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Medical Forum / Diseases and Disorders / Alzheimer's / May 2006

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Well, part two

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Lesanne - 27 Apr 2006 03:23 GMT
I found a nursing home I can stand. Tomorrow I will take papers to our Doctor and see what that entails. This could happen as early as the first part of next week. I feel really funny. It is like part of me is ignoring the whole thing, this little part every now and then hops up and down and screams, and another part is scared, and.....

My friends are all delighted. My nephew is delighted (says he has been wondering if I was going for sainthood or something)

The live in housekeeper is going to be distressed to the max because she will have to go, but I will need someone who speaks better Spanish than I do to address that issue. I want her to understand. I think of the possibility of sleeping in an empty house as soon as next week and a part of me just sort of shuts down, like I am afraid to think it.

I actually think Mom will like it better than here, because of the people rolling and walking around. We are going to try her out in a private room, but if she wanders too much they will want to move her to the secured unit into a semi private. There is only one empty bed in there, so we could end up in trouble if she does wander and then there is no place for her. I hope this works.

Signature

Lesanne

ladylove77 - 27 Apr 2006 03:39 GMT
Best wishes and prayers on the way for all concerned.
Gwen
 I found a nursing home I can stand. Tomorrow I will take papers to our Doctor and see what that entails. This could happen as early as the first part of next week. I feel really funny. It is like part of me is ignoring the whole thing, this little part every now and then hops up and down and screams, and another part is scared, and.....

 My friends are all delighted. My nephew is delighted (says he has been wondering if I was going for sainthood or something)

 The live in housekeeper is going to be distressed to the max because she will have to go, but I will need someone who speaks better Spanish than I do to address that issue. I want her to understand. I think of the possibility of sleeping in an empty house as soon as next week and a part of me just sort of shuts down, like I am afraid to think it.

 I actually think Mom will like it better than here, because of the people rolling and walking around. We are going to try her out in a private room, but if she wanders too much they will want to move her to the secured unit into a semi private. There is only one empty bed in there, so we could end up in trouble if she does wander and then there is no place for her. I hope this works.

 --
 Lesanne
Nati - 27 Apr 2006 12:47 GMT
I was talking yesterday to my neighbor's cleaning lady who is looking
for jobs (plural) since the patient she was caring for died. I know it
is difficult for you to tell the lady she will not be needed anymore
but i am sure she knew in the back of her mind this was coming. She'll
get another job. If she's good give her a positive recommendation
letter. Just concentrate on your ill mom for now.

If you need help with Spanish email me at diasdelluvia2003@yahoo.com
I am busy on weekends but will certainly help as soon as i can.
lesanne - 27 Apr 2006 13:23 GMT
Muchos gracias, pero mis amigas ayudarme :). You are so kind to offer. I may be the only person in the area that would have difficulty with this. I do speak, but poorly and she deserves more than that.

Signature

Leslie Arnim
larnim48@email.uophx.edu

 I was talking yesterday to my neighbor's cleaning lady who is looking
 for jobs (plural) since the patient she was caring for died. I know it
 is difficult for you to tell the lady she will not be needed anymore
 but i am sure she knew in the back of her mind this was coming. She'll
 get another job. If she's good give her a positive recommendation
 letter. Just concentrate on your ill mom for now.

 If you need help with Spanish email me at diasdelluvia2003@yahoo.com
 I am busy on weekends but will certainly help as soon as i can.
lesanne - 28 Apr 2006 03:56 GMT
Well that happened really quickly. There was a spot and we took it. This is horrible. She is totally freaked out and so am I. She remembered my name for the first time in six months and kept saying "I have a daughter, where is she" etc. Oh So Yuck!

I know it will get better because it cannot be worse.

Signature

Les

Evelyn Ruut - 28 Apr 2006 04:08 GMT
 Well that happened really quickly. There was a spot and we took it. This is horrible. She is totally freaked out and so am I. She remembered my name for the first time in six months and kept saying "I have a daughter, where is she" etc. Oh So Yuck!

