Medical Forum / Diseases and Disorders / Alzheimer's / April 2006
Guilt
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Barb Terry - 02 Apr 2006 22:58 GMT I have a question for ya all.I feel very guilty when i just leave my mom in her chair to go off and do something around the house.Feel like i am neglecting her if I am not in the room wih her.But i need to get things done.How do you all handle this?Barb
Lee - 03 Apr 2006 04:41 GMT I gave up guilt... or at least I try to...I can't do EVERYTHING ....so all I CAN do is my best.
As long as she's safe, and her basic needs are being met.... you do what you have to do
I used to feel absolutely HORRID everytime my MIL had a fall, even though she hasn't hurt herself (yet) .... but I can't be holding on to her every moment that she's awake.... and I really can't justify restraining her.. and that is what it would take
it would be much the same in a nursing home, I figure.... unless restrained, she wanders.... and once or twice a week, she falls down and goes boom.... they're no more likely to assign someone to walk around with her every waking moment..... MIGHT be more likely than I am to restrain her (I can't take the crying and carrying on when we DO have to restrict her wandering during her very ~off~ times)
>I have a question for ya all.I feel very guilty when i just leave my mom > in her chair to go off and do something around the house.Feel like i am > neglecting her if I am not in the room wih her.But i need to get things > done.How do you all handle this?Barb Barb Terry - 03 Apr 2006 05:37 GMT Lee, I am sure your doing your best ,but your mom falls once or twice a week? Doesn't she ever break anything? My mom used to fall often but thats exactly why i hate to leave her alone.She tries to get up.I am gonna work on the guilt though.Barb
Lee - 03 Apr 2006 22:22 GMT fortunately hasn't broken anything to date... we limit where she can go, and try to keep anything that can trip her up, or hurt if she lands on it, out of her way ... but she is absolutely determined to wander/pace/explore....
won't be long before we'll have no choice to figure something out, I suspect.... but we are not interested in taking away the only thing she still WANTS to do before we have to
> Lee, > I am sure your doing your best ,but your mom falls once or twice a > week? Doesn't she ever break anything? My mom used to fall often but > thats exactly why i hate to leave her alone.She tries to get up.I am > gonna work on the guilt though.Barb Easter - 03 Apr 2006 09:11 GMT May I come in....I can't sleep.....I got a call from my cousin in Oklahoma this evening....he has the funeral home in my home town and called to ask me if he could cremate my sister ......he told me she was dying.....I hadn't heard from her in years.....but she is in a nursing home now and dying of Alzheimers......and Of course I said yes as I will also be cremated......and I have Alzheimers also.....My dad and both of his brothers had it ....I have no Idea how I found this place but Guess I needed some one to talk too.......Thanks
Barb Terry - 04 Apr 2006 02:54 GMT Easter, Cute name by the way.Welcome and feel free to post any time.Sorry to hear about your dilemma.What stage are you in? Can you tell us a bit more about your situation.Barb
Gwen Love - 04 Apr 2006 23:11 GMT Easter, so glad you found us. We welcome you and hope you will stay with us. I'm sorry about your sister, and also sorry that you have AD (Alzheimers Disease). Were you diagnosed by a doctor, and if so, what kind of doctor? Please keep us posted about your sister and yourself. Gwen May I come in....I can't sleep.....I got a call from my cousin in Oklahoma this evening....he has the funeral home in my home town and called to ask me if he could cremate my sister ......he told me she was dying.....I hadn't heard from her in years.....but she is in a nursing home now and dying of Alzheimers......and Of course I said yes as I will also be cremated......and I have Alzheimers also.....My dad and both of his brothers had it ....I have no Idea how I found this place but Guess I needed some one to talk too.......Thanks
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Easter Stephens
Gwen Love - 04 Apr 2006 23:08 GMT Barb, an AD caregiver is not allowed to feel guilt! Absolutely not allowed. That uses up too much energy that you need for other things. We all have had the same problems, and the only thing you can do is do the best you can with the conditions that exist and the best knowledge you have, and stop worrying. You do what you can when you can and don't worry about what you are not able to do. Easier said than done but just force yourself! Gwen
>I gave up guilt... or at least I try to...I can't do EVERYTHING ....so all >I CAN do is my best. [quoted text clipped - 18 lines] >> neglecting her if I am not in the room wih her.But i need to get things >> done.How do you all handle this?Barb Tumbleweed - 03 Apr 2006 08:49 GMT >I have a question for ya all.I feel very guilty when i just leave my mom > in her chair to go off and do something around the house.Feel like i am > neglecting her if I am not in the room wih her.But i need to get things > done.How do you all handle this?Barb You cant be with her 100%, its not possible, and its not healthy for you either.
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Evelyn Ruut - 03 Apr 2006 13:04 GMT >I have a question for ya all.I feel very guilty when i just leave my mom > in her chair to go off and do something around the house.Feel like i am > neglecting her if I am not in the room wih her.But i need to get things > done.How do you all handle this?Barb Even if she were in a hospital they don't stay with you every minute.
You do the best you can, and that is all.
If you have her in a wheel chair, you could wheel her along into the room where you are working, but that would get unwieldy too, after a while.
You could hire someone for a few hours a day while you do your chores, but even then you would still have to leave her alone some of the time.
I think you shouldn't feel guilty when you are doing the best you can.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Alan Meyer - 03 Apr 2006 17:47 GMT >I have a question for ya all.I feel very guilty when i just leave my mom > in her chair to go off and do something around the house.Feel like i am > neglecting her if I am not in the room wih her.But i need to get things > done.How do you all handle this?Barb It's bad enough to have to feel guilty when we go off on a vacation or go out to dinner or to friends houses. But it's too much to have to feel guilty about going off to do necessary household and family chores.
