Home | Contact Us | FAQ | Search & Site Map | Link to Us
Sign In | Join | Other 45 Sites in Network
Home
Discussion Groups
General
GeneralCardiologyVisionDentistryPharmacyLaboratoryNutritionAlternative
Diseases and Disorders
AIDSAlzheimer'sArthritisAsthmaCancerBreast CancerDiabetesEpilepsyGlaucomaHepatitisHerpesLupusProstate BPHProstate CancerProstatitisSinusitisTinnitus

Medical Forum / Diseases and Disorders / Alzheimer's / January 2006

Tip: Looking for answers? Try searching our database.

I can't do this anymore, it hurts too much

Thread view: 
Enable EMail Alerts  Start New Thread
Thread rating: 
Liz (Aust) - 25 Jan 2006 14:02 GMT
Hi all

This is the 6th week my husband has been in hospital and although he
seemed to have improved physcially the 'fits' as he calls them, they
are episodes which are trance like, have returned, one of them lasting
for 45 minutes.

Today he rang me early and said he wanted me to bring the newspaper in
so he could look for somewhere to live and asked me to ring him back.
When I did he asked me to come to our home and let him get his stuff as
he was being discharged and it was obvious that I did not want him
anymore.

I checked with hospital staff and was told he was NOT being discharged,
even though he was adamant that he gave the papers to the nurse.

When I went to see him this evening he was so upset and kept asking why
I was doing this to him as he said the nurses all told him that he was
still held at the hospital because I would not take him home.

He promised me the house and his pension if I would just let him be
discharged and that he would find a one bedroom place and live on his
own.

This broke my heart to see him so distressed and to have him thinking I
just don't care. Of course he was not rational and was decidedly
paranoid about the nurses and doctors, but he is right in that I have
to say I cannot have him at home to have any chance of his being placed
in a home.

I tried to make him understand it is his safety that concerns me and
that after he is assessed by a geriatrition and a neuropsychologist we
would have more of an understanding of what is going on with him and
this may help with a placement as the Aged Care Assessment Team have
already said he can cope on his own, so we need something further to
have him placed and it is valid for 1 yr.

A grown man crying and asking me what had he done and apologising for
everything was almost too much for me to bear. There was no way I could
make him understand, even though he is still pretty much with it.

He told me he would rather be dead!!! This is not helped by a nurse,
seeing him upset, told him he could discharge himself.

Where do I get the strength to do what must be done? All I wanted to do
was to tell him, yes you can come home. But I do know that not only
would he be not safe here on his own but eventually he will go back to
that nasty, spiteful, paranoid, aggressive person who made my life hell
for so long . It might be a short time or perhaps a long time but it
will happen again, I know this.

I also know that he would be bored and lonely again as he was before
all this started and would most likely revert to his other interests,
being the porn sites on the internet.

If any of you out there are religious perhaps you will say a prayer for
me? I need some strength to get through this time.

Liz

eventually
LJ - 25 Jan 2006 14:17 GMT
My heart breaks for you. I am going through the same symptoms with my
husband but much milder (so far). I will keep you on my prayer list and I
hope you find a way to take care of him & you.
LJ

> Hi all
>
[quoted text clipped - 57 lines]
>
> eventually
carolinasongbird@gmail.com - 25 Jan 2006 16:42 GMT
Liz,

Yes, I will pray for you, but may I also suggest you get some
counseling for yourself if you are not already doing so? This group is
a great support, but it is not the same as talking face to face with
someone. In addition, a good counselor often has a working knowledge of
the social services system and may be able to offer suggestions to
navigate the system.

Songbird
Evelyn Ruut - 25 Jan 2006 19:19 GMT
Liz, you are certainly in my prayers, and I wish there was more we could do
for you.   I don't know if your county has an "office of the aging" or
something similar, but they may be able to help you more.   In any case, I
think the people at the hospital are telling him you won't take him home
just to shut him up when he asks.   Hate to say it that way, but passing the
buck is done all too often.   Stick to your guns and hang in there as long
as you can.   Be as loving to him as you can be and tell him he can't come
home till the doctors know exactly what is wrong with him and until they say
he is really and truly well.   I'd put him off as sweetly as you can, to put
him at ease.   I feel so bad for you both.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

> Hi all
>
[quoted text clipped - 57 lines]
>
> eventually
Dennis P. Harris - 26 Jan 2006 02:47 GMT
> He told me he would rather be dead!!! This is not helped by a nurse,
> seeing him upset, told him he could discharge himself.

You need to IMMEDIATELY report this idiot to a supervisor!
She/he had no business telling him that, especially given his
mental condition.  Only a doc can tell him that he can do so.
Dennis P. Harris - 26 Jan 2006 02:49 GMT
> Where do I get the strength to do what must be done? All I wanted to do
> was to tell him, yes you can come home. But I do know that not only
> would he be not safe here on his own but eventually he will go back to
> that nasty, spiteful, paranoid, aggressive person who made my life hell
> for so long . It might be a short time or perhaps a long time but it
> will happen again, I know this.