 I know it will get better because it cannot be worse.

 --
 Les

 Oh I am so sorry to hear that.   We told Ida that she could come home when she got well.   That she was just there for a little while till she got better.   I don't know if that would work for your mom, but it definitely put Ida more at ease.  

 If some miracle could have made her well, we would have only been too happy to take her home.   Of course the forgetfulness does work towards some acceptance of the new situation too.   But it is a shame it is all so painful for all involved.

 I feel so sad for you Lesanne.  She'll probably adjust after a while, but it is hard on you in the meantime.
 --

 Best Regards,

 Evelyn
 (to reply to me personally, remove 'sox')
Barb Terry - 28 Apr 2006 16:17 GMT
Lesanne,
  Feel so bad for you.But your doing the right thing.Always keep that
in mind.Your a good daughter and love your mom very much.And it will get
better as time goes on.Praying for your peace of mind.Barb

   
Adelle - 28 Apr 2006 16:21 GMT
My FIL remembered my husband by name also, after being in the hospital. Not sure why.

Yes, it is hard on both you and her. But it is the best and safest thing. And as you said, you can now be daughter and case manager, instead of daughter, case manager and care provider.

Another thing - when my FIL entered the nursing home, my MIL slept for most of the day for two or three days. She was finally able to give in to the exhaustion. We wondered about depression, but after the three days, she started doing more of her hobbies and signed up for classes she hadn't been able to before. Met friends for lunch... Convinced us it was sheer exhaustion and relief from the pressure that caused the sleepiness.

So - enjoy the solitude. Revel in reading with no interruptions and phone calls to friends. DO what makes you feel content!

Adelle
 Well that happened really quickly. There was a spot and we took it. This is horrible. She is totally freaked out and so am I. She remembered my name for the first time in six months and kept saying "I have a daughter, where is she" etc. Oh So Yuck!

 I know it will get better because it cannot be worse.

 --
 Les
ladylove77 - 28 Apr 2006 20:46 GMT
Lesanne, my mother kept saying, "If you loved me, you wouldn't leave me here".  So I can imagine how you feel.  It is certainly not easy, but take heart that you are doing what is best for her.
Gwen
 Well that happened really quickly. There was a spot and we took it. This is horrible. She is totally freaked out and so am I. She remembered my name for the first time in six months and kept saying "I have a daughter, where is she" etc. Oh So Yuck!

 I know it will get better because it cannot be worse.

 --
 Les
Dana Carpender - 01 May 2006 17:49 GMT
>  
>  
[quoted text clipped - 12 lines]
>     --
>     Les

I feel for you all, and know I'm facing the same thing when we put mom
in care.  Heartbreaking.

I never thought I'd pray for my mother to die, but it's her birthday
today, and what I really want for her is a whopping heart attack.

Dana
Beth Cole - 01 May 2006 17:53 GMT
> I feel for you all, and know I'm facing the same thing when we put mom
> in care.  Heartbreaking.
>
> I never thought I'd pray for my mother to die, but it's her birthday
> today, and what I really want for her is a whopping heart attack.

You are NOT praying for her to die.  You are praying that she be
released from a terminal illness.

I've been through exactly the same thing with Doris.  I love her dearly,
and the guilt I felt originally over praying that something else take
her quickly was relieved by the realization that it is no different than
asking for a quick and painless end for someone with terminal cancer.

Beth

Signature

Don't go around saying the world owes you a living. The world owes you
nothing. It was here first. ~Mark Twain

Evelyn Ruut - 01 May 2006 18:37 GMT
> I feel for you all, and know I'm facing the same thing when we put mom in
> care.  Heartbreaking.
[quoted text clipped - 3 lines]
>
> Dana

Dana, please believe me that all of us here do understand and many of us
have wished the same thing.   My mother in law got pancreatic cancer when
she had only been in the nursing home for a few short months, and
fortunately for her, she died within the year.

