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Medical Forum / Diseases and Disorders / Alzheimer's / January 2006

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owliz@hotmail.com - 13 Jan 2006 07:47 GMT
Hi group

For any that have been follwoing my posts my husband was admitted to
hospital over 4 weeks agao as stiff as a board and went downhill from
there, to the point where he could not drink his tea and was eating
with his fingers.

He couldn't speak well, was not making sense and was confused. He was
told he had Parkinson's disease a few years ago, then Parkinsons's Plus
and then dementia with Lewy Bodies

All the doctors and the social workers said place him in a home and
after much soul searching and advice I decided I should do that and
reclaim my life. Once I made that decision I felt much better,
especially as he could be really agressive and spiteful, irrational and
paranoid, which I know are part of the dementia.

Anyway they came to assess him to see if he should be placed and the
assessor decided he could care for himself at home.

Now I have been in contact with his doctors and the Social Worker and
have said I cannot have him home but they are now not sure if he has
dementia because his improvement was a rapid as his decline and he can
function pretty well at the moment.

So they have to see what they can do to force him to be placed. They
are not sure if his condition is a mental health issue rather that
dementia.

I told the social worker if he is released to come home I will probably
have to leave my home because of his aggression and the fact he blames
me for everything.

I went to visit yesterday and was only there 30 mins, which was 30
minutes of him ranting and raving, before I left as I knew I was not
going to make him understand that I did nothing to him.

Today I did not go and visit him as I have had enough, I do not need
his abuse and yes I do understand it is not him his brain is damaged,
but I still do not need it today.

So now things are up in the air again.

So much for me finally having a life!

Thanks for listening

Liz (Sydney Australia)
Tumbleweed - 13 Jan 2006 08:11 GMT
Sounds like you need a lawyer :-(

Signature

Tumbleweed

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

> Hi group
>
[quoted text clipped - 44 lines]
>
> Liz (Sydney Australia)
owliz@hotmail.com - 13 Jan 2006 08:48 GMT
Hi Tumbleweed

Yes I am sad to say you could be right. We separated just before this
'espisode' happened but were still living under the same roof.

He had already hired a lawyer as he already had plans to take
everything he could get from me. I had hoped that we could at least
live in the same house and see how things went because his health was
not good.

He believed because of the Parkinson's Plus diagnosis that he was dying
and was obsessed with porn and sex, having prostitutes in our home
before we separated.

I have supported him fully for nearly 18 years but he also became
obsessed with money as well and became paranoid and nasty accusing me
of stealing money from him amongst other things.

He has had an MRI that showed moderate atrophy to the frontal and
cerebral lobes and as his behaviour was classic frontal lobe dementia I
thought that all this was his illness.

He has improved so much physically that he may in fact be able to care
for himself as much as he did before the hospitalisation but even that
was only with my help. I am in despair as I cannot handle all that
drama again.

Liz

> Sounds like you need a lawyer :-(
>
[quoted text clipped - 51 lines]
> >
> > Liz (Sydney Australia)
Tumbleweed - 13 Jan 2006 09:06 GMT
> Hi Tumbleweed
>
[quoted text clipped - 24 lines]
>
> Liz

Given all that, I'd say there is no 'could be' about it, you do need one, a
sad state of affairs to get to I know :-(
I'd have thought the first thing they would be able to do is prevent his
return purely on the grounds of the danger to you. Please dont even consider
anything less, who knows what could happen, even if there is no violence
towards you, it doensnt exactly sound like a mentally healthy environment in
which to live,and with a damaged brain who knows what he might do in the
future? Hopefully that means you wont be in despair because, as bad as
things are, at least you wont be going back to that situation again.
Once that is sorted you can then look at longer term issues but you need a
stable home environment first in order to be able to think clearly.

An aquaintance of mine recently ended up in hospital because she was too
damn stupid not to prosecute or move out after the first slap*. You have had
the warning, **please** act on it  :-(
Signature

Tumbleweed

* I dont blame her for being hit, but she could have moved out of that
dangerous environment and that was stupid.

email replies not necessary but to contact use;
tumbleweednews at hotmail dot com

Evelyn Ruut - 13 Jan 2006 12:27 GMT
Liz, Tumbleweed is right.   You do need a lawyer.  Don't take him back into
the home no matter what.
I don't have any practical advice on how to go about it, but it seems pretty
clear that this would be trouble for you if you did.

Signature

Best Regards,

Evelyn
(to reply to me personally, remove 'sox')

>> Hi Tumbleweed
>>
[quoted text clipped - 41 lines]
> damn stupid not to prosecute or move out after the first slap*. You have
> had the warning, **please** act on it  :-(
augustwestern - 14 Jan 2006 02:57 GMT
> He believed because of the Parkinson's Plus diagnosis that he was dying
> and was obsessed with porn and sex, having prostitutes in our home
[quoted text clipped - 3 lines]
> obsessed with money as well and became paranoid and nasty accusing me
> of stealing money from him amongst other things.

