Medical Forum / Diseases and Disorders / Alzheimer's / December 2005
looking for info
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LJ - 26 Nov 2005 17:32 GMT on people continuing to work after a diagnosis of EOAD I have tried to Google it but can't seem to find much. Does anybody have any ideas for me? Linda Jean
Mary_Gordon@tvo.org - 27 Nov 2005 03:47 GMT I think its so individual and dependent on the stage of the illness AND what the person did/does for a living, that you are not going to find much.
Obviously, there are some large employers, such as mine, who have good insurance for employees who develop long term disabilities. For my company, its cheaper for the company to find some form of employment for them than have them sit home especially if they want to work - its better for everyone to keep someone working - but we're a big firm with all kinds of jobs. We have company rehab specialists whose job it is to figure out accomodated employment for people with disabilities (for example, they may find people with physical injuries desk jobs, send them for retraining, figure out ways to adapt the jobs with specialized equipment, etc. I work for a very large utility company, and traditionally, many men who could not longer do heavy tradeswork ended up as dispatchers, meter readers, schedulers etc. One of my staff is a terrific guy who lost both arms above the elbow in a terrible electrical accident about 15 years ago (he was a young lineman at the time) and he currently works for my group as an environmental technician.
That scenario isn't possible for many companies, and just not workable for small ones. Its also a huge problem for someone with AD who may not be able to learn new skills, even simple ones. If your husband made his living with his brain in a job that required a lot of thinking, accuracy, speed, etc. he's in trouble a lot sooner than someone who does a physical job like a tradesman who could work alongside someone who could prompt them with tasks, or someone who has repetitive job where the prompts are kind of inherant (i.e. here comes another car down the assembly line and my job is to tighten the wheel nuts on every drivers side wheel.
There was an article recently in the paper about an elderly woman with who continued to work at a fast food restaurant long into her Alzheimer's. I think she'd just done it so long prior to getting AD, that it was second nature. The work was relatively simple, repetitive and she was probably on auto-pilot.
M
LJ - 27 Nov 2005 16:46 GMT my husband is an aerospace engineer for an international aircraft company
:::sigh::: It will be interesting to see how they react. <wink> Making an error in an airplane would be a bit of a problem hahaha
Linda Jean
> There was an article recently in the paper about an elderly woman with > who continued to work at a fast food restaurant long into her [quoted text clipped - 3 lines] > > M Mary_Gordon@tvo.org - 27 Nov 2005 19:41 GMT That's what I thought he did. I just don't know how he could do any part of his old job with a cognitive impairment. Accuracy, attention to detail, logic, reasoning - its how he made his living, as opposed to a guy who runs the floor cleaning machine at the mall, who can probably keep working well into the illness.
Mary G.
LJ - 28 Nov 2005 00:12 GMT that is what I think too but he believes Aricept will enable him to work. My poor darling thinks the drugs will give him back what is lost.
Linda Jean
> That's what I thought he did. I just don't know how he could do any > part of his old job with a cognitive impairment. Accuracy, attention to [quoted text clipped - 3 lines] > > Mary G. Gwen Love - 28 Nov 2005 01:15 GMT Linda Jean, how I wish he were right! Gwen
> that is what I think too but he believes Aricept will enable him to work. > My [quoted text clipped - 8 lines] >> >> Mary G. LJ - 28 Nov 2005 01:31 GMT me too 56 is so young
Linda Jean
> Linda Jean, how I wish he were right! > Gwen [quoted text clipped - 3 lines] > > My > > poor darling thinks the drugs will give him back what is lost. Evelyn Ruut - 28 Nov 2005 13:01 GMT > that is what I think too but he believes Aricept will enable him to work. > My > poor darling thinks the drugs will give him back what is lost. > > Linda Jean Linda Jean,
The drugs will help, only just that. But I am sad to say that I don't know how much. Some have said they were a big help, some not at all. In any case, I truly doubt very much that they will help enough that he could work again in a full capacity, but lets be hopeful they help some.
And yes, 56 is way too young for this rotten illness.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
>> That's what I thought he did. I just don't know how he could do any >> part of his old job with a cognitive impairment. Accuracy, attention to [quoted text clipped - 3 lines] >> >> Mary G. Mary_Gordon@tvo.org - 28 Nov 2005 23:50 GMT LJ, if he is really determined to work, it might be an idea to have a full assessment of his impairments (like the testing they do on kids for learning problems).
I currently have an employee who had a stroke two years ago at the age of 50 and was off work until last April. In THEORY he is fully recovered, and he doesn't have any obvious physical or mental deficits, but he is really struggling with normal work activities. His doctor never sent him for any testing for cognitive impairments, and this has become a real problem for all of us.