Give yourself a break. Don't feel guilty. You're doing a good job of taking care of your mom.
In some cities there are low cost, community based senior centers and daycare centers. If there's anything like that near you, you owe it to yourself to find out if your mother qualifies and can be cared for there for part of the time. If so, don't use all the free time you might get from it to do chores. Use some of it for yourself too.
Alan
KatelynRain - 04 Apr 2006 00:17 GMT >>I have a question for ya all.I feel very guilty when i just leave my mom >> in her chair to go off and do something around the house.Feel like i am >> neglecting her if I am not in the room wih her.But i need to get things >> done.How do you all handle this?Barb
> It's bad enough to have to feel guilty when we go off on a vacation > or go out to dinner or to friends houses. But it's too much to have > to feel guilty about going off to do necessary household and family > chores. I agree 100% w/ Alan on this. You've taken your mom into your home and are caring for her pretty much 24/7 and you're dealing w/ someone who has an extremely difficult disability and disorder to handle. This makes you something of a hero, in my book, and in the eyes of most people, I would wager to guess. You have attained practically sainthood status if you go by average standards.
There are adult children who know their mom or dad is in abysmal shape and are in serious danger staying on their own, yet they turn a blind eye or are content to let someone more distantly related, or even social services, to take over the situation, and a lot of these people feel no guilt or almost no guilt at all. The idea that you would feel guilty just for leaving your mom in a room w/o you for a short period while you are doing things around the house in comparison to the other scenario I suggest is positively ludicrous. I thnk you will agree if you think about it a while.
One technique I can suggest that may help you overcome your guilt at times like these is the following: every time you feel inclined to feel guilt for leaving your mom alone in a room w/o you for a little while, stop and think of just how much more guilty you would feel--many, many times more guilty--if you had raided your mom's savings account and placed her in some state nursing home that takes Medicare patients and leave social workers for the state to handle the problem. There are a lot of people who do exactly that. When you consider this point, you can be very grateful that you have only this very, very minor "transgression" over which to feel guilty, and hopefully, that will help put it all into perspective for you so that you can let go of whatever pinge of guilt you may be inclined to feel momentarily for leaving your mom in a different room for a while.
~katelyn~
p.s./No offense to anyone who has placed a parent or other loved one in state-funded nursing home. It's a perfectly reasonable decision for someone w/ no practical alternatives. It's just a mental exercise I'm constructing to help Barb put her guilt issues into perspective.
southaters@yahoo.com - 06 Apr 2006 04:15 GMT Kate
I am just now reading your post re Caregiving alone ... It was very good and I dont mind the "U"s at all. I have wasted hundreds of hours typing posts about the south (under various names) all over the place. You are the only person that has actually suggested that I
"think about relocating some place where U feel U may be able to establish better connections to the community"
It was an excellent suggestion and the idea has been a very compelling one for quite some time. I am just glad to see that someone else has finally suggested it. I dont really have a "home" anywhere in a geographical sense. I was raised in Cincinnati but left there in the 70's, There are no relatives near there and my friends there that are still living are people I have lost touch with. I lived in Denver for years as a young man, but I was single most of that time and I have a past there that I dont really want to go back to, including a deranged ex-wife. Plus, Denver gets too cold in the winter. We have been considering Seattle (which is warmer in winter and cooler in summer than Denver). I think large cities near the west coast tend to be less clannish than small southern towns. Its a gamble, but I have got nothing to lose. I dont have a life here in Kinfolkville. What do you think?
Dennis P. Harris - 06 Apr 2006 08:10 GMT > We have been > considering Seattle (which is warmer in winter and cooler in summer > than Denver). I think large cities near the west coast tend to be less > clannish than small southern towns. seattle's waaaay too expensive now. try portland or eugene.
tvengineering - 06 Apr 2006 12:21 GMT I say there is a bus leaving every day..... you should be under one!
> Kate > [quoted text clipped - 20 lines] > nothing to lose. I dont have a life here in Kinfolkville. What do you > think? Evelyn Ruut - 06 Apr 2006 13:29 GMT >I say there is a bus leaving every day..... you should be under one! No need to be too mean about it.
I always think a person should be entitled to experience their own feelings. Given time they will find out on their own, whether they were wrong or not.
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Best Regards,
Evelyn (to reply to me personally, remove 'sox')
>> Kate >> [quoted text clipped - 20 lines] >> nothing to lose. I dont have a life here in Kinfolkville. What do you >> think? southaters@yahoo.com - 06 Apr 2006 15:26 GMT TV
Have you managed to "engineer" your VCR yet? What type of "engineering" do you do anyway? I suspect that rather than being someone whose life has been turned upside down by alz, that you are an uneducated troll who is trying to build up his low self esteem by assaulting alz victims anonymously. I have said insulting things to people on the web, but not in a support group. You are truly a pathetic individual. The only possible excuse you could have for yourself would be that it is you, TV, who has the alz, rather than a close family member. Have you thought about suicide. Do us a favor and consider it, TV.
Deborah - 08 Apr 2006 00:27 GMT > TV > [quoted text clipped - 8 lines] > close family member. Have you thought about suicide. Do us a favor > and consider it, TV. I'm sorry you've had a bad experience in the South. I have too, and I was born and raised in it. I've also lived in a lot of other places in the world. Cliques are cliques -- Everywhere.
Please, for your own health, get over it. Whoever you are, no matter how hard you try, you are not going to be a No. 1 hit, with a bullet, every where you go. I think it's a really good idea to consider other possible places to live. They don't all always work out, for most people.
This is a Big Truth, I think.
