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Medical Forum / Diseases and Disorders / Alzheimer's / April 2006

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Guilt

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Barb Terry - 02 Apr 2006 22:58 GMT
I have a question for ya all.I feel very guilty when i just leave my mom
in her chair to go off and do something around the house.Feel like i am
neglecting her if I am not in the room wih her.But i need to get things
done.How do you all handle this?Barb
Lee - 03 Apr 2006 04:41 GMT
I gave up guilt... or at least I try to...I can't do EVERYTHING ....so all I
CAN do is my best.

As long as she's safe, and her basic needs are being met....  you do what
you have to do

I used to feel absolutely HORRID everytime my MIL had a fall, even though
she hasn't hurt herself (yet) .... but I can't be holding on to her every
moment that she's awake.... and I really can't justify restraining her.. and
that is what it would take

it would be much the same in a nursing home, I figure.... unless restrained,
she wanders.... and once or twice a week, she falls down and goes boom....
they're no more likely to assign someone to walk around with her every
waking moment.....  MIGHT be more likely than I am to restrain her (I can't
take the crying and carrying on when we DO have to restrict her wandering
during her very ~off~ times)

>I have a question for ya all.I feel very guilty when i just leave my mom
> in her chair to go off and do something around the house.Feel like i am
> neglecting her if I am not in the room wih her.But i need to get things
> done.How do you all handle this?Barb
Barb Terry - 03 Apr 2006 05:37 GMT
Lee,
  I am sure your doing your best ,but your mom falls once or twice a
week? Doesn't she ever break anything? My mom used to fall often but
thats exactly why i hate to leave her alone.She tries to get up.I am
gonna work on the guilt though.Barb
Lee - 03 Apr 2006 22:22 GMT
fortunately hasn't broken anything to date... we limit where she can go, and
try to keep anything that can trip her up, or hurt if she lands on it, out
of her way ...  but she is absolutely determined to wander/pace/explore....

won't be long before we'll have no choice to figure something out, I
suspect.... but we are not interested in taking away the only thing she
still WANTS to do before we have to

> Lee,
>   I am sure your doing your best ,but your mom falls once or twice a
> week? Doesn't she ever break anything? My mom used to fall often but
> thats exactly why i hate to leave her alone.She tries to get up.I am
> gonna work on the guilt though.Barb
Easter - 03 Apr 2006 09:11 GMT
May I come in....I can't sleep.....I got a call from my cousin in
Oklahoma this evening....he has the funeral home in my home town and
called to ask me if he could cremate my sister ......he told me she was
dying.....I hadn't heard from her in years.....but she is in a nursing
home now and dying of Alzheimers......and Of course I said yes as I will
also be cremated......and I have Alzheimers also.....My dad and both of
his brothers had it ....I have no Idea how I found this place but Guess
I needed some one to talk too.......Thanks
Barb Terry - 04 Apr 2006 02:54 GMT
Easter,
  Cute name by the way.Welcome and feel free to post any time.Sorry to
hear about your dilemma.What stage are you in? Can you tell us a bit
more about your situation.Barb
Gwen Love - 04 Apr 2006 23:11 GMT
Easter, so glad you found us.  We welcome you and hope you will stay with us.  I'm sorry about your sister, and also sorry that you have
AD (Alzheimers Disease).  Were you diagnosed by a doctor, and if so, what kind of doctor?  Please keep us posted about your sister and yourself.
Gwen
 May I come in....I can't sleep.....I got a call from my cousin in
 Oklahoma this evening....he has the funeral home in my home town and
 called to ask me if he could cremate my sister ......he told me she was
 dying.....I hadn't heard from her in years.....but she is in a nursing
 home now and dying of Alzheimers......and Of course I said yes as I will
 also be cremated......and I have Alzheimers also.....My dad and both of
 his brothers had it ....I have no Idea how I found this place but Guess
 I needed some one to talk too.......Thanks

------------------------------------------------------------------------------

 Easter Stephens
Gwen Love - 04 Apr 2006 23:08 GMT
Barb, an AD caregiver is not allowed to feel guilt!  Absolutely not allowed.
That uses up too much energy that you need for other things. We all have had
the same problems, and the only thing you can do is do the best you can with
the conditions that exist and the best knowledge you have, and stop
worrying.  You do what you can when you can and don't worry about what you
are not able to do.  Easier said than done but just force yourself!
Gwen

>I gave up guilt... or at least I try to...I can't do EVERYTHING ....so all
>I CAN do is my best.
[quoted text clipped - 18 lines]
>> neglecting her if I am not in the room wih her.But i need to get things
>> done.How do you all handle this?Barb
Tumbleweed - 03 Apr 2006 08:49 GMT
>I have a question for ya all.I feel very guilty when i just leave my mom
> in her chair to go off and do something around the house.Feel like i am
> neglecting her if I am not in the room wih her.But i need to get things
> done.How do you all handle this?Barb

You cant be with her 100%, its not possible, and its not healthy for you
either.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 03 Apr 2006 13:04 GMT
>I have a question for ya all.I feel very guilty when i just leave my mom
> in her chair to go off and do something around the house.Feel like i am
> neglecting her if I am not in the room wih her.But i need to get things
> done.How do you all handle this?Barb

Even if she were in a hospital they don't stay with you every minute.

You do the best you can, and that is all.

If you have her in a wheel chair, you could wheel her along into the room
where you are working, but that would get unwieldy too, after a while.

You could hire someone for a few hours a day while you do your chores, but
even then you would still have to leave her alone some of the time.

I think you shouldn't feel guilty when you are doing the best you can.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Alan Meyer - 03 Apr 2006 17:47 GMT
>I have a question for ya all.I feel very guilty when i just leave my mom
> in her chair to go off and do something around the house.Feel like i am
> neglecting her if I am not in the room wih her.But i need to get things
> done.How do you all handle this?Barb

It's bad enough to have to feel guilty when we go off on a vacation
or go out to dinner or to friends houses.  But it's too much to have
to feel guilty about going off to do necessary household and family
chores.

