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Medical Forum / Diseases and Disorders / Alzheimer's / March 2006

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Bill IL - 12 Mar 2006 23:33 GMT
I see I had my last name in some earlier posts.  I'm guessing that is
all permanent public record now.  Is there any way to change that?  I
googled and found some stuff I would rather not have out there ... but
it is probably too late ... anyway ... something for all to keep in
mind anyway

Bill
Stephen - 13 Mar 2006 00:42 GMT
>I see I had my last name in some earlier posts.  I'm guessing that is
>all permanent public record now.  Is there any way to change that?  I
[quoted text clipped - 3 lines]
>
>Bill
Unfortunately not, Bill. Once posted, it is impossible to update. About the best
you can do is file to expunge the posts from google groups, which is basically
and archive of usenet postings.
http://groups.google.com/intl/en/googlegroups/tour/index.html#protect
-steve
Tumbleweed - 13 Mar 2006 09:23 GMT
>>I see I had my last name in some earlier posts.  I'm guessing that is
>>all permanent public record now.  Is there any way to change that?  I
[quoted text clipped - 10 lines]
> http://groups.google.com/intl/en/googlegroups/tour/index.html#protect
> -steve

even that will only work (AFAIK) if you posted via google groups, not via
some other mechanism, as Bill did. And, if someone replied to your message,
with your message quoted in it (as both messages are embedded in this) then
its still stored anyway, even if the original is gone, because I posted
this, not Bill or Steve, and neither has any way to remove my posting.

As Dennis said, the best mechanism is posting under a pseudonym, the second
is not drawing attention to the fact that you posted something you dont want
others to read!

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Bill IL - 13 Mar 2006 14:05 GMT
On Mon, 13 Mar 2006  "Tumbleweed"

>even that will only work (AFAIK) if you posted via google groups, not via
>some other mechanism, as Bill did. And, if someone replied ....

>As Dennis said, the best mechanism is posting under a pseudonym, the second
>is not drawing attention to the fact that you posted something you dont want
>others to read!

OK, thanks ... it isn't real bad, and true, but some could be offended
and others don't need to know  ... I posted from an old computer at my
mom's while helping there, and the program had my whole name listed.
It is just too easy to bring everything up now with just a name
search.   btw, my real name is John Smith, in case anyone wants to see
the info I'm talking about.  LOL  
Evelyn Ruut - 13 Mar 2006 15:24 GMT
> On Mon, 13 Mar 2006  "Tumbleweed"
>
[quoted text clipped - 13 lines]
> search.   btw, my real name is John Smith, in case anyone wants to see
> the info I'm talking about.  LOL

Being that you didn't want it seen, I won't look it up....:-)

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Tumbleweed - 13 Mar 2006 15:55 GMT
> On Mon, 13 Mar 2006  "Tumbleweed"
>
[quoted text clipped - 13 lines]
> search.   btw, my real name is John Smith, in case anyone wants to see
> the info I'm talking about.  LOL

I think its shocking but its the wombat I feel sorry for.

:-)

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Ronny TX - 14 Mar 2006 19:38 GMT
Bill wrote:
> On Mon, 13 Mar 2006  "Tumbleweed"
>
[quoted text clipped - 4 lines]
> >is not drawing attention to the fact that you posted something you dont want
> >others to read!

> Bill:
> OK, thanks ... it isn't real bad, and true, but some could be offended
[quoted text clipped - 3 lines]
> search.   btw, my real name is John Smith, in case anyone wants to see
> the info I'm talking about.  LOL

Ronny:
LoL That's a good one! LoL

BTW,I am incredibly curious, :-) so after looking at your first post
the other day,yes,I did a bit of searching here and there at Google.
:-) But I didn't find anything :-( LoL and you don't have to worry even
if I had of,cause I'm harmless! LoL And Tumbleweed is right,it really
is best not to bring somethings up if you don't want them to be thought
about and perhaps looked for. :-) And yes,I am still wondering what
"horrible" thing you must of posted somewhere/sometime! :-) LoL

As for me,I've been online nearly 7 years. And I've been very careful
not to give out my last name to any person or in any group;but
then,over a good period of time,I made the mistake of giving out too
much personal info about where I lived,age,birthday,
etc. Then was rather shocked last year to learn that such as that could
lead a person to more info on me that I'd never given out and never
meant to. Oh well. (sigh) What's done is done and can't be undone.