Barb Terry - 08 Apr 2006 02:42 GMT Is the group for alz.anymore? A new person would certainly have to wonder.By this time you could have been moved you who hates the south.LOL And I do not like everyone in here equally and do occasionally spit out a little venom.But I try to get past it.Come on ,I would much rather hear about your day with your loved ones.Please,please let's all try to move on.I also wanted to thank you all for helping me with my guilt issues.And thanx to those who peeked in and seen my dear,sweet,gorgeous mom.Barb
Deborah - 08 Apr 2006 04:23 GMT deadwoodflower@webtv.net (Barb Terry) wrote in news:24115-443714F5- 41@storefull-3351.bay.webtv.net:
> Is the group for alz.anymore? A new person would certainly have to > wonder.By this time you could have been moved you who hates the [quoted text clipped - 4 lines] > guilt issues.And thanx to those who peeked in and seen my > dear,sweet,gorgeous mom.Barb I'm sorry, Barb, I really don't know what you meant by your post. I presume you have an affected LO, and I wish you the best in your caregiving experience.
Barb Terry - 08 Apr 2006 16:42 GMT Deborah, What I mean by my post is I am tired of the "South Issues" I have been posting here for quite a while and yes i have taken care of my mom in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not where should I move so I can make friends.
KatelynRain - 08 Apr 2006 17:17 GMT > What I mean by my post is I am tired of the "South Issues" I have > been posting here for quite a while and yes i have taken care of my mom > in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not > where should I move so I can make friends. My feelings too.
~katelyn~
Deborah - 09 Apr 2006 20:50 GMT >> What I mean by my post is I am tired of the "South Issues" I have >> been posting here for quite a while and yes i have taken care of my mom [quoted text clipped - 4 lines] > > ~katelyn~ I have a very few words of advice for you, KateyRain. Lurk, live, and learn. You're web/net savvy enough to know what that means.
KatelynRain - 09 Apr 2006 22:15 GMT >>> What I mean by my post is I am tired of the "South Issues" I have >>> been posting here for quite a while and yes i have taken care of my mom >>> in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not >>> where should I move so I can make friends.
>> My feelings too.
> I have a very few words of advice for you, KateyRain. Lurk, live, and > learn. You're web/net savvy enough to know what that means. No, I honestly have no idea what you're getting at Deborah. It seems like you have some issues w/ me, but I have no idea what they are or what they could be. I can't imagine how me saying "My feelings too" could cause issues w/ anyone.
As far as your "advice", I don't see you having any business advising me on whether to post or not, or to stay hidden in lurk mode. I'll post if I want to. if you have a problem w/ that, you better get over it.
~katelyn~
Evelyn Ruut - 09 Apr 2006 23:19 GMT Hi Katelyn,
Deborah is gently and kindly trying to let you know that maybe you have occasionally been coming on a little strong here. Others have let you know that too, in one way or another.
People are NICE to people in this newsgroup, unlike many of the others. We are here to support each other and to be helpful and kind to one another. That goes for you too, and anyone else who is a caregiver for a loved one with alzheimers disease.
We all have enough on our plates without getting/giving stress in a support group.
I hope it doesn't offend you to know that, and it really shouldn't.
We can gladly be your friends here if you will but allow it.
What Deborah is saying, is the proverbial "word to the wise".
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Best Regards,
Evelyn (to reply to me personally, remove 'sox')
>>>> What I mean by my post is I am tired of the "South Issues" I have >>>> been posting here for quite a while and yes i have taken care of my mom [quoted text clipped - 16 lines] > > ~katelyn~ KatelynRain - 10 Apr 2006 03:29 GMT > Deborah is gently and kindly trying to let you know that maybe you have > occasionally been coming on a little strong here. Others have let you > know that too, in one way or another. 1. Why do you feel you need to speak for Deborah? I don't see why Deborah can't speak for herself. She appears to be able to type, use her PC for NG posting and she seems to speak English. So why can't she say what's on her mind? Why do YOU need to speak for her?
Come to think of it, Evelyn, you seem to do this a lot. You seem to have a compulsive need to get into the middle of any sort of debate or conflict you think is going on to try to manage people's feelings. I see there's a few people here you always seem to feel the need to "back up", like here you're speaking for Deborah as though she can't respond herself directly, and you want to control my feelings about Dennis, as if there's some reason it matters to you what my good opinion of him is. He says he's killfiling me and you say nothing. I say I'm killfiling him too and then you feel the need to jump in to say that he's really a nice guy and you hope I'll someday have a better opinion of him. Why? Why do you care whether I have a good opinion of Dennis or not? You obviously don't care whether he has a good opinion of me.
Who elected you ASA spokesperson or ambassador? Your behavior seems very co-dependent to me. You're enmeshed.
2. I don't think I've come on strong at all. The true fact is, others have come on rather strong w/ me. I started out by posting a fairly sympathetic, reasonable toned reply to the guy here ranting about how men in the south won't give him a fair chance and Dennis had nothing to say to me other than blasting me for using net shorthand, which he himself uses. And a few of you got behind him and said he was right and that I should get in line and do as he says. Then you and a couple of others ridiculed me for using the word madam, which is a perfectly legitimate English language word and a whole lot more polite and more respectable than a great many other things I could've said. Only people w/ their minds in the gutter would insinuate the word refers to the prostitution industry. Next, I share some personal things about myself and I get more insults from Dennis and you quickly jump in to tell me I should have a good opinion of him because he's really such a great guy. Next, I support Barb on feelings she expressed about the purpose of the NG and concerns about what one person's obsessing over some unrelated topic is doing to the atmosphere here and I get told by Deborah that I should lurk only and learn, whatever that means. Then you jump in once again to lecture me some more in your preachy way. I would call all of that coming on very strong by those of you who did it.