She had been a feisty, full of life, seize the day, kind of a woman, and
seeing her reduced to a mere shadow who didn't know anything anymore, was
very sad to see.   death isn't always a bad thing, and life isn't always
good, but there is a right time for both.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

lesanne - 01 May 2006 19:51 GMT
Geeze that is awful. Mine was saying "I HAVE A DAUGHTER AND SHE IS COMING" then when I got there she looked right through me. It is no fun, but she is okay. I can see the environment will be safer just because someone is awake at night.
Signature

Les


 Lesanne, my mother kept saying, "If you loved me, you wouldn't leave me here".  So I can imagine how you feel.  It is certainly not easy, but take heart that you are doing what is best for her.
 Gwen
   "lesanne" <larnimnot@hotmail.com> wrote in message news:Gvf4g.48438$0Z4.14930@tornado.texas.rr.com...
   Well that happened really quickly. There was a spot and we took it. This is horrible. She is totally freaked out and so am I. She remembered my name for the first time in six months and kept saying "I have a daughter, where is she" etc. Oh So Yuck!

   I know it will get better because it cannot be worse.

   --
   Les
Mary_Gordon@tvo.org - 01 May 2006 23:39 GMT
Les, hang in, hang in, hang in. This is the worst part. She WILL adapt.
She will get used to the routines. She will relax, and she will get
foggy about where she is and why, so soon she will be at much as home
there as she would be anywhere (many of us have told you about loved
ones going on at length about going home, even when they ARE home).

Its going to get easier, and you will have the weight of the world off
your shoulders.

We were HUGELY relieved after my MIL moved from her apartment to
assisted living, just because even with  all kinds of supports arranged
(housekeeper 5 days a week, visiting nurse, visiting social worker,
meals on wheels, visiting physiotherapist, us over there all the time,
other relatives over there, plus endless, endless phonecalls at all
hours), it just wasn't enough and we were constantly worrrying - i.e.
every time she called and we got a garbled story my husband would worry
until he'd made the 15 minute run over there to make sure she was okay,
since you couldn't trust her to give you a straight explanation of what
had happened - and you also couldn't trust her not to do something
bizarre in response to a minor problem - such as the time she couldn't
turn off the TV so she removed every lightbulb from every socket in the
apartment.

There will be 24/7 watchful eyes. There will be patient caregivers who
get to go home after 8 hours, who come to work rested, who aren't so
close to your mother that she can get under their skins (unlike a
daughter who make take offense at certain remarks the hired helpers may
just laugh off). There will be good meals, special activities,
companionship, stimulation.

M.
Lesanne - 02 May 2006 03:45 GMT
It is okay. I went over this afternoon and she talked to me for a few
minutes (we walked together in the hall) then she said "okay, see you later
MUCH later" . I felt bad all afternoon. I am quite sure that I am taking
this worse than she is.

On the subject of wishing for an easier end, my daughter has this awful
sense of humor. I am a nurse, so I am looking for work (or will be in a
couple of weeks). She says that I should go work for hospice so I will see
that some people actually do die once in a while. ?? :) She is bad.

Signature

Lesanne

> Les, hang in, hang in, hang in. This is the worst part. She WILL adapt.
> She will get used to the routines. She will relax, and she will get
[quoted text clipped - 27 lines]
>
> M.
Pattycake - 02 May 2006 15:53 GMT
I know how hard it is.  When my mom was in an adult family home I would
visit with her and when I left the staff would ask her if she knew who I
was.

She would tell them, no, but that I was a real nice lady.  When they tried
to tell her that I was her daughter, she would laugh and say that was
impossible because her daughter was only five years old.

The long goodbye is always hard.

Signature

Pattycake

> It is okay. I went over this afternoon and she talked to me for a few
> minutes (we walked together in the hall) then she said "okay, see you later
[quoted text clipped - 37 lines]
> >
> > M.
lesanne - 03 May 2006 22:20 GMT
I just got back from over there. She is acting almost as if she were in our house now, only she is there. She is calm and talking about "going home" but just like she did when she WAS at home.

