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Medical Forum / Diseases and Disorders / Alzheimer's / July 2006

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My grief group.......

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Jan-ed - 17 Jul 2006 18:02 GMT
I joined a bereavement group through a hospice program in my city.  My
mother lives in another city thousands of miles away so she is not
receiving any hospice care through the program where I am getting grief
support.

All the other attendees are grieving for someone who has already passed
on, but since I am feeling the grief and loss now I decided to join
this group anyway.  They have always welcomed me.

I just want to say that if anyone needs this kind of support please
check out your local community, we all grieve in our own ways and even
if your loved one is still living you may be experiencing a heavy sense
of loss now.  This grief group has helped me quite a bit.

I also go to some Alzheimer caregiver meetings and they are also
helpful.

Jan-ed
ncgen - 19 Jul 2006 15:14 GMT
Jan-ed
I'm glad you found a bereavement group in your area.  I wish my husband
would take advantage of the one here at hospice.  The caregiver support
group ought to be beneficial to you also.
You said, "All the other attendees are grieving for someone who has
already passed
on, but since I am feeling the grief and loss now I decided to join"

You are already grieving for the loss of the mother you knew so it's
entirely appropriate for you to attend now. You are expriencing the
loss of her as she was. I hope the group helps you now and later when
she does pass.

With me, because I worked for a facility, they wouldn't let me attend a
local support group even though I was caring for two family members
with AD.  They had a rule prohitibing employees of facilities from
attending meetings unless invited to speak.  I would have been
attending as a family member looking for the support in the group.
They wouldn't let me though because they didn't want family members to
be afraid to speak out by having a facility employee there. I still
felt like it was wrong but I understood their point of view.  I needed
at that point to be part of a group like that because I'd had both
in-laws in my home for over 7 years, had just placed one of them and
gone back to work PT. I had been at home for several years with them
and my children and was dying for adult conversation/socialization and
needed the information I could gain on AD from that group who dealt
with it on a daily basis.

> I joined a bereavement group through a hospice program in my city.  My
> mother lives in another city thousands of miles away so she is not
[quoted text clipped - 14 lines]
>
> Jan-ed
Jan-ed - 19 Jul 2006 21:13 GMT
Wow, what a double-edged sword----caregiver and employee---twice as
much on your plate yet you are denied support services for your own
well-being.  I definitely am glad that there are these on-line
communities, helpful to many people who do not have access to in-person
groups.

Hope that you have found some support here and wherever else you have
looked.  Too bad your husband is not willing to attend a group.
Recently we had two guys join my bereavement support group, mostly it
has been women.  But so far they only came once.

Our culture doesn't allow for public displays of emotion, especially
pain, and this is even more restricted for men than for women; but we
all have these feelings and need to release them, work through them,
experience them so that we can move on.

Jan-ed

> Jan-ed
> I'm glad you found a bereavement group in your area.  I wish my husband
[quoted text clipped - 23 lines]
> needed the information I could gain on AD from that group who dealt
> with it on a daily basis.
 
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