Talk about classic projection. A few of you are rude and insulting and hostile and take a morally superior attitude to me (the latter would be U Evelyn) and I offer supportive comments to people and you tell me *I'm* coming on strong?? U sure have things twisted IMO.
> People are NICE to people in this newsgroup, unlike many of the others. > We are here to support each other and to be helpful and kind to one > another. That goes for you too, and anyone else who is a caregiver for a > loved one with alzheimers disease. Under almost all circumstances I am an extremely nice person. Most people who know me tell me often that I'm one of the nicest people they know. What am I *not* is a doormat. If someone is rude or insulting or abusive or obnoxious to me, I'm unlikely to sit around passively and let such things fly, although, for the most part, I've been ignoring your bossy comments to me, Evelyn. But if people behave badly, I'm likely to let them have it. I think my reply to Deborah was admirably civil and tame considering her message to me seemed to be "shut up and keep your opinions to yourself here" which I would say is quite rude, inappropriate, and hardly what I would call "nice". And then you get into the act and feel the need to speak for her.
The majority of the people I've seen here I would say are exceptionally nice, behave well and treat each other civilly. But there are a few who have not been at all nice to or supportive of me, but have been rude and nasty w/o justification. So if it's your view that people should be nice to each other in this NG, then why don't you and Dennis and Deborah and a couple of others who have been hardly charitable toward me strive for the principle you supposedly hold for participants in this NG and knock-off the jerk behavior. That means, cut out the lecturing, giving of mandates, giving of unsoliticed advice, assuming a self-righteous attitude, using a preachy tone, telling people what to do, think and feel and trying to manage and control everybody and every thing and every discussion.
Don't lecture me on how no one here needs more stress by getting it in this NG when you are a major contributor to the stress-causing hostility here, and a major co-dependent defender of those w/ hostile attitudes. When you begin to practice what you preach, only then will you have earned the right to instruct others on how they should behave. You and Dennis and Deborah, as examples, are a long way from that.
That's *my* word to the wise.
Oh, and btw...I certainly hope you're not offended by me saying any of this, Evelyn. There really is no reason you should be.
~katelyn~
Evelyn Ruut - 10 Apr 2006 12:12 GMT >> Deborah is gently and kindly trying to let you know that maybe you have >> occasionally been coming on a little strong here. Others have let you [quoted text clipped - 90 lines] > > ~katelyn~ No offense taken at all, Katelyn. I just think you see it all wrong, but then I am entitled to my opinion, just as you are entitled to yours.
The "madam" comment was a joke..... an it has been around since Mae West, so I kind of thought it wouldn't be mistaken as anything but a joke.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Deborah - 11 Apr 2006 02:03 GMT >>> Deborah is gently and kindly trying to let you know that maybe you >>> have occasionally been coming on a little strong here. Others have [quoted text clipped - 102 lines] > West, so I kind of thought it wouldn't be mistaken as anything but a > joke. Posting under Evelyn.
Yes, I can speak for myself, and I'll do that, now, although I won't put it just the same way Evelyn did. At the end of the day, Evelyn is far more accepting than I'll ever be. Furthermore, I have no problem with what she said, and I don't mind that she said it in my stead.
I *do* have a problem with you, Katelyn. I don't know you. You don't know me -- and, I'd hazard the guess that 99% of the people here don't know either of us very well. Nevertheless, you come in here like gangbusters and tell everyone how the NG should be managed. It *is* completely my problem (and that of anyone else who may feel abraded by your initial style, perhaps,) not yours, but, I, speaking only for myself, would be grateful if you would take the *time* to learn the tenor of this group before you try to reform it. We -- and I'm a newbie poster, here, too, though I've lurked for many, many years -- are very malleable to change. If "we" weren't, we'd perish. It's fundamental to the nature of successful long-term caregiving to adjust and adapt.
You show a great deal of compassion and understanding of the challenges of caregiving, but you seem to want to come in and tell us how it should be done. Bear in mind, I have said that this is *my* interpretation -- no doubt faulty, to your thinking -- and no one elses'. I reserve the right to express my impressions, and I invite you to correct me, where I've made what you consider mistakes.
I can see that you have valuable contributions to make to this group. I hate to see you\\\, ah, sorry, U squander that by getting yourself plonked.
Every caregiver who posts here has something to offer to someone. No one can be all things to all people. Nor should be. JMO.
Just an FYI, my mother is in a precipitiously steep decline, ATM. I've been affected by it, and my latest posts show it, I know.
Get the chip off your shoulder, maybe. It's not always about you. That's not a personal attack, that's just a fact of caregiving life that I also need to keep in mind; most of us do, from time to time.
Best regards, Deborah
Karen - 11 Apr 2006 20:56 GMT ----snip----
> I can see that you have valuable contributions to make to this group. I > hate to see you\\\, ah, sorry, U squander that by getting yourself [quoted text clipped - 12 lines] > Best regards, > Deborah I plonked because I simply got tired of the adolescent angst. The phrase about coming on strong doesn't begin to describe it. Okay, you don't like someone objecting to a minor point of your netspeech. Build a bridge and get over it -- it's really not that big a deal. And my comment about the term "madam" was an obviously futile effort to lighten the atmosphere. But I should have realized some people interpret anything as a personal attack (levity must be stomped out).
I may only be 46 but stuff like this is one reason newsgroups make me feel old and tired. And one of the reasons this NG is one of the few I read. I just don't have time and energy for someone that lives in personal drama mode all the time. Sigh! This will probably generate more but geez! how long do you nurse hurt feelings that someone didn't like part of your post? Surely there's better things to focus on? Surely we all have bigger things to deal with? Maybe the imagined injuries act as a needed distraction to other things, I don't know. I just know I'm tired of the "he said-she said" type of stuff. And I'm very appreciative of the ability to screen messages.
