Medical Forum / Diseases and Disorders / Alzheimer's / January 2006
Back to square one
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owliz@hotmail.com - 13 Jan 2006 07:47 GMT Hi group
For any that have been follwoing my posts my husband was admitted to hospital over 4 weeks agao as stiff as a board and went downhill from there, to the point where he could not drink his tea and was eating with his fingers.
He couldn't speak well, was not making sense and was confused. He was told he had Parkinson's disease a few years ago, then Parkinsons's Plus and then dementia with Lewy Bodies
All the doctors and the social workers said place him in a home and after much soul searching and advice I decided I should do that and reclaim my life. Once I made that decision I felt much better, especially as he could be really agressive and spiteful, irrational and paranoid, which I know are part of the dementia.
Anyway they came to assess him to see if he should be placed and the assessor decided he could care for himself at home.
Now I have been in contact with his doctors and the Social Worker and have said I cannot have him home but they are now not sure if he has dementia because his improvement was a rapid as his decline and he can function pretty well at the moment.
So they have to see what they can do to force him to be placed. They are not sure if his condition is a mental health issue rather that dementia.
I told the social worker if he is released to come home I will probably have to leave my home because of his aggression and the fact he blames me for everything.
I went to visit yesterday and was only there 30 mins, which was 30 minutes of him ranting and raving, before I left as I knew I was not going to make him understand that I did nothing to him.
Today I did not go and visit him as I have had enough, I do not need his abuse and yes I do understand it is not him his brain is damaged, but I still do not need it today.
So now things are up in the air again.
So much for me finally having a life!
Thanks for listening
Liz (Sydney Australia)
Tumbleweed - 13 Jan 2006 08:11 GMT Sounds like you need a lawyer :-(
 Signature Tumbleweed
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> Hi group > [quoted text clipped - 44 lines] > > Liz (Sydney Australia) owliz@hotmail.com - 13 Jan 2006 08:48 GMT Hi Tumbleweed
Yes I am sad to say you could be right. We separated just before this 'espisode' happened but were still living under the same roof.
He had already hired a lawyer as he already had plans to take everything he could get from me. I had hoped that we could at least live in the same house and see how things went because his health was not good.
He believed because of the Parkinson's Plus diagnosis that he was dying and was obsessed with porn and sex, having prostitutes in our home before we separated.
I have supported him fully for nearly 18 years but he also became obsessed with money as well and became paranoid and nasty accusing me of stealing money from him amongst other things.
He has had an MRI that showed moderate atrophy to the frontal and cerebral lobes and as his behaviour was classic frontal lobe dementia I thought that all this was his illness.
He has improved so much physically that he may in fact be able to care for himself as much as he did before the hospitalisation but even that was only with my help. I am in despair as I cannot handle all that drama again.
Liz
> Sounds like you need a lawyer :-( > [quoted text clipped - 51 lines] > > > > Liz (Sydney Australia) Tumbleweed - 13 Jan 2006 09:06 GMT > Hi Tumbleweed > [quoted text clipped - 24 lines] > > Liz Given all that, I'd say there is no 'could be' about it, you do need one, a sad state of affairs to get to I know :-( I'd have thought the first thing they would be able to do is prevent his return purely on the grounds of the danger to you. Please dont even consider anything less, who knows what could happen, even if there is no violence towards you, it doensnt exactly sound like a mentally healthy environment in which to live,and with a damaged brain who knows what he might do in the future? Hopefully that means you wont be in despair because, as bad as things are, at least you wont be going back to that situation again. Once that is sorted you can then look at longer term issues but you need a stable home environment first in order to be able to think clearly.
An aquaintance of mine recently ended up in hospital because she was too damn stupid not to prosecute or move out after the first slap*. You have had the warning, **please** act on it :-(
 Signature Tumbleweed
* I dont blame her for being hit, but she could have moved out of that dangerous environment and that was stupid.
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Evelyn Ruut - 13 Jan 2006 12:27 GMT Liz, Tumbleweed is right. You do need a lawyer. Don't take him back into the home no matter what. I don't have any practical advice on how to go about it, but it seems pretty clear that this would be trouble for you if you did.
 Signature Best Regards,
Evelyn (to reply to me personally, remove 'sox')
>> Hi Tumbleweed >> [quoted text clipped - 41 lines] > damn stupid not to prosecute or move out after the first slap*. You have > had the warning, **please** act on it :-( augustwestern - 14 Jan 2006 02:57 GMT > He believed because of the Parkinson's Plus diagnosis that he was dying > and was obsessed with porn and sex, having prostitutes in our home [quoted text clipped - 3 lines] > obsessed with money as well and became paranoid and nasty accusing me > of stealing money from him amongst other things. Eighteen years and all the other crap?
