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Medical Forum / Diseases and Disorders / Alzheimer's / March 2006

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Care-giving ALONE in a closed little southern town

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southaters@yahoo.com - 27 Mar 2006 18:50 GMT
Is, or has anyone here been a multi-year full-time caregiver for an alz
family member in a small southern town where you have no "kinfolk" or
life long friends.  I moved here to Kinfolkville, Arkinsaw from outside
of the south in my early 40's.  I tried very hard to make friends here
during my early years here but found that I had little in common with
men my age here.  I am now 55.  There is a huge language barrier and
they are very close to their brothers, cousins, brothers in law, and
life long friends and they are not open to new friendships with men who
speak proper english.  Until my mother came down with alz, it was
merely an enormous problem.  After I had been caring for her full time,
ALONE, (except for my wife) for two years, it became an extremely
suicidal problem.  We are planning to move to the west coast very very
soon.  I am getting old to be doing this.  It frightens me, but I have
nothing but contempt for the people here who wouldnt lift a finger to
help us.  Has anyone else experienced anything like this?  Was it in a
small southern town?  There is a huge farce about the south being a
friendly and mannerly place.  Jesus said, "above all things, love they
NEIGHBOR as thyself."  Southerners (from the western part of the Old
South) seem to interpret that to mean "love thy KINFOLK as thyself".  I
plan to expose all of this in a book.  

Scared to death in Kinfolkville
KatelynRain - 27 Mar 2006 21:53 GMT
<southaterz wrote:
> Is, or has anyone here been a multi-year full-time caregiver for an alz
> family member in a small southern town where you have no "kinfolk" or
[quoted text clipped - 5 lines]
>
> Scared to death in Kinfolkville

Wow. U R at the exposé book-writing stage already, eh?

You wouldn't say U R a bit bitter, would you? And U posted the exact same
post twice w/ a slightly different header. Was that deliberate?

I'm not an expert, but your rant has all the signs of U approaching (or
having reached) the "burnout" point. This happens w/ anyone who is a
caregiver of anyone w/ a disability for an extended time, but I think most
especially so an elderly parent or spouse, and more so if alz is involved.
It means U R taking on too much alone and that U need a break big time, and
to do some things for yourself...to take care of yourself and renew and
recharge your psychic batteries. Otherwise U just get angry at the world,
which is where it sounds like U R at, though U R focusing (for now) on your
own very small corner of it. If you don't heed the warning signs, though, I
guarantee U, your resentment will spread eventually to the rest of the
world.

U need to get some external supports in place immediately...like yesterday.
Check out local support groups for family caregivers, even if U have to
drive a little distance. Even in small town South, U can't be the only one
going through this. Also look into talking to someone one-on-one in your
community, a professional w/ training in family members caring for loved
ones w/ disability/alz. U need to sit down w/ someone who can listen to U
and give you a place where U can vent and let out all your fear, sadness and
sense of abandonment. Someone who will listen w/o judging U and who maybe
can give you some constructive feedback and possibly point U to other
resources in your community that may help.

U have gotten to this state because U R not listening to the voice within
saying "This is too much for me to do alone! I need help! I need a break!
Please help me get a break from this and do something else just for me for a
while!"

I've never lived in the small town south, but I have experienced the sense
of isolation and abandonment from the communtiy, as well as family and
friends from time to time when I've been up against some tough challenges. I
know how lonely and painful that is...and it IS scary. U should think about
doing something for yourself. Maybe U need to get away for a while. Do U
have family and friends elsewhere in the country? Maybe it's time to pay
some of them a visit. Look into a temp. care arrangement for your
mom---either a setting or maybe another family member can step in for a week
or so while U get away or take a break. If there's no one to visit, take a
trip w/ your wife. Do U have any hobbies? There may be a local group, or a
group in the surrounding region of folks that share your interests. If not,
maybe there's an online group. Obviously U have a computer. It really helps
to have other people to connect w/ from time to time. That's one thing that
is so awesome about the internet. It really expands the horizons of one's
world...even if U don't make lifelong bosom buddies, temp. connections w/
other people can be very therapeutic. And if it comes down to it, U also
might think about relocating some place where U feel U may be able to
establish better connections to the community.