Now this is a pretty funny story. :-) But over the years I have met
people in different groups,liked them and wanted to quickly know more
about them,so I would go to Google to see if they had posts there? So,3
or 4 years ago I met up with this one guy in a group and he was really
nutty-mean nutty-a bully type who obviously liked to run over anyone
who stood up to him. He more or less made some threats against me. So,I
checked for his posts at Google and found where he had posted his full
name,under the same addy,in another group. And he also told what city
he lived in! Then it was just a matter of looking under the right
search engine for me to find exactly where he lived. Which I did. Then
I sort of let him know that I had that info. :-) And I let his
imagination take it from there! LoL Amazing! He never bothered me again
and he was soon not posting on the group where we both has posted
regular. And all I had to do was let him know I knew exactly where he
lived and then just let his imagination run with that! LoL And of
course,I never let him know that I was a harmless fellow who wouldn't
even think about traveling halfway across the U.S. to bother
anyone,even if I could have! :-) LoL
Bill IL - 15 Mar 2006 14:55 GMT
>BTW,I am incredibly curious, :-) so after looking at your first post
>the other day,yes,I did a bit of searching here and there at Google.
>:-) But I didn't find anything :-(

>As for me,I've been online nearly 7 years. And I've been very careful
>not to give out my last name to any person or in any group ...

I'm not real clear just how protected our IP address is either ...
though I'm more careful now.  I'm glad to have people learn from my
experience's as I have from others ... and have them discussed here
because they are all too common.  But if someone had an uncommon name,
some details could be a little too much gossip for neighbors or family
that do a search.  Better to use some other name.  

I found silly posts I'd made back in 1996 ... fortunately nothing
damaging, just kinda goofy.  Even dumb questions asked about details
of building house, or whatever, can be somewhat embarassing 10 years
later ... but it is like anyone can read your every word if you make
the mistake of letting your name out.  That is mostly why I posted
this here, for the benefit of others.

If you think about it, any number of posts here reveal details of a
loved one's situations that would not need to be known by all the
neighbors or even the in-laws.  It is really worse than airing it on a
radio talk show, because it is automatically put into google for
anyone to find, even 10 years from now.  And sometimes folks reveal
these things in a time of stress, so don't consider the privacy issue.

btw, my mom is much improved after some complications from surgery
that left here seemingly in a more advanced stage of Alz' for a few
months.  Reminyl (now razadyne) is only $20/month with the medicare
drug plan, and Namenda is $40/month.  I have her take some fish oil
and curcumin as well, which seems to have some evidence of helping.
Mental and physical activity seem to help a lot as well ... perhaps
more than anything else.

The wombat is doing OK, though he'll be stuck with that tatoo for the
rest of his life.  :-)
Dennis P. Harris - 13 Mar 2006 01:18 GMT
> I see I had my last name in some earlier posts.  I'm guessing that is
> all permanent public record now.  Is there any way to change that?  I
> googled and found some stuff I would rather not have out there ... but
> it is probably too late ... anyway ... something for all to keep in
> mind anyway

i've always been mindful of it, since there have been usenet news
archives since day one of usenet.  this is no different that
calling in to a talk show --- i would never assume that no one
that i know would be listening, and i would never assume that my
enemies might bring back old usenet posts to haunt me.

on the other hand 99% of my offensive usenet posts have been
posted under a pseudonym.  if they ever outlaw spoofing
addresses, usenet news will dry up and wither away.
KatelynRain - 27 Mar 2006 05:52 GMT
> I see I had my last name in some earlier posts.  I'm guessing that is
> all permanent public record now.  Is there any way to change that?  I
> googled and found some stuff I would rather not have out there ... but
> it is probably too late ... anyway ... something for all to keep in
> mind anyway

I know there is a way to remove posts from google (your own anyway), but I
don't know of anyway to change your posting name. If you want, you can
remove the whole post though, name and all.