If I tried any of the above for even 15 minutes, assuming I lived, I'd be in the trauma unit and there would be no doubt that I'd be needing serious long term care for my head injuries. You get my award for service above and beyond the call of duty.
best, AW
Adelle - 13 Jan 2006 13:56 GMT Hi, Liz;
Not sure how the Aussie system worked re:this. In US, MIL went to attorney who advised her not to accept discharge from hospital.
Who are the 'they' that assessed your husband? Did this include his neurologist? Frontal Lobe patients sound very together for 15 or so minutes, but hang in there for an hour and you can see how disconnected from reality they are. There must be some way of appealing this and you should do so. Starting proceedings to commit him for psychiatric evaluation is another route.
Either way, you need an attorney specializing in elder issues and guardianships.
Adelle (a family law atty in an incarnation prior to motherhood)
> Hi group > [quoted text clipped - 44 lines] > > Liz (Sydney Australia) owliz@hotmail.com - 13 Jan 2006 23:27 GMT Hi Adelle
The 'they' that assessed him are called the Aged Care Assessment Team' and they make the decision as to whether he can be placed in a nursing home and if 'they' say no he doesn't need that then you get no Government support in terms of the fees etc and there is no way of forcing him into a placement.
The doctors are trying to keep him there as long as possible and I have told them I WILL NOT take him back here and that I will have to LEAVE if they release him and on their heads be it if he hurts himself or anyone else. However in Australia and in particular in NSW they have very few places for mentally ill people as they decided many years ago to see the institutions (Hospitals) and that most of those who were patients could go into the community into group homes.
The problem is the group homes never eventuated either so there are a huge number of mentally ill people living in one room boarding houses in squalor and many more living on the streets.
As we are joint tenants in this house the only way I can stop him from being here would be to have him committed to a psyc hospital and for that I must prove he is a danger to himself or others, which is what I think they are currently using to keep him in hospital.
Problem is that they way the system works here they keep them in hospital for a day or so and then let them out again and that just makes matters worse.
So it appears my only real solution is to leave my home and then start proceedings for a settlement, which means for me that I lose half of everything I have worked for, the home, my super and my savings and possibly more since they take into account his future needs and he cannot work and is only 55 and I can and I am 48.
I have done nothing but love and care for him for 25 years and work full time for our future and that is what I get for my efforts.
I KNOW money is not the important thing, my safety is, but it really sucks.
Yes I know I must see a lawyer but have not been able to do it yet but will make it my priority next week. Liz
> Hi, Liz; > [quoted text clipped - 61 lines] > > > > Liz (Sydney Australia) Adelle - 14 Jan 2006 18:59 GMT Liz,
So sorry about this situation. Your situation truly requires a good atty.
I only have a few moments to type, so this will have to be short -
You have another option in terms of the legalities. You can have a legal separation. It allows you to live separate and apart without a divorce. (if that is available in Australia. It comes from English Common Law, so I would imagine it is unless it was abolished in favor of outright divorce). And if you have a guardianship hearing and can become legal guardian of both him and his assets, you can protect the funds, though you will have to pay for his care. It's probably more important to do the guardianship first.
This will feed into the paranoia. No way around that.
Start keeping a log. Every wild accusation and moment. Every threat against you. Every fantastical scenario. Write it as dispassionately as you can, as if you are observing a stranger. I know it's hard. But it's time to start creating the files you need to protect the both of you.
Adelle
> Hi Adelle > [quoted text clipped - 109 lines] >> > >> > Liz (Sydney Australia) Karen - 15 Jan 2006 14:58 GMT Liz, one piece of advice I haven't seen here that might help you in any legal proceeding is to record the visits, the rants, etc. Sometimes what merely sounds uncomfortable on paper sounds very threatening when heard. Given his age, I can see why they may not choose to place him in an aged care facility, but it does sound like a mental health issue. The docs might even help you place a hidden camera to help capture the threatening behavior needed to provide an honest assessment of his _total_ behavior, not just his "company manners".
If you don't have facilities close by, is there any way he could be placed in mental health care outside of your district? Even if you had to travel a bit to visit, it would be better than the road you're facing. If you did pursue divorce and they divided your assets, it doesn't sound like he would be able to manage what he received. In modern society, it doesn't take long for someone to lose most of their assets through simply not taking care of business.
In the end, I have to say you are better off with half of what you've worked for and in good health versus all of your assets intact but you physically disabled or dead due to an attack from him. As one of life's situations, it sucks buckets. But most people don't realize how quickly a mentally ill person can become a danger to those around him. A divorce attorney might have better luck treating this as a domestic violence issue.
Karen
> Hi Adelle > [quoted text clipped - 40 lines] > will make it my priority next week. > Liz
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