Karen
Barb Terry - 11 Apr 2006 23:28 GMT Hey,I have a solution.How bout we all take a deep breath,sigh,and pretend like we have never posted here before.We all have gotten involved in this.Not one of us is any better than the next.Come On ,just move on.If everyone keeps plonking everyone the darn group will be gone.I am 56 and enjoy a good debate but this is not the group for that.We all have to much to share.Thanks,Barb
Barb Terry - 11 Apr 2006 23:31 GMT Deborah, How is your mom doing? i am praying it goes the way she would want it to.Hope you too are doing well.Barb
Anthony Shipley - 12 Apr 2006 02:51 GMT >I plonked because I simply got tired of the adolescent angst. I would have thought that those who are unlucky enough to need to post here would be preoccupied enough to not need to snipe at each other.
Not posting a response to an inflammatory one should surely be the easiest thing any of us is capable of.
anthony shipley
Run away with me; I can make you unhappy.
Evelyn Ruut - 12 Apr 2006 03:10 GMT >>I plonked because I simply got tired of the adolescent angst. > [quoted text clipped - 5 lines] > thing > any of us is capable of. True for most, but not for everybody, Anthony.
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Best Regards,
Evelyn (to reply to me personally, remove 'sox')
Deborah - 12 Apr 2006 03:13 GMT >>I plonked because I simply got tired of the adolescent angst. > [quoted text clipped - 7 lines] > > Run away with me; I can make you unhappy. Usually, it is. At times of highest stress, not so much, for some of us. Straw - camel's back syndrome, for me.
My apologies to all in the group. I'll try to rein myself in, from now on. I hope I haven't caused too much distress for anyone.
Anthony, I can't quite put myself in your place, yet, but I do try to learn from what you have to say, and see it from the opposing POV. Mixed results. But, I do try.
Best to you, Deborah
Anthony Shipley - 12 Apr 2006 04:23 GMT >Usually, it is. At times of highest stress, not so much, for some of us. >Straw - camel's back syndrome, for me. [quoted text clipped - 5 lines] >learn from what you have to say, and see it from the opposing POV. Mixed >results. But, I do try. Unfortunately, my best contributions get lost before I get the second word typed.... Hope I make the occasional worthwhile response.
anthony shipley
Run away with me; I can make you unhappy.
Karen - 12 Apr 2006 05:01 GMT >>I plonked because I simply got tired of the adolescent angst. > [quoted text clipped - 9 lines] > > Run away with me; I can make you unhappy. Anthony, I normally would ignore and have been trying to ignore it... for days. If I need to just not come here for a few days, that may be what I need to do. Right now, my Mom had a hysterectomy 2 weeks ago, my sister had neck surgery a week ago and my MIL is an ongoing issue and I'm the only one in the family that can drive. Ask me how much understanding I have left to expend on someone that got their feelings hurt a week ago and is nursing a grudge. It's the net equivilant of someone peeing in the community pool.
All of us here have more things going on than getting in a tiff about one or two posts. Having said that, yes, I'm more than a bit grumpy myself (pity my patient hubby). I'm settling for the brownie and milk therapy treatment and going back to my MIL's taxes.
I miss Ronnie's chickens and tomatos! Wah!
Karen p.s. Anthony, my hubby just caught a glance of your sig line -- he loves it!
Deborah - 12 Apr 2006 03:20 GMT > ----snip---- >> [quoted text clipped - 35 lines] > > Karen Looks like Barb and I have 10 yrs on you, you young thing. LOL.
Barb Terry - 10 Apr 2006 04:18 GMT Katelyn, I believe Deborahs post was meant in a good way.Not telling you what to do.
KatelynRain - 10 Apr 2006 05:05 GMT > I believe Deborahs post was meant in a good way.Not telling you what > to do. No, Barb, of course you were not doing that. I can tell just from what I've read of you that that's not who you are (to tell someone what to do).
But FTR, I don't believe Deborah's remark to me was "meant in a good way". I took it to mean she thinks I should shut up and keep my opinions to myself. I don't see what other way there is to take what she said. And I can't think of 1 good way a remark of that kind could be mean
I don't really care, however. I don't plan on spending any more time on it. I do hope you're feeling less guilty now about having to leave your mother alone in a different part of your house now and again though, now that you've had time to reflect on it. It sounds like you are. I'm glad.
I feel guilty I don't do more for my dad, and for getting short and impatient with him on the phone and in talking to him face to face at times. I wish I had the patience of a saint, but I'm only human and AD is a *very* difficult disease. All we can do is the best we can...and it sounds like you're doing that, and that your "best" is considerably more than the average joe's.
~katelyn~
Barb Terry - 10 Apr 2006 14:19 GMT Katelyn, Please don't feel bad about getting short and impatient.I do that occasionally with my mom.We are only human.I to feel bad afterwards.But look at it this way.We are doing our best.And none of us are perfect.Take care,Barb P.S.See i have learned how to deal with guilt!!!!! LOL
KatelynRain - 10 Apr 2006 15:46 GMT > Please don't feel bad about getting short and impatient.I do that > occasionally with my mom.We are only human.I to feel bad afterwards.But > look at it this way.We are doing our best.And none of us are > perfect.Take care,Barb P.S.See i have learned how to deal with > guilt!!!!! LOL <chuckle> Yes, I see you have! Good for you!
