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Medical Forum / Diseases and Disorders / Alzheimer's / July 2006

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Major derailment

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Dana Carpender - 29 Jul 2006 15:55 GMT
I told y'all that my brother was taking our mom to California this week
and putting mom in a facilty there.  Well, Wednesday morning, just as I
was getting up, I got a call from him.  Mom had ended up in a stranger's
house about three blocks from her home the night before -- she was
trying to keep my brother's dog away from him, because she was sure he
wanted to kill it.  He needed me to come up for a couple of days to keep
an eye on her, until they could get on the plane Friday.  It's pretty
damned hard to take care of someone who is paranoid of you, unless
you've got the power to lock them in or something.

So I drove to the Chicago 'burbs (about 6 hours) and spent a couple of
days with Mom.  It's clear she's taken a bad turn for the worse -- she's
convinced my brother is robbing her blind, wants to kill both his pets
and her cat (we came home from being out for dinner, and when she walked
into the kitchen and discovered there wasn't the usual compliment of 4
or 5 dishes of catfood on the floor -- she'd picked them up before we
left -- she immediately said, "I think someone's killed the cat!"  I
asked her why she'd think that, and she said, "Well, John doesn't like
it, and thinks it's a lot of trouble.  I think he might come over here
and..."  I ran up the stairs, found the cat sleeping on her bed, and
headed her off,) and is beating my nephew.  Indeed, she was trying to
figure out how to get Henry away from his father and take him down to
her old house (which of course was sold 2 years ago) to keep him safe.
In short, it is *seriously* past time to get mom into residential care.

But while mom and I were out that evening, I got a call from John.
Turns out that the facilty he *thought* my sister and my dad had it all
lined up for mom to enter doesn't have a move-in date for mom, and that
once they do have a move-in date, it generally takes 4-5 weeks to get
someone admitted.  Further, they have no precautions to keep people from
wandering in that level of the center, and the more secured part of the
facilty doesn't have a vacancy.  John was absolutely *beside* himself.
He's damned near the cracking point anyway, and I don't blame him one
bit.  When he thought he was just days from the burden being lifted from
his shoulders, his relief was so palpable I could feel it coming off of
him in waves.  It is an incredibly cruel blow to have that snatched away
and possibly be facing being back at square one.

I am so furious with my sister that I can't bring myself to call her.
I'm afraid I'll say something that will destroy our relationship
forever.  John and I were all ready to put mom in a facilty here in my
town back in March or April, but Kim was really upset by it.  We were
making decisions without her! she said.  She wanted mom near her! she
said.  So I didn't get mom into Bell Trace, but we told Kim to get off
the stick and find a place *NOW*.  It's 4 months later, and while she's
*finally* picked a facilty, she apparently didn't bother to find out
just exactly what was needed to *check Mom in*.  And she wants to put it
off a few weeks -- after all, we have to get Mom a nice bed, and which
do I think would be best, a daybed or a storage bed?  John has told her
-- as kindly as possible -- that this is like discussing what kind of
bucket to use to throw water on Mom when she's on fire.

So we don't know if Mom is going into Sunrise or not.  I've done the
only thing I can; I called the Special Care Unit at Bell Trace and asked
if they have a vacancy.  They have one, and they're okay with waiting
3-4 days to see if we need it, which we well may.  They're very nice people.

At least I got a good night's sleep in my own bed last night.  I didn't
sleep more than 2 hours the whole time I was at Mom's.  Just as well.
That way, when her clock went off at 5:30 yesterday morning, I was awake
to remind her that no, she couldn't go back to bed, she had to take a
shower and get dressed and eat breakfast, 'cause she was going to
California to see Kim.  Ellen.  Whoever.

Argh.

Dana
tvengineering - 29 Jul 2006 16:44 GMT
geeze, does this sound familar.  Sorry you are having so many problems.