Give yourself a break.  Don't feel guilty.  You're doing a good job
of taking care of your mom.

In some cities there are low cost, community based senior centers
and daycare centers.  If there's anything like that near you, you owe
it to yourself to find out if your mother qualifies and can be cared for
there for part of the time.  If so, don't use all the free time you might
get from it to do chores.  Use some of it for yourself too.

   Alan
KatelynRain - 04 Apr 2006 00:17 GMT
>>I have a question for ya all.I feel very guilty when i just leave my mom
>> in her chair to go off and do something around the house.Feel like i am
>> neglecting her if I am not in the room wih her.But i need to get things
>> done.How do you all handle this?Barb

> It's bad enough to have to feel guilty when we go off on a vacation
> or go out to dinner or to friends houses.  But it's too much to have
> to feel guilty about going off to do necessary household and family
> chores.

I agree 100% w/ Alan on this. You've taken your mom into your home and are
caring for her pretty much 24/7 and you're dealing w/ someone who has an
extremely difficult disability and disorder to handle. This makes you
something of a hero, in my book, and in the eyes of most people, I would
wager to guess. You have attained practically sainthood status if you go by
average standards.

There are adult children who know their mom or dad is in abysmal shape and
are in serious danger staying on their own, yet they turn a blind eye or are
content to let someone more distantly related, or even social services, to
take over the situation, and a lot of these people feel no guilt or almost
no guilt at all. The idea that you would feel guilty just for leaving your
mom in a room w/o you for a short period while you are doing things around
the house in comparison to the other scenario I suggest is positively
ludicrous. I thnk you will agree if you think about it a while.

One technique I can suggest that may help you overcome your guilt at times
like these is the following: every time you feel inclined to feel guilt for
leaving your mom alone in a room w/o you for a little while, stop and think
of just how much more guilty you would feel--many, many times more
guilty--if you had raided your mom's savings account and placed her in some
state nursing home that takes Medicare patients and leave social workers for
the state to handle the problem. There are a lot of people who do exactly
that. When you consider this point, you can be very grateful that you have
only this very, very minor "transgression" over which to feel guilty, and
hopefully, that will help put it all into perspective for you so that you
can let go of whatever pinge of guilt you may be inclined to feel
momentarily for leaving your mom in a different room for a while.

~katelyn~

p.s./No offense to anyone who has placed a parent or other loved one in
state-funded nursing home. It's a perfectly reasonable decision for someone
w/ no practical alternatives. It's just a mental exercise I'm constructing
to help Barb put her guilt issues into perspective.
southaters@yahoo.com - 06 Apr 2006 04:15 GMT
Kate

I am just now reading your post re Caregiving alone ... It was very
good and I dont mind the "U"s at all.  I have wasted hundreds of hours
typing posts about the south (under various names) all over the place.
You are the only person that has actually suggested that I

"think about relocating some place where U feel U may be able to
establish better connections to the community"

It was an excellent suggestion and the idea has been a very compelling
one for quite some time.  I am just glad to see that someone else has
finally suggested it.  I dont really have a "home" anywhere in a
geographical sense.  I was raised in Cincinnati but left there in the
70's,  There are no relatives near there and my friends there that are
still living are people I have lost touch with.  I lived in Denver for
years as a young man, but I was single most of that time and I have a
past there that I dont really want to go back to, including a deranged
ex-wife.  Plus, Denver gets too cold in the winter.  We have been
considering Seattle (which is warmer in winter and cooler in summer
than Denver).  I think large cities near the west coast tend to be less
clannish than small southern towns.  Its a gamble, but I have got
nothing to lose.  I dont have a life here in Kinfolkville.  What do you
think?
Dennis P. Harris - 06 Apr 2006 08:10 GMT
> We have been
> considering Seattle (which is warmer in winter and cooler in summer
> than Denver).  I think large cities near the west coast tend to be less
> clannish than small southern towns.  

seattle's waaaay too expensive now.  try portland or eugene.
tvengineering - 06 Apr 2006 12:21 GMT
I say there is a bus leaving every day..... you should be under one!

> Kate
>
[quoted text clipped - 20 lines]
> nothing to lose.  I dont have a life here in Kinfolkville.  What do you
> think?
Evelyn Ruut - 06 Apr 2006 13:29 GMT
>I say there is a bus leaving every day..... you should be under one!

No need to be too mean about it.

I always think a person should be entitled to experience their own feelings.
Given time they will find out on their own, whether they were wrong or not.
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>> Kate
>>
[quoted text clipped - 20 lines]
>> nothing to lose.  I dont have a life here in Kinfolkville.  What do you
>> think?
southaters@yahoo.com - 06 Apr 2006 15:26 GMT
TV

Have you managed to "engineer" your VCR yet?  What type of
"engineering" do you do anyway?  I suspect that rather than being
someone whose life has been turned upside down by alz, that you are an
uneducated troll who is trying to build up his low self esteem by
assaulting alz victims anonymously.  I have said insulting things to
people on the web, but not in a support group.  You are truly a
pathetic individual.  The only possible excuse you could have for
yourself would be that it is you, TV, who has the alz, rather than a
close family member.  Have you thought about suicide.  Do us a favor
and consider it, TV.
Deborah - 08 Apr 2006 00:27 GMT
> TV
>
[quoted text clipped - 8 lines]
> close family member.  Have you thought about suicide.  Do us a favor
> and consider it, TV.

I'm sorry you've had a bad experience in the South. I have too, and I was
born and raised in it. I've also lived in a lot of other places in the
world. Cliques are cliques -- Everywhere.

Please, for your own health, get over it. Whoever you are, no matter how
hard you try, you are not going to be a No. 1 hit, with a bullet, every
where you go. I think it's a really good idea to consider other possible
places to live. They don't all always work out, for most people.