It's really difficult w/ my dad at times. Lately, he's been trying my patience worse than ever it seems. I took him out Wed. and he got very, very anxious over nothing. I kept trying to reassure him calmly, but he was getting really agitated. I got so frustrated w/ him, and so tired of trying to reassure him. To be honest, I had a little fantasy of pulling over to the side of the road, stopping the car and putting him out, then driving off. LOL! I would never do that, of course. But he was getting on my last nerve. It was an attractive fantasy. It probably saved my sanity for the moment. I did end up speaking rather sharply to him, which I know hurts his feelings. I felt bad about it almost immediately. It doesn't really help, either. Later, I talked to my sister and I told her how bad I felt and she reassured me too. She said she thinks I have unbelievable patience w/ him and that she thinks I'm doing an act of incredible kindness. She said she would never have the patience to take him on these outings, or to take him shopping. This is the sister that doesn't take him out. I also talked to him on the phone yesterday and, again, I feel terrible that I lost my patience with him and spoke curtly to him. I just got tired of answering the same question 6 times. It hurts him deeply when he realizes he's repeating things. I know how scared he is himself of this disease and what's happening to him. I'm sure it must be terrifying. I know the rest of us are scared of what's coming.
Yesterday afternoon, the other sister called me and she said dad is still talking about what a good time he had out w/ me on Wed. He knows we went to a movie and he said it was funny and that he enjoyed. He told her he doesn't remember the name of it, but there was a man chasing a lobster in it, which made me smile. There was such a scene. He does have some memory of the movie. He didn't mention anything to her about me getting short with him, so perhaps he's forgotten that part. I hope.
~katelyn~
Barb Terry - 10 Apr 2006 18:15 GMT Katelyn, Your fantasy is one i have had many days.Your so lucky to have a sister who gives you such encouragement.Not one of my 4 siblings have ever given me even a thank you.My 1 sister lives 5 miles from me and takes my mother about 3 times a year.And then only if i ask.They don't think we deserve 1 thing for what we are doing.It has caused us financial difficulty and the state will pay me for her care.They all said I should be ashamed to do that.BUT i just recently started the program and could give a rats _ss what they think.Sometimes you just need to do what ya have to do.I let them intimidate me for over 2 yrs.Maybe they should step up and take over.Ha-Ha Never happen!!!!! Ok enough said,Barb
KatelynRain - 10 Apr 2006 21:07 GMT > Your fantasy is one i have had many days.Your so lucky to have a > sister who gives you such encouragement.Not one of my 4 siblings have [quoted text clipped - 7 lines] > yrs.Maybe they should step up and take over.Ha-Ha Never happen!!!!! Ok > enough said,Barb Barb, I'm really sorry to hear about the deplorable lack of support you've gotten from your siblings. They should be ashamed of themselves, but I'm sure they aren't. And then you feel *guilty* about anything! Wow.
I've heard stories like this...1 family member doing everything and the others have nothing but excuses...and sometimes not even that. I don't know how such a person can sleep at night. I guess we were just raised differently and I'm very glad of it.
A few years ago, I saw this fabulous sculpture exhibit made by a famous Zimbabwe artist. One of the sculptures has stayed in my mind indelibly. It is of a family carrying a sick and disabled family member on their shoulders. The caption reads something about the whole family works together to carry the sick one who can no longer walk. When each member of the family takes some of the weight of the sick one onto his or her shoulder, it's not so much a burden for any one member of the family who could not carry him alone. I was so struck by that. All families in our culture should have those values.
I think it's great that you can get some aid from the State to help compensate you for caring for your mom in your home. I cannot believe that anyone is giving you a hard time about this, most especially so as they are all sitting on their *sses, not doing a thing to help. How dare they try to shame you!
When we were growing up, my sisters and I used to fight w/ each other sometimes--sometimes really viciously--and many is the time I can remember wishing I had been an only child. Today, I am so glad I was not an only child! I can't imagine handling this all by myself. We pull together to handle each problem, and everyone does her share. And though we don't always agree, we always encourage and support each other.
You deserve even more credit for doing so much, so totally on your own. Where would your mother be w/o you?
~katelyn~
Barb Terry - 10 Apr 2006 23:17 GMT Katelyn, I have faith on my side.I just hang in there and have a good husband who is my help.Also my son helps alot.But it is sad.It's there mother But as you said,they always have excuses.Barb
meg - 11 Apr 2006 05:04 GMT Katelyn, I haven't visited this board for a couple of days. I enjoy your posts and tend to agree with you. I've been lurking here for about a year,but speak up from time to time. Your posts are a refreshing addition.
KatelynRain - 11 Apr 2006 14:15 GMT > Katelyn, I haven't visited this board for a couple of days. I enjoy > your posts and tend to agree with you. I've been lurking here for > about a year,but speak up from time to time. Your posts are a > refreshing addition. Thank you, Meg! That's very kind of you.
What's you situation (if you don't mind talking about it)?
~katelyn~
tvengineering - 08 Apr 2006 18:42 GMT BRAVO!
Geography should have nothing to do with this newsgroup other than friendly conversation.
TvEngineering
> Deborah, > What I mean by my post is I am tired of the "South Issues" I have > been posting here for quite a while and yes i have taken care of my mom > in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not > where should I move so I can make friends. Deborah - 09 Apr 2006 20:11 GMT deadwoodflower@webtv.net (Barb Terry) wrote in news:25249-4437D9D9- 151@storefull-3357.bay.webtv.net:
> Deborah, > What I mean by my post is I am tired of the "South Issues" I have > been posting here for quite a while and yes i have taken care of my mom > in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not > where should I move so I can make friends. And that is why I initially posted a big question mark to your reply to my post to whassisname, who was the one who initiated the whole thread drift in the beginning, which I had been stifling for days, and could, at last, no longer ignore. I am under pressure in dealing with dementia in my mother, too, for several more years than you say you have been lurking here. I have come to believe that life is simpler and more congenial if one eliminates certain irritants. Not everyone here subscribes to that philosophy, and that's fine. I would never want to dictate to any other caregiver how he or she should cope. All the same, I decided to leave whassis to his own devices, and I killfiled that address.