Eighteen years and all the other crap?

If I tried any of the above for even 15 minutes, assuming I lived, I'd be in
the trauma unit and there would be no doubt that I'd be needing serious long
term care for my head injuries.  You get my award for service above and
beyond the call of duty.

best,   AW
Adelle - 13 Jan 2006 13:56 GMT
Hi, Liz;

Not sure how the Aussie system worked re:this. In US, MIL went to attorney
who advised her not to accept discharge from hospital.

Who are the 'they' that assessed your husband? Did this include his
neurologist? Frontal Lobe patients sound very together for 15 or so minutes,
but hang in there for an hour and you can see how disconnected from reality
they are. There must be some way of appealing this and you should do so.
Starting proceedings to commit him for psychiatric evaluation is another
route.

Either way, you need an attorney specializing in elder issues and
guardianships.

Adelle (a family law atty in an incarnation prior to motherhood)

> Hi group
>
[quoted text clipped - 44 lines]
>
> Liz (Sydney Australia)
owliz@hotmail.com - 13 Jan 2006 23:27 GMT
Hi Adelle

The 'they' that assessed him are called the Aged Care Assessment Team'
and they make the decision as to whether he can be placed in a nursing
home and if 'they' say no he doesn't need that then you get no
Government support in terms of the fees etc and there is no way of
forcing him into a placement.

The doctors are trying to keep him there as long as possible and I have
told them I WILL NOT take him back here and that I will have to LEAVE
if they release him and on their heads be it if he hurts himself or
anyone else. However in Australia and in particular in NSW they have
very few places for mentally ill people as they decided many years ago
to see the institutions (Hospitals) and that most of those who were
patients could go into the community into group homes.

The problem is the group homes never eventuated either so there are a
huge number of mentally ill people living in one room boarding houses
in squalor and many more living on the streets.

As we are joint tenants in this house the only way I can stop him from
being here would be to have him committed to a psyc hospital and for
that I must prove he is a danger to himself or others, which is what I
think they are currently using to keep him in hospital.

Problem is that they way the system works here they keep them in
hospital for a day or so and then let them out again and that just
makes matters worse.

So it appears my only real solution is to leave my home and then start
proceedings for a settlement, which means for me that I lose half of
everything I have worked for, the home, my super and my savings and
possibly more since  they take into account his future needs and he
cannot work and is only 55 and I can and I am 48.

I have done nothing but love and care for him for 25 years and work
full time for our future and that is what I get for my efforts.

I KNOW money is not the important thing, my safety is, but it really
sucks.

Yes I know I must see a lawyer but have not been able to do it yet but
will make it my priority next week.
Liz

> Hi, Liz;
>
[quoted text clipped - 61 lines]
> >
> > Liz (Sydney Australia)
Adelle - 14 Jan 2006 18:59 GMT
Liz,

So sorry about this situation. Your situation truly requires a good atty.

I only have a few moments to type, so this will have to be short -

You have another option in terms of the legalities. You can have a legal
separation. It allows you to live separate and apart without a divorce. (if
that is available in Australia. It comes from English Common Law, so I would
imagine it is unless it was abolished in favor of outright divorce). And if
you have a guardianship hearing and can become legal guardian of both him
and his assets, you can protect the funds, though you will have to pay for
his care. It's probably more important to do the guardianship first.

This will feed into the paranoia. No way around that.

Start keeping a log. Every wild accusation and moment. Every threat against
you. Every fantastical scenario. Write it as dispassionately as you can, as
if you are observing a stranger. I know it's hard. But it's time to start
creating the files you need to protect the both of you.

Adelle

> Hi Adelle
>
[quoted text clipped - 109 lines]
>> >
>> > Liz (Sydney Australia)
Karen - 15 Jan 2006 14:58 GMT
Liz, one piece of advice I haven't seen here that might help you in any
legal proceeding is to record the visits, the rants, etc.  Sometimes what
merely sounds uncomfortable on paper sounds very threatening when heard.
Given his age, I can see why they may not choose to place him in an aged
care facility, but it does sound like a mental health issue.  The docs might
even help you place a hidden camera to help capture the threatening behavior
needed to provide an honest assessment of his _total_ behavior, not just his
"company manners".

If you don't have facilities close by, is there any way he could be placed
in mental health care outside of your district?  Even if you had to travel a
bit to visit, it would be better than the road you're facing.  If you did
pursue divorce and they divided your assets, it doesn't sound like he would
be able to manage what he received.  In modern society, it doesn't take long
for someone to lose most of their assets through simply not taking care of
business.

In the end, I have to say you are better off with half of what you've worked
for and in good health versus all of your assets intact but you physically
disabled or dead due to an attack from him.  As one of life's situations, it
sucks buckets.  But most people don't realize how quickly a mentally ill
person can become a danger to those around him.  A divorce attorney might
have better luck treating this as a domestic violence issue.

Karen

> Hi Adelle
>
[quoted text clipped - 40 lines]
> will make it my priority next week.
> Liz
 
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