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Medical Forum / Diseases and Disorders / Alzheimer's / July 2006

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One year since Mom moved to assisted living

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meg - 27 Jun 2006 20:12 GMT
It's been a little over a year since we placed Mom in assisted living.
Then in October we had to move her to memory care because she was
starting to wander from assisted living.  None of us have adjusted.  My
mother doesn't like her living situation.  I'm not crazy about the care
she's recieving.  The aids are ok, the administration is terrible and
non-communicative.  This is supposed to be one of the nicer facilities
around.  She's able to garden which is nice, but the theraputic garden
program seems to have been cut, that's one of the reasons we chose this
facility.  The food is terrible, she misses having a pet, and she is
just plain cranky about all the old, forgetful, crazy people.   She
often thinks she works at the facility and complains she hasn't had
proper training, is puzzled when she is not allowed to attend the work
meetings, and feels she just can't cope with the amount of work they
require of her.

People kept telling us she/we would adjust.  We haven't.  I wish I
didn't have to work so she could stay at my house with good cooking,
animals, gardens, and a family life.  But then, in reality, she'd drive
me crazy after awhile, because she's so particular and it's just
getting worse with the ALZ..  She's becomming less continent and I know
that would get old after a while too.
lesanne - 27 Jun 2006 23:40 GMT
Meg says: ..It's been a little over a year since we placed Mom in assisted living.
Then in October we had to move her to memory care because she was
starting to wander from assisted living.  None of us have adjusted.

I relate Meg. Mom has only been in her Alzheimer's care
unit for a couple of months and I hate it. She, fortunately
has no clue where she is because I kept her here until
she was in that stage. And yes, it gets really old when
the incontinence starts. I had plastic all over everything all
over the house. It is really great to be able to leave things
on the kitchen counter also. And to be able to unlock the
door for a while, and leave it unattended for a bit. Lovely
to be able to turn on the music, and let in the cat.
Lovely to be able to just jet out to the store when
I need to.

All that said, I hate it. I hate going over there, and
I have contracted one physical illness after another
since she moved. And I am never sick. Ha.

Signature

Les

meg - 28 Jun 2006 02:17 GMT
> I relate Meg. Mom has only been in her Alzheimer's care
>  unit for a couple of months and I hate it. She, fortunately
[quoted text clipped - 14 lines]
> --
> Les

Thanks for your sympathy Lesanne.  The same goes to you.  People seem
to talk up assisted living/memory care, but even the best seem only a
bit better than warehousing.  The aides can be very nice but talk to
the residents like they are toddlers.  I don't mind simple language,
but I hate the baby talk.   The medical care is minimal.  It took them
two weeks to gather a good urine sample to diagnose a UTI.   We asked
that we be informed about any difficulties so we could help.  My sister
and I spend a lot of time with our Mother and could certainly assist
with collecting a sample.  The Nurse said her staff is just too busy to
contact us about collecting urine samples.  ARGH, she's an idiot.  If
one of the staff spent five minutes on the phone with us, I bet they
could save 30 minutes and alieviate some of my mother's anxiety by
letting us assist.

But I know it would also be very unpleasant, if not impossible for us
to try to live together.   I hate alz.
Tumbleweed - 28 Jun 2006 09:20 GMT
> Thanks for your sympathy Lesanne.  The same goes to you.  People seem
> to talk up assisted living/memory care, but even the best seem only a
> bit better than warehousing.

I think they only do that from the point of view that its just the best of a
set of bad choices, but at least you get some of your life back.

There is no way on earth I would want my kids to be burdened looking after
'me' in that state and imposing impossible demands on their health and
sanity, and I suspect the same would apply for most of us.  Perhaps better
to look at it from that perspective?

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 28 Jun 2006 14:14 GMT
>> Thanks for your sympathy Lesanne.  The same goes to you.  People seem
>> to talk up assisted living/memory care, but even the best seem only a
>> bit better than warehousing.

> I think they only do that from the point of view that its just the best of
> a set of bad choices, but at least you get some of your life back.
[quoted text clipped - 3 lines]
> sanity, and I suspect the same would apply for most of us.  Perhaps better
> to look at it from that perspective?

Yes, I agree with you, Tumbleweed.   I wouldn't want any of my children to
have to go through what we went through while taking care of Ida at home.

I think I could deal with the patronizing sounding babytalk Meg describes,
as long as it came from a caring attitude.   I say this because when I was
last in the hospital two years ago with a broken shoulder, I encountered
many nurses and aides, and there were some of those who talked "down" to me
when I was in total misery, but they did it out of kindness, and I didn't
take it as disrespectful.  I think that when we are vulnerable and ill, we
all can stand a little "babying".   It doesn't necessarily mean disrespect,
it can mean affectionate caring.   Long after peoples memories are shot,
they can still remember how they are treated and how you make them feel.