This is a Big Truth, I think.
Barb Terry - 08 Apr 2006 02:42 GMT
Is the group for alz.anymore? A new person would certainly have to
wonder.By this time you could have been moved you who hates the
south.LOL And I do not like everyone in here equally and do occasionally
spit out a little venom.But I try to get past it.Come on ,I would much
rather hear about your day with your loved ones.Please,please let's all
try to move on.I also wanted to thank you all for helping me with my
guilt issues.And thanx to those who peeked in and seen my
dear,sweet,gorgeous mom.Barb
Deborah - 08 Apr 2006 04:23 GMT
deadwoodflower@webtv.net (Barb Terry) wrote in news:24115-443714F5-
41@storefull-3351.bay.webtv.net:

> Is the group for alz.anymore? A new person would certainly have to
> wonder.By this time you could have been moved you who hates the
[quoted text clipped - 4 lines]
> guilt issues.And thanx to those who peeked in and seen my
> dear,sweet,gorgeous mom.Barb

I'm sorry, Barb, I really don't know what you meant by your post. I
presume you have an affected LO, and I wish you the best in your
caregiving experience.
Barb Terry - 08 Apr 2006 16:42 GMT
Deborah,
   What I mean by my post is I am tired of the "South Issues" I have
been posting here for quite a while and yes i have taken care of my mom
in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not
where should I move so I can make friends.
KatelynRain - 08 Apr 2006 17:17 GMT
>    What I mean by my post is I am tired of the "South Issues" I have
> been posting here for quite a while and yes i have taken care of my mom
> in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not
> where should I move so I can make friends.

My feelings too.

~katelyn~
Deborah - 09 Apr 2006 20:50 GMT
>>    What I mean by my post is I am tired of the "South Issues" I have
>> been posting here for quite a while and yes i have taken care of my mom
[quoted text clipped - 4 lines]
>
> ~katelyn~

I have a very few words of advice for you, KateyRain. Lurk, live, and
learn. You're web/net savvy enough to know what that means.
KatelynRain - 09 Apr 2006 22:15 GMT
>>>    What I mean by my post is I am tired of the "South Issues" I have
>>> been posting here for quite a while and yes i have taken care of my mom
>>> in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not
>>> where should I move so I can make friends.

>> My feelings too.

> I have a very few words of advice for you, KateyRain. Lurk, live, and
> learn. You're web/net savvy enough to know what that means.

No, I honestly have no idea what you're getting at Deborah. It seems like
you have some issues w/ me, but I have no idea what they are or what they
could be. I can't imagine how me saying "My feelings too" could cause issues
w/ anyone.

As far as your "advice", I don't see you having any business advising me on
whether to post or not, or to stay hidden in lurk mode. I'll post if I want
to. if you have a problem w/ that, you better get over it.

~katelyn~
Evelyn Ruut - 09 Apr 2006 23:19 GMT
Hi Katelyn,

Deborah is gently and kindly trying to let you know that maybe you have
occasionally been coming on a little strong here.   Others have let you know
that too, in one way or another.

People are NICE to people in this newsgroup, unlike many of the others.   We
are here to support each other and to be helpful and kind to one another.
That goes for you too, and anyone else who is a caregiver for a loved one
with alzheimers disease.

We all have enough on our plates without getting/giving stress in a support
group.

I hope it doesn't offend you to know that, and it really shouldn't.

We can gladly be your friends here if you will but allow it.

What Deborah is saying, is the proverbial "word to the wise".
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>>>>    What I mean by my post is I am tired of the "South Issues" I have
>>>> been posting here for quite a while and yes i have taken care of my mom
[quoted text clipped - 16 lines]
>
> ~katelyn~
KatelynRain - 10 Apr 2006 03:29 GMT
> Deborah is gently and kindly trying to let you know that maybe you have
> occasionally been coming on a little strong here.   Others have let you
> know that too, in one way or another.

1. Why do you feel you need to speak for Deborah? I don't see why Deborah
can't speak for herself. She appears to be able to type, use her PC for NG
posting and she seems to speak English. So why can't she say what's on her
mind? Why do YOU need to speak for her?

Come to think of it, Evelyn, you seem to do this a lot. You seem to have a
compulsive need to get into the middle of any sort of debate or conflict you
think is going on to try to manage people's feelings. I see there's a few
people here you always seem to feel the need to "back up", like here you're
speaking for Deborah as though she can't respond herself directly, and you
want to control my feelings about Dennis, as if there's some reason it
matters to you what my good opinion of him is. He says he's killfiling me
and you say nothing. I say I'm killfiling him too and then you feel the need
to jump in to say that he's really a nice guy and you hope I'll someday have
a better opinion of him. Why? Why do you care whether I have a good opinion
of Dennis or not? You obviously don't care whether he has a good opinion of
me.

Who elected you ASA spokesperson or ambassador? Your behavior seems very
co-dependent to me. You're enmeshed.

2. I don't think I've come on strong at all. The true fact is, others have
come on rather strong w/ me. I started out by posting a fairly sympathetic,
reasonable toned reply to the guy here ranting about how men in the south
won't give him a fair chance and Dennis had nothing to say to me other than
blasting me for using net shorthand, which he himself uses. And a few of you
got behind him and said he was right and that I should get in line and do as
he says. Then you and a couple of others ridiculed me for using the word
madam, which is a perfectly legitimate English language word and a whole lot
more polite and more respectable than a great many other things I could've
said. Only people w/ their minds in the gutter would insinuate the word
refers to the prostitution industry. Next, I share some personal things
about myself and I get more insults from Dennis and you quickly jump in to
tell me I should have a good opinion of him because he's really such a great
guy. Next, I support Barb on feelings she expressed about the purpose of the
NG and concerns about what one person's obsessing over some unrelated topic
is doing to the atmosphere here and I get told by Deborah that I should lurk
only and learn, whatever that means. Then you jump in once again to lecture
me some more in your preachy way. I would call all of that coming on very
strong by those of you who did it.