I should never have succumbed to answering whassis' post. That was an error on my part. My apologies for whatever distress I may have caused you. Why didn't you call *him* on the carpet, though? (I don't mean that I didn't deserve your reply; I did.)
From time to time, in this group, a poster comes along who has multiple challenges outside the realm of dementia. I think most of the regular posters and regular lurkers recognize them. The regular posters who are most likely to be of some actual help answer, and, depending on the OP's subsequent replies, then either continue to encourage the OP, or stop answering.
Good luck, Barb.
Barb Terry - 10 Apr 2006 04:08 GMT I should never have succumbed to answering whassis' post. That was an error on my part. My apologies for whatever distress I may have caused you. Why didn't you call *him* on the carpet, though? (I don't mean that I didn't deserve your reply; I did.)
By no means was my post meant to blame you for anything.You caused me no distress.I just like to ignore people more than calling them on the carpet.You did not deserve my reply as you took it.It was not meant that way.Barb
Deborah - 11 Apr 2006 02:02 GMT deadwoodflower@webtv.net (Barb Terry) wrote in news:14079-4439CC1C- 779@storefull-3356.bay.webtv.net:
> I should never have succumbed to answering whassis' post. That was an > error on my part. My apologies for whatever distress I may have caused [quoted text clipped - 5 lines] > carpet.You did not deserve my reply as you took it.It was not meant that > way.Barb Thank you, Barb. I feel much, much better knowing that we're on track. That was a very kind thing for you to do.
All the best, Deborah
Deborah - 08 Apr 2006 04:33 GMT deadwoodflower@webtv.net (Barb Terry) wrote in news:24115-443714F5- 41@storefull-3351.bay.webtv.net:
> Is the group for alz.anymore? A new person would certainly have to > wonder.By this time you could have been moved you who hates the [quoted text clipped - 4 lines] > guilt issues.And thanx to those who peeked in and seen my > dear,sweet,gorgeous mom.Barb Sorry, again, Barb. I see where the confusion arose, now. Please ignore my last post.
I understand about guilt, too. It doesn't make logical sense. But it's there. I hope you got some good advice re: shedding guilt. I think that so many caregivers/carers are naturally inclined to feel that everything is on their shoulders, we most likely tend to have a disproportionate sense of guilt about our LOs. If we didn't feel a strong bond of some kind, we wouldn't be doing the glorious dirty work, would we?
Best to you and your mom, Barb.
Barb Terry - 08 Apr 2006 16:54 GMT Deborah, Yes i recieved many posts on my guilt issues.And I am working on it.I will not say that I love taking care of my mom cause I don't.But I do love the fact that she's at home >v< nursing home.That I have the ability to care for her.And that she gets to lead a little bit more normal life being home with family.But i will be honest and say i would rather be working outside the home.Leaving my job and going home to rest and relax.This job you never go home to relax and every moment to yourself is precious.But i would do it all over if I had to.I love my mom and hope i can always do my best.And I pray often for all of us who care for in our homes or worry about our loved ones in nursing homes.Both can be very draining.Sorry to ramble,Barb
Deborah - 09 Apr 2006 20:48 GMT deadwoodflower@webtv.net (Barb Terry) wrote in news:25250-4437DCD1- 29@storefull-3357.bay.webtv.net:
> Deborah, > Yes i recieved many posts on my guilt issues.And I am working on [quoted text clipped - 8 lines] > care for in our homes or worry about our loved ones in nursing > homes.Both can be very draining.Sorry to ramble,Barb I really do absolutely understand what you've said, here, Barb.
I'm drained, too. Too much, it seems. It's hard to know when we must finally let go to help our LO's. It doesn't help when the illness goes on an on for many years before it goes wonky.
No offense intended, Barb. It's just frustration on both my part and yours making us sound short, I'm sure.
Dennis P. Harris - 07 Apr 2006 09:35 GMT > I say there is a bus leaving every day..... you should be under one! since you just won't get over it, PLONK
Evelyn Ruut - 07 Apr 2006 13:04 GMT >> I say there is a bus leaving every day..... you should be under one! >> > since you just won't get over it, PLONK Yes.... sometimes it is the only way. Sad.
"an eye for an eye makes the whole world blind" -- Gandhi
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
tvengineering - 07 Apr 2006 13:29 GMT No, I will not leave. I find this person to be offensive, going so far as to suggest inbreeding, doubting my intelligence, and using the screen name southater.
If he wants to vent about southerners, go elsewhere. I am here for the AD group. If ragging on a sect of the county is his or others way of healing, then they should find another form of hate group to join.
The sad part INHO is that you support them.
I am over it. I however, will continue to voice my opinion when I feel the urge.
>> I say there is a bus leaving every day..... you should be under one! >> > since you just won't get over it, PLONK KatelynRain - 07 Apr 2006 23:55 GMT > No, I will not leave. I find this person to be offensive, going so far as > to suggest inbreeding, doubting my intelligence, and using the screen name [quoted text clipped - 3 lines] > group. If ragging on a sect of the county is his or others way of > healing, then they should find another form of hate group to join. I agree here w/ "tvengineering". Ordinarily, I would never defend someone expressing a death wish to another on a NG, but in this case, I can hardly blame "tv". The person in question posts under the name "southaters", which is meant to inflame and provoke. That in itself is trollish behavior. Then he goes on to trash people in a certain area of the country, making highly defamatory remarks about such people, all because he's had bad luck making friends where he's living currently and blames this on the locals. Really, what does he expect? Of course such behavior and language is bound to offend some people. Anyone reading such ignorant comments has a right to complain, and to express extreme resentment.