The aide asked her "who is this?" and she said "I don't know." At least she is not agitated any longer. She has gotten used to the people there.

Signature

Leslie Arnim
larnim48@email.uophx.edu

 I know how hard it is.  When my mom was in an adult family home I would
 visit with her and when I left the staff would ask her if she knew who I
 was.

 She would tell them, no, but that I was a real nice lady.  When they tried
 to tell her that I was her daughter, she would laugh and say that was
 impossible because her daughter was only five years old.

 The long goodbye is always hard.
Dana Carpender - 03 May 2006 23:37 GMT
> I just got back from over there. She is acting almost as if she were in
> our house now, only she is there. She is calm and talking about "going
> home" but just like she did when she WAS at home.
>  
> The aide asked her "who is this?" and she said "I don't know." At least
> she is not agitated any longer. She has gotten used to the people there.

I'm glad.  It's hard, but calm and reasonably safe-feeling is about the
best you can hope for for her.

Dana
Evelyn Ruut - 03 May 2006 23:45 GMT
 I just got back from over there. She is acting almost as if she were in our house now, only she is there. She is calm and talking about "going home" but just like she did when she WAS at home.

 The aide asked her "who is this?" and she said "I don't know." At least she is not agitated any longer. She has gotten used to the people there.

 --
 Leslie Arnim
 larnim48@email.uophx.edu

 I am so glad to hear that she is doing OK.  

 :-)

 --

 Best Regards,

 Evelyn
 (to reply to me personally, remove 'sox')
Barb Terry - 04 May 2006 00:01 GMT
Lesanne,
  Thats great! I bet your relieved to see that.My mom wanted to "Go
Home" even when we were in her home of 40 yrs.Glad to hear things are
going good.Barb

   
Evelyn Ruut - 27 Apr 2006 13:27 GMT
Dear Lesanne,

I hope all goes well, and you and your mom have the good wishes of everyone here, I am sure.  

The one thing I was impressed by with the nursing home (when we placed Ida), was the fact that everyone there was a professional.   That we really honestly COULD trust her to them.   They knew how to handle everything very well.   But it was still a difficult transition for us, probably more then for her.  

Can you arrange to have someone stay in the house with you for a day or two?   Not that you couldn't stay alone, but that you might feel less lonely for a day or two.   You need to think about yourself too.

Good luck with it all, Lesanne.  Expect to feel some guilt, but know that you are doing the right thing.

On the up-side, the busy-ness and social atmosphere of the nursing home is very good for stimulating their social skills.   Many nursing homes stop most of the drugs the patients were on, to establish a new baseline.   The reason for this is that they claim home cared for patients have often been over-medicated for behavioral reasons.  This often works out very well for their motor skills.  

There is someone there to watch them 24/7, and during the days there are people who do physical therapy, there are amusements and all sorts of social things going on.  When I saw how this was, I actually realized that Ida could have been admitted there sooner, and maybe even benefitted.   It was always someones birthday, and there were communal entertainments, and colorful decorations and the food was decent.

Expect to be entreated often to "go home."   It isn't because the place is bad, it is because they long for the time of autonomy and personal control back when they were well.   I imagine you already know that, but it is very hard to deal with.   The other hard thing to deal with is the other patients, some of whom are in really bad shape, exhibiting strange behavior.  

Make sure every article of clothing has a name label on it, even underwear and socks.   I ordered labels, planning to do it myself, but the facility had their own.  Ask how the facility you are using manages this.  All the clothing managed to disappear and re-appear on a regular basis, but Ida was dressed in clean clothing every day, whether it was hers or not.   Don't send ANY valuables there with her.  

Since others reported these same sort of situations, I think it may be just a fact of nursing home life everywhere.  