Join a support group!  Surely there is an alzheimer's association
in Oz?  Contact them and ask about support groups, since you
obviously really need one.  The hospital's social worker may know
of other support groups.
Liz (Aust) - 26 Jan 2006 09:47 GMT
Dennis

I am sorry if I seem to have annoyed you by seeking solace here. I
thought it was a support group but perhaps only for certain people.

I won't trouble you again.
Bye
Evelyn Ruut - 26 Jan 2006 11:48 GMT
> Dennis
>
[quoted text clipped - 3 lines]
> I won't trouble you again.
> Bye

Dear Liz,

Dennis may be brusque but his heart is in the right place and he certainly
has given you good advice.  Please don't misunderstand his intent.   I have
been posting here for about 5 years now, and I consider him a knowledgeable
and caring addition to this newsgroup.

Think about what he said, because it was good advice.

((( hugs ))))

We all realize you are going through an awful time.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

carolinasongbird@gmail.com - 26 Jan 2006 14:37 GMT
Liz, Dennis' advice was sound. This IS a support group -- but nothing
can replace a face to face group with people who know the system where
YOU are. An off-line support group can help you learn which doctors are
helpful and which are jerks, which homes are great and which are
warehouses, government programs that you can access if you do it just
so.

Dennis wasn't saying don't come here. You asked where you could get the
strength, and he made a solid suggestion. Maybe it wasn't coated in the
most flowery language -- but that's not Dennis. Dennis is our resident
speak it like it is, no frills, guy, and he serves an important purpose
when we all need bracing up.

Songbird
Mary_Gordon@tvo.org - 26 Jan 2006 17:25 GMT
Liz, he didn't mean any criticism of YOU. Great heavenly day, my
reaction was the same as his - anger on your behalf.  Hospital staff
have no business contributing to your distress, and telling a patient
with cognitive and emotional impairment due to brain damage that they
can just leave if they feel like it is extremely irresponsible.

As the medical team is in the middle of assessing his competence,
nurses should keep their lips zipped. I would have been furious if
staff had been encouraging my mother in law (who had Alzheimer's) to
just walk out of the facility. Even relatives who said stuff like that
to her made problems, never mind an authority figure like a nurse
(Norah says I'm fine and you are being mean to me...ay carumba!!).  The
results of some nurse or doctor telling her she was free to go could
have been catastrophic, as I know you fear for your husband. If he took
them on their word, and he went out the door, he would not be safe. The
nursing staff needs to be a little more sensitive regarding any person
where competency is in question. Its no different than telling a 5 year
old they can walk out the door if they feel like it. Aieee!!!

Hang in, hang on. The longer he's in there, the more the nurses and
doctors will SEE for themselves what you have experienced.

M.
Dennis P. Harris - 27 Jan 2006 07:52 GMT
> Liz, he didn't mean any criticism of YOU.

thank you mary!  your're right, my criticism was of the behavior
of that nurse.  perhaps i shouldn't have shouted, but my shout
was of indignation and alarm at the stupid (no other word for it)
hospital staff.  

> Great heavenly day, my
> reaction was the same as his - anger on your behalf.  Hospital staff
[quoted text clipped - 4 lines]
> As the medical team is in the middle of assessing his competence,
> nurses should keep their lips zipped.

i hope that she will ask the nurse's supervisor to tell staff
that they need to be very careful when speaking to patients who
can easily become obsessive.

and as far as the support group was concerned... she was asking
about where to find support, and i suggested trying to find a
local group, who collectively will have considerable experience
jumping through the hoops of the local medical care system, and
will know of other local resources.  

i certainly did NOT mean that she wasn't welcome here, but local
support groups can provide a completely different kind of support
than we can here.  they're complimentary.

i hope that she really didn't go away.
Evelyn Ruut - 27 Jan 2006 12:38 GMT
>> Liz, he didn't mean any criticism of YOU.
>
[quoted text clipped - 27 lines]
>
> i hope that she really didn't go away.

I hope not too, and many of us have spoken out to reassure her......

I must say.....people can expect to hear the real truth when they come here,
one way or another.   Some
have left when that happened, but I don't think it was any of our "fault"
for that.

Perhaps she'll realize that all of us here genuinely care, and return.
Perhaps not.

Whichever way it goes, I don't think anyone here is to blame.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

Dancing Queen - 27 Jan 2006 03:21 GMT
> Dennis
>
[quoted text clipped - 3 lines]
> I won't trouble you again.
> Bye

liz, i dont think he meant that, i think he meant join a support gropu AS
WELL!  give him the benefit of the doubt huh?

as for your situation, your poor thing, it is just awful.  I really feel for
you, and you will be in my thoughts, i dont really have any answers

christine in melbourne
Gwen Love - 26 Jan 2006 21:41 GMT
Liz, you are on my prayer list.  I hurt for you.
Gwen

> Hi all
>
[quoted text clipped - 57 lines]
>
> eventually
 
Sign In
Join
My Latest Posts
My Monitored Threads
My Blog
My Photo Gallery
My Profile
My Homepage

Start New Thread
Enable EMail Alerts
Rate this Thread



©2008 Advenet LLC   Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.