One thing to make sure of, make sure you or someone has legal guardianship
of your mother.  We got my mom into a nice facility, but she kept saying
that she wanted to go home.. dozens of times a day, and went as far as to
pack all of her belongings and trying to get out the door.  She started to
bother the care facility administrator - with the I want to go home story.
Everyone told her she couldnt.

then on the day her medicare dropped out of paying 100% and it went down to
medicaid at 60% pay, my mom suddenly knew what a omsbudsman was, how to get
in touch with one, and to explain that she was being held against her
wishes.  Albiet, this was with help from the administrator.

We received a call from the omsbudsman office at 3:30 pm saying that we had
until 6 pm to pick my mother up or they would put her in a taxi and send her
home, but that someone needed to be there to pay the driver.  It then became
a mad dash to find a facility for mom, in a matter of hours.  We ended up
calling our family doctor, that was kind enough to put her in the hospital
for tests... which gave us a few days to find something, but certainly not
what we wanted.  All in all, it has taken us another 6 months to get her
into another decent care facility.  And all because we didnt have
guardianship.

Good luck with your mom.  Its a heartbreaker I know.  I am a big burly guy
that cries for my mom way too often.

>I told y'all that my brother was taking our mom to California this week and
>putting mom in a facilty there.  Well, Wednesday morning, just as I was
[quoted text clipped - 63 lines]
>
> Dana
Dana Carpender - 29 Jul 2006 19:42 GMT
> geeze, does this sound familar.  Sorry you are having so many problems.
>
[quoted text clipped - 19 lines]
> into another decent care facility.  And all because we didnt have
> guardianship.

What's the legal difference between guardianship and power of attorney?
 And since my brother has the latter, would there be any problem
getting the former?

Thanks!

BTW, Medicare isn't a big issue here; Mom's got pretty substantial assets.

Dana
tvengineering - 29 Jul 2006 21:23 GMT
Power of attorney lets you sign papers for someone.  I can give you power of
attorney, so that you could write checks or sell my house or the such.

Guardianship makes you the "parent" so to speak.  You can make medical
decisions, sign all legal documents, and your mom would have no legal say in
anything.

If all you have is Power of Attorney, your mom could legally check herself
out of any facility that you check her into, and you could not stop her.
You should really think about this... if she really is against a home, all
she has to do is tell them she wants out.  Legally agian, they must release
her.  It would be considered checking out AMA, but none the less, they would
have to let her go.

With guardianship, You or whom ever has been designated at guardian would be
the only one that could have her released.  Your mothers wants in the matter
would have to be done through you.

It takes a court order to become a guardian.  You might talk to a social
worker that deals with this sort of situation to set you on track, but act
quickly!

good luck

>> geeze, does this sound familar.  Sorry you are having so many problems.
>>
[quoted text clipped - 29 lines]
>
> Dana
Dennis P. Harris - 31 Jul 2006 02:56 GMT
> What's the legal difference between guardianship and power of attorney?
>   And since my brother has the latter, would there be any problem
> getting the former?

There are two kinds of durable POAs, for health care decisions
and for handling finances.  If your brother has both, a
guardianship should not be necessary.

Guardianships are not what you want to do in some states, where
the court may appoint someone who is not a member of the family,
and who charges for their services.

Who thinks he needs a guardianship?
Dennis P. Harris - 31 Jul 2006 03:00 GMT
tvengineering wrote:

> then on the day her medicare dropped out of paying 100% and it went down to
> medicaid at 60% pay, my mom suddenly knew what a omsbudsman was, how to get
[quoted text clipped - 10 lines]
> into another decent care facility.  And all because we didnt have
> guardianship.

a durable power of attorney would have done the same.  you should
have sued this facility for what they did, and you most certainly
should STILL report it to the office of the aging in the state
where the home is located.
tvengineering - 31 Jul 2006 10:25 GMT
we tried.  The overall belief of each lawyer and state office we contacted
was that it was a terrible thing they did, but still legal.  Mom was her own
legal guardian, thus she was legally entitled to check herself out AMA just
by saying "I want out".  In the state of Georgia (where mom is), if they did
not release her, it would be considered kidnapping.

Durable power of attorney would not have prevented her from checking herself
out.  This would have allowed us to check her in, but she still retains
legal guardianship of herself.