Talk about classic projection. A few of you are rude and insulting and
hostile and take a morally superior attitude to me (the latter would be U
Evelyn)
and I offer supportive comments to people and you tell me *I'm* coming on
strong?? U sure have things twisted IMO.

> People are NICE to people in this newsgroup, unlike many of the others.
> We are here to support each other and to be helpful and kind to one
> another. That goes for you too, and anyone else who is a caregiver for a
> loved one with alzheimers disease.

Under almost all circumstances I am an extremely nice person. Most people
who know me tell me often that I'm one of the nicest people they know. What
am I *not* is a doormat. If someone is rude or insulting or abusive or
obnoxious to me, I'm unlikely to sit around passively and let such things
fly, although, for the most part, I've been ignoring your bossy comments to
me, Evelyn. But if people behave badly, I'm likely to let them have it. I
think my reply to Deborah was admirably civil and tame considering her
message to me seemed to be "shut up and keep your opinions to yourself here"
which I would say is quite rude, inappropriate, and hardly what I would call
"nice". And then you get into the act and feel the need to speak for her.

The majority of the people I've seen here I would say are exceptionally
nice, behave well and treat each other civilly. But there are a few who have
not been at all nice to or supportive of me, but have been rude and nasty
w/o justification. So if it's your view that people should be nice to each
other in this NG, then why don't you and Dennis and Deborah and a couple of
others who have been hardly charitable toward me strive for the principle
you supposedly hold for participants in this NG and knock-off the jerk
behavior. That means, cut out the lecturing, giving of mandates, giving of
unsoliticed advice, assuming a self-righteous attitude, using a preachy
tone, telling people what to do, think and feel and trying to manage and
control everybody and every thing and every discussion.

Don't lecture me on how no one here needs more stress by getting it in this
NG when you are a major contributor to the stress-causing hostility here,
and a major co-dependent defender of those w/ hostile attitudes. When you
begin to practice what you preach, only then will you have earned the right
to instruct others on how they should behave. You and Dennis and Deborah, as
examples, are a long way from that.

That's *my* word to the wise.

Oh, and btw...I certainly hope you're not offended by me saying any of this,
Evelyn. There really is no reason you should be.

~katelyn~
Evelyn Ruut - 10 Apr 2006 12:12 GMT
>> Deborah is gently and kindly trying to let you know that maybe you have
>> occasionally been coming on a little strong here.   Others have let you
[quoted text clipped - 90 lines]
>
> ~katelyn~

No offense taken at all, Katelyn.   I just think you see it all wrong, but
then I am entitled to my opinion, just as you are entitled to yours.

The "madam" comment was a joke..... an it has been around since Mae West, so
I kind of thought it wouldn't be mistaken as anything but a joke.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Deborah - 11 Apr 2006 02:03 GMT
>>> Deborah is gently and kindly trying to let you know that maybe you
>>> have occasionally been coming on a little strong here.   Others have
[quoted text clipped - 102 lines]
> West, so I kind of thought it wouldn't be mistaken as anything but a
> joke.

Posting under Evelyn.

Yes, I can speak for myself, and I'll do that, now, although I won't put
it just the same way Evelyn did. At the end of the day, Evelyn is far more
accepting than I'll ever be. Furthermore, I have no problem with what she
said, and I don't mind that she said it in my stead.

I *do* have a problem with you, Katelyn. I don't know you. You don't know
me -- and, I'd hazard the guess that 99% of the people here don't know
either of us very well. Nevertheless, you come in here like gangbusters
and tell everyone how the NG should be managed. It *is* completely my
problem (and that of anyone else who may feel abraded by your initial
style, perhaps,) not yours, but, I, speaking only for myself, would be
grateful if you would take the *time* to learn the tenor of this group
before you try to reform it. We -- and I'm a newbie poster, here, too,
though I've lurked for many, many years -- are very malleable to change.
If "we" weren't, we'd perish. It's fundamental to the nature of successful
long-term caregiving to adjust and adapt.

You show a great deal of compassion and understanding of the challenges of
caregiving, but you seem to want to come in and tell us how it should be
done. Bear in mind, I have said that this is *my* interpretation -- no
doubt faulty, to your thinking -- and no one elses'. I reserve the right
to express my impressions, and I invite you to correct me, where I've made
what you consider mistakes.

I can see that you have valuable contributions to make to this group. I
hate to see you\\\, ah, sorry, U squander that by getting yourself
plonked.

Every caregiver who posts here has something to offer to someone. No one
can be all things to all people. Nor should be. JMO.

Just an FYI, my mother is in a precipitiously steep decline, ATM. I've
been affected by it, and my latest posts show it, I know.

Get the chip off your shoulder, maybe. It's not always about you. That's
not a personal attack, that's just a fact of caregiving life that I also
need to keep in mind; most of us do, from time to time.

Best regards,
Deborah
Karen - 11 Apr 2006 20:56 GMT
----snip----

> I can see that you have valuable contributions to make to this group. I
> hate to see you\\\, ah, sorry, U squander that by getting yourself
[quoted text clipped - 12 lines]
> Best regards,
> Deborah

I plonked because I simply got tired of the adolescent angst.  The phrase
about coming on strong doesn't begin to describe it.  Okay, you don't like
someone objecting to a minor point of your netspeech.  Build a bridge and
get over it -- it's really not that big a deal.  And my comment about the
term "madam" was an obviously futile effort to lighten the atmosphere.  But
I should have realized some people interpret anything as a personal attack
(levity must be stomped out).

I may only be 46 but stuff like this is one reason newsgroups make me feel
old and tired.  And one of the reasons this NG is one of the few I read.  I
just don't have time and energy for someone that lives in personal drama
mode all the time.  Sigh!  This will probably generate more but geez!  how
long do you nurse hurt feelings that someone didn't like part of your post?
Surely there's better things to focus on?  Surely we all have bigger things
to deal with?  Maybe the imagined injuries act as a needed distraction to
other things, I don't know.  I just know I'm tired of the "he said-she said"
type of stuff.  And I'm very appreciative of the ability to screen messages.