I found out about this a few years ago when I stupidly got into a really
embarrassing flame war with someone and said things I had no business
saying. I don't know what got into me...I was so horribly ashamed
afterwards. Anyway, this nice fellow on the NG told me there's a way to
remove posts if you want to and he gave me the instrux. There's actually a
place on google that tells how to do it. You have to set up a google
account, but that's easy. Then there's some tedious going back and forth and
cutting and pasting to do, but it's not especially difficult. I had to
remove a lot of posts and it took me most of an afternoon. If I ever have
the inclincation to get into a flame war again, I will remember how I spent
that afternoon and it will be a cold day in Hades before I'm that stupid
again! I feel I was very severely punished for my stupidity w/ the work I
had to do taking the posts off.

My husband, who is a stickler for absolute honesty, said he didn't like the
idea of tampering with permanent records, but google provides a way for
users to do this because the administrators realize this is something that
can come up from time to time. So I don't think removing the posts was
wrong...although, the much better route is never post anything you will
later regret!

Anyway, I don't know if it's worth it to you to remove all the posts in
which you used your real full name, but if you decide you want to and you
need some help, let me know and I can try to talk you through it. Not very
difficult, but tedious and time-consuming. Btw, I think it's wise for people
NOT to use a real full name when posting. I did hear of someone once who
used his real first and last name and mentioned in some posts where he
lived. His phone number was listed and he started getting prank phone calls
and hate mail for a while from this one creep he got into a snit with a
couple of times. He had to get the police involved and an atty. and it was a
major pain to him for a while. Things worked out OK but he was very sorry he
got into a situation like that, and obviously, it could've been much worse.
There are so many crazies out there! You can never be too careful.

Well, it's good you're not doing that anymore, and probably no one is going
to look through those old archives, so there's probably no reason to worry
about it. But just so you know...you can remove your posts from google if
it's really important to you.

~katelyn~
Tumbleweed - 27 Mar 2006 15:27 GMT
>> I see I had my last name in some earlier posts.  I'm guessing that is
>> all permanent public record now.  Is there any way to change that?  I
[quoted text clipped - 5 lines]
> don't know of anyway to change your posting name. If you want, you can
> remove the whole post though, name and all.

Katelyn, generally thats going to be pointless, because the original post is
often included in replies.

If you post;

"I believe in the tooth fairy"

and I reply, and dont trim your original post , as below;

> "KatelynRain" said; "I believe in the tooth fairy"
You are barking mad
Tumbleweed)

You *may* be able to remove your original post.
You cannot remove the second message because thats 'mine',but it also
contains your embarassing original post. In fact, removing your original,
should anyone research the flame war and see you deleted it, also shows just
how embarrassed you were, adding insult to injury :-)

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

KatelynRain - 27 Mar 2006 20:54 GMT
> You *may* be able to remove your original post.
> You cannot remove the second message because thats 'mine',but it also
> contains your embarassing original post.

That is certainly true. But not all people who reply leave in the entire
post. Some people do edit out.

> In fact, removing your original, should anyone research the flame war and
> see you deleted it, also shows just how embarrassed you were, adding
> insult to injury :-)

I don't feel it adds further injury. I don't care if anyone sees I'm
embarrassed. If anything, I think that would reflect well on me. A person
*should* be embarrassed about saying inappropriate things.

Anyway, I just thought I'd mention it.

~katelyn~
Bill IL - 28 Mar 2006 13:38 GMT
Thanks Katelyn,

I removed the 3 or so most revealing.  It seems a search for my name
no longer turns those up, though there is a site that mirrors this
group.  It has a moderator so I requested they remove my name and
email.  But it for some reason it still shows up in one more obscure
search engine.

Anyway, now if a small town neighbor googles my name, they probably
won't find all those details, instead of them showing up on page one.

Regards,
Bill
KatelynRain - 30 Mar 2006 08:09 GMT
> Thanks Katelyn,

Sure thing.

> I removed the 3 or so most revealing.  It seems a search for my name
> no longer turns those up,

Good! That must give you a little more peace of mind anyway.

> though there is a site that mirrors this
> group.  It has a moderator so I requested they remove my name and
> email.  But for some reason it still shows up in one more obscure
> search engine.

