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Medical Forum / Diseases and Disorders / Alzheimer's / May 2006

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Well, the decision's made

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Dana Carpender - 29 Apr 2006 20:55 GMT
I talked to my brother today, and he's going to send me a check to put
Mom on the waiting list for the local assisted living facility.  He said
that the other day she really seemed the foggiest he's ever seen her.
He'd gone over to help because some guys were coming to pick up an
antique rug she's shipping to our sister.  Mom asked 4 times in 25
minutes who she was sending the rug to.

While he was there, my brother noticed a birthday card -- Mom's 76th
birthday is Monday.  She said it was an Easter card, because Easter's
coming.  John gently told her Easter had already been, but her birthday
was Monday.  She said, "It's my birthday Monday?  And I'm going to be
how old?  48?  49?"

Yikes.

Anyway, now I'm in the unpleasant position of hoping a place opens up in
assisted living in the not-to-distant future, knowing full well that
that means I'm hoping for someone to die or move into nursing care.

Ugh.

Still, there some relief to having made a decision.

Dana
ladylove77 - 29 Apr 2006 21:17 GMT
Dana, I'll be hoping with you for an opening to turn up soon.  So good that
you and your brother are on the same page.
Gwen

>I talked to my brother today, and he's going to send me a check to put Mom
>on the waiting list for the local assisted living facility.  He said that
[quoted text clipped - 20 lines]
>
> Dana
Evelyn Ruut - 29 Apr 2006 22:06 GMT
>I talked to my brother today, and he's going to send me a check to put Mom
>on the waiting list for the local assisted living facility.  He said that
[quoted text clipped - 20 lines]
>
> Dana

That is the hardest part Dana.   It is wonderful that your family is
understanding and cooperative with one another.   I spoke to a dear friend
the other day whose (now deceased) mother was a manipulative woman who set
her children at one anothers throats, even in her last illness.   It speaks
well for your mother that your family is kind and cooperative in this
difficult decision.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Dana Carpender - 30 Apr 2006 06:16 GMT
Argh.  My sister called tonight, and she's tweaked that my brother and I
had talked, and he'd made the decision to send me the deposit for
assisted living.  She hadn't realized we were past the "what shall we
do" stage to the "It's time we made a decision and acted" stage -- but
then, she has the most optimistic view of Mom's state.  She's always
been closer to Mom than John or I have, so while we really see the loss
of Mom's intellect and humor, she's still seeing some intrinsic
connection that's still there for the two of them.

Anyway, she said -- for the first time -- she'd been thinking she'd look
into assisted living near her.  I told her that was fine by me; I'm not
wedded to the idea of Mom being in the local facility.  But that she
needs to do it *this week* -- that with the waiting times for entering
good facilities, we didn't have a lot more time to play with.

However, she's in San Diego -- I'm betting the price differential is *huge*.

Again -- argh.

Dana
Rufus T. Firefly - 30 Apr 2006 10:13 GMT
> Argh.  My sister called tonight, and she's tweaked that my brother and I
> had talked, and he'd made the decision to send me the deposit for assisted
[quoted text clipped - 17 lines]
>
> Dana

Dana,

If you're going to be looking at places in San Diego, let me recommend
Belmont Village. We just put my Mother
there last month, and are totally thrilled with the place. Everything you
could want for an assisted living place, and
the staff is truly on top of things. For a private studio apartment +
medication management, we are paying $4180.
It's in the Poway area.

Mike
Mary_Gordon@tvo.org - 30 Apr 2006 15:13 GMT
Dana, one word of advice - if you are checking out places, make them
spell out exactly what your mother has to be able to do independently.
>From your description, she sounds like she's closing in on stage 6 - so
within 6 months or year, she will begin to need some heavier duty care
-i.e. continence issues, a locked ward, complete supervision and
assistance with bathing and dressing, herding to meals etc.

Make sure the place you choose has some graduated care, or you may find
that she is kicked out in short order - many places really do only
offer "assisted living" and what they mean by that can be quite
different than what you envision - and they can be quite shirty and
precipitous about it.

I hate to say this, but the coming phase of deterioration will be much
more devastating than what has gone before, just because the losses
will be bigger in nature, and come in relatively rapid succession (i.e.
the complete loss of some basic skills). My mother in law was in better
shape than your mom when she went to assisted living, and it was okay
for only a year - and then she was more than they could handle -
getting up at night and wandering, getting lost in the building,
needing to be sheparded to every meal and every activity because she
couldn't tell time or recall what was happening, total supervision of
dressing or bathing or she'd do the first inappropriately and the
second not at all. We then had to find a specialized Alzheimer's locked
unit.

Look ahead pessimistically, and then be pleasantly surprised and
relieved if things progress more slowly - but at least then you will be
prepared for the worst and not shocked the day a director of care calls
you to say she's got to go.

Mary
Alan Meyer - 02 May 2006 01:25 GMT
> ...
> I hate to say this, but the coming phase of deterioration will be much
> more devastating than what has gone before, just because the losses
> will be bigger in nature, and come in relatively rapid succession (i.e.
> the complete loss of some basic skills).
> ...

I've seen that too.  There seem to be threshold points where the
accumulation of small quantitative losses seem to suddenly amount
to a very significant and noticeable qualitative loss.  It's as if a person
can hold things together but with more and more strain until the last
bit of mental glue gives way and the patient is in a new and worse phase.

> Look ahead pessimistically, and then be pleasantly surprised and
> relieved if things progress more slowly - but at least then you will be
> prepared for the worst and not shocked the day a director of care calls
> you to say she's got to go.

Good advice, as always.

   Alan
Alan Meyer - 02 May 2006 01:35 GMT
> Argh.  My sister called tonight, and she's tweaked that my brother and I had talked, and
> he'd made the decision to send me the deposit for assisted living.  ...

These kinds of things are a terrible strain on everyone.

My father-in-law died recently, not of Alzheimer's.  In his
final illness each of his four children had his own opinion on
what to do and how to care for him.  Two of the siblings
came near to blows about it.

I wanted to take each one aside and say "Your brother/sister is about
to lose his or her father.  Don't be too hard on him/her.  He/she feels
terrible too."

I think the living need to come closer together at a time like this
and renew their love and concern for each other.  Part of the
family is slipping away.  Often it's the older generation that held things
together.  We who remain are becoming the older generation
and it is now our responsibility to take over the task.

   Alan
ladylove77 - 02 May 2006 03:37 GMT
Wise words, Alan.
Gwen

>> Argh.  My sister called tonight, and she's tweaked that my brother and I
>> had talked, and he'd made the decision to send me the deposit for
[quoted text clipped - 18 lines]
>
>    Alan
 
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