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Medical Forum / Diseases and Disorders / Alzheimer's / July 2006Hi everyone
First of all, thanks to the people who emailed me, i will reply to the emails when i get time, this is a quick note as im off to see my granddad in 20 minutes, i didnt see him at all yesterday. I saw a Dutch neorosurgeon, who refuses to operate, he says teh risks and what chance of any good improvemnt are not worth the risk, even tho i am not too young i will have to live with it for the rest of my life...had it 10 years already so i wasnt expecting much..since i was told the news my old friend Mr vodka has been keeping me company, along with my dog, i was knocked out on meds earlier and he never left my side the workman said, i couldnt hear him making any noise at all when i had my afternoon nap cos of the meds. I feel pretty low, but im hoping granddad gets better soon, he looked better in himself the last time i saw him, but he couldnt remember eating. Hope everyone is ok > First of all, thanks to the people who emailed me, i will reply to the > emails when i get time, this is a quick note as im off to see my granddad [quoted text clipped - 17 lines] > > Hope everyone is ok Jules I am so glad you are home! A lady friend of mine who has a very bad back as well, says that her doctor has been giving her some sort of shots that kill the particular nerve that is giving the pain. I am not sure exactly what this procedure is all about, but they somehow isolate the particular nerve that relays the pain, and give a shot in that particular nerve (if they can get it right). Between that and the physical therapy, she is hanging on.  SignatureBest Regards, Evelyn (to reply to me personally, remove 'sox') Evelyn, that's probably an epidural. They can work magic if they're done right. Always worth the try. Jules, glad you're back home. Hope everything starts working out for you now. Kate > > "Jules" <julianhales@blueyonder.co.uk> wrote in message > news:9Eutg.91262$7Z6.14270@fe2.news.blueyonder.co.uk... >> First of all, thanks to the people who emailed me, i will reply to the >> emails when i get time, this is a quick note as im off to see my granddad >> in >> 20 minutes, i didnt see him at all yesterday. >> >> I saw a Dutch neorosurgeon, who refuses to operate, he says teh risks and >> what chance of any good improvemnt are not worth the risk, even tho i am >> not >> too young i will have to live with it for the rest of my life...had it 10 >> years already so i wasnt expecting much..since i was told the news my old >> friend Mr vodka has been keeping me company, along with my dog, i was >> knocked out on meds earlier and he never left my side the workman said, i >> couldnt hear him making any noise at all when i had my afternoon nap cos >> of >> the meds. >> >> I feel pretty low, but im hoping granddad gets better soon, he looked >> better >> in himself the last time i saw him, but he couldnt remember eating. >> >> Hope everyone is ok > > > > Jules I am so glad you are home! > > A lady friend of mine who has a very bad back as well, says that her doctor > has been giving her some sort of shots that kill the particular nerve that > is giving the pain. I am not sure exactly what this procedure is all > about, but they somehow isolate the particular nerve that relays the pain, > and give a shot in that particular nerve (if they can get it right). > Between that and the physical therapy, she is hanging on. > > -- > > Best Regards, > > Evelyn > (to reply to me personally, remove 'sox') > > > Evelyn, that's probably an epidural. They can work magic if they're done > right. Always worth the try. Jules, glad you're back home. Hope everything > starts working out for you now. > > Kate Hi Kate I am just hoping something helps, i feel so useless. Most of the time i wish i wasnt here. > > > > "Jules" <julianhales@blueyonder.co.uk> wrote in message [quoted text clipped - 50 lines] > > > > Re: Hi everyone Group: alt.support.alzheimers Date: Fri, Jul 14, 2006, 7:23am (CDT+5) From: julianhales@blueyonder.co.uk (Jules) "Mary K Farrell" <medfit2@san.rr.com> wrote in message news:HKAtg.23473$Z67.1207@tornado.socal.rr.com... Evelyn, that's probably an epidural. They can work magic if they're done right. Always worth the try. Jules, glad you're back home. Hope everything starts working out for you now. Kate Julian: Hi Kate I am just hoping something helps, i feel so useless. Most of the time i wish i wasnt here. Ronny: I'm not glad you have a need for this place because of your Grandpa's health problems;but I am glad you are here and I would miss you a lot if you weren't. Re: Hi everyone Group: alt.support.alzheimers Date: Fri, Jul 14, 2006, 7:23am (CDT+5) From: julianhales@blueyonder.co.uk (Jules) Evelyn, that's probably an epidural. They can work magic if they're done right. Always worth the try. Jules, glad you're back home. Hope everything starts working out for you now. Kate Julian: Hi Kate I am just hoping something helps, i feel so useless. Most of the time i wish i wasnt here. Ronny: I'm not glad you have a need for this place because of your Grandpa's health problems;but I am glad you are here and I would miss you a lot if you weren't. Hey Ronny I wish i took my camera to the hospital earlier. the way Arthur greeted granddad was so nice, he jumped right on his knew and stood there, arse in granddads face with a big smile on his