when she wasn't really aware of it being a holiday - all of that had lost its significance for her.
We did attend special events at the AD facility. They had some very nice pot luck dinners and special teas etc. for the residents that families and friends could attend, and they were much more suitable for the residents - less stressful, shorter etc.
My suggestion for your sister is as per Evelyn's - find out what events might be planned for the facility and let your father's friend know when they are. Tell him your father isn't well enough to come home to her house at the holidays for an entire evening or day - and it might be a nice gesture to attend an event at the facility with your father's friend if that is possible.
Another alternative is to have some sort of simple afternoon 2 or 3 hour open house at her place at some point during the holidays with Dad sitting in state. I have those down to a fine art, since we do at least one annually, usually between Christmas and New Years, and all our friends and family have come to enjoy them and look forward to it. I can put the whole thing together in an hour or two. We put out veggies and dip, Christmas cookies, cheese and crackers, chips and salsa - very simple kinds of snacks and treats that don't involve me having to cook or bake or make anything fancy (block of pate on the board with a knife in it, some grapes, stack of crackers, ta da!) We have some pop on hand, maybe some non-alcoholic punch and a couple of bottles of wine, and beyond that its mostly BYOB since we are very light drinkers. We throw the doors open for a couple of hours, everyone knows when it is, and we never know who will show up. Many of our friends have told me why they like it so much is that its so low key and low stress - they can drop in and out, they can bring the kids if they want, they don't feel pressured to stay for hours, they love the chance to visit with people they don't often see. I like it because I get to see everyone, and its way fun with limited work to arrange - plus it knocks off all kinds of social obligations from acquaintances we might not want to entertain one on one for an entire evening.
M
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