Karen
Barb Terry - 11 Apr 2006 23:28 GMT
Hey,I have a solution.How bout we all take a deep breath,sigh,and
pretend like we have never posted here before.We all have gotten
involved in this.Not one of us is any better than the next.Come On ,just
move on.If everyone keeps plonking everyone the darn group will be
gone.I am 56 and enjoy a good debate but this is not the group for
that.We all have to much to share.Thanks,Barb
Barb Terry - 11 Apr 2006 23:31 GMT
Deborah,
   How is your mom doing? i am praying it goes the way she would want
it to.Hope you too are doing well.Barb
Anthony Shipley - 12 Apr 2006 02:51 GMT
>I plonked because I simply got tired of the adolescent angst.

I would have thought that those who are unlucky enough to need to post here
would be preoccupied enough to not need to snipe at each other.

Not posting a response to an inflammatory one should surely be the easiest thing
any of us is capable of.

anthony shipley

Run away with me; I can make you unhappy.
Evelyn Ruut - 12 Apr 2006 03:10 GMT
>>I plonked because I simply got tired of the adolescent angst.
>
[quoted text clipped - 5 lines]
> thing
> any of us is capable of.

True for most, but not for everybody, Anthony.
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Deborah - 12 Apr 2006 03:13 GMT
>>I plonked because I simply got tired of the adolescent angst.
>
[quoted text clipped - 7 lines]
>
> Run away with me; I can make you unhappy.

Usually, it is. At times of highest stress, not so much, for some of us.
Straw - camel's back syndrome, for me.

My apologies to all in the group. I'll try to rein myself in, from now on.
I hope I haven't caused too much distress for anyone.

Anthony, I can't quite put myself in your place, yet, but I do try to
learn from what you have to say, and see it from the opposing POV. Mixed
results. But, I do try.

Best to you,
Deborah
Anthony Shipley - 12 Apr 2006 04:23 GMT
>Usually, it is. At times of highest stress, not so much, for some of us.
>Straw - camel's back syndrome, for me.
[quoted text clipped - 5 lines]
>learn from what you have to say, and see it from the opposing POV. Mixed
>results. But, I do try.
Unfortunately, my best contributions get lost before I get the second word
typed....    Hope I make the occasional worthwhile response.

anthony shipley

Run away with me; I can make you unhappy.
Karen - 12 Apr 2006 05:01 GMT
>>I plonked because I simply got tired of the adolescent angst.
>
[quoted text clipped - 9 lines]
>
> Run away with me; I can make you unhappy.

Anthony, I normally would ignore and have been trying to ignore it... for
days.  If I need to just not come here for a few days, that may be what I
need to do.  Right now, my Mom had a hysterectomy 2 weeks ago, my sister had
neck surgery a week ago and my MIL is an ongoing issue and I'm the only one
in the family that can drive.  Ask me how much understanding I have left to
expend on someone that got their feelings hurt a week ago and is nursing a
grudge.  It's the net equivilant of someone peeing in the community pool.

All of us here have more things going on than getting in a tiff about one or
two posts.  Having said that, yes, I'm more than a bit grumpy myself (pity
my patient hubby).  I'm settling for the brownie and milk therapy treatment
and going back to my MIL's taxes.

I miss Ronnie's chickens and tomatos!  Wah!

Karen
p.s. Anthony, my hubby just caught a glance of your sig line -- he loves it!
Deborah - 12 Apr 2006 03:20 GMT
> ----snip----
>>
[quoted text clipped - 35 lines]
>
> Karen

Looks like Barb and I have 10 yrs on you, you young thing. LOL.
Barb Terry - 10 Apr 2006 04:18 GMT
Katelyn,
  I believe Deborahs post was meant in a good way.Not telling you what
to do.
KatelynRain - 10 Apr 2006 05:05 GMT
>   I believe Deborahs post was meant in a good way.Not telling you what
> to do.

No, Barb, of course you were not doing that. I can tell just from what I've
read of you that that's not who you are (to tell someone what to do).

But FTR, I don't believe Deborah's remark to me was "meant in a good way". I
took it to mean she thinks I should shut up and keep my opinions to myself.
I don't see what other way there is to take what she said. And I can't think
of 1 good way a remark of that kind could be mean

I don't really care, however. I don't plan on spending any more time on it.
I do hope you're feeling less guilty now about having to leave your mother
alone in a different part of your house now and again though, now that
you've had time to reflect on it. It sounds like you are. I'm glad.

I feel guilty I don't do more for my dad, and for getting short and
impatient with him on the phone and in talking to him face to face at times.
I wish I had the patience of a saint, but I'm only human and AD is a *very*
difficult disease. All we can do is the best we can...and it sounds like
you're doing that, and that your "best" is considerably more than the
average joe's.

~katelyn~
Barb Terry - 10 Apr 2006 14:19 GMT
Katelyn,
  Please don't feel bad about getting short and impatient.I do that
occasionally with my mom.We are only human.I to feel bad afterwards.But
look at it this way.We are doing our best.And none of us are
perfect.Take care,Barb   P.S.See i have learned how to deal with
guilt!!!!!   LOL
KatelynRain - 10 Apr 2006 15:46 GMT
>   Please don't feel bad about getting short and impatient.I do that
> occasionally with my mom.We are only human.I to feel bad afterwards.But
> look at it this way.We are doing our best.And none of us are
> perfect.Take care,Barb   P.S.See i have learned how to deal with
> guilt!!!!!   LOL

<chuckle> Yes, I see you have! Good for you!

