Medical Forum / Diseases and Disorders / Alzheimer's / July 2006
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lifi - 19 Jul 2006 17:41 GMT My Dad is 88 and my mom 78. She's in poor health but, aside from deafness, my dad was doing well, on no medications whatsoever, and busing to the casino up to twice weekly with other seniors.
When my mother was suddenly hospitalized, it was revealed how bad my dad actually was. Bipolar disorder ran rampant among his now-deceased siblings, and we've always known he was "difficult", but my mother always took care of him and was hiding what was really going on. Now, two psych wards and lots of medications later, he's in assisted living waiting for my mother to get well and join him, and jeopardizing his place there due to inappropriate behavior. My sister and I knew they needed an advocate, and we live on different coasts, so we moved them both to an assisted living facility close to her (they did not move from their home willingly). I just got back from visiting them, and I'm shocked and dismayed by it all.
My sister is playing martyr, exhausting herself and working herself into a constant frenzy. My dad is bugging her to death, even cursing her out, because she won't give him the $400 cash she took from him when he was hospitalized. He has no need for money where he is, but he thinks he's going gambling, thinks he's going home, and is terribly confused. Not the cantankerous, but brilliant man I knew.
There aren't enough adjectives in English to capture the range of emotions I'm feeling. I'm hoping my parents will both stabilize and that I will be able to move back to their home with them (along with a skilled nurse). Everyone is telling me I'm crazy to even consider this.
Does anyone have advice for me?
Evelyn Ruut - 19 Jul 2006 19:14 GMT > My Dad is 88 and my mom 78. She's in poor health but, aside from > deafness, my dad was doing well, on no medications whatsoever, and [quoted text clipped - 25 lines] > > Does anyone have advice for me? Hi,
I have some advice, but somehow even with all you have written above, and considering your last paragraph I fear you may not be inclined to listen, but I hope you will consider it.
Please don't do this to yourself. You say everyone is telling you that you are crazy to consider taking them to live with you. I am telling you the same thing and I only know what you have told me. Presumably the others know all the parties concerned. It would be a terrible mistake, and you will be letting yourself in for the worst misery of your life if you do it anyway.
You say your sister is "playing martyr" ...... have you considered that she is actually martyring herself (not playing) and that you are considering doing the same thing? Do you think he would end up cursing you for the same reasons he curses her? I do.
You can't turn back the clock. No matter how brilliant he was, you are not dealing with what was, you will be dealing with what "is" right now. A difficult man who is nearly getting himself kicked out of assisted living, will be far worse if you take him to live with you, simply because you are his daughter and he is used to getting his way. Soon you will be running yourself ragged just like your sister is, and killing yourself trying to deal with an irrational person.
Also, how long do you think a professional nurse will stay on the job if she is faced with the kind of personality issues you have described? Like anyone else, they pick and choose their jobs, and there just may not be enough money to put up with someone who has severe problems. You may end up experiencing a turnover, or worse yet, someone who maybe can't get other jobs for some serious reason.
For your own sake, I truly hope you listen to those who are advising you. You are allowing your emotions and memories of better days to draw you in. This is a decision that needs to be made with a clear head.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Tumbleweed - 19 Jul 2006 21:58 GMT > My Dad is 88 and my mom 78. She's in poor health but, aside from > deafness, my dad was doing well, on no medications whatsoever, and [quoted text clipped - 25 lines] > > Does anyone have advice for me? yes, you are crazy to even consider this.
Certainly in the experience of most everyone here, people dont 'stabilise', they get worse = more difficult to look after. A few months back I had occasion to look after a seriously ill person for a short time. I am pretty fit, but to get them to the toilet once, with my partner, was a massive job, and at that point we realised we simply couldnt do that even short term, it wasnt physically possible for us. You are talking about caring for _two_ people in that state, one with a disruptive illness. What happens when your father decides to run off to the casino, whilst your mother needs help at the same time?
I wrote a lot more here then deleted it, just add everything that Evelyn said, especially about your sister, dont be so hard on her, what makes you think you wont be like that in a few weeks once you are in the same circumstances as her?
 Signature Tumbleweed
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Chuck Whealton - 20 Jul 2006 00:58 GMT > My Dad is 88 and my mom 78. She's in poor health but, aside from > deafness, my dad was doing well, on no medications whatsoever, and [quoted text clipped - 25 lines] > > Does anyone have advice for me? Lifi:
This is hard, no question. But I wouldn't be hard on your Sister. They're her parents also and I'm sure that like you, she loves both of them very much. It can slowly drive you insane having to deal with somebody suffering from bipolar disorder.