Good luck.... and it is probably going to be some time before you really and truly start fully feeling like yourself again.  For us it took almost a year.   We were that burnt out.   You may be so too, far more than you realize.

The best news of all?  We would stop and watch Ida when she wouldn't know we had arrived yet, and she seemed comfortable and actually happy, and all the nurses loved her there.

I hope all goes well for you and for her, and that you get some rest too.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

 I found a nursing home I can stand. Tomorrow I will take papers to our Doctor and see what that entails. This could happen as early as the first part of next week. I feel really funny. It is like part of me is ignoring the whole thing, this little part every now and then hops up and down and screams, and another part is scared, and.....

 My friends are all delighted. My nephew is delighted (says he has been wondering if I was going for sainthood or something)

 The live in housekeeper is going to be distressed to the max because she will have to go, but I will need someone who speaks better Spanish than I do to address that issue. I want her to understand. I think of the possibility of sleeping in an empty house as soon as next week and a part of me just sort of shuts down, like I am afraid to think it.

 I actually think Mom will like it better than here, because of the people rolling and walking around. We are going to try her out in a private room, but if she wanders too much they will want to move her to the secured unit into a semi private. There is only one empty bed in there, so we could end up in trouble if she does wander and then there is no place for her. I hope this works.

 --
 Lesanne
lesanne - 27 Apr 2006 17:10 GMT
Things are moving along. I know some of the nurses who work in this home. Mom wants to "go home" all day here also, so what else is new :). And as you know we have people here 24/7, the major difference there will be that it is not me. I will be able to go back to work.

I am really looking forward to being alone in the house actually, I am just afraid to hope that it is actually going to happen! Our Doctor is cooperating with the papers this morning, and that was not a certainty. It is a relief that they have that set up. I think she will protest the busy-ness at first, but hopefully she will adjust and not get kicked out of there. That is my main fear now, that she will be so disruptive that they will not keep her. I did wait a little too long. Whatever. I am really in a state, but hopefully I will calm down when it is all done.

What about laundry markers? Can I write her name in her things with those?

Signature

Les

 Dear Lesanne,

 I hope all goes well, and you and your mom have the good wishes of everyone here, I am sure.  

 The one thing I was impressed by with the nursing home (when we placed Ida), was the fact that everyone there was a professional.   That we really honestly COULD trust her to them.   They knew how to handle everything very well.   But it was still a difficult transition for us, probably more then for her.  

 Can you arrange to have someone stay in the house with you for a day or two?   Not that you couldn't stay alone, but that you might feel less lonely for a day or two.   You need to think about yourself too.

 Good luck with it all, Lesanne.  Expect to feel some guilt, but know that you are doing the right thing.

 On the up-side, the busy-ness and social atmosphere of the nursing home is very good for stimulating their social skills.   Many nursing homes stop most of the drugs the patients were on, to establish a new baseline.   The reason for this is that they claim home cared for patients have often been over-medicated for behavioral reasons.  This often works out very well for their motor skills.  

 There is someone there to watch them 24/7, and during the days there are people who do physical therapy, there are amusements and all sorts of social things going on.  When I saw how this was, I actually realized that Ida could have been admitted there sooner, and maybe even benefitted.   It was always someones birthday, and there were communal entertainments, and colorful decorations and the food was decent.

 Expect to be entreated often to "go home."   It isn't because the place is bad, it is because they long for the time of autonomy and personal control back when they were well.   I imagine you already know that, but it is very hard to deal with.   The other hard thing to deal with is the other patients, some of whom are in really bad shape, exhibiting strange behavior.  

 Make sure every article of clothing has a name label on it, even underwear and socks.   I ordered labels, planning to do it myself, but the facility had their own.  Ask how the facility you are using manages this.  All the clothing managed to disappear and re-appear on a regular basis, but Ida was dressed in clean clothing every day, whether it was hers or not.   Don't send ANY valuables there with her.  

 Since others reported these same sort of situations, I think it may be just a fact of nursing home life everywhere.  

