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Medical Forum / Diseases and Disorders / Alzheimer's / April 2006

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Just a sad moment

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Dana Carpender - 27 Apr 2006 02:47 GMT
I spoke with my SIL tonight.  She told me that my brother had been
talking to Mom about various housing options, and she had mentioned that
she'd asked her friend Mavis to keep an eye open for apartments in her
old town, the one she moved out of 18 months ago.  My brother had said,
"Mom, you can't live completely on your own.  Liz and I have been paying
your bills for you, and driving you around, helping you do your grocery
shopping, making sure you get your medication every day -- you need some
support, Mom.  You have Alzheimer's disease."

And she asked, sadly, "I have Alzheimer's disease?"

It makes me want to weep.  This is the thing she feared most all her life.

Dana
Evelyn Ruut - 27 Apr 2006 03:00 GMT
>I spoke with my SIL tonight.  She told me that my brother had been talking
>to Mom about various housing options, and she had mentioned that she'd
[quoted text clipped - 10 lines]
>
> Dana

Dana, it is so sad, but trust me when I say that she probably won't retain
the knowledge.   Have you spoken to her lady friend and advised her of the
situation?

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Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Dana Carpender - 27 Apr 2006 03:08 GMT
>>I spoke with my SIL tonight.  She told me that my brother had been talking
>>to Mom about various housing options, and she had mentioned that she'd
[quoted text clipped - 14 lines]
> the knowledge.   Have you spoken to her lady friend and advised her of the
> situation?

Mavis knows.  In fact, she was the first one who suggested to Mom that
her memory loss was bad enough that it might be something really
serious; she was the first one to suggest the word "Alzheimer's."

And I doubt she's apartment-hunting for Mom anyway.  Mavis is reportedly
terminally ill, also a very sad thing.  She's a wonderful, vibrant
person who's lived a remarkably full life and been a terrific friend to
my mom for 25 years or more.

Dana
Evelyn Ruut - 27 Apr 2006 03:29 GMT
>>>I spoke with my SIL tonight.  She told me that my brother had been
>>>talking to Mom about various housing options, and she had mentioned that
[quoted text clipped - 26 lines]
>
> Dana

That's wonderful.   And it is good that you don't have to make any awkward
explanations.

My mother in law's neighbors and friends all continued to cover for her, and
only when it got so bad that it was downright dangerous, would they give an
inch toward cooperating with the doctor's assessment that she really should
not have been living alone anymore.

She was fortunate that she had loving friends, but they didn't quite
understand the danger she was in.   She was taking too many of her
prescription pills and making herself sick, and she was either forgetting
food on the stove and  burning the handles off her pots, or not eating at
all.   She forgot to walk the dog for like a year.... and forgot to take a
bath or shampoo her hair for at least that long too.   Forget about laundry.
Dirty clothes just got worn over and over.

Her life improved drastically when she came to us.   Regular meals, regular
medication, baths and clean clothing.... haircuts and hearing aids updated,
broken teeth fixed.... The daycare center during the weekdays, and an active
social life too, since we included her in everything.

She had three good years with us, and then for about another year she was in
more of a decline... then the very last year of her life was in a very nice
local nursing home, where she passed away from pancreatic cancer.   In fact
she is gone just a year this past Sunday.

We often say around here, that you do your most of your crying during the
illness, rather than later, and that was very nearly true, but we both still
cried when she passed.

But Dana you are ahead of the game in so many ways.   You and your siblings
all know about it, and are in cooperation in caring for her.    The right
medication can keep her comfortable, free from worry and distress, and
although it is difficult, with loving family, and things handled well, it
can be do-able.

Do you belong to a real life local support group?   It can be really great.
We were astonished at how much so.   I just ran into our support group
leader last week, in fact :-)

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

michelle - 27 Apr 2006 09:23 GMT
Oh Dana what a memory your post bought back to me.I can remember when
we had to tell Mum she had Dementia and how I hated it when she was
still aware that she did. I prayed the time would come quickly when she
wouldnt know anymore thats if it is really true that they dont and I am
not totally convinced.While  working in this field also and as
discussed with other members of staff that they truly arent.I just dont
know and in reality how can anyone truly know.what capabilities are
there for them to maybe still think.I know they still feel and respond
to loving kindness.This is bought back to me on days like today at work
as I hold two positions in the care facility I work in here in
Australia.An Alzheimers resident who I am particularly fond of comes to
me when I am cooking in the kitchen and seeks me out she of course does
not understand that today I am a cook and not technically supposed to
help residents in that roll,but today her visits to me were very
repetetive and even our Clinical manager encouraged me to spend time
with her.Then she told me she was looking for her husband who has been
dead many years something she has not done before.I am hoping that
maybe it is a simple UTI that has her so disturbed today time will tell
I spose.
Back to Mum who is probably heading to the later stages Oh how I wish I
could turn back time but I cant .
Surely one day something will come along to halt this insidious disease
Nati - 27 Apr 2006 12:29 GMT
I am a daily lurker. Such nice people on this board!

Dana I am almost finished reading "The Quality of Life. Living Well,
Dying Well" by Janet Lembke. It is about a daughter taking care of her
previously very active mother who is becoming demented. It is a swift
beautiful read that i recommend.
 
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