It's really difficult w/ my dad at times. Lately, he's been trying my
patience worse than ever it seems. I took him out Wed. and he got very, very
anxious over nothing. I kept trying to reassure him calmly, but he was
getting really agitated. I got so frustrated w/ him, and so tired of trying
to reassure him. To be honest, I had a little fantasy of pulling over to the
side of the road, stopping the car and putting him out, then driving off.
LOL! I would never do that, of course. But he was getting on my last nerve.
It was an attractive fantasy. It probably saved my sanity for the moment. I
did end up speaking rather sharply to him, which I know hurts his feelings.
I felt bad about it almost immediately. It doesn't really help, either.
Later, I talked to my sister and I told her how bad I felt and she reassured
me too. She said she thinks I have unbelievable patience w/ him and that she
thinks I'm doing an act of incredible kindness. She said she would never
have the patience to take him on these outings, or to take him shopping.
This is the sister that doesn't take him out. I also talked to him on the
phone yesterday and, again, I feel terrible that I lost my patience with him
and spoke curtly to him. I just got tired of answering the same question 6
times. It hurts him deeply when he realizes he's repeating things. I know
how scared he is himself of this disease and what's happening to him. I'm
sure it must be terrifying. I know the rest of us are scared of what's
coming.

Yesterday afternoon, the other sister called me and she said dad is still
talking about what a good time he had out w/ me on Wed. He knows we went to
a movie and he said it was funny and that he enjoyed. He told her he doesn't
remember the name of it, but there was a man chasing a lobster in it, which
made me smile. There was such a scene. He does have some memory of the
movie. He didn't mention anything to her about me getting short with him, so
perhaps he's forgotten that part. I hope.

~katelyn~
Barb Terry - 10 Apr 2006 18:15 GMT
Katelyn,
  Your fantasy is one i have had many days.Your so lucky to have a
sister who gives you such encouragement.Not one of my 4 siblings have
ever given me even a thank you.My 1 sister lives 5 miles from me and
takes my mother about 3 times a year.And then only if i ask.They don't
think we deserve 1 thing for what we are doing.It has caused us
financial difficulty and the state will pay me for her care.They all
said I should be ashamed to do that.BUT i just recently started the
program and could give a rats _ss what they think.Sometimes you just
need to do what ya have to do.I let them intimidate me for over 2
yrs.Maybe they should step up and take over.Ha-Ha Never happen!!!!!  Ok
enough said,Barb
KatelynRain - 10 Apr 2006 21:07 GMT
>   Your fantasy is one i have had many days.Your so lucky to have a
> sister who gives you such encouragement.Not one of my 4 siblings have
[quoted text clipped - 7 lines]
> yrs.Maybe they should step up and take over.Ha-Ha Never happen!!!!!  Ok
> enough said,Barb

Barb, I'm really sorry to hear about the deplorable lack of support you've
gotten from your siblings. They should be ashamed of themselves, but I'm
sure they aren't. And then you feel *guilty* about anything! Wow.

I've heard stories like this...1 family member doing everything and the
others have nothing but excuses...and sometimes not even that. I don't know
how such a person can sleep at night. I guess we were just raised
differently and I'm very glad of it.

A few years ago, I saw this fabulous sculpture exhibit made by a famous
Zimbabwe artist. One of the sculptures has stayed in my mind indelibly. It
is of a family carrying a sick and disabled family member on their
shoulders. The caption reads something about the whole family works together
to carry the sick one who can no longer walk. When each member of the family
takes some of the weight of the sick one onto his or her shoulder, it's not
so much a burden for any one member of the family who could not carry him
alone. I was so struck by that. All families in our culture should have
those values.

I think it's great that you can get some aid from the State to help
compensate you for caring for your mom in your home. I cannot believe that
anyone is giving you a hard time about this, most especially so as they are
all sitting on their *sses, not doing a thing to help. How dare they try to
shame you!

When we were growing up, my sisters and I used to fight w/ each other
sometimes--sometimes really viciously--and many is the time I can remember
wishing I had been an only child. Today, I am so glad I was not an only
child! I can't imagine handling this all by myself. We pull together to
handle each problem, and everyone does her share. And though we don't always
agree, we always encourage and support each other.

You deserve even more credit for doing so much, so totally on your own.
Where would your mother be w/o you?

~katelyn~
Barb Terry - 10 Apr 2006 23:17 GMT
Katelyn,
  I have faith on my side.I just hang in there and have a good husband
who is my help.Also my son helps alot.But it is sad.It's there mother
But as you said,they always have excuses.Barb
meg - 11 Apr 2006 05:04 GMT
Katelyn,  I haven't visited this board for a couple of days.  I enjoy
your posts and tend to agree with you.  I've been lurking here for
about a year,but speak up from time to time.   Your posts are a
refreshing addition.
KatelynRain - 11 Apr 2006 14:15 GMT
> Katelyn,  I haven't visited this board for a couple of days.  I enjoy
> your posts and tend to agree with you.  I've been lurking here for
> about a year,but speak up from time to time.   Your posts are a
> refreshing addition.

Thank you, Meg! That's very kind of you.

What's you situation (if you don't mind talking about it)?

~katelyn~
tvengineering - 08 Apr 2006 18:42 GMT
BRAVO!

Geography should have nothing to do with this newsgroup other than friendly
conversation.

TvEngineering

> Deborah,
>    What I mean by my post is I am tired of the "South Issues" I have
> been posting here for quite a while and yes i have taken care of my mom
> in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not
> where should I move so I can make friends.
Deborah - 09 Apr 2006 20:11 GMT
deadwoodflower@webtv.net (Barb Terry) wrote in news:25249-4437D9D9-
151@storefull-3357.bay.webtv.net:

> Deborah,
>     What I mean by my post is I am tired of the "South Issues" I have
> been posting here for quite a while and yes i have taken care of my mom
> in my home for near 3 yrs.now.And enjoy posts about our loved ones.Not
> where should I move so I can make friends.