face....they are best friends, my granddad was so happy to get outside for the first time in 10 days or so, and to know Arthur wanted to see him. Granddad was all packed, he wanted to leave the hospital, he said to me, he coulnt remember a thing while he was in there, he wanted to be back home....i know that would make him better head wise, where he knows, but for a reason i cant go into, i cant do anything for him apart from visit him. He recognises me everyttime i see him, but he shares a ward with 5 nutcases, that really screws me up. Inside i am full of mixed emotion, good/bad, pain, sadness, but to see my granddad and the dog happy for half a hour int he hospital grounds was so great, the smile on my grandfathers face was so nice, the dog smiled too, even i smiled, something i havent done for a long time. I have taken a few pictures from the past week, one of Arthur, a few of my house and the workmen, i will put them on my website when i feel like it, and hope some of my granddad too. bye Jules, I know a woman in Holland who had excrutiating pain. She's been to pain clinics, doctors, and had several types of treatments over the years. Right now, she is in the US travelling, but I'd be glad to get in touch with her if you'd like and see if she'd be interested in speaking with you. Maybe if the two of you compared notes, you could help each other. Least it would be an extra support for you from someone who has simliar issues. > Re: Hi everyone > Group: alt.support.alzheimers Date: Fri, Jul 14, 2006, 7:23am (CDT+5) [quoted text clipped - 39 lines] > > bye > Jules, I know a woman in Holland who had excrutiating pain. She's been > to pain clinics, doctors, and had several types of treatments over the [quoted text clipped - 3 lines] > help each other. Least it would be an extra support for you from > someone who has simliar issues. The neurosurgeon was Dutch, the best i was told, yesterday i got a duplicate letter hes forwarded to my GP, saying he wont do surgery, that i drink masses of vodka (i wouldnt say so, im only on my 4th glass as i type and only triples so not that much) I try to lead a normal life, i do what i can, i go around Germany, but without a mix of pills and wodka i cant do it, the report says wear and swelling and slight abnormalities, but like the surgeon said to me, he wished the mri scans and xrays showed more damage so he could operate, hes not willing to the take the risk for such a lttle chance of improvment. Maybe it would help speaking to her, maybe not....i wont turn my nose up at anything, and i know im not alone in the world, so many people have back ache, worse than me, i just wish i could meet a girl (ok i did meet one, but i blew it big time) that could put up with a guy whos no use to anyone. > > Re: Hi everyone > > Group: alt.support.alzheimers Date: Fri, Jul 14, 2006, 7:23am (CDT+5) [quoted text clipped - 39 lines] > > > > bye > > First of all, thanks to the people who emailed me, i will reply to the > > emails when i get time, this is a quick note as im off to see my granddad [quoted text clipped - 33 lines] > Evelyn > (to reply to me personally, remove 'sox') Evelyn, i forgot that the head nurse is contacting a pain clinic, i spent 2 years at one with no luck, so they said they would send me to another and mentioned that, only thing that offerd some comfort was electric shocks into my back. My granddad was fine last night, he looked better, had eaten and hobbled off to the toilet, the nurses said he was doing fine. Its just gone 8am here, the workman is back to do more work. >> > First of all, thanks to the people who emailed me, i will reply to the >> > emails when i get time, this is a quick note as im off to see my [quoted text clipped - 56 lines] > > Its just gone 8am here, the workman is back to do more work. Jules, Hi! I'm sorry the neurologist wasn't able to give better news. Is that electric shocks thing you are talking about a TENS unit? It's a little device implanted that send electric currents to nerves. If yes, don't dismiss it. I'm on another newsgroup for people with arthritis. Someone on the group had one implanted about six months ago, and it has provided huge relief from the pain. What the current does is interfere with the pain signals going to the brain so the brain does not perceive the pain. If the brain doesn't 'perceive it, you don't feel it. That's a bit of a simplification. But it has made a positive difference in this person's life. They can function better and are under significantly less stress because they don't have the pain draining them all the time. There is still some pain, as I recall, but no longer so severe and so constant. Just a thought. Adelle > >> > First of all, thanks to the people who emailed me, i will reply to the > >>> Hi! I'm sorry the neurologist wasn't able to give better news. [quoted text clipped - 16 lines] > > Adelle Hi Adelle, yes it is a TENS machine, had one (or 3) for a good few years, its the only thing legal (apart from vdoka) that works. The head nurse told me to go with canabis if it works too. I am stocked up on batteries but need to get some more sticky pads. there pretty expensive and i have to change them daily as i get a rash if not. I waited 10 months to see the neurosurgeon, a well known Dutch guy who i was told was the best, so i guess i have to go along wtih what he says. |
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