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Medical Forum / Diseases and Disorders / Alzheimer's / April 2006

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Just remembering a few things, and regretting some others

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A R Pickett - 24 Apr 2006 22:48 GMT
My mother died four years ago this month.  I saw her for the last time in
this life about 2 weeks before she died.  She was fully aware that her time
was ending, discussed it with me and one of my sisters who was also with us
that afternoon.  I sat with tears streaming down my face while she urged me
not to cry.  I told her I would do my best, but I was pretty sure I could
not tell her I would refrain from tears.  It was a very poignant
conversation to say the least, but strangely enough a conversation I
remember with quite a bit of gratitude.  That we could be honest with each
other and understand each other at such an important moment was a wonderful
gift.

My father's dementia is such that he increasingly has absolutely no clue
what is happening to him.  He and I will never be able to talk with each
other in the style my mother and I did and on the same topic.  And perhaps
because of the anniversary of my mother's death, I am feeling that lack
rather keenly in the last few days.

I don't blame him for this, it's certainly not his fault.  And there really
isn't anything he OR I can do about it.

I figured my friends here would understand.

Thanks for listening.

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Remove lower case "e" to respond

Dana Carpender - 25 Apr 2006 06:11 GMT
> My mother died four years ago this month.  I saw her for the last time in
> this life about 2 weeks before she died.  She was fully aware that her time
[quoted text clipped - 17 lines]
>
> I figured my friends here would understand.

I'm brand new here -- subbed this week, posted for the first time today
-- and I understand.  My dad is very frail, has balance problems, has
cancer, is weak from the medication.  But mentally he's as sharp as a
tack; I can call him with the latest joke and he'll laugh; we can
discuss the real estate market and talk about maybe investing together;
we can discuss Mom's problems -- he's her ex-husband, but never stopped
caring -- and he's right there.  He's still a person I have a real
relationship with.

Mom is in terrific physical shape, but I feel like she's on the stern of
a boat that's already left the dock, waving at me as the boat sails off
into the distance.  The woman who earned two masters degrees, who rented
a 28' Winnebago, drove it around the block three times, then set off to
drive it across the Sierra Nevada, whose house was the place all the
kids wanted to hang out -- she's already gone.

You have my total sympathy.  It's the hardest thing in the world.  Or if
it's not, I don't want to find out what is.

Dana
Barb Terry - 25 Apr 2006 15:34 GMT
For me so far this disease has been somewhat kind to my mom.For ten
years now i have seen her decline but she seems to have hit a plateau.I
thank God everyday for her slow decline.Oh she has many symptoms,the
questions,which have lessened,wanting to go home,But i have to say its
been fairly easy for us .She's a gentle person,who thanks us for even
her meals.And i think she still enjoys life somewhat.Loves to be
outside,see the flowers,enjoys pretty clothes,etc.But NO she does not
have her memory.And tends to like to sleep.LOL But then so do I.And
probably she will get much worse eventually or maybe stay in this
plateau.Liza Gibbons says research has shown that some do hit a plateau
and stay there.Her mom has it too. Barb
Dana Carpender - 25 Apr 2006 19:00 GMT
> For me so far this disease has been somewhat kind to my mom.For ten
> years now i have seen her decline but she seems to have hit a plateau.I
[quoted text clipped - 7 lines]
> plateau.Liza Gibbons says research has shown that some do hit a plateau
> and stay there.Her mom has it too. Barb

My brother told me that some musician -- I forget who, but it was
someone very famous -- said that Alzheimer's hasn't been that bad for
his dad; that instead of worrying about the future or dwelling on the
past, his father is just living in the eternal present.  That sounds
like your mom, and I'm very glad for her and you.

Dana
Evelyn Ruut - 25 Apr 2006 19:17 GMT
>> For me so far this disease has been somewhat kind to my mom.For ten
>> years now i have seen her decline but she seems to have hit a plateau.I
[quoted text clipped - 15 lines]
>
> Dana

Hi Dana,

Do you recall the movie "Groundhog Day?"  In it the lead guy lived the same
day over and over again.  We used to say that my MIL was living in
"groundhog day".

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Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

august - 25 Apr 2006 19:43 GMT
>> My brother told me that some musician -- I forget who, but it was someone
>> very famous -- said that Alzheimer's hasn't been that bad for his dad;
[quoted text clipped - 11 lines]
> Evelyn
> (to reply to me personally, remove 'sox')

Our LO awakes each morning just sure that something is terribly wrong with
her. Part of our morning routine before she gets up and dressed is to gently
remind her the what and why of each of her complaints. Heel numbness from
getting hit by a car 30 years ago, back pain from compression fractures 13
years ago, hip pain because of  broken hip 10 years ago. Once she comes to
grips with the fact that these aren't new problems, she quits fixating on
them and gets up and dressed. After she moves around and her meds start to
work, then usually she has little or no pain until same time the next
morning when we start over with the same explanations.  We also find it very
helpful to remind her throughout the day "what you usually do this time of
day" since she doesn't have any memory of her usual routine, and for the
person with dementia - routine is very comforting.  AW
Evelyn Ruut - 25 Apr 2006 21:42 GMT
>>> My brother told me that some musician -- I forget who, but it was
>>> someone very famous -- said that Alzheimer's hasn't been that bad for
[quoted text clipped - 25 lines]
> memory of her usual routine, and for the person with dementia - routine is
> very comforting.  AW

Hi August,

Yes, exactly.   Routine is best for people who have alzheimers.   I think
that although they have no conscious memory of their "usual" activities each
day, there is some part of the brain that registers repeated actions.   In
helping my mother in law dress, for example, I would always put on her right
shoe first, then the left one.   She seemingly "remembered" this, and always
put forth the right foot first, even when I didn't have the shoe ready just
yet.   That was the same with other little caregiving matters, and I would
think how odd it was that there seemed to be some "memory" of some kind.
But certainly there was no conscious memory of these things.

Whenever we tried to do something out of the ordinary, no matter how small,
it got my mother in law's routine mixed up, and somehow irritated her.
Sometimes some simple unusual activity, like a holiday for example, would
cause her to obsess about it for a long time.   She would get "stuck" on the
holiday and think it was happening again every day for weeks afterwards,
till some other thing would catch her attention.

Our local daycare center made a big fuss of every holiday, and it was nice
because the crafts they did and the different activities were geared around
the holidays over the course of the year.   I think in some way that helped
to break the obsessiveness a little.

This is a perfect time to say once again, that I have no idea how we would
have managed as long or as well as we did without the daycare center.   They
were wonderful.   A real lifesaver for us all.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Barb Terry - 25 Apr 2006 23:35 GMT
Thank You Dana.
 
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