Is your Father on any type of medication? And more importantly, is he actually taking it (as opposed to hiding/cheeking it)?
Like the others here, I've seen the effects of bipolar disorder. It's not easy, but medication CAN help...
Best of luck...
Charles R. Whealton Charles Whealton @ pleasedontspam.com
Dennis P. Harris - 20 Jul 2006 02:37 GMT > There aren't enough adjectives in English to capture the range of > emotions I'm feeling. I'm hoping my parents will both stabilize and > that I will be able to move back to their home with them (along with a > skilled nurse). Everyone is telling me I'm crazy to even consider this. you are. as you would learn if you had ever attended a program for children of alcholics, or a NAMI family support group for family members of the mentally ill, YOU ARE NOT RESPONSIBLE FOR YOUR LOVED ONE'S PROBLEMS OR ILLNESS, AND YOU CANNOT FIX THEM. they can only fix themselves, something mentally ill folks are not capable of doing because lack of insight into the illness is part of the disease.
> Does anyone have advice for me? DON'T DO IT. your parents will get far better care in faciity from folks who arrive for their 8 hour shift rested, and who can leave the problem at work when they leave.
i supported my bipolar mom so that she could live at home for most of the last 10 years, and it was hell keeping her on her meds. only the threat of being hospitalized if she got off her meds and became manic kept her taking them, but it was a constant battle. she had emphysema and pulmonary edema (congestive heart failure). hypoxia-caused memory problems (she refused to use oxygen even when she really needed it) eventually led to her getting off her meds, her blood pressure going sky high, and several mini-strokes which resulted in dementia, a manic episode, and high anxiety, before she had to go into a group home.
as the serenity prayer says, have the wisdom to understand that there are some things you can't change, and accept that.
Mary_Gordon@tvo.org - 20 Jul 2006 15:51 GMT Lili, has your father been assessed for dementia, on top of the bipolar issues? It would explain a lot.
The thing is, it isn't realistic to expect them to "stabilize" at ages 78 and 88 respective. They are both going to decline physically due to age and infirmity, and if your dad has Alzheimer's or something similar, he will for sure continue to get worse and worse, irrespective of where he is or what medical help he gets.
Its a sweet wistful notion that you could look after them in a private home setting, but it is absolutely NOT a realistic plan. Who they are now is the reality, and this is as good as it gets - its all downhill from here, so if they are hard to handle today, they will not be easier in 6 months or a year.
Mary G
ncgen - 20 Jul 2006 16:31 GMT I totally agree with the others. Don't do this to yourself. In the long run it will be harder for them to adapt again to the changes if you take them home, can't manage, and have to place them again. You also have to think about tthe dangers to yourself and your mother at home with your father. In the facility, hopefully, he is receiving care from a mental health professional also. The staff at the facility can monitor his behaviors and not be as personally affected by them as you would. They are used to dealing with behavioral aspects of residents. I do think you should have him evaluated for Dementia. Transistions such as he's had can exerbate behaviors and bring out new ones in persons with Dementia. With my normally calm MIL, each time she had a major transition, her behaviors became worse for a period of time til she adjusted and became used to the routine. With your father having Bipolar, if he does have Dementia, the effects would be increased with his behavioral outburst (not always but very probable). I think taking him home would soon wear you out. Your sister may be realistic in what she's telling you. Unless someone is there actually dealing with the onslaught, it's hard to know the reality of what's happening at times because you don't hear what he's saying or doing firsthand.
With my own family, my mother and aunt finally listened to me after my grandmother ran off her livein caregiver and placed her. Turned out she'd known the lady wasn't returning after the holiday and didn't tell them, thinking she could force my mom to go back to town and live with her or make my aunt move in. She already wore them out even though she had a live in helper. I tried telling them she had some Dementia also but they refused to accept it. They let her manipulate them into running down there every day just about, staying the night, even though they already paid someone to live in.
Since the home they moved her to brought her closer to my mom, she switched her daily multiple phone calls. demands, complaints, and tirades to my mom instead of my aunt. My mom finally undestood that her sister was not exaggerating how my grandmother behaved. My aunt backed away for her own health and sanity and my mom quickly saw how it was for my aunt when she was the closest one. My dad finally had to put down his foot on Mom running to the facility in the middle of the night for calls that were manipulative rather than emergency in nature. My grandmother could get nasty with them if no one else was around. With staff she was overly sweet and not complaining. For a month, I covered weekends third shift when I was short staffed and saw first hand that my grandmother was sleeping well. However, when she'd get up to use the bathroom, she'd start making those middle of the night calls to my mom complaining. She finally adjusted and realized that neither of them was taking her back home to live with her and she settled in at the facility.
