Medical Forum / Diseases and Disorders / Alzheimer's / April 2006
Just remembering a few things, and regretting some others
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A R Pickett - 24 Apr 2006 22:48 GMT My mother died four years ago this month. I saw her for the last time in this life about 2 weeks before she died. She was fully aware that her time was ending, discussed it with me and one of my sisters who was also with us that afternoon. I sat with tears streaming down my face while she urged me not to cry. I told her I would do my best, but I was pretty sure I could not tell her I would refrain from tears. It was a very poignant conversation to say the least, but strangely enough a conversation I remember with quite a bit of gratitude. That we could be honest with each other and understand each other at such an important moment was a wonderful gift.
My father's dementia is such that he increasingly has absolutely no clue what is happening to him. He and I will never be able to talk with each other in the style my mother and I did and on the same topic. And perhaps because of the anniversary of my mother's death, I am feeling that lack rather keenly in the last few days.
I don't blame him for this, it's certainly not his fault. And there really isn't anything he OR I can do about it.
I figured my friends here would understand.
Thanks for listening.
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Dana Carpender - 25 Apr 2006 06:11 GMT > My mother died four years ago this month. I saw her for the last time in > this life about 2 weeks before she died. She was fully aware that her time [quoted text clipped - 17 lines] > > I figured my friends here would understand. I'm brand new here -- subbed this week, posted for the first time today -- and I understand. My dad is very frail, has balance problems, has cancer, is weak from the medication. But mentally he's as sharp as a tack; I can call him with the latest joke and he'll laugh; we can discuss the real estate market and talk about maybe investing together; we can discuss Mom's problems -- he's her ex-husband, but never stopped caring -- and he's right there. He's still a person I have a real relationship with.
Mom is in terrific physical shape, but I feel like she's on the stern of a boat that's already left the dock, waving at me as the boat sails off into the distance. The woman who earned two masters degrees, who rented a 28' Winnebago, drove it around the block three times, then set off to drive it across the Sierra Nevada, whose house was the place all the kids wanted to hang out -- she's already gone.
You have my total sympathy. It's the hardest thing in the world. Or if it's not, I don't want to find out what is.
Dana
Barb Terry - 25 Apr 2006 15:34 GMT For me so far this disease has been somewhat kind to my mom.For ten years now i have seen her decline but she seems to have hit a plateau.I thank God everyday for her slow decline.Oh she has many symptoms,the questions,which have lessened,wanting to go home,But i have to say its been fairly easy for us .She's a gentle person,who thanks us for even her meals.And i think she still enjoys life somewhat.Loves to be outside,see the flowers,enjoys pretty clothes,etc.But NO she does not have her memory.And tends to like to sleep.LOL But then so do I.And probably she will get much worse eventually or maybe stay in this plateau.Liza Gibbons says research has shown that some do hit a plateau and stay there.Her mom has it too. Barb
Dana Carpender - 25 Apr 2006 19:00 GMT > For me so far this disease has been somewhat kind to my mom.For ten > years now i have seen her decline but she seems to have hit a plateau.I [quoted text clipped - 7 lines] > plateau.Liza Gibbons says research has shown that some do hit a plateau > and stay there.Her mom has it too. Barb My brother told me that some musician -- I forget who, but it was someone very famous -- said that Alzheimer's hasn't been that bad for his dad; that instead of worrying about the future or dwelling on the past, his father is just living in the eternal present. That sounds like your mom, and I'm very glad for her and you.
Dana
Evelyn Ruut - 25 Apr 2006 19:17 GMT >> For me so far this disease has been somewhat kind to my mom.For ten >> years now i have seen her decline but she seems to have hit a plateau.I [quoted text clipped - 15 lines] > > Dana Hi Dana,
Do you recall the movie "Groundhog Day?" In it the lead guy lived the same day over and over again. We used to say that my MIL was living in "groundhog day".
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Evelyn (to reply to me personally, remove 'sox')
august - 25 Apr 2006 19:43 GMT >> My brother told me that some musician -- I forget who, but it was someone >> very famous -- said that Alzheimer's hasn't been that bad for his dad; [quoted text clipped - 11 lines] > Evelyn > (to reply to me personally, remove 'sox') Our LO awakes each morning just sure that something is terribly wrong with her. Part of our morning routine before she gets up and dressed is to gently remind her the what and why of each of her complaints. Heel numbness from getting hit by a car 30 years ago, back pain from compression fractures 13 years ago, hip pain because of broken hip 10 years ago. Once she comes to grips with the fact that these aren't new problems, she quits fixating on them and gets up and dressed. After she moves around and her meds start to work, then usually she has little or no pain until same time the next morning when we start over with the same explanations. We also find it very helpful to remind her throughout the day "what you usually do this time of day" since she doesn't have any memory of her usual routine, and for the person with dementia - routine is very comforting. AW
Evelyn Ruut - 25 Apr 2006 21:42 GMT >>> My brother told me that some musician -- I forget who, but it was >>> someone very famous -- said that Alzheimer's hasn't been that bad for [quoted text clipped - 25 lines] > memory of her usual routine, and for the person with dementia - routine is > very comforting. AW Hi August,
Yes, exactly. Routine is best for people who have alzheimers. I think that although they have no conscious memory of their "usual" activities each day, there is some part of the brain that registers repeated actions. In helping my mother in law dress, for example, I would always put on her right shoe first, then the left one. She seemingly "remembered" this, and always put forth the right foot first, even when I didn't have the shoe ready just yet. That was the same with other little caregiving matters, and I would think how odd it was that there seemed to be some "memory" of some kind. But certainly there was no conscious memory of these things.
Whenever we tried to do something out of the ordinary, no matter how small, it got my mother in law's routine mixed up, and somehow irritated her. Sometimes some simple unusual activity, like a holiday for example, would cause her to obsess about it for a long time. She would get "stuck" on the holiday and think it was happening again every day for weeks afterwards, till some other thing would catch her attention.
Our local daycare center made a big fuss of every holiday, and it was nice because the crafts they did and the different activities were geared around the holidays over the course of the year. I think in some way that helped to break the obsessiveness a little.
This is a perfect time to say once again, that I have no idea how we would have managed as long or as well as we did without the daycare center. They were wonderful. A real lifesaver for us all.
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Evelyn (to reply to me personally, remove 'sox')
Barb Terry - 25 Apr 2006 23:35 GMT
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