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Medical Forum / Diseases and Disorders / Alzheimer's / July 2006

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My Mom broke her hip......

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Jan-ed - 12 Jul 2006 17:15 GMT
My Mom has been in assisted care since 2002, in a locked Alzheimer's
ward since 2003.

I went to visit her in Virginia in 2002 and found a woman who weighed
80 lbs and was disoriented and confused.  She could not keep track of
things moment-to-moment.  Stood at the front door in her underwear.
Took her purse with her when she took out the garbage.

It has been a long difficult road watching a strong independent woman
slip away, piece by piece, moment by moment, memory by memory.  Now she
barely speaks and has not been getting up or moving around on her own
much.

But on July 1 she fell and broke her hip.  Now each step down this road
may be the last one.  They did hip replacement surgery and now she is
in a rehab unit and they are giving her physical therapy.  But she is
just not alert and aware enough to follow these directions.  What will
happen now?

Will she spend the rest of her days in a nursing home in bed?  It seems
like such a cruel end, I wish she could at least return her assisted
care place, where there is some semblance of community, birthday
parties and holiday celebrations, not hospital beds isolated rooms.

I've been going to grief support as I have already lost her, she
disappeared years ago with the loss of her personality, her ability to
communicate, her ability to be angry and resist.  All this meant that
she was no longer present.  Only a shadow remains.

Tough days to go through.

Jan-ed
Tumbleweed - 12 Jul 2006 22:26 GMT
> Will she spend the rest of her days in a nursing home in bed?  It seems
> like such a cruel end, I wish she could at least return her assisted
> care place, where there is some semblance of community, birthday
> parties and holiday celebrations, not hospital beds isolated rooms.

Jan, it may seem cruel to you, if it was you or I, but if its any small
consolation, would she understand or benefit at all from any of community,
birthday parties and holiday celebrations? Looking at some of the residents
where my father is, anything at all could happen and they would be unaware.
They are unable to join in anything, the only difference is they are in a
chair rather than a bed but apart from that they seem to be in a very
passive state, unaware of anything thats happening.

Good luck, hope you can work through your issues.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

ladylove77 - 12 Jul 2006 23:08 GMT
Jan-ed, you are absolutely right; you lost your mom much earlier due to AD.
It just breaks your heart to see someone you love in that condition, but
that's how it happens.  Some on here have been through something very
similar, if not the same thing you're going through now.  I'm sure they will
share with you and give you the support you need.  My husband had surgery
that went bad before he reached the final stages of AD and he was in the NH
only 8 months before he died.  All my tears had been shed before that time.
Stay with us and keep us posted, please.
Gwen

> My Mom has been in assisted care since 2002, in a locked Alzheimer's
> ward since 2003.
[quoted text clipped - 28 lines]
>
> Jan-ed
Mary_Gordon@tvo.org - 12 Jul 2006 23:46 GMT
Jan, I really feel for you - but even if she hadn't broken her hip, the
end result would be the same. Its not the hip, its the cursed disease.

My mother in law broke her hip two years before she died, and although
in theory she should have been able to walk following her hip repair,
she was too confused to do the therapy, so after we tried and tried...
that was the end of the walking, and she spent the last two years of
her life in a wheelchair, or in bed. Continence went at the same time,
and intelligible speech a few months later.

Once she couldn't walk, she had to go to a nursing floor, because she
needed heavy care - and I strongly suspect that she would have lost the
ability to walk shortly anyway, hip break or no, since her sense of
balance was really going and being on her feet had begun to really
frighten her - not helped by the fact she was too addled to use a
walker or cane properly.Many people with AD just lose the coordination
and balance to walk, or essentially forget how.

My MIL also went from a private room to a shared room on the nursing
ward - we had a long wait for the spot on the nursing ward, so we took
the first bed we could get). Sadly, by that time, she didn't really
know where she was, so it made no difference to her that she was no
longer on the AD ward, or in the privacy of her own room. She also
didn't seem to miss the activity - just too far gone to care.

The whole thing just breaks your heart.

Mary
Jan-ed - 13 Jul 2006 01:34 GMT
It sure helps to have friends to share this experience with, years of
watching Mom go downhill have been very painful for me, and some days
are worse than others.

One thing I need to let go of is feeling responsible for Mom's sense of
well-being, there just isn't anything that I can do to improve that,
though as a family member I want the best for her.  I really don't have
much control over her experience in life right now so I am trying to
resolve my worries and concentrate on improving my own outlook.

Jan-ed
Evelyn Ruut - 13 Jul 2006 02:11 GMT
> It sure helps to have friends to share this experience with, years of
> watching Mom go downhill have been very painful for me, and some days
[quoted text clipped - 7 lines]
>
> Jan-ed

Dear Jan,

That is really and truly all we can do.

Keep your head on straight and don't let yourself get too depressed, because
if you lose it, all is lost.   Someone has to be in charge, and your mom has
sadly come to the place where she no longer can do that.

Just as she took care of you when you were too young to think straight, now
you are taking care of her when she no longer can think straight.   It's
your turn now, and it is the best way to repay her for being a good mother.

If you were to place yourself in her state of mind for a moment, you will
realize that what she needs now is peace, decent physical care, and to be in
the hands of professionals.   All the amenities of life, the birthday
parties and the amusements have lost meaning for her at this point, but the
feeling that she is being kept clean and cared for with respect, are all
that is of any real meaning just now, and even that is very limited, in her
understanding.

Also if you were to think what she would want for you if she were whole
again, and in her right mind, you will realize that she wouldn't want you to
worry.   She would want you to be happy and to live your own life with
whatever joy you can.

Those little mental exercises can help when nothing else does.

Many of us here have said that with a loved one with alzheimers, we do all
our crying long before the person is actually gone.   In my experience that
is true.
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

JM Van_Horn - 13 Jul 2006 10:11 GMT
"Jan-ed" <jnewday@bellcoho.com> wrote in message
...>
> But on July 1 she fell and broke her hip.  Now each step down this road
> may be the last one.  They did hip replacement surgery and now she is
[quoted text clipped - 15 lines]
>
> Jan-ed

Same thing happened with my mother.  You are fortunate to have grief
support.
I tried to get in a group but there was nothing available - it was all
focused on
the physical death of loved ones.

The nursing home got Mom up each day in a wheelchair.  She didn't understand
why she couldn't walk and was not happy.  She deteriorated a lot after the
surgery.
She had been a star in assisted living, had a hospitalization and
deteriorated to where
she had to be in an Alzheimers unit.  She had been doing ok there then fell
and broke
both hips.  She died 8 months after the broken hips, in the middle of the
night from
cardiac arrest after recovering from pneumonia.  It was very sad to see the
decline
and poor quality of life.  Medication helped but nowhere near enough.
Looking
back, it was a blessing she went as quickly as she did.

I finally was able to get in a grief group after Mom died and it was a great
help in
being able to remember her as she actually had been.

Joan
ncgen - 16 Jul 2006 14:55 GMT
"alert and aware enough to follow these directions.  What will
happen now? "

Jan-ed,
I sent you a reply to that question on the thread with the update on
your mom. I thought the same thing about my MIL . Sounds like she was
in very similiar situation to your mother.
Susan
 
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