I think any of these steps would be healthier than stewing where U R to the
point of ready-to-explode, writing angry NG posts about the small-mindedness
of small town southerners and plotting your exposé of their hypocrisy. I
hope you'll think about it and start taking some postive steps ASAP to
improve your life, especially your state of mind.

~katelyn~
Lee - 28 Mar 2006 02:06 GMT
well said, katelyn!
Dennis P. Harris - 28 Mar 2006 04:28 GMT
> I
> guarantee U,

i don't usually whine about other peoples spelling, but this use
of "U" is a major distraction when reading your post.  you might
think that it's cute, but i find it tiresome, and if you continue
it, i'm sure i won't be the only one who either killfiles you or
simply ignores anything you post.

so please, quit misusing U.
Barb Terry - 28 Mar 2006 04:02 GMT
Dennis,
  I don't usually whine either but i disagree that U don't.If you
killfile everyone you threaten to you might as well killfile us all.Barb
KatelynRain - 28 Mar 2006 05:27 GMT
> i don't usually whine about other peoples spelling, but this use
> of "U" is a major distraction when reading your post.  you might
[quoted text clipped - 3 lines]
>
> so please, quit misusing U.

Oh look at me shaking in my shoes. I'm so scared. My feelings are hurt. I'm
going to go home and cry because U R going to killfile me and U R going to
get all your friends to killfile me too! Boo hoo hoo!

I wish U *would* ignore me rather than me having to read your self-righteous
preaching. Never post to a NG to correct someone's grammar or spelling or
choice of internet shorthand. If you don't have anything meaningful to
contribute to the discussion, stay out of the thread.

Oh, and get the stick out of your *ss while U R at it.

Talk about tiresome!
Tumbleweed - 28 Mar 2006 07:30 GMT
>> i don't usually whine about other peoples spelling, but this use
>> of "U" is a major distraction when reading your post.  you might
[quoted text clipped - 7 lines]
> I'm going to go home and cry because U R going to killfile me and U R
> going to get all your friends to killfile me too! Boo hoo hoo!

Got to agree with dennis, the way you write seriously distracts from what
you say, (which makes sense).

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 28 Mar 2006 13:13 GMT
>>> i don't usually whine about other peoples spelling, but this use
>>> of "U" is a major distraction when reading your post.  you might
[quoted text clipped - 10 lines]
> Got to agree with dennis, the way you write seriously distracts from what
> you say, (which makes sense).

Katelyn, please don't get angry about this, but honestly, it really is
better to type like everybody else does and not use abbreviations like that.
It just makes reading so much more natural.   I agree with Dennis and
Tumbleweed, but I hope you don't take offense at it.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

KatelynRain - 28 Mar 2006 16:28 GMT
> Katelyn, please don't get angry about this, but honestly, it really is
> better to type like everybody else does and not use abbreviations like
> that. It just makes reading so much more natural.   I agree with Dennis
> and Tumbleweed, but I hope you don't take offense at it.

And what if I do take offense? Why do you care? It's quite obvious making
new people feel welcome on this NG is not a priority for some of  you..

A great many usenet users do use shorthand for some writing. The U R things
is quite common. It's not a violation of netiquette. If you and your friends
find my style such a distraction, as you claim, you're free to ignore my
posts, as your friend Dennis "threatens" to do.

I gave the person who posted his problem a serious reply w/ what I believe
was some good, sound advice and feedback. All Dennis had to contribute to
the discussion was to take me to task like a prissy school marm for using a
tiny bit of shorthand that thousands of people posting to usenet do very
commonly and he threatens to killfile me. I would say *he* is the
distraction.

You or anyone else who wants to can come back in and slam me again if it
suits your fancy, but you'll be wasting your time. I won't be reading it.
I'm done w/ this conversation.