My advice is to listen to your sister with an open mind. Don't assume she's making it sounds worse than it is. Be there if possible to see what she's actually dealing with from him. But if you're determined to take him home no matter what anyone says, don't do it without lining up a support system, back up caregivers, and psychiatric help for him. One person can not deal with what you will experience with your father 24/7 365 days a year without adverse affects on their own health without support systems in place. Even then, you may well find that it's not a managable situation.
ncgen - 20 Jul 2006 16:58 GMT Also, you mentioned hiring a skilled nurse to care for them at home. Have you checked the costs of doing so y et? Even a CNA through an agency will be a significant expense. Hiring one privately will take time and you can suddenly find yourself with no help when they no show or call out. Each time one walks out because of his behavior, then you have to hire another worker. Even with an agency, you will not get the same worker 7 days a week. His behaviors are likely to escalate again as he tries to manipulate them into quitting. If considering the expense alone, facility care is considerably less costly than 24/7 paid caregivers at home...especially if you plan on hiring a licensed nurse.
How will you manage caring for your mother with the time required to manage your dad's behavioral outbursts? Will he allow you to care for her? How will you manage his attempts to leave to go gamble when you tell him no or his behavioral outbursts when you say no to anything he wants to do? When will you sleep, cook, shop, or have any private time for yourself?
It's admirable that you want to take them home, but the realities of life often keep us from doing what our first choice is in caring for our loved ones. A majority of families with loved ones in facilties would rather have them at home, but realize that it's not possible always. Be open to what others are telling you especially if they have been close enough to see your dad's behaviors.
Jan-ed - 20 Jul 2006 19:28 GMT Dealing with declining parents is a very emotionally charged time. All the baggage of unresolved family issues plays a big big part in this unfolding drama. Whatever unresolved conflicts that have been bubbling on the back burner for your lifetime they will now reappear with a vengeance.
The more you understand about your own deeper personal reasons for wanting to have your parents move back into their house and also have you join them the better you will be at making good practical responsible choices that are the best for both you and your family.
Do you find the idea of their declining health and mental stability shocking and unnerving? Are you struggling with the reality of this change? Do you somehow feel guilty since you have not lived near them? Do you feel responsible for their well-being (as they were once responsible for yours)? Are you wrestling with accepting the role of parent to your once strong and independent parents?
Find answers to your own conflicts, that is one of the best ways that you can be a help to your parents. If you are reacting in response to your own turmoil you cannot fully help them until you understand and resolve the issues that are underlying your choices.
Best of luck, remember there are no perfect answers, allow that mistakes will be made along the way.
Jan-ed
Evelyn Ruut - 20 Jul 2006 23:22 GMT > Dealing with declining parents is a very emotionally charged time. All > the baggage of unresolved family issues plays a big big part in this [quoted text clipped - 23 lines] > > Jan-ed Jan-ed
What an excellent post! Well said and all very true!
:-)
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Tumbleweed - 21 Jul 2006 16:50 GMT >> Dealing with declining parents is a very emotionally charged time. All >> the baggage of unresolved family issues plays a big big part in this [quoted text clipped - 30 lines] > > :-) Seconded, since often with this condition, its about choosing the least worst decision, not the 'best' one, since often you wouldnt want to apply the term 'best'!
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
ncgen - 21 Jul 2006 08:51 GMT Jan-ed, that is an excellent post with suggestions that anyone should consider when making these type decisions. While we may be adults, we are still the children of those parents we're now caring for and those issues need to be carefully thought out.
> The more you understand about your own deeper personal reasons for > wanting to have your parents move back into their house and also have > you join them the better you will be at making good practical > responsible choices that are the best for both you and your family. Bud - 20 Jul 2006 19:55 GMT > Does anyone have advice for me? I just want to agree with what has been said. Despite your good intentions the end result will be catastrophic for you and your fsmily's health. Leave it to trained personnell in elderly care institutions to do the necessary work that all these problems entail. Don't worry about feeling guilty. We all do at times but the alternatives are much worse. In any case, good luck in settling this problrm.
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