 Good luck.... and it is probably going to be some time before you really and truly start fully feeling like yourself again.  For us it took almost a year.   We were that burnt out.   You may be so too, far more than you realize.

 The best news of all?  We would stop and watch Ida when she wouldn't know we had arrived yet, and she seemed comfortable and actually happy, and all the nurses loved her there.

 I hope all goes well for you and for her, and that you get some rest too.

 --

 Best Regards,

 Evelyn
 (to reply to me personally, remove 'sox')

   "Lesanne" <larnim48@nothotmail.com> wrote in message news:3XV3g.37566$0Z4.299@tornado.texas.rr.com...
   I found a nursing home I can stand. Tomorrow I will take papers to our Doctor and see what that entails. This could happen as early as the first part of next week. I feel really funny. It is like part of me is ignoring the whole thing, this little part every now and then hops up and down and screams, and another part is scared, and.....

   My friends are all delighted. My nephew is delighted (says he has been wondering if I was going for sainthood or something)

   The live in housekeeper is going to be distressed to the max because she will have to go, but I will need someone who speaks better Spanish than I do to address that issue. I want her to understand. I think of the possibility of sleeping in an empty house as soon as next week and a part of me just sort of shuts down, like I am afraid to think it.

   I actually think Mom will like it better than here, because of the people rolling and walking around. We are going to try her out in a private room, but if she wanders too much they will want to move her to the secured unit into a semi private. There is only one empty bed in there, so we could end up in trouble if she does wander and then there is no place for her. I hope this works.

   --
   Lesanne
Tumbleweed - 27 Apr 2006 17:40 GMT
>What about laundry markers? Can I write her name in her things with those?

Yes though things will still go missing anyway :-)

Hope it goes well

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

ladylove77 - 27 Apr 2006 21:03 GMT
Lesanne, you can use laundry markers, but they will fade with time and have to be done again.  That's what I did with my dad.
Gwen
 Things are moving along. I know some of the nurses who work in this home. Mom wants to "go home" all day here also, so what else is new :). And as you know we have people here 24/7, the major difference there will be that it is not me. I will be able to go back to work.

 I am really looking forward to being alone in the house actually, I am just afraid to hope that it is actually going to happen! Our Doctor is cooperating with the papers this morning, and that was not a certainty. It is a relief that they have that set up. I think she will protest the busy-ness at first, but hopefully she will adjust and not get kicked out of there. That is my main fear now, that she will be so disruptive that they will not keep her. I did wait a little too long. Whatever. I am really in a state, but hopefully I will calm down when it is all done.

 What about laundry markers? Can I write her name in her things with those?

 --
 Les
   "Evelyn Ruut" <mama-lionsox@hvc.rr.com> wrote in message news:_M24g.34498$cY3.14670@news-wrt-01.rdc-nyc.rr.com...
   Dear Lesanne,

   I hope all goes well, and you and your mom have the good wishes of everyone here, I am sure.  

   The one thing I was impressed by with the nursing home (when we placed Ida), was the fact that everyone there was a professional.   That we really honestly COULD trust her to them.   They knew how to handle everything very well.   But it was still a difficult transition for us, probably more then for her.  

   Can you arrange to have someone stay in the house with you for a day or two?   Not that you couldn't stay alone, but that you might feel less lonely for a day or two.   You need to think about yourself too.

   Good luck with it all, Lesanne.  Expect to feel some guilt, but know that you are doing the right thing.

   On the up-side, the busy-ness and social atmosphere of the nursing home is very good for stimulating their social skills.   Many nursing homes stop most of the drugs the patients were on, to establish a new baseline.   The reason for this is that they claim home cared for patients have often been over-medicated for behavioral reasons.  This often works out very well for their motor skills.  

   There is someone there to watch them 24/7, and during the days there are people who do physical therapy, there are amusements and all sorts of social things going on.  When I saw how this was, I actually realized that Ida could have been admitted there sooner, and maybe even benefitted.   It was always someones birthday, and there were communal entertainments, and colorful decorations and the food was decent.