He gets very easily overwhelmed and upset. He gets hung up on extraneous details and gets side tracked (i.e. he can't seem to focus on the job at hand and gets into the weeds worrying about things that seem minor). He can't handle more than one thing at a time (and this from a guy who used to juggle more balls than a circus performer). He won't travel - and this was a big part of his job. He can't seem to figure things out on his own and is driving coworkers nuts with his dependency - our dispatcher sits next to me, and he's calling her 15 times a day and she's TRYING to be patient with him but is reaching the end of her rope. Its hard on the entire team since we don't know when we can rely on him.
The challenge for me is that I don't have a clue what I'm looking at with the guy - whether he is having emotional/psychological problems, or if he was left with subtle impairments, or maybe even some kind of linear combination of the two. I'm fairly certain its the former - he has mental damage, and the emotional issues are a result of losses/impairments he may not even be consciously aware of, but that make things difficult and upsetting for him. If I KNEW what the deficits were, I might be able to figure out what work he can handle with the help of a rehab specialist - he'd feel less insecure and upset, and I'd know what his limits were (i.e. what to realistically expect in terms of abilities).
M
LJ - 29 Nov 2005 00:41 GMT snip:He gets very easily overwhelmed and upset. He gets hung up on extraneous details and gets side tracked (i.e. he can't seem to focus on the job at hand and gets into the weeds worrying about things that seem minor). He can't handle more than one thing at a time (and this from a guy who used to juggle more balls than a circus performer). this sounds like my husband We have done the Neuro-Physc test, pet scan, ct scan, 2 mri and more blood work than you could believe. We go back to the new Neuro in Dec 15th for her opinions on all this. I admit I am worried about how this will go. He seems pretty fine unless you quiz him hard then he falls apart. I sure hope something gets done finally. This waiting not knowing what will happen to us is very hard to deal with for months on end
LJ
> LJ, if he is really determined to work, it might be an idea to have a > full assessment of his impairments (like the testing they do on kids > for learning problems). Karen - 29 Nov 2005 01:25 GMT LJ, has your hubby had a head injury or did he play a lot of football in college? I ask because my MIL had EOAD and she had a skull fracture some time back. We were told that head injuries increase the risk and frequently accelerate the onset. And yes, this could describe her for a couple of years before the problems became apparent.
Karen
> snip:He gets very easily overwhelmed and upset. He gets hung up on > extraneous details and gets side tracked (i.e. he can't seem to focus [quoted text clipped - 14 lines] > > full assessment of his impairments (like the testing they do on kids > > for learning problems). Gwen Love - 29 Nov 2005 03:40 GMT My husband's brother hit him in the head during a fight when they were teenagers; put him in the hospital overnight. We think maybe that's the reason he had AD. Gwen
> LJ, has your hubby had a head injury or did he play a lot of football in > college? I ask because my MIL had EOAD and she had a skull fracture some [quoted text clipped - 27 lines] >> > full assessment of his impairments (like the testing they do on kids >> > for learning problems). LJ - 29 Nov 2005 14:32 GMT oh Lord that must be an awful burden
LJ
> My husband's brother hit him in the head during a fight when they were > teenagers; put him in the hospital overnight. > We think maybe that's the reason he had AD. > Gwen LJ - 29 Nov 2005 14:32 GMT no to both but he did 3 tours in Nam and doesn't talk about it so who knows. He uses the wrong words, he gets angry trying to fill out forms, he used to begin phone conversations with insurance people or doctors and gets frustrated and hand me the phone and walk away. There are days every once in awhile where he just sits looking bewildered and lost, telling me he can't concentrate. With no family history this is all a bit harder
Linda Jean
> LJ, has your hubby had a head injury or did he play a lot of football in > college? I ask because my MIL had EOAD and she had a skull fracture some [quoted text clipped - 3 lines] > > Karen Ruth - 01 Dec 2005 03:46 GMT The frustration you mentioned about filling out forms rang a bell. That was one of the first things I noticed with Larry. He also had lots of trouble following written directions. In both cases he would read, reread several times, and overanaylyze each phrase til it was a confused mess. How frustrating for our loved ones. Heartbreaking, isn't it? Ruth
> no to both but he did 3 tours in Nam and doesn't talk about it so who > knows. [quoted text clipped - 6 lines] >> LJ, has your hubby had a head injury or did he play a lot of football in >> college? <snip> LindaJean - 01 Dec 2005 14:11 GMT Yes that is just as my husband is. It is very confusing for me to know when he needs me to step in and when he is okay.
Linda Jean
> The frustration you mentioned about filling out forms rang a bell. That > was one of the first things I noticed with Larry. He also had lots of > trouble following written directions. In both cases he would read, reread > several times, and overanaylyze each phrase til it was a confused mess. > How frustrating for our loved ones. Heartbreaking, isn't it? > Ruth
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