> tvengineering wrote:
>
[quoted text clipped - 24 lines]
> should STILL report it to the office of the aging in the state
> where the home is located.
Evelyn Ruut - 29 Jul 2006 16:46 GMT
>I told y'all that my brother was taking our mom to California this week and
>putting mom in a facilty there.  Well, Wednesday morning, just as I was
[quoted text clipped - 63 lines]
>
> Dana

Dana,

The antipsychotic I mentioned kicks in right away, if you can get her doctor
to prescribe it.

If I were you, I think I would get your mom into Bell Trace, or the very
first available decent facility that agrees to take her, and then let your
sister try and get her transferred later on, if she still has a mind to do
so.

I feel so bad for you having to go through this.   Your sister apparently
hasn't got a clue how bad things have gotten.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

ladylove77 - 29 Jul 2006 19:39 GMT
Oh Dana, what a disappointment for your brother, and for you.  I do hope
that when they got to California, your sister had found a place for your
mom, even if it is not the one preferred.  She can be moved once the best
one is ready for her.  Try to relax; things will work out.
Gwen

>I told y'all that my brother was taking our mom to California this week and
>putting mom in a facilty there.  Well, Wednesday morning, just as I was
[quoted text clipped - 63 lines]
>
> Dana
Deborah - 29 Jul 2006 20:25 GMT
Oh, Dana!

I can echo that antipsychotics are somewhat effective. Sounds like it's
past time.

It kills the caregiver's soul to some degree, nevertheless, when the LO is
at this stage. Especially when it's a mother/daughter/son involved. JME.

Best thoughts.

Deborah
Dana Carpender - 29 Jul 2006 20:44 GMT
> Oh, Dana!
>
[quoted text clipped - 5 lines]
>
> Best thoughts.

Thanks.  It breaks my heart for my brother that after so many years of
helping mom, doing everything he possibly could to make her life better,
safer, happier, more comfortable, she now thinks he's seriously evil.
He was prepared for the day she wouldn't recognize him, but this is
infinitely worse.

Dana
Deborah - 29 Jul 2006 22:37 GMT
>> Oh, Dana!
>>
[quoted text clipped - 14 lines]
>
> Dana

Yes, it's far worse. You are habituated to having a sharp mother, one who
has the highest powers of deduction and the highest degree of common
sense.

I can't say too much more, at this point.

My own brilliant mother is gone, now, too. Dementia stole her.

Sorry, Dana. I think I may be able to understand a bit.

You and your sibs aren't alone. There are many in this group who
understand, in fact. They get it.

We all want to help your family. That's a fact.
Dana Carpender - 29 Jul 2006 22:56 GMT
>>>Oh, Dana!
>>>
[quoted text clipped - 22 lines]
>
> My own brilliant mother is gone, now, too. Dementia stole her.

I'm so sorry.  It's the cruelest thing in the world.

> Sorry, Dana. I think I may be able to understand a bit.
>
> You and your sibs aren't alone. There are many in this group who
> understand, in fact. They get it.
>
> We all want to help your family. That's a fact.

Thanks so much.  It helps alot just having this group to vent to,
knowing you all know what it's like.

Dana
Alan Meyer - 30 Jul 2006 02:45 GMT
> ..
> I am so furious with my sister that I can't bring myself to call her. I'm afraid I'll
> say something that will destroy our relationship forever.
> ...

I know exactly how you feel about that.  I went through something
similar with a brother-in-law on the other side of the country who
wanted to take care of my father-in-law (who had a terminal illness,
not AD), but somehow was unable to get his act together to do
anything.  But he was full of criticisms of his sister and brother
who were bearing all of the burden.

I still feel critical of the guy's behavior, but I have also come
to understand him a bit better.  Just like us, he was very upset
about what was happening to his Dad.  What he lacked was any
practical understanding of the situation and any realization of
what his siblings were going through.  He was not motivated
by ill will.

Some day you'll get a chance to talk to your sister quietly about
the situation and explain to her what's really happening and how
her actions were doing more harm than good.  Hopefully she'll
understand and the two of you will be okay together.

   Alan
 
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