   Expect to be entreated often to "go home."   It isn't because the place is bad, it is because they long for the time of autonomy and personal control back when they were well.   I imagine you already know that, but it is very hard to deal with.   The other hard thing to deal with is the other patients, some of whom are in really bad shape, exhibiting strange behavior.  

   Make sure every article of clothing has a name label on it, even underwear and socks.   I ordered labels, planning to do it myself, but the facility had their own.  Ask how the facility you are using manages this.  All the clothing managed to disappear and re-appear on a regular basis, but Ida was dressed in clean clothing every day, whether it was hers or not.   Don't send ANY valuables there with her.  

   Since others reported these same sort of situations, I think it may be just a fact of nursing home life everywhere.  

   Good luck.... and it is probably going to be some time before you really and truly start fully feeling like yourself again.  For us it took almost a year.   We were that burnt out.   You may be so too, far more than you realize.

   The best news of all?  We would stop and watch Ida when she wouldn't know we had arrived yet, and she seemed comfortable and actually happy, and all the nurses loved her there.

   I hope all goes well for you and for her, and that you get some rest too.

   --

   Best Regards,

   Evelyn
   (to reply to me personally, remove 'sox')

     "Lesanne" <larnim48@nothotmail.com> wrote in message news:3XV3g.37566$0Z4.299@tornado.texas.rr.com...
     I found a nursing home I can stand. Tomorrow I will take papers to our Doctor and see what that entails. This could happen as early as the first part of next week. I feel really funny. It is like part of me is ignoring the whole thing, this little part every now and then hops up and down and screams, and another part is scared, and.....

     My friends are all delighted. My nephew is delighted (says he has been wondering if I was going for sainthood or something)

     The live in housekeeper is going to be distressed to the max because she will have to go, but I will need someone who speaks better Spanish than I do to address that issue. I want her to understand. I think of the possibility of sleeping in an empty house as soon as next week and a part of me just sort of shuts down, like I am afraid to think it.

     I actually think Mom will like it better than here, because of the people rolling and walking around. We are going to try her out in a private room, but if she wanders too much they will want to move her to the secured unit into a semi private. There is only one empty bed in there, so we could end up in trouble if she does wander and then there is no place for her. I hope this works.

     --
     Lesanne
Evelyn Ruut - 27 Apr 2006 23:53 GMT
 Things are moving along. I know some of the nurses who work in this home. Mom wants to "go home" all day here also, so what else is new :). And as you know we have people here 24/7, the major difference there will be that it is not me. I will be able to go back to work.

 I am really looking forward to being alone in the house actually, I am just afraid to hope that it is actually going to happen! Our Doctor is cooperating with the papers this morning, and that was not a certainty. It is a relief that they have that set up. I think she will protest the busy-ness at first, but hopefully she will adjust and not get kicked out of there. That is my main fear now, that she will be so disruptive that they will not keep her. I did wait a little too long. Whatever. I am really in a state, but hopefully I will calm down when it is all done.

 What about laundry markers? Can I write her name in her things with those?

 --
 Les

 Hi Lesanne, the facility we used told us that if we dropped off the clothing at the front desk in a bag or basket with her name information on it, their own laundry people would label everything in their own way, and they did.  The labels did very little good.   The patients often go "shopping" in each others closets, and the clothing always manages to get mixed up, but they always had clean clothes on her every day anyway :-/  

 I had all her outfits beautifully color coordinated and pants for each top etc.   Needless to say that lasted all of a week, and it was all a hodgepodge after that.   I decided that it wasn't worth making a stink over, because of the simple fact that she was treated so kindly by all the staff.   No need to make a fuss and maybe create enmity over clothes.   Aftterwards I left all the clothing there, since some of the aides asked me to.   They needed it there, and I certainly couldn't use any of it, so I was glad it could do some good.