What scares me are those who get hired (by certain nursing homes) with bad
attitudes, and who really don't like the old people.   I saw that first hand
in the nursing home in the Bronx, where my mother in law's sister was sent.
It was awful.   That poor woman died in an awful hell hole of a nursing
home.   It was why we went to all possible ends to get my mother in law into
our area, where we could closely supervise her care, after we no longer
could care for her at home.

I must tell you Ida got excellent care there.   There were some patients in
her alzheimer unit that were in terrible shape, but the staff and aides and
caregivers were all very kind people who really loved the old folks.   I
think they showed more patience and kindness than I ever could have had.   I
say this considering that there were some especially challenging behaviors
we saw, yet they were always treated kindly and professionally by staff.
Mind you that the visiting hours were from 8 am until 8 pm, all day long!
If you can drop in any time you can see a lot of what goes on.

Nursing homes may seem rotten places to those of us who are normal enough to
function in the world, but a good professional facility can save a lot of
family stress as well as the patient's dignity.   Even having seen and
experienced what it is like, I would still rather not burden my children if
I needed the care.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

lesanne - 28 Jun 2006 16:20 GMT
Good point.

Signature

Les
 "Tumbleweed" <thisaccountneverread@yahoo.com> wrote in message

 I think they only do that from the point of view that its just the best of a
 set of bad choices, but at least you get some of your life back.

 There is no way on earth I would want my kids to be burdened looking after
 'me' in that state and imposing impossible demands on their health and
 sanity, and I suspect the same would apply for most of us.  Perhaps better
 to look at it from that perspective?

 --
 Tumbleweed

 email replies not necessary but to contact use;
 tumbleweednews at hotmail dot com

Dana Carpender - 25 Jul 2006 20:33 GMT
>>Thanks for your sympathy Lesanne.  The same goes to you.  People seem
>>to talk up assisted living/memory care, but even the best seem only a
[quoted text clipped - 7 lines]
> sanity, and I suspect the same would apply for most of us.  Perhaps better
> to look at it from that perspective?

This is what my brother keeps coming back to.  He keeps saying, "I know
that my mother, in her right mind, would say, "Don't ruin your own life.
 I have money, spend it on my care."  And he's right.

Actually, in her right mind, mom would really say, "Please kill me.  I
don't want to live like that."  I know, because *several* times over the
years she asked me very specifically to "leave the pills on the bedside
table" if she ever had Alzheimer's.  But of course, what she never
anticipated was that once she had it, she wouldn't know she had it, and
wouldn't be able to make a choice like that.

Dana
Evelyn Ruut - 26 Jul 2006 00:43 GMT
>>>Thanks for your sympathy Lesanne.  The same goes to you.  People seem
>>>to talk up assisted living/memory care, but even the best seem only a
[quoted text clipped - 20 lines]
>
> Dana

Dana that is one thing that I find especially tragic about this illness....
they never know they have it.   They think they are just fine.   The little
normal lapses we all experience are not remembered as a sequence, and that
seems to be the reason.... In short they can't remember that they can't
remember.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Alan Meyer - 28 Jun 2006 22:45 GMT
Although you have settled your Mom into this place, it is possible
to move her if you can find a better one.

My Dad took my Mom out of four different Alzheimer's
facilities before he finally found one that he was satisfied
with.  Moving from one to another is not nearly as hard as
that first move was.

Best of luck.

   Alan
Bud - 29 Jun 2006 00:53 GMT
> People kept telling us she/we would adjust.  We haven't.  

Meg,
My beloved wife has been in an Alzheimer's home for four years now and I
haven't 'adjusted'. Never will. But I know it's the best we can do for
her in her condition. She is advanced and knows none of the family
except perhaps as a friendly face (?). It is also best for the family
despite the daily regrets and wishes as we realize that she probably
gets better care than we could deliver in the long term and we are
trading mental anguish for mental AND physical anguish that trying to
care for her further in the home would have entailed.
So continue to 'not adjust' but realize that, like getting a flu shot,
the present pain helps avoid the miseries of the future and the steps
you have taken, although unpleasant, are the proper steps. Wishing you
and yours peace of mind,

Bud
meg - 29 Jun 2006 16:07 GMT
> My beloved wife has been in an Alzheimer's home for four years now and I
> haven't 'adjusted'. Never will. But I know it's the best we can do for
> her in her condition. ........

So continue to 'not adjust' but realize that, like getting a flu shot,
> the present pain helps avoid the miseries of the future and the steps
> you have taken, although unpleasant, are the proper steps. Wishing you
> and yours peace of mind,
>
> Bud

Thanks Bud, Allan, Tumbleweed,

It is I guess the best of a bad situation, not a good solution but the
only solution.  My mother called me in a panic yesterday wanting to get
out of "this jail".  She is getting more and more confused.  Who knows
what we would be dealing with if she lived with me.  I'm sure it would
be unpleasant.
 
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