Medical Forum / Diseases and Disorders / Alzheimer's / May 2006
"Mother passed last Monday"
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JJ - 15 May 2006 18:49 GMT On March 15th I wrote the message that "Mom thinks she lives somewhere else"
My Mother passed away last Monday, May 8th. I know she is in the best place she could be. But she left my home such a lonely place without her here. She was taking a nap and just slipped away. I miss her so much I have a hard time dealing with it. But I know time and my wonderful memories will help. I hope all your family that you are taking care of go as easily. But please enjoy every second you have with them, because they can be gone so very quickly and then it is too late. I still talk to her but I will never again see her smile. hold her hand, tuck her in bed or kiss her good night. I never knew losing someone could be this painful. That is all for me but I wish you all strength to continue to care for you and your family member. And I will continue to read your messages in this group and if there is anything I can ever help anyone with please just ask. Love to you all. Janet Aitken
Barb Terry - 15 May 2006 20:10 GMT Janet, So sorry to hear of your loneliness.I am so afraid of that myself.But thanx be to God her passing was so wonderfully easy.I pray thats how it is for my mom.You take care of yourself now and you will be in my thoughts.Barb
Barb Terry - 15 May 2006 20:14 GMT Janet, I lost my brother 8 yrs.ago.And could not believe the pain i felt.I cried till i was weak and sick.My parents grief was unimaginable.My heart ached for them more than anything.But it's all part of the grieving.It will get better.My prayers will be with you,Barb
ladylove77 - 15 May 2006 20:58 GMT Janet, you have my sympathy in the loss of your mother and your loneliness since she's gone from your house. You don't have to worry about her mind or body any more; just know that all the illness is gone. So glad she passed away so quickly and easily. May your good memories soon overcome your grief. Gwen
> On March 15th I wrote the message that "Mom thinks she lives somewhere > else" [quoted text clipped - 13 lines] > can ever help anyone with please just ask. Love to you all. Janet > Aitken Nati - 16 May 2006 11:12 GMT My heartfelt sympathies JJ. Do keep around this newsgroup, your experience may help many. Thanks.
michelle - 17 May 2006 01:28 GMT Sincere condolences from here in Australia.Grief certainly is an ever encompassing emotion I hope that time will heal this for you. Michelle
KatelynRain - 24 May 2006 17:06 GMT > On March 15th I wrote the message that "Mom thinks she lives somewhere > else" > > My Mother passed away last Monday, May 8th. I know she is in the best > place she could be. But she left my home such a lonely place without > her here. She was taking a nap and just slipped away. <snip> Janet, I apologize for replying to you so long after you posted. I had not visited the NG in quite some time, so it's only today that I found your post.
I remember seeing your March post about your mom believing she was living in her old girlhood home (wasn't that it?) and I offered some thoughts. I also remember that a few weeks later, you posted that you believed your mother was near the end, and I recall being surprised that things progressed so quickly.
So you were very right. She was near the end. I know you're feeling bad now, but I do want to say 2 things:
1. Her death as you describe it sounds utterly peaceful. Given the inevitability of death for all of us, I think it's everyone's wish to die that way...to fall into an easy slumber and just quiety slip away. I don't think you could ask for more for your dear mom under the circumstances of her illness.
2. As horrible as it is to lose a parent, and to have a parent afflicted w/ AD, it's much worse, IMO, if the dying process is very protracted and the poor loved one hangs on for years while his or her mind can make less and less sense of what's happening as the days and weeks and months pass until he or she exists in a continual fog. By then, there are lots of different things that can be going wrong physically/medically and it's such a nightmare to witness this happening to someone you love.
I've seen 2 people die from from the AD process and in both cases, the process was fairly protracted. This is especially true of my FIL, who died in Oct., the year before this last one, and this was years after his family first began noticing signs of the AD. He spent the last 2 years of his life in a nursing home and suffered a multitude of afflictions and miseries that I won't detail. It broke all of our hearts to see him going through this...it's just so unfair. My FIL was an extremely sweet man and he was a wonderful father and was so loving to everyone. He was such a good and fine and decent person...there's just no justice. His doctors told us they couldn't understand what was keeping him alive by that point. His continued existance (I won't say survival because I can't call it that) defied medical explanation in the face of all the things going wrong w/ his body. And he wasn't subjected to heroic measures either. I guess his body was just incredibly strong and could take a real beating.
Even the final end was not peaceful...at least not until he at long last slipped into a coma, dying several hours later. It just stinks that such a good person could not have had a gentler passing from this world.
My point in all this is just to say, as painful as this has been for you, I think you're lucky in the sense that your mother's illness seems to have gone very quickly and that death came gently to her. I think it's important at such times to look at all the blessings we can possibly see. My own feeling is that there's nothing to be gained from the body outliving the mind, and I see it as a blessing that your mother did not go on very long after she reached a point of being so confused that she had no idea where she was anymore.
I remember you sharing what a special relationship you and your mother had, and the depth of love and good will between you. These are wonderful memories to carry w/ you all your life, and to cherish always. You are so lucky for that and so was your mom.
I know how hard it is. I lost my own mom almost 6 years ago, and even though her death was expected and came years after a protracted process of her health failing, and knowing that she was at last at peace which was a comfort to all her loved ones, I was surprised at how deep was my grief.
In time, though, it really does get easier. I think of my mom a lot still, but it's never w/ the rush of anguish and tears that once came inevitably at my thoughts of her. I miss her a great deal...but the grief is past. And I know that's the way she'd want it too. You'll get there too.