Hmmm. That IS strange. I don't know why it would do that. Maybe the
moderator didn't follow through on your request. I don't know if it's worth
it to you to contact the person again about it. But at least if it only
shows up in an obscure one, you're better protected than you were before.

> Anyway, now if a small town neighbor googles my name, they probably
> won't find all those details, instead of them showing up on page one.

Oh yeah, that's definitely better. I think at least you can feel more at
ease about it than you did before.

~katelyn~
Alan Meyer - 28 Mar 2006 20:48 GMT
...
> > I googled and found some stuff I would rather not have out there ...
...

Ah, the sins or our youth.  If only I could take back some of those
things I said or did back when ...

> ... Btw, I think it's wise for people NOT to use a real full name
> when posting. ...

I can understand people wanting to post anonymously.

But on the other hand, I have used my real name since I first
began posting in 1993 and so far (knocking on wood) I've never
had a problem.

I like the idea of standing behind what I say rather than speaking
from behind a mask.  I like the idea of knowing the names of the
people I'm corresponding with, and their knowing my name.

I like to think that I'm motivated by an optimistic belief that we
can be who we are and still accept each other.  I also like to
think that we can all be civil and considerate of others online
and not say things that we wouldn't say openly - as if speaking
to people who know us.  I think that we should not post messages
that we will be ashamed of - even if we post pseudonymously.
And if we do let our emotions run away with us, a posted apology
means more in the long run than erasing the post - though erasing
the post might not be a bad thing either.

    Alan
Bill IL - 28 Mar 2006 22:38 GMT
>And if we do let our emotions run away with us, a posted apology
>means more in the long run than erasing the post - though erasing
>the post might not be a bad thing either.
>     Alan

The details of dealing with dementia are not always something for
small town gossip.  Some are understanding and many are not.  I'm glad
to discuss those things here, but not for permanent display for my
whole neighborhood.  The search engines really display everything you
ever said in groups, to everyone, forever.  That kinda changes things.
I think it would sorta squelch open communication here.
Alan Meyer - 29 Mar 2006 03:27 GMT
I understand Bill.

Many of the men using alt.support.cancer.prostate - another
newsgroup I participate in - suffer from incontinence and/or
impotence due to their cancer treatment.  Many men want to
talk about those things in order to get or give advice, but not
all want everyone in the world to know who they are.

Some men very free with this information.  They feel that what
is happening to them is just another part of life - not something
to be ashamed of.

It's a personal decision and I respect all of the persons who
make it - whichever way they decide.

   Alan
tvengineering - 29 Mar 2006 00:03 GMT
Personally, I do not mind giving out my full name and phone number....  I
check into many hotels with my given name, feel free to look me up.

John Doe,
1234 Main Street
Anywhere, USA

1-912-555-1212

I look forward to hearing from all that surf the internet.  Feel Free to
call collect, I accept all charges.

> ...
>> > I googled and found some stuff I would rather not have out there ...
[quoted text clipped - 27 lines]
>
>     Alan
KatelynRain - 30 Mar 2006 07:57 GMT
> I can understand people wanting to post anonymously.
>
> But on the other hand, I have used my real name since I first
> began posting in 1993 and so far (knocking on wood) I've never
> had a problem.
<snip>
> I like to think that I'm motivated by an optimistic belief that we
> can be who we are and still accept each other.  I also like to
> think that we can all be civil and considerate of others online
> and not say things that we wouldn't say openly - as if speaking
> to people who know us.  I think that we should not post messages
> that we will be ashamed of - even if we post pseudonymously.

No, that's not what I meant. Yes, of course people should always strive for
good behavior and civility in an internet forum.

I was thinking more just that the internet is open to the entire world, and
that's millions of people that will have access to identifying info. about
an indvidual if it's given. Unfortunately, as we all know, those numbers can
include some not so mentally stable people....maybe even some who turn out
to pose a threat of some kind. It may not happen commonly, but I feel under
such circumstances, one can never really be too careful. I feel it's always
better to err on the side of caution in such things.

But I will say I do admire your openness Alan. It's refreshing too that you
have an optimistic view of people and I applaud you for making it a
principle of yours to stand so honestly behind your words.

~katelyn~
 
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