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Medical Forum / Diseases and Disorders / Alzheimer's / August 2006

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Moving Mom

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Judy - 29 Aug 2006 16:34 GMT
Hi all.  I've only been lurking here for about a week but thought perhaps it
was time to jump in with a question.

A little background - well, maybe not so "little".  My mother, age 78, has
been diagnosed with dementia.  We've done all the rule-outs for fixable
causes so it looks like if it isn't Alzheimer's it might as well be.

Mom is aware that she is confused and that she has memory lapses and losses.
She is frustrated by that when she realizes it but accepts that we are
trying to help her.  I can't tell if she actually understands what is wrong
but she doesn't seem to expect that any of her doctors are going to be able
to make it all better again.   Mom is still able to manage in her own home
and can be left alone for short periods.  We have taken her car keys.  We
have all the legal stuff under control.

My older brother lives with my mother.  I am about an hour away and another
brother is two hours+ away.  We are all (knock wood) working together well.
The brother who lives with Mom is, understandably, getting extremely
stressed.  Although he's willing, I don't think he will be able to handle
everything as the disease progresses.  Certainly not alone.

And my mother also has moderate COPD - uses oxygen at night and as needed
during the day, breathing is pretty well controlled with current drug
regimen.  Mom's house is a split level and this will eventually become a
problem - if not because of the Alzheimer's, then because of the breathing.
She is steady on her feet right now but the neurologist has warned us that
she has a spinal stenosis and that it will eventually, almost certainly,
affect her balance while walking.

Mom says she is willing to move.  She bought this house about three years
ago and has no emotional attachment to it.  She has expressed concern that
the time will come when she will not be able to manage the stairs.  She has
talked about buying another house and moving almost since she moved in.

So, we have what seems to all of the other family members to be a reasonable
solution.  My husband and I have been discussing moving out of our house -
getting down off a windy hill and closer to civilization.  We are looking at
houses in an area about half-way between where we currently live
(considering also that my husband has elderly parents including his mother
who has a serious heart condition and is in hospice - they live about a mile
from where we are now) and where my mother lives.  It would be close enough
to continue with my mother's current doctors and maintain at least the
illusion of remaining in the community she has lived in for years.  It would
also be close enough to still keep the connections we need.  We have figured
out (at least in theory) what we will need to make a household of four
adults work.  It is financially possible for us to do this.  I think with a
"tag team" approach - aided by additional respite time from the other
brother - that we'll be able to cope with the whole situation better and for
a longer time.

But - the big BUT - how do we go about discussing this with Mom?  If we tell
her about it before we even have a house, she will drive us all (herself
included) crazy with the constant questioning and worrying that she will do.
And yet, presenting her with the house and the move as a fait accompli risks
a whole other set of problems if she refuses to move.  I know she will be
upset that we would sell our house and move because of her.  So we are
making a list of all the other reasons why we all want to do this.

We have told her that my husband and I are looking at houses in the area and
that there are people looking at our current house to buy it.  Mom has
remembered this from day to day but her reaction is "duller" than it would
have been in the past.  Since it may be weeks or months before we find an
appropriate house to buy, I don't want to start her worrying about a move
before I have to.  But I also don't want to have committed myself
financially to a house (this particular move would be temporary for us - for
the duration only) just to find that she is adamant about not moving.

I'm sure also that the move itself - and adjusting to a new neighborhood -
will be extremely stressful for Mom.  Her friends would still be close
enough to visit although most of them have already drifted away.  Her life
already revolves entirely around us so I'm thinking that will help in her
adjustment.

Any thoughts from the more experienced about either of these issues - how to
handle preparation before the move and what we might expect after?

Thanks,
Judy
Evelyn Ruut - 29 Aug 2006 17:47 GMT
> Hi all.  I've only been lurking here for about a week but thought perhaps
> it was time to jump in with a question.
[quoted text clipped - 76 lines]
> Thanks,
> Judy

Hi Judy,

This (what you are describing) is exactly what we did.   We bought a house
big enough for both us and my mother in law, but we were in a terrible
quandary about how to take her here with us.  We knew she needed constant
care, but she was loath to leave her home of so many years, or to give up
her (illusion of) control over her own life.   Meanwhile she got sicker and
sicker and more confused, took too many or not enough of her medications,
burnt all the handles off her pots, and lost 30 lbs.

What differed in our situation was that there were no siblings to work with,
but there were some neighbors and friends who were essentially working
against us.   We had to sit by and wait until the situation got so bad, that
they finally called us and said "HELP! you've got to DO something about your
mother!"

There was no question about trying to tell her about it, because as you
noted, she would have driven both us and herself insane with obsessing over
it, and questions and confusion, and for a person who could not remember one
second to the next, it would have actually been unkind to do so.

We simply took her on a "visit" that never ended.   We took it all upon
ourselves, with legal stuff all in place, POA and etc., we proceeded
carefully.   For us it was the only way and it worked out.

Of course all my mother in law's friends nearly disappeared as soon as we
took her to live with us.  One or two managed an occasional phone call, but
along with her memory, friendships soon fell by the wayside.   One or two of
them died themselves, and the others were too busy to drive the two hours up
to see her at our house, even though we would have been happy to put them up
overnight or do whatever it would have taken to keep them around her.

So based on common sense, which you already seem to have, and our own
experience dealing with a similar situation, I say you should just buy your
bigger house, get set up near her, then start keeping her overnight till she
lives with you all the time, or else do it in one fell swoop, whichever
works out best for you.