My thoughts are w/ you,
~katelyn~
ladylove77 - 24 May 2006 17:49 GMT Katelyn wrote, "My FIL was an extremely sweet man and he was a wonderful father and was so loving to everyone. He was such a good and fine and decent person...there's just no justice. His doctors told us they couldn't understand what was keeping him alive by that point. His continued existance (I won't say survival because I can't call it that) defied medical explanation in the face of all the things going wrong w/ his body. And he wasn't subjected to heroic measures either. I guess his body was just incredibly strong and could take a real beating."
Katelyn, when my husband went to the nursing home the doctor expected him to live maybe two weeks. However, he lived eight months, the last 10 days without any type of food or water. The nurses said the reason he lived so long was that he loved me so much. I like to think that was true. Up until the last 10 days, he always responded to my kisses and would look at me though he could not do any thing else or any other movement. Gwen
KatelynRain - 25 May 2006 00:43 GMT > Katelyn, when my husband went to the nursing home the doctor expected him > to live maybe two weeks. However, he lived eight months, the last 10 days > without any type of food or water. The nurses said the reason he lived so > long was that he loved me so much. I like to think that was true. Up > until the last 10 days, he always responded to my kisses and would look at > me though he could not do any thing else or any other movement. Gwen, I didn't want to NOT respond to your comments here, but I don't have much to add...I just want to say I was deeply touched by your story. I can completely believe that your husband hung on a lot harder because you were still there and it gave him some kind of purpose to wait for your visits, your voice, your touch, your kisses. It makes me want to cry.
There was a movie I saw a few years ago...it was a beautiful Swedish film that showed at a film festival here. My sister had read about it and sort of dragged me to it, but I ended up very glad that she did. I can't remember the name now, but it was about a man and a woman who meet through their work in a classical orchestra...he is a renowned composer and director and she is an accomplished cellist. They fall in love and both seek divorces so they can be together. Sadly, only months after they are able to marry, the wife begins to notice odd changes in her husband. It gets worse and they see a doctor to find out what's wrong. They get a diagnosis of early stage AD. As it works out, the disease advances very rapidly and before much time passes, the husband is severely debilitated and unable to do much. The wife devotes herself to him, but is unable to do so w/o moments of losing all patience and sometimes becoming very angry and resentful. It gets to the point that she can't manage at home w/ him at all, and the doctors strongly urge her to have him placed somewhere. She gives in to their pressure and moves her husband into some kind of care setting. In the next scene, you see some time has passed and he's very far gone. He's in bed the whole time she visits and it seems he doesn't know who she is. She asks him at one point if he knows who she is and he says her name, then pauses and adds, "Barbara, my love." They are his last words to her.
My sister and I were both emotional basket cases at that point, and were snatching tissues from our pursues to sob into them. I looked around the theater for a moment and saw that a lot of the audience was doing the same. I read that the movie was somewhat based on the true story of the screenwriter and director whose father was a prominent composer and director who had died years before from AD. It was certainly a heartbreaking film, and I couldn't help but remember it when you shared what you did about your husband, Gwen.
~katelyn~
ladylove77 - 25 May 2006 03:52 GMT Katelyn, I'm not surprised at the tears that were shed. My heart is easily touched by someone else's story. I read books with my box of tissues handy. I realize when I read about something, that it is true in so many cases. Grayson and I had been married 54 1/2 years when he died, and it took me a couple of years to stop thinking "us" and just think "me". And I still sometimes wake thinking my dog on the other side of the bed is Grayson; the snoring even almost sounds the same at times! Gwen
>> Katelyn, when my husband went to the nursing home the doctor expected him >> to live maybe two weeks. However, he lived eight months, the last 10 [quoted text clipped - 42 lines] > > ~katelyn~ JJ - 30 May 2006 04:27 GMT > > On March 15th I wrote the message that "Mom thinks she lives somewhere > > else" [quoted text clipped - 76 lines] > > ~katelyn~ JJ - 30 May 2006 04:54 GMT KatelynRain
Thank you so much for your kind words. It has only been three weeks and it still feels like the day it happened. I am afraid I am bottling it up and when I take her ashes back to our home state of Washington and put her in with my Dad that it will hit me then. I am so used to holding things together and doing whatever I have to do, that I am afraid that when it is all over and I can let go I will just fall apart. But that is something I will also get through.
It feels like she is still with me and I talk to her all the time. It comforts me a lot and I even have moments when I can laugh about things she and I did in the past and even when she was so sick. We always made each other laugh until we almost wet ourselves and it was never about anything important. Just something silly that struck us both as funny. I am happy that she is with my Dad and her family now and how can I be selfish enough to not want that for her? No more pain, fear, confusion or feelings of being in the way. I know she will always be with me and someday I will be with her again. And yes, the way she passed was the blessing that God gave her and she gave to me. I know I am a lucky woman to have had a Mother like her and that I got to spend the last days of her life taking care of and loving her. I know she died knowing how much she was loved and that will always make it easier for me to bear her passing.
Thank you to everyone for their kind words and I will keep in touch with this group. You are a special bunch of people, because not everyone would do for other people what you all have done and are still doing. Always remember that God picked you for this job because he knew he could trust you with one of his children. And that even when things got hard you would still do what you knew was best for them and for you.
Love always from Janet Aitken, from the great state of Tennessee where people still look you in the eye and say hello and ask how you are when you pass.
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