~katelyn~
Evelyn Ruut - 28 Mar 2006 17:28 GMT
>> Katelyn, please don't get angry about this, but honestly, it really is
>> better to type like everybody else does and not use abbreviations like
[quoted text clipped - 21 lines]
>
> ~katelyn~

Dear Katelyn,

Nobody questioned the excellent and heartfelt advice you gave.

We are all adults here, and believe it or not we DO care if you take offense
and get your knickers all in a knot over this gentle suggestion that you use
proper english spelling.

We are not a bunch of teenagers in a chat room.

If you want to TAKE offense, go right on ahead, but it would be a shame.

Nobody is trying to GIVE offense.

Relax, sit down, count to ten, and realize that we would all be your friends
if you let us.  You are the newcomer here, and you are welcome to be here.
But this is a peaceful group for the most part, and well it should be.
Caregiving is very stressful.   No need to bring anger in here.

Signature

Peace....
Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

June - 28 Mar 2006 17:44 GMT
>>> Katelyn, please don't get angry about this, but honestly, it really is
>>> better to type like everybody else does and not use abbreviations like
[quoted text clipped - 40 lines]
> be here. But this is a peaceful group for the most part, and well it
> should be. Caregiving is very stressful.   No need to bring anger in here.

Yep we're old and set in our ways......but being cliquish isn't what this
group is all about.  At least I hope not. Threatening to killfile someone
just because you don't like a prevalent net shorthand...sounds offensive to
me.......June
Evelyn Ruut - 28 Mar 2006 18:16 GMT
>>>> Katelyn, please don't get angry about this, but honestly, it really is
>>>> better to type like everybody else does and not use abbreviations like
[quoted text clipped - 47 lines]
> just because you don't like a prevalent net shorthand...sounds offensive
> to me.......June

Knowing Dennis for a lot longer than many.... (I have been posting here
since around 1999 give or take a bit) I know his bark is way worse than his
bite, and that he really means well.

I am not excusing his comment, but taking offense is the personal choice of
the reader.
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

KatelynRain - 28 Mar 2006 18:39 GMT
> Knowing Dennis for a lot longer than many.... (I have been posting here
> since around 1999 give or take a bit) I know his bark is way worse than
> his bite, and that he really means well.
>
> I am not excusing his comment, but taking offense is the personal choice
> of the reader.

Oh ho ho. That street runs 2 ways, madam! Your friend Dennis is the one who
"took offense" at me using common net shorthand. I didn't start out
attacking anyone. Same holds true of your "bringing anger in here" remark.
It's a 2-way street.

~katelyn~
Evelyn Ruut - 28 Mar 2006 19:32 GMT
> > Knowing Dennis for a lot longer than many.... (I have been posting here
>> since around 1999 give or take a bit) I know his bark is way worse than
[quoted text clipped - 9 lines]
>
> ~katelyn~

Hey Katelyn.... Don't call me "madam" I'm just one of the girls :-)

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Karen - 29 Mar 2006 04:20 GMT
Not starting a new hobby, are you Evelyn?  Madam Evelyn?  Does your hubby
know about this.  :-)

(sorry, just couldn't resist! And I knew you'd get a chuckle too)

Karen

> Hey Katelyn.... Don't call me "madam" I'm just one of the girls :-)
Evelyn Ruut - 30 Mar 2006 14:24 GMT
> Not starting a new hobby, are you Evelyn?  Madam Evelyn?  Does your hubby
> know about this.  :-)
>
> (sorry, just couldn't resist! And I knew you'd get a chuckle too)
>
> Karen

LOL!

When Katelyn called me "Madam" I just couldn't resist either.... got a
wicked sense of humor sometimes :-)

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>> Hey Katelyn.... Don't call me "madam" I'm just one of the girls :-)
June - 28 Mar 2006 18:57 GMT
>> Yep we're old and set in our ways......but being cliquish isn't what this
>> group is all about.  At least I hope not. Threatening to killfile someone
[quoted text clipped - 7 lines]
> I am not excusing his comment, but taking offense is the personal choice
> of the reader.