And that is why I initially posted a big question mark to your reply to my
post to whassisname, who was the one who initiated the whole thread drift
in the beginning, which I had been stifling for days, and could, at last,
no longer ignore. I am under pressure in dealing with dementia in my
mother, too, for several more years than you say you have been lurking
here. I have come to believe that life is simpler and more congenial if
one eliminates certain irritants. Not everyone here subscribes to that
philosophy, and that's fine. I would never want to dictate to any other
caregiver how he or she should cope. All the same, I decided to leave
whassis to his own devices, and I killfiled that address.

I should never have succumbed to answering whassis' post. That was an
error on my part. My apologies for whatever distress I may have caused
you. Why didn't you call *him* on the carpet, though? (I don't mean that I
didn't deserve your reply; I did.)

From time to time, in this group, a poster comes along who has multiple
challenges outside the realm of dementia. I think most of the regular
posters and regular lurkers recognize them. The regular posters who are
most likely to be of some actual help answer, and, depending on the OP's
subsequent replies, then either continue to encourage the OP, or stop
answering.

Good luck, Barb.
Barb Terry - 10 Apr 2006 04:08 GMT
I should never have succumbed to answering whassis' post. That was an
error on my part. My apologies for whatever distress I may have caused
you. Why didn't you call *him* on the carpet, though? (I don't mean that
I didn't deserve your reply; I did.)

By no means was my post meant to blame you for anything.You caused me no
distress.I just like to ignore people more than calling them on the
carpet.You did not deserve my reply as you took it.It was not meant that
way.Barb
Deborah - 11 Apr 2006 02:02 GMT
deadwoodflower@webtv.net (Barb Terry) wrote in news:14079-4439CC1C-
779@storefull-3356.bay.webtv.net:

> I should never have succumbed to answering whassis' post. That was an
> error on my part. My apologies for whatever distress I may have caused
[quoted text clipped - 5 lines]
> carpet.You did not deserve my reply as you took it.It was not meant that
> way.Barb

Thank you, Barb. I feel much, much better knowing that we're on track.
That was a very kind thing for you to do.

All the best,
Deborah
Deborah - 08 Apr 2006 04:33 GMT
deadwoodflower@webtv.net (Barb Terry) wrote in news:24115-443714F5-
41@storefull-3351.bay.webtv.net:

> Is the group for alz.anymore? A new person would certainly have to
> wonder.By this time you could have been moved you who hates the
[quoted text clipped - 4 lines]
> guilt issues.And thanx to those who peeked in and seen my
> dear,sweet,gorgeous mom.Barb

Sorry, again, Barb. I see where the confusion arose, now. Please ignore my
last post.

I understand about guilt, too. It doesn't make logical sense. But it's
there. I hope you got some good advice re: shedding guilt. I think that so
many caregivers/carers are naturally inclined to feel that everything is
on their shoulders, we most likely tend to have a disproportionate sense
of guilt about our LOs. If we didn't feel a strong bond of some kind, we
wouldn't be doing the glorious dirty work, would we?

Best to you and your mom, Barb.
Barb Terry - 08 Apr 2006 16:54 GMT
Deborah,
   Yes i recieved many posts on my guilt issues.And I am working on
it.I will not say that I love taking care of my mom cause I don't.But I
do love the fact that she's at home >v< nursing home.That I have the
ability to care for her.And that she gets to lead a little bit more
normal life being home with family.But i will be honest and say i would
rather be working outside the home.Leaving my job and going home to rest
and relax.This job you never go home to relax and every moment to
yourself is precious.But i would do it all over if I had to.I love my
mom and hope i can always do my best.And I pray often for all of us who
care for in our homes or worry about our loved ones in nursing
homes.Both can be very draining.Sorry to ramble,Barb
Deborah - 09 Apr 2006 20:48 GMT
deadwoodflower@webtv.net (Barb Terry) wrote in news:25250-4437DCD1-
29@storefull-3357.bay.webtv.net:

> Deborah,
>     Yes i recieved many posts on my guilt issues.And I am working on
[quoted text clipped - 8 lines]
> care for in our homes or worry about our loved ones in nursing
> homes.Both can be very draining.Sorry to ramble,Barb

I really do absolutely understand what you've said, here, Barb.

I'm drained, too. Too much, it seems. It's hard to know when we must
finally let go to help our LO's. It doesn't help when the illness goes on
an on for many years before it goes wonky.

No offense intended, Barb. It's just frustration on both my part and yours
making us sound short, I'm sure.
Dennis P. Harris - 07 Apr 2006 09:35 GMT
> I say there is a bus leaving every day..... you should be under one!

since you just won't get over it, PLONK
Evelyn Ruut - 07 Apr 2006 13:04 GMT
>> I say there is a bus leaving every day..... you should be under one!
>>
> since you just won't get over it, PLONK

Yes.... sometimes it is the only way.
Sad.

"an eye for an eye makes the whole world blind" -- Gandhi

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

tvengineering - 07 Apr 2006 13:29 GMT
No, I will not leave.  I find this person to be offensive, going so far as
to suggest inbreeding, doubting my intelligence, and using the screen name
southater.

If he wants to vent about southerners, go elsewhere.  I am here for the AD
group.  If ragging on a sect of the county is his or others way of healing,
then they should find another form of hate group to join.

The sad part INHO is that you support them.

I am over it.  I however, will continue to voice my opinion when I feel the
urge.

>> I say there is a bus leaving every day..... you should be under one!
>>
> since you just won't get over it, PLONK
KatelynRain - 07 Apr 2006 23:55 GMT
> No, I will not leave.  I find this person to be offensive, going so far as
> to suggest inbreeding, doubting my intelligence, and using the screen name
[quoted text clipped - 3 lines]
> group.  If ragging on a sect of the county is his or others way of
> healing, then they should find another form of hate group to join.

I agree here w/ "tvengineering". Ordinarily, I would never defend someone
expressing a death wish to another on a NG, but in this case, I can hardly
blame "tv". The person in question posts under the name "southaters", which
is meant to inflame and provoke. That in itself is trollish behavior. Then
he goes on to trash people in a certain area of the country, making highly
defamatory remarks about such people, all because he's had bad luck making
friends where he's living currently and blames this on the locals. Really,
what does he expect? Of course such behavior and language is bound to offend
some people. Anyone reading such ignorant comments has a right to complain,
and to express extreme resentment.