> The sad part INHO is that you support them. U R absolutely right, tv. No one should be defending the comments and attitude of this self-acknowledged hater of some southerners. It only encourages the bad behavior. And I agree w/ "tv" that the comments of this person are not appropriate here. This is a group set up to offer support for and exchange of info.w/ people dealing w/ alz. disease in some aspect of their lives. It's not a venue appropriate for spewing personal hatred.
:"TV" please recognize that really the only person defending the bigoted creep is Dennis P. Harris, whose opinion should not rank any merit w/ any sensible person. He's a jerk also and obviously has serious issues too. It's a form of recreation for him to go around *plonking* and threatening to killfile people. Consider the source and write off his worthless POV.
> I am over it. I however, will continue to voice my opinion when I feel > the urge. U have every right to and I look forward to hearing anything else U have to share. I'm sorry U've had to encounter such ugliness here.
~katelyn~
KatelynRain - 08 Apr 2006 02:47 GMT <southaters wrote:
> I am just now reading your post re Caregiving alone ... If you saw my reply in that thread, where I posted it, out of curiosity, why didn't you respond to it there instead of using this thread--on a totally different topic--to respond to what I had to say? Just wondering if there's a reason.
>It was very > good and I dont mind the "U"s at all. Thanks. That's a point in your favor, AFAIC.
> I have wasted hundreds of hours > typing posts about the south (under various names) all over the place. If, by your own admission, U see this time spent on posting about the south and your problems there as "a waste" can U perhaps see this as a message from your psyche that this kind of activity is not a good or productive use of your time, and that your time could be better spent on other endeavors?
> You are the only person that has actually suggested that I > "think about relocating some place where U feel U may be able to > establish better connections to the community" FTR, I made a number suggestions along w/ the one about relocating (which I apparently missed your remark in your OP that U R ready to do this), but in response to your comment here, I find it highly unlikely that I'm the "only person" who has ever suggested U consider moving since U R so unhappy in the south. If U have made numerous posts on this subject in various forum, as U say you've done, I would think it would be among the most common of suggestions U would encounter. Seems like a no-brainer to me.
> It was an excellent suggestion and the idea has been a very compelling > one for quite some time. I am just glad to see that someone else has > finally suggested it. Why? Why would U need someone else to suggest such an obvious idea to U? If U R so very unhappy where U live and there's nothing compelling keeping U there, wouldn't the most obvious idea be to relocate? I can't think of 1 reason U would feel U need someone else to "give U permission" to go, or to suggest it to U.
> I dont really have a "home" anywhere in a > geographical sense. I was raised in Cincinnati but left there in the > 70's, There are no relatives near there and my friends there that are > still living are people I have lost touch with. Just as a point of information...I have a friend who moved back to Southern Illinois last year after living in other parts of the country for many years. She had been out of touch w/ all of her old friends from there most of that time, but when she got settled in, she discovered that many of the people she used to see regularly are still there. She was very pleasantly surprised that she picked up w/ them again very quickly and was able to renew the long-inactive friendships. She tells me it's helped make her transition there a really good one. U might consider U could do that too w/ your old acquaintances from Cincinatti if U should return there.
> I lived in Denver for > years as a young man, but I was single most of that time and I have a [quoted text clipped - 5 lines] > nothing to lose. I dont have a life here in Kinfolkville. What do you > think? I can't imagine why U would care in the least what I think. But, since U ask, I think a plan like that could be just fine. The Pacific Northwest is a nice part of the country, both climate wise and landscape wise, and people there tend to me pretty laid-back and open-minded. In a lot of the towns and cities in the Pacific Northwest, the bulk of the population is transplanted from elsewhere in the country, so it's unlikely to be as insular as U describe where U R now, and newcomers would be the norm, not the suspiciously eyed exceptions to be avoided steadfastedly.
Another place to consider is Santa Fe, NM. The winters there are quite mild, the summers are fairly pleasant due to the mountain climate, and several people I know who have lived there tell me the people there are exceptionally warm, friendly and welcoming of newcomers.And like the Pacific Northwest cities and towns, the population is ethnically and culturally diverse. The employment front is not too hot, and I don't know what your circumstances are. If U R retired or semi-retired, U might do just fine. Good luck.
~katelyn~
Bud - 03 Apr 2006 18:05 GMT > ...How do you all handle this? My wife has been in a 'home' for several years. I feel guilty because I don't visit her often. But it does her no good and tears me up when I have to go and leave her there so I don't visit and accept that I will feel the guilt and I live with it.
meg - 04 Apr 2006 04:43 GMT Barb,
I think if you feel guilty, it may be because you aren't able to appreciate how wonderful you are being to your mother. I admire you so much for taking care of her in your home. She is very lucky and I'm sure gets better, more individualized care than what she would get if she were placed in long term care. No one can make your mother 100% safe.
We placed my mother in assisted living, then memory care. I'm not satisfied with the services and feel so guilty about not taking care of her myself. The dynamics of our personalities has always caused friction between us, and the alzheimer's made it even worse when I was caring for her in her home.
Nina Pretty Ballerina - 06 Apr 2006 13:43 GMT >I have a question for ya all.I feel very guilty when i just leave my mom > in her chair to go off and do something around the house.Feel like i am > neglecting her if I am not in the room wih her.But i need to get things > done.How do you all handle this?Barb if someone else posted that, you would tell them dont be silly, you shouldnt feel guilty.....not that easy huh, but you know you shouldnt feel bad, this is not an ideal situatin!
chris
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