 --

 Best Regards,

 Evelyn
 (to reply to me personally, remove 'sox')

   "Evelyn Ruut" <mama-lionsox@hvc.rr.com> wrote in message news:_M24g.34498$cY3.14670@news-wrt-01.rdc-nyc.rr.com...
   Dear Lesanne,

   I hope all goes well, and you and your mom have the good wishes of everyone here, I am sure.  

   The one thing I was impressed by with the nursing home (when we placed Ida), was the fact that everyone there was a professional.   That we really honestly COULD trust her to them.   They knew how to handle everything very well.   But it was still a difficult transition for us, probably more then for her.  

   Can you arrange to have someone stay in the house with you for a day or two?   Not that you couldn't stay alone, but that you might feel less lonely for a day or two.   You need to think about yourself too.

   Good luck with it all, Lesanne.  Expect to feel some guilt, but know that you are doing the right thing.

   On the up-side, the busy-ness and social atmosphere of the nursing home is very good for stimulating their social skills.   Many nursing homes stop most of the drugs the patients were on, to establish a new baseline.   The reason for this is that they claim home cared for patients have often been over-medicated for behavioral reasons.  This often works out very well for their motor skills.  

   There is someone there to watch them 24/7, and during the days there are people who do physical therapy, there are amusements and all sorts of social things going on.  When I saw how this was, I actually realized that Ida could have been admitted there sooner, and maybe even benefitted.   It was always someones birthday, and there were communal entertainments, and colorful decorations and the food was decent.

   Expect to be entreated often to "go home."   It isn't because the place is bad, it is because they long for the time of autonomy and personal control back when they were well.   I imagine you already know that, but it is very hard to deal with.   The other hard thing to deal with is the other patients, some of whom are in really bad shape, exhibiting strange behavior.  

   Make sure every article of clothing has a name label on it, even underwear and socks.   I ordered labels, planning to do it myself, but the facility had their own.  Ask how the facility you are using manages this.  All the clothing managed to disappear and re-appear on a regular basis, but Ida was dressed in clean clothing every day, whether it was hers or not.   Don't send ANY valuables there with her.  

   Since others reported these same sort of situations, I think it may be just a fact of nursing home life everywhere.  

   Good luck.... and it is probably going to be some time before you really and truly start fully feeling like yourself again.  For us it took almost a year.   We were that burnt out.   You may be so too, far more than you realize.

   The best news of all?  We would stop and watch Ida when she wouldn't know we had arrived yet, and she seemed comfortable and actually happy, and all the nurses loved her there.

   I hope all goes well for you and for her, and that you get some rest too.

   --

   Best Regards,

   Evelyn
   (to reply to me personally, remove 'sox')

     "Lesanne" <larnim48@nothotmail.com> wrote in message news:3XV3g.37566$0Z4.299@tornado.texas.rr.com...
     I found a nursing home I can stand. Tomorrow I will take papers to our Doctor and see what that entails. This could happen as early as the first part of next week. I feel really funny. It is like part of me is ignoring the whole thing, this little part every now and then hops up and down and screams, and another part is scared, and.....

     My friends are all delighted. My nephew is delighted (says he has been wondering if I was going for sainthood or something)

     The live in housekeeper is going to be distressed to the max because she will have to go, but I will need someone who speaks better Spanish than I do to address that issue. I want her to understand. I think of the possibility of sleeping in an empty house as soon as next week and a part of me just sort of shuts down, like I am afraid to think it.

     I actually think Mom will like it better than here, because of the people rolling and walking around. We are going to try her out in a private room, but if she wanders too much they will want to move her to the secured unit into a semi private. There is only one empty bed in there, so we could end up in trouble if she does wander and then there is no place for her. I hope this works.

     --
     Lesanne
Dennis P. Harris - 28 Apr 2006 03:00 GMT
> That is my main fear now, that she will be so disruptive that they will not keep her.

I'm sure that they understand that adjustment takes a little
time, and they are used to doing that.
 
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