Medical Forum / Diseases and Disorders / Alzheimer's / March 2006
Mom thinks she lives somewhere else.
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JJ - 16 Mar 2006 04:49 GMT My Mom and I are new to this terrible disease. She now lives with me and sometimes she acts just like she used to. We can carry on a good conversation and she understands what she needs to do. Then suddenly everything changes and she mumbles, keeps her eyes closed, cannot walk or stand and is for all intents and purposes a little child. I think she is that little child all of the time, but can just communicate with me so that I cannot tell the difference. The saddest problem I am having right now is that she thinks she still lives with my grandparents (deceased) and asks to be taken home each night. She is afraid her Mother will get mad at her if she stays here too long or has not done her chores. I do not know what to say to her when she asks that I take her home. I ask if she knows that her Mother and Father are really in heaven and she says yes. But she still wants to go home. She has always been independent and thinks she is a burden on us. I tell her I love her and want her to live with me and she says she loves me too, but I do not think she really knows who I am to her all the time. She will never be able to live alone again so I am afraid this is going to be a ongoing question everynight and I do not want to hurt her by saying no. I am still trying to work through all this and my husband is a prince when it comes to helping me with her. But hurting her feelings when she has always been such a wonderful Mother and friend just kills me. Any help will be appreciated. JJ
Gwen Love - 16 Mar 2006 05:14 GMT JJ, when she wants to go home put her off by telling her she can go the next day, or that she will have to wait until you finish what you are presently doing, or anything to put her mind at ease for a little while. If you can get her attention on something else for a while, that will help. Telling her that her parents are dead won't help, because she just can't remember. What she thinks in her disabled mind is her reality and she can't enter yours. So enter hers as much as possible unless it is something dangerous to her or to others. We call ourselves using loving deception; this helps her and you. I'm sure others will offer some good advice. Gwen
> My Mom and I are new to this terrible disease. She now lives with me > and sometimes she acts just like she used to. We can carry on a good [quoted text clipped - 18 lines] > when she has always been such a wonderful Mother and friend just kills > me. Any help will be appreciated. JJ Barb Terry - 16 Mar 2006 05:40 GMT JJ, My mom always wants to go home on a daily bases.She too lives with us.We started out living in her own home until it went up for sale.But she wanted to go home even when we lived there.I tell her "We will in a bit." Or whatever works.But to try to explaine your truth to her won't work.Her truth is she is not home and you are not gonna change her mind.My dad passed away 3 yrs.ago and almost every day she wants to know where he is.It's usually in the evening when my mom is worse.So i tell her he is upstairs sleeping.The funny part is then she wants to know why he's not in her bed.Sooo i tell her he doesn't want to wake her up with his snoring.LOL These things usually work. Do not feel bad in telling her these lies(loving deception)as they will usually quiet them down instead of causing an argument and getting them all upset by the truth.I know what your going through and you have my deepest sympathy. But the truth in this disease only causes them more upset.And with the (truth) they think your lying to them anyways.Barb
Adelle - 16 Mar 2006 16:14 GMT > My Mom and I are new to this terrible disease. She now lives with me > and sometimes she acts just like she used to. We can carry on a good [quoted text clipped - 18 lines] > when she has always been such a wonderful Mother and friend just kills > me. Any help will be appreciated. JJ My father in Law never got to a stage when 'loving deceptions' really worked (then again, my husband and mother in law were never comfortable in trying them, so who knows). But most of the people who post here have used them and find that as long as whatever you tell them somehow fits into what the family might do, they work. Your loved one is calmed from their agitation, which is the most important thing. Imagine how chaotic and distressing it must be to never have your world match what your brain says should be happening.
Since she seems to be at a mental age where she is worried about her parents and chores, would these work?
- You finished them. That's why you were allowed to come visit.
- This is a special sleepover. Your parents gave permission and aren't expecting you to be home or do chores.
- You traded days with (insert name of sibling). S/He will do it today and you will do her's/his next week. (Ok, so this one is farfetched.)
Adelle
Beth Cole - 16 Mar 2006 16:44 GMT > Since she seems to be at a mental age where she is worried about her parents > and chores, would these work? [quoted text clipped - 6 lines] > - You traded days with (insert name of sibling). S/He will do it today and > you will do her's/his next week. (Ok, so this one is farfetched.) One that worked well for my FIL with my MIL, and now for a co-worker with her mother, is to say "Okay, we'll go home, then" and put her in the car and drive around the block a couple times. It usually only takes one to two trips around before she says "Oh, that's my house!" and they can pull into the driveway and go home.
