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Medical Forum / Diseases and Disorders / Alzheimer's / June 2006

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Questions about appropriate services within memory care

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meg - 29 Jun 2006 16:24 GMT
I wanted to hear from other people about their experiences with memory
care to determine if I'm expecting too much or if my expectations are
within reason.   My family has requested that we be informed of the
following:

-any communication between the facility and Mom's doctor
-any changes in medication
-to be informed of anything that might impact general health and
quality of life

I got in a big fight with the director of health services because it
took two+ weeks to gather a clean urine sample to diagnose and treat a
Urinary tract infection, and they didn't let us know the results or
that Mom was started on penicillin.  It took them three tries to
collect a urine sample because they were contaminated.  I requested
that they let us know if they are having difficulty collecting a sample
so the family could help.

The nurse told me they don't talk to family members about collecting
urine samples because they don't have time and, that I was expecting
more services than what they could provide.

Is it normal to take two weeks to gather a urine sample and to expect
the resident to provide a sample without much cuing, or to be informed
of medication changes and tests?

It seems just about every time I have a concern about what I perceive
are basic services, such as getting the sheets changed on a regular
basis, and taking trash out of my mom's room the nurse and I get in a
heated argument.  She doesn't believe us because Mom has dementia (Yet
she says Mom is capable of providing a urine sample independently) and
is completely defensive.

It doesn't seem that what I'm asking is that out of the ordinary, but
on the other hand most of the other family members at this facility
seem satisfied with the services.
Evelyn Ruut - 29 Jun 2006 16:57 GMT
>I wanted to hear from other people about their experiences with memory
> care to determine if I'm expecting too much or if my expectations are
[quoted text clipped - 32 lines]
> on the other hand most of the other family members at this facility
> seem satisfied with the services.

Dear Molly,

It sounds totally over the top to me.   If I were you I would raise hell
about it to everyone who would listen, especially anyone in a position to do
something about it.   A person pees many times a day.   If they are too lazy
to make the effort to collect a urine sample and would even consider
allowing any human being to suffer with the misery of a UTI for two whole
weeks while they wasted time, you can bet that I'd be reporting them to the
state, the feds and anyone else I could.   It is absolutely outrageous on
their part.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Lesanne - 30 Jun 2006 02:49 GMT
>I wanted to hear from other people about their experiences with memory
> care to determine if I'm expecting too much or if my expectations are
[quoted text clipped - 5 lines]
> -to be informed of anything that might impact general health and
> quality of life

Mom's place does this for me but I had to request it. They also collect
urine samples
periodically when the doctor has ordered them, with no difficulty
whatsoever. It
is so very simple to do this. When I have worked in the hospital setting if
there
is an order for a lab test we get it done, that day, regardless. If it is
someone
who is unable to cooperate for whatever reason, we do a simple straight cath
and that is that. Nursing homes are supposed to have a nurse on site. Any
nurse
can do this.
Dennis P. Harris - 30 Jun 2006 03:07 GMT
> Is it normal to take two weeks to gather a urine sample and to expect
> the resident to provide a sample without much cuing, or to be informed
> of medication changes and tests?

absolutely not!  i'd be looking for another facility if there are
any others nearby.
 
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