> The sad part INHO is that you support them.

U R absolutely right, tv. No one should be defending the comments and
attitude of this self-acknowledged hater of some southerners. It only
encourages the bad behavior. And I agree w/ "tv" that the comments of this
person are not appropriate here. This is a group set up to offer support for
and exchange of info.w/ people dealing w/ alz. disease in some aspect of
their lives. It's not a venue appropriate for spewing personal hatred.

:"TV" please recognize that really the only person defending the bigoted
creep is Dennis P. Harris, whose opinion should not rank any merit w/ any
sensible person. He's a jerk also and obviously has serious issues too. It's
a form of recreation for him to go around *plonking* and threatening to
killfile people. Consider the source and write off his worthless POV.

> I am over it.  I however, will continue to voice my opinion when I feel
> the urge.

U have every right to and I look forward to hearing anything else U have to
share. I'm sorry U've had to encounter such ugliness here.

~katelyn~
KatelynRain - 08 Apr 2006 02:47 GMT
<southaters wrote:
> I am just now reading your post re Caregiving alone ...

If you saw my reply in that thread, where I posted it, out of curiosity, why
didn't you respond to it there instead of using this thread--on a totally
different topic--to respond to what I had to say? Just wondering if there's
a reason.

>It was very
> good and I dont mind the "U"s at all.

Thanks. That's a point in your favor, AFAIC.

> I have wasted hundreds of hours
> typing posts about the south (under various names) all over the place.

If, by your own admission, U see this time spent on posting about the south
and your problems there as "a waste" can U perhaps see this as a message
from your psyche that this kind of activity is not a good or productive use
of your time, and that your time could be better spent on other endeavors?

> You are the only person that has actually suggested that I
> "think about relocating some place where U feel U may be able to
> establish better connections to the community"

FTR, I made a number suggestions along w/ the one about relocating (which I
apparently missed your remark in your OP that U R ready to do this), but in
response to your comment here, I find it highly unlikely that I'm the "only
person" who has ever suggested U consider moving since U R so unhappy in the
south. If U have made numerous posts on this subject in various forum, as U
say you've done, I would think it would be among the most common of
suggestions U would encounter. Seems like a no-brainer to me.

> It was an excellent suggestion and the idea has been a very compelling
> one for quite some time.  I am just glad to see that someone else has
> finally suggested it.

Why? Why would U need someone else to suggest such an obvious idea to U? If
U R so very unhappy where U live and there's nothing compelling keeping U
there, wouldn't the most obvious idea be to relocate? I can't think of 1
reason U would feel U need someone else to "give U permission" to go, or to
suggest it to U.

> I dont really have a "home" anywhere in a
> geographical sense.  I was raised in Cincinnati but left there in the
> 70's,  There are no relatives near there and my friends there that are
> still living are people I have lost touch with.

Just as a point of information...I have a friend who moved back to Southern
Illinois last year after living in other parts of the country for many
years. She had been out of touch w/ all of her old friends from there most
of that time, but when she got settled in, she discovered that many of the
people she used to see regularly are still there. She was very pleasantly
surprised that she picked up w/ them again very quickly and was able to
renew the long-inactive friendships. She tells me it's helped make her
transition there a really good one. U might consider U could do that too w/
your old acquaintances from Cincinatti if U should return there.

> I lived in Denver for
> years as a young man, but I was single most of that time and I have a
[quoted text clipped - 5 lines]
> nothing to lose.  I dont have a life here in Kinfolkville.  What do you
> think?

I can't imagine why U would care in the least what I think. But, since U
ask, I think a plan like that could be just fine. The Pacific Northwest is a
nice part of the country, both climate wise and landscape wise, and people
there tend to me pretty laid-back and open-minded. In a lot of the towns and
cities in the Pacific Northwest, the bulk of the population is transplanted
from elsewhere in the country, so it's unlikely to be as insular as U
describe where U R now, and newcomers would be the norm, not the
suspiciously eyed exceptions to be avoided steadfastedly.

Another place to consider is Santa Fe, NM. The winters there are quite mild,
the summers are fairly pleasant due to the mountain climate, and several
people I know who have lived there tell me the people there are
exceptionally warm, friendly and welcoming of newcomers.And like the Pacific
Northwest cities and towns, the population is ethnically and culturally
diverse. The employment front is not too hot, and I don't know what your
circumstances are. If U R retired or semi-retired, U might do just fine.
Good luck.

~katelyn~
Bud - 03 Apr 2006 18:05 GMT
> ...How do you all handle this?

My wife has been in a 'home' for several years. I feel guilty because I
don't visit her often. But it does her no good and tears me up when I
have to go and leave her there so I don't visit and accept that I will
feel the guilt and I live with it.
meg - 04 Apr 2006 04:43 GMT
Barb,

I think if you feel guilty, it may be because you aren't able to
appreciate how wonderful you are being to your mother.  I admire you so
much for taking care of her in your home.  She is very lucky and I'm
sure gets better, more individualized care than what she would get if
she were placed in long term care.  No one can make your mother 100%
safe.

We placed my mother in assisted living, then memory care.  I'm not
satisfied with the services and feel so guilty about not taking care of
her myself.   The dynamics of our personalities has always caused
friction between us,  and the alzheimer's made it even worse when I was
caring for her in her home.
Nina Pretty Ballerina - 06 Apr 2006 13:43 GMT
>I have a question for ya all.I feel very guilty when i just leave my mom
> in her chair to go off and do something around the house.Feel like i am
> neglecting her if I am not in the room wih her.But i need to get things
> done.How do you all handle this?Barb

if someone else posted that, you would tell them dont be silly, you shouldnt
feel guilty.....not that easy huh, but you know you shouldnt feel bad, this
is not an ideal situatin!

chris
 
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