I figured that out about Dennis pretty quick.   He gave me a point of view
last year about my MIL that I truly appreciated.   I hate to see the
language changed as much as anyone but the world is always changing and we
gotta go with the flow or be miserable.....June
KatelynRain - 28 Mar 2006 18:32 GMT
> Yep we're old and set in our ways......but being cliquish isn't what this
> group is all about.  At least I hope not. Threatening to killfile someone
> just because you don't like a prevalent net shorthand...sounds offensive
> to me.......June

Thank you, June, and thanks also to Lee and Barb for your replies. I can see
from reading the various conversations here that there *are* some very nice,
supportive and kind people here.

I know I said I wasn't going to comment further in this thread, but I felt
that in respect of fairness, I had to acknowledge the kind replies I saw,
and to thank those who responded charitably for your thoughtful
consideration. It is much appreciated.

And now that really is all I have to say on the subject.

~katelyn~
Tumbleweed - 28 Mar 2006 19:48 GMT
> Yep we're old and set in our ways......but being cliquish isn't what this
> group is all about.  At least I hope not. Threatening to killfile someone
> just because you don't like a prevalent net shorthand.

putting a capital U everywhere you want to write 'you' *isnt* prevailing net
shorthand, except possibly in instant messaging groups for 12 year olds,
(about which I hastenb to add I wouldnt know. :-)

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Karen - 29 Mar 2006 03:54 GMT
I see abbreviations like UR all the time in business email because people
are usually sending from a blackberry or some such (minimum characters).
Like top posting versus bottom posting, it seems to be dependant on the
familiar environment of the poster.  (yes, I top posted this deliberately)

Let's see... killfile for trolling --  okay.  Killfile for responding to
trolls --  makes it difficult to greet the newbies.  Killfile for trendy
abbreviations -- hmmm, shall we set a date beyond which we refuse to accept
trendspeak?

Karen
(tongue firmly in cheek)

> Yep we're old and set in our ways......but being cliquish isn't what this
> group is all about.  At least I hope not. Threatening to killfile someone
> just because you don't like a prevalent net shorthand...sounds offensive
> to me.......June
Tumbleweed - 28 Mar 2006 19:45 GMT
>> Katelyn, please don't get angry about this, but honestly, it really is
>> better to type like everybody else does and not use abbreviations like
[quoted text clipped - 3 lines]
> And what if I do take offense? Why do you care? It's quite obvious making
> new people feel welcome on this NG is not a priority for some of  you..

Not bothered about you taking offense, but if no one is going to read what
you write because you annoy people, why not save some money, disconnect from
the internet, and type it into notepad for you to read to your cats.

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Anthony Shipley - 29 Mar 2006 02:58 GMT
>Not bothered about you taking offense, but if no one is going to read what
>you write because you annoy people, why not save some money, disconnect from
>the internet, and type it into notepad for you to read to your cats.

Seems like this thread has some way to go :-)

anthony shipley

Run away with me; I can make you unhappy.
Tumbleweed - 29 Mar 2006 08:31 GMT
>>Not bothered about you taking offense, but if no one is going to read what
>>you write because you annoy people, why not save some money, disconnect
>> >>from  the internet, and type it into notepad for you to read to your
>>cats.
>
> Seems like this thread has some way to go :-)

LOL

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

michelle - 29 Mar 2006 09:57 GMT
I am glad I am not new here reading this thread and I surely hope no
new ones do.
How sad to read a thread like this
Ronny TX - 29 Mar 2006 12:56 GMT
Re: Care-giving ALONE in a closed little southern town  
Group: alt.support.alzheimers Date: Wed, Mar 29, 2006, 9:58am (CST+14)
From: astech@iinet.net.au (Anthony Shipley)
"Tumbleweed" <thisaccountneverread@yahoo.com>

>  [WA] wrote:
> Not bothered about you taking offense,
[quoted text clipped - 3 lines]
> the internet, and type it into notepad for
> you to read to your cats.