We kept my mother in laws house, paying heat, taxes and utilities etc. on
the place for two years.   Finally we had to sell it, realizing she wasn't
ever going to return there, and the money from it would serve her better in
a different venue.   Even with that time frame, it was a terrible hassle to
sort through everything to suit her new circumstances, and donate, toss, or
relocate all her things, commuting two hours down and two hours back, and
get home in time for her return home from daycare each day.

We did not involve her in any of that either.  By then her illness was such
that we saw that any little thing to stress over, or to worry over, would
obsess her for weeks.   We regarded it as a little extra peace for her and
for us, not to get her involved with all of that.

Her current needs were all that mattered.   Hers and our peace of mind on a
day to day basis were of the utmost importance, not to worry about what to
do with things she could never use again.

So my vote is not to tell her.... just do it and let it all fall into place.
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Elaine - 29 Aug 2006 17:47 GMT
Hi Judy,

It is refreshing to hear that you and your siblings are working together in
finding the best solution for your Mom.

Depending on how far the AD has progressed it is possible that after you
find the suitable house for her and your family, she will soon settle in and
forget all about where she lived before. It will be a big change for her in
the beginning. Good news to this is they don't remember for long and you
said she doesn't have any special ties to her current home will make it
easier. How would she feel about getting involved with looking at the houses
with you and your husband? This way she would feel like she is being made
part of the choice and be more inclined to make the move.
We added a little apartment type addition onto my house for mom that has
worked out well. She has her own space and I do too but close enough for me
to keep an eye out for her. My old kitchen window above the sink is now a
"past through" type that looking right out over her couch in the den where
she spent most of her days. She was included in as much as she wanted to be,
picking out rugs and paint colors etc. We got most of her favorite pieces of
furniture in to make it more like her own home (where she spent the last 50
yrs in). She missed it but now never even mentions it so here is now her
"home".

Just takes some time to get use to.
Good luck
Elaine
> Hi all.  I've only been lurking here for about a week but thought perhaps
> it was time to jump in with a question.
[quoted text clipped - 76 lines]
> Thanks,
> Judy
Alan Meyer - 30 Aug 2006 01:15 GMT
I don't have direct experience with the specific problem you
are dealing with here so I can't offer much advice.  However
I would like to offer a couple of suggestions for things to
think about in addition to the excellent advice you've already
gotten.

First, have you considered assisted living for your Mom?  The
cost of a nice place can be high, but the cost of buying a new
house and then attempting to resell in an uncertain real estate
market could be high too.  Depending on how and how quickly
she declines, you may find it increasingly difficult to care for
her at home.

Secondly, assuming that you proceed in the direction you
indicated, would it be at all helpful to present this as a way
that your Mom can help you, instead of as a way for you to
help her?

For example, "My husband and I are tired of living out in the
boondocks and have picked out a nice house in town not
far from here.  We'd really like you to come and stay with
us for a little while, and help us settle in.  We have lots of
room with a beautiful room for you to use and it would really
make us feel at home if you'd come and visit with us for
a while."

You never know what will work, but there are some people
for whom that angle might help.

   Alan
Judy - 30 Aug 2006 13:23 GMT
> Any thoughts from the more experienced about either of these issues - how
> to handle preparation before the move and what we might expect after?

Thanks for the ideas and thoughts.  It's such an individualized thing to
know how to handle it but at the same time, there are so many things that
are the same for everybody.

My mom has asked how our house search is going - for some reason she
remembers that we are looking.  Yesterday she mentioned that if she were to
move, there were *all those boxes* down in her cellar - many of which
haven't been opened in years.  I told her we were making up a pile of stuff
to take to an auction house (one near her that her friends have used for
years) and that perhaps one of these days we should go down and rip open her
boxes and see if she had anything to add to my collection.  I'm also making
up a pile for a church rummage sale and she wants to go through her closet
and add to that.

As far as discussing much with her in advance, things keep happening to
remind me that it's clearly not an option.  Some of her friends from her old
school (where she also volunteered for years after retirement) called last
week and wanted her to go over and spend an hour or more, maybe even lunch,
getting some little jobs done around the library.  They would have been
completely supportive and totally accomodating to her needs.  She had too
much time to think about it and wouldn't go.  I'm thinking now that if
someone had just showed up at the door and said  "Come on over for a little
while - we could use your help" that she would have agreed - and enjoyed
herself.

Judy
Evelyn Ruut - 30 Aug 2006 15:06 GMT
>> Any thoughts from the more experienced about either of these issues - how
>> to handle preparation before the move and what we might expect after?
[quoted text clipped - 25 lines]
>
> Judy

That was exactly how my mother in law was, Judy.

If she had ANY time to think about ANYthing, in advance, she would dig her
heels in and say "no" to it, no matter how nice an occasion it was.   We
discovered early on that she would obsess and obsess and make herself and us
crazy with any advance warning about anything.   On the other hand, if you
just showed up and said, "hey we have a doctor appointment today, lets get
you dressed" or something like that, she would acquiesce with no difficulty.
Many people here have reported the same behavior, so it may be a pattern.

When people suggest giving any advance warning whatsoever, it may be
perfectly fine to do with a normal person, but once alzheimers is in
process, the obsessing and stressing starts with anything that they
anticipate in advance.   We found it was better to "just do it" ourselves,
and protect her from that kind of aggravation as much as possible.

Our goal was to make her comfortable and happy as it was at all possible to
do.  We quickly discovered what sort of things sent her into a spin, and
avoided them if at all possible.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

 
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