Beth
 Signature Don't go around saying the world owes you a living. The world owes you nothing. It was here first. ~Mark Twain
Evelyn Ruut - 16 Mar 2006 16:44 GMT >> My Mom and I are new to this terrible disease. She now lives with me >> and sometimes she acts just like she used to. We can carry on a good [quoted text clipped - 40 lines] > > Adelle Hi,
We were faced with many situations like this with Ida. We would often note that she may have had Alzheimers, but she certainly wasn't "stupid" and could not always be fooled or put off even by the most carefully worded or thought out, of loving deceptions.
But for the lack of a better response, a 'loving deception' reply was as good as any, and at least it had a small chance of "working".
In the instance that one reply does not put your loved one to rest, just wait five more minutes.... you will have another chance to reply, since almost nothing you will say is retained anyway. It is just the nature of the illness.
Ida imagined she had cows to feed, chores to do, a baby to feed,..... all sorts of things. We were nearly at our wits end in dealing with her powerful delusions and imaginings and of course, the repetitious questions.
But it was definitely worse when the questions began to slow down, because that meant she was losing more and more of her tenuous grip on reality, and her balance began to get worse as well.
It is nearly a year that she is gone now. I am grateful that I had the opportunity to care for her for a number of reasons. We had a chance to make our peace together, and we also had the opportunity to make her last five years of life as good as we possibly could under the circumstances. I am also very glad that she is finally at peace.
Loving deception is not perfect, but then nothing is. I don't know if you get "Dear Abby" in your newspaper, but in todays paper her column was all about this very subject, with replies from several experts, all of whom said that it was definitely kinder to use loving deception especially in certain highly charged situations. Most of us who have had experience with loved ones who had or have the illness could vouch for that.
One letter was about a woman who agonized about what to tell her mother who imagined she was not at home, but that she really lived with her long dead parents in her childhood home, a place long gone, a situation quite similar to "JJ's" mother.
Another letter was about a person who repeatedly responded with overwhelming grief, like it was the very first time she'd heard it, every time she was told that her husband was long dead years beforehand. Finally she was able to relax and live her life in peace when the staff where she lived, all agreed to say he was coming to see her "later" every time she asked.
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Evelyn (to reply to me personally, remove 'sox')
Barb Terry - 17 Mar 2006 00:42 GMT We were faced with many situations like this with Ida. We would often note that she may have had Alzheimers, but she certainly wasn't "stupid" and could not always be fooled or put off even by the most carefully worded or thought out, of loving deceptions.
Evelyn, You are soooo right.I have often had to tell people my mom may have alz.but she's not stupid.And not everytime does loving deception work.Some days there as smart as a whip.But if you argue with there reality they think your lying anyways.Barb
Evelyn Ruut - 17 Mar 2006 04:18 GMT We were faced with many situations like this with Ida. We would often note that she may have had Alzheimers, but she certainly wasn't "stupid" and could not always be fooled or put off even by the most carefully worded or thought out, of loving deceptions.
Evelyn, You are soooo right.I have often had to tell people my mom may have alz.but she's not stupid.And not everytime does loving deception work.Some days there as smart as a whip.But if you argue with there reality they think your lying anyways.Barb
Hi,
Yes, exactly! I recalled when she was having a delusion about having given birth to a baby. We told her about the birth of her first great grandchild, and somehow all that 'connected' was that there was a baby, and that it somehow in some way, was connected to her.
From there it somehow registered that it was HER baby, and someone must have stolen it from her. It was hungry and she needed to feed it. (This drove us all totally bonkers, you know!) But I am sure you all know the drill...... you answer gently for the ten millionth time, if necessary, explaining yet again, and again......
But no matter how many times we explained that ladies in their 80's couldn't have babies anymore, she (of course) couldn't grasp that thought. She'd agree, but 5 minutes later she was going on about wanting her baby. Some suggested that we should give her a doll, but we were sure at that stage it would certainly never have fooled her for a minute. Sure enough, we tried and it was a 'doll,' not a baby, to her.
Finally we got pictures of the real baby and told her the baby in the photo belonged to her granddaughter, and that the baby was with its mother, etc. etc. None of that even worked. This could have been partly because she had begun to see her granddaughter as a very young child again, in her mind, not as a fully grown young woman with a baby of her own.
But the gist of this is that she knew what a doll was..... though later on, by the time she was in the nursing home, she enjoyed holding a doll occasionally, like so many of the older ladies there did.
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Best Regards,
Evelyn (to reply to me personally, remove 'sox')
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