> > Anthony:
> > Seems like this thread has some way
> > to go :-)
> > anthony shipley

Ronny:
R U sure about that Anthony! :-) LoL
pellmellwillynilly@hotmail.com - 29 Mar 2006 19:52 GMT
> Got to agree with dennis, the way you write seriously distracts from what
> you say, (which makes sense).

Yeah, I agree, but it's not the abbreviation that is so jarring as the
fact that the u's and r's are in caps. It's like shouting those words,
which if the writer were speaking them wouldn't be particularly
emphasized at all, since other words constitute the main points of the
message.

That said - and I'm not particularly old - I trip over those
abbreviated words even when they're lower case. Perhaps more
importantly, because the u's and r's seem juvenile, they make it
difficult for me to take the real message seriously. That's
unfortunate, because as in this case, the messages themselves are often
good. But since it took me twice as long to read the distracting
message as it would have if I hadn't been tripping over the caps, I
will probably skip over future messages that look like that. Again,
that's unfortunate, because I will miss a well thought-out post simply
because I get a headache reading it!
Barb Terry - 29 Mar 2006 22:45 GMT
I cannot believe so many people had a problem with reading those
posts.My gosh get past it.You get
headaches,distracted,etc.Picky,Picky.You cannot go so far as to just
read them and leave it alone? Get a life!!!
KatelynRain - 29 Mar 2006 23:30 GMT
>I cannot believe so many people had a problem with reading those
> posts.My gosh get past it.You get
> headaches,distracted,etc.Picky,Picky.You cannot go so far as to just
> read them and leave it alone? Get a life!!!

Thanks, Barb! I appreciate your thoughts.

Anyway, I just want to say, I get the message, OK? I won't do it anymore if
it really bothers people that much.

I think it's time we move on to something else...don't you all agree?
Actually, I have a problem I could really use some feedback on, if people
are willing to "listen". I don't have time to post it now, but I'll put it
up tomorrow morning, and I'm hoping people who were annoyed w/ me for my
earlier post can get past it and give me their sincere attention for my
problem.

~katelyn~
Evelyn Ruut - 30 Mar 2006 00:22 GMT
>>I cannot believe so many people had a problem with reading those
>> posts.My gosh get past it.You get
[quoted text clipped - 14 lines]
>
> ~katelyn~

Katelyn,

I promise to listen with an open heart and mind, and I am sure others here
will also.

:-)
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Barb Terry - 30 Mar 2006 00:49 GMT
Katelyn,
    I will be here to listen.Barb
Anthony Shipley - 30 Mar 2006 03:53 GMT
>>I cannot believe so many people had a problem with reading those
>> posts.My gosh get past it.You get
[quoted text clipped - 14 lines]
>
>~katelyn~

MEETOO!

anthony shipley

Run away with me; I can make you unhappy.
Lesanne - 30 Mar 2006 00:25 GMT
I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
crroect tehn msot people can read it. (got tired there about mid way)
I am deeply amused by stuff here, seldom post (always top) because Dennis
scares me.
Signature

Lesanne

>
>> Got to agree with dennis, the way you write seriously distracts from what
[quoted text clipped - 16 lines]
> that's unfortunate, because I will miss a well thought-out post simply
> because I get a headache reading it!
Evelyn Ruut - 30 Mar 2006 00:32 GMT
>I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
>crroect tehn msot people can read it. (got tired there about mid way)
> I am deeply amused by stuff here, seldom post (always top) because Dennis
> scares me.

Dear Lesanne,

Please don't allow yourself to be scared by anyone you encounter on the
internet.   Use your block sender feature of your newsreader if someone
upsets you.

Life is too short.

Hope you are doing OK and best to you....

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>>> Got to agree with dennis, the way you write seriously distracts from
>>> what
[quoted text clipped - 16 lines]
>> that's unfortunate, because I will miss a well thought-out post simply
>> because I get a headache reading it!
Lesanne - 30 Mar 2006 22:27 GMT
Actually Evelyn that was my bizarre sense of humor in action. I don't have
time to post much because I am working on a Master's degree, and with Mom
and everything else I only have time to lurk and read. It isn't really
Dennis :). I should put some sort of *joke* indicator when posting tongue in
cheek..

