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Medical Forum / Diseases and Disorders / Alzheimer's / November 2005

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A Different Story

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June - 28 Nov 2005 14:28 GMT
My mother went to her first assessment at the assisted living where she will
be moving to next month.   The questions that she was asked were mostly yes
and no.   Mom sounded perfectly normal even though she lied a lot in her
answers.   I could tell this woman was believing my mother was in fairly
good shape.   She even commented on how nice Mom's skin looked.   Bathing is
a big issue with my mother and her doctor had previously said she could tell
that Mom wasn't bathing by the look of her skin.    I was afraid that they
would expect Mom to be able to do more than she can.  Finally I just looked
the nurse in the eye and said don't be fooled-- she's in the latter stages
of dementia.   My mother said nothing because she either didn't hear or more
probably she couldn't process what I was saying.   She will be going to the
doctor for a checkup too and her new doctor picked up on the dementia pretty
quick last time she was there.  Hopefully her physical will be more telling
than her interview with the AL nurse.   Since Mom is going to Assisted
Living I checked with her eye doctor who is also my optometrist about her
glaucoma.   I was told that it is stable and that the tests she took showed
her vision was not deteriorating.   They said it was very surprising that
someone with dementia could actually do as well as mom did.   You have to
push a button when you see a pin point light in  your peripheral vision.   I
even have trouble with that test!   My brother has been letting mom take her
own eye drops and I even checked her prescription and she's right where she
should be on the bottle she's using.   I too have to take eye drops so I'm
familiar with the whole thing.
At our family reunion a few months ago, I was talking to the husband of my
mother's cousin.   I thanked him for helping me with some of the details of
getting the reunion together.   He talked to me about his wife's dementia
and told him I had noticed it a couple of years ago and that was why I had
been contacting him instead of her (as I usually did) about the getting the
building rented.   He looked astonished.   He said "You knew?"  I said yes
I'd know that look anywhere because  Mom's had dementia since '93.   Sadly
he said he didn't pick up on his wife's dementia back then.   Now she can't
even dress herself.
I thought I'd post my experiences with my mother's dementia since they seem
to be out of the "normal"  ......June
LJ - 28 Nov 2005 14:46 GMT
thank you for sharing what is going on. It is amazing how differently this
disease attacks

Linda Jean
> My mother went to her first assessment at the assisted living where she will
> be moving to next month.   The questions that she was asked were mostly yes
[quoted text clipped - 30 lines]
> I thought I'd post my experiences with my mother's dementia since they seem
> to be out of the "normal"  ......June
Evelyn Ruut - 28 Nov 2005 14:59 GMT
> My mother went to her first assessment at the assisted living where she
> will be moving to next month.   The questions that she was asked were
[quoted text clipped - 31 lines]
> I thought I'd post my experiences with my mother's dementia since they
> seem to be out of the "normal"  ......June

June, yes, that is definitely unusual in the progression of the illness from
what I can see.   But I think it all depends on the specific kind of
dementia the person has.   For some it comes from mini-strokes, and the
deficits depend on what region of the brain is affected.   For others the
deterioration happens from the front of the brain going towards the back,
and those persons often show particular symptoms first.   Then there is a
kind where the illness starts at the back of the brain and goes towards the
front.

If I have been informed correctly there are probably fifty different kinds
of dementia!   Some are actually reversible, such as NPH, or those caused by
thyroid problems, which is why we always suggest thorough medical testing at
the first sign.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Mary_Gordon@tvo.org - 28 Nov 2005 19:01 GMT
At our family reunion a few months ago, I was talking to the husband of
my
mother's cousin.   I thanked him for helping me with some of the
details of
getting the reunion together.   He talked to me about his wife's
dementia
and told him I had noticed it a couple of years ago and that was why I
had
been contacting him instead of her (as I usually did) about the getting
the
building rented.   He looked astonished.   He said "You knew?"  I said
yes
I'd know that look anywhere because  Mom's had dementia since '93.
Sadly
he said he didn't pick up on his wife's dementia back then.   Now she
can't
even dress herself.

Mary responds:
It really is true that once you've really seen dementia in a loved one,
you are forever MUCH more aware of subtle signs in other people. Its
like a tingly sixth sense you get, isn't it? Things that you would have
been oblivious to prior to your experience stick out like a sore thumb
and you just know there is something funny going on with the person,
often long before their own family clues in.

M
Lesanne - 28 Nov 2005 19:25 GMT
This is not really all that strange I don't think. If someone asked my Mom
yes or no questions she would absolutely respond in some way. She is in late
stage by some scales, and other stages with a few behaviors (like she still
makes the bathroom about 75% of the time). She would not eat at all if we
did not present it to her. She is beginning to have difficulty walking. She
does not understand most of what is said to her, and when she speaks more
than a word or two it is gibberish, but she still remembers to dental floss
her teeth.

Signature

Lesanne

> My mother went to her first assessment at the assisted living where she
> will be moving to next month.   The questions that she was asked were
[quoted text clipped - 31 lines]
> I thought I'd post my experiences with my mother's dementia since they
> seem to be out of the "normal"  ......June
 
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