Signature

Lesanne

>
>>I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
[quoted text clipped - 32 lines]
>>> that's unfortunate, because I will miss a well thought-out post simply
>>> because I get a headache reading it!
Evelyn Ruut - 30 Mar 2006 22:31 GMT
> Actually Evelyn that was my bizarre sense of humor in action. I don't have
> time to post much because I am working on a Master's degree, and with Mom
> and everything else I only have time to lurk and read. It isn't really
> Dennis :). I should put some sort of *joke* indicator when posting tongue
> in cheek..

Hi Lesanne,

I am so glad you were just joking!   I was wracking my brain trying to
remember whether you had a run-in with Dennis that I somehow must have
missed?   Glad to hear from you anyway :-)
Signature


Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>>>I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
>>>crroect tehn msot people can read it. (got tired there about mid way)
[quoted text clipped - 31 lines]
>>>> that's unfortunate, because I will miss a well thought-out post simply
>>>> because I get a headache reading it!
Ronny TX - 30 Mar 2006 02:18 GMT
> I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
> crroect tehn msot people can read it. (got tired there about mid way)
> I am deeply amused by stuff here, seldom post (always top) because Dennis
> scares me.
> --
> Lesanne

Ronny:
Ah,Dennis is a good guy-just gotta remember that his bark is worse than
his bite. :-){BG}

> >> Got to agree with dennis, the way you write seriously distracts from what
> >> you say, (which makes sense).
[quoted text clipped - 15 lines]
> > that's unfortunate, because I will miss a well thought-out post simply
> > because I get a headache reading it!
Anthony Shipley - 30 Mar 2006 03:56 GMT
>I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
>crroect tehn msot people can read it. (got tired there about mid way)
>I am deeply amused by stuff here, seldom post (always top) because Dennis
>scares me.

Same effect here:

rcntly rd a rsrch stdy tht sd i th frst nd lttrs r crrct thn mst ppl cn rd t. m
dply msd b stff hr, sldm pst (lwys) bcus Dnn scrs m.

anthony shipley

Run away with me; I can make you unhappy.
Lesanne - 30 Mar 2006 22:28 GMT
Thanks for finishing up my mess Anthony ;)

Signature

Lesanne

>
>>I recntly raed a rserach sutdy taht siad if the frist and lsat ltters are
[quoted text clipped - 11 lines]
>
> Run away with me; I can make you unhappy.
michelle - 30 Mar 2006 09:30 GMT
Good one Lesanne
Yes I have read that before and how true it is.
I agree it does not take much to put people off a forum
Dennis P. Harris - 28 Mar 2006 04:30 GMT
> Even in small town South, U can't be the only one
> going through this.

you have obviously never lived in a small isolated community
where everyone is related to everyone else except you.  this
person has posted before, and has had the same complaint before,
and i'm sure that even if they tried to make friends or seek
help, it just wasn't happening.
KatelynRain - 28 Mar 2006 05:40 GMT
>> Even in small town South, U can't be the only one
>> going through this.

> you have obviously never lived in a small isolated community
> where everyone is related to everyone else except you.  this
> person has posted before, and has had the same complaint before,
> and i'm sure that even if they tried to make friends or seek
> help, it just wasn't happening.

Oh so U R so sure about that, huh? Why is that? How can U be so sure? Is he
your sock puppet?

I'm not surprised to hear this guy's been complaining about the same thing
for a while now. I didn't want to be rude before, but frankly, the guy
sounds to me like he's been working on coming loose from hinges for probably
a good spell. The quicker he talks to someone professionally the better.

Or maybe he's just a weirdo creep who gives people the heebie-jeebies--kinda
like the way U do--and folks steer clear of him. If so, the same thing would
be happening to him anyplace he lived.

~katelyn~
 
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