Medical Forum / Diseases and Disorders / Alzheimer's / November 2005
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jules - 21 Nov 2005 18:06 GMT I got back from Rome a couple of daysa go to meet up with Anett, here are some pics.
http://www.julianhales.pwp.blueyonder.co.uk/rometrip.htm
Hope everyone is ok. bye
Evelyn Ruut - 21 Nov 2005 18:30 GMT Hi Julian,
Loved the photos! Looks like you had a wonderful time in Rome.
Hope all is well with you
:-)
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
>I got back from Rome a couple of daysa go to meet up with Anett, here are > some pics. [quoted text clipped - 3 lines] > Hope everyone is ok. > bye jules - 21 Nov 2005 19:22 GMT Hi Evelyn.
The trip was nice, im going to Germany next month for a few days, at the moment im in contact with a guy from a music studio, hes offerd to put together a song to my lyrics im doing for Anett all for free and put it on cd, i really want to win her back next month.
bye
> Hi Julian, > [quoted text clipped - 17 lines] > > Hope everyone is ok. > > bye Evelyn Ruut - 21 Nov 2005 21:29 GMT > Hi Evelyn. > [quoted text clipped - 4 lines] > > bye That sounds great. Good Luck!
 Signature Best Regards, Evelyn
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>> Hi Julian, >> [quoted text clipped - 18 lines] >> > Hope everyone is ok. >> > bye jules - 22 Nov 2005 09:54 GMT > > Hi Evelyn. > > [quoted text clipped - 6 lines] > > That sounds great. Good Luck! Oh yes, dont tell her its a secret!!!!!! :-)
When she went back home in the summer i called ahead to her parents and asked them if they could buy a bunch of flowers on my behalf and give them to her and i would send the cash on, they said they have a large garden/allotment a few miles from there appartment and would get some from there. Anyway a few weeks ago she was going home for the weekend from her Uni digs a long way from home, so i called, i spoke to her father who doesnt speak English so it was quite funny trying to explain what i wanted, but last week i saw on her camera while in Rome the flowers they did for her, and a 'note' with 'Mit liebe Jules' i wanted them to put on, will stick it on the website later today.
> -- > [quoted text clipped - 25 lines] > >> > Hope everyone is ok. > >> > bye John Inzer - 21 Nov 2005 19:28 GMT > I got back from Rome a couple of daysa go to meet up > with Anett, here are some pics. [quoted text clipped - 3 lines] > Hope everyone is ok. > bye ============================= Nice pix! Thanks for sharing.
Beautiful girl, you lucky duck.
Quit smoking, your lungs will thank you.
I saw a funny sign in a local BBQ restaurant last week:
"If you are smoking... you better be on fire!"
 Signature John Inzer
jules - 22 Nov 2005 09:36 GMT > > I got back from Rome a couple of daysa go to meet up > > with Anett, here are some pics. [quoted text clipped - 16 lines] > "If you are smoking... > you better be on fire!" Hey John, i smoke like a chimney, usually polish rolling baccy, i know i shouldnt smoke but i cant see the point in stopping, i dont plan to live to a old age anyway....may try though, if Anett asked me i would.
> -- > > John Inzer Tumbleweed - 22 Nov 2005 09:50 GMT > Hey John, i smoke like a chimney, usually polish rolling baccy, i know i > shouldnt smoke but i cant see the point in stopping you will, about 3 seconds after the diagosis of lung cancer or emphysema.
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
jules - 22 Nov 2005 13:47 GMT > > Hey John, i smoke like a chimney, usually polish rolling baccy, i know i > > shouldnt smoke but i cant see the point in stopping [quoted text clipped - 3 lines] > -- > Tumbleweed I drink far too much to ease the pain in my back, i have no plans living long term, pain in my back i cant stand. Sorted out my will the other week and Anett found out plans what i intended to do. Im just waiting until my granddad cant remember who i am at all so it doesnt upset him in the short term.
> email replies not necessary but to contact use; > tumbleweednews at hotmail dot com Evelyn Ruut - 22 Nov 2005 14:01 GMT >> > Hey John, i smoke like a chimney, usually polish rolling baccy, i know >> > i [quoted text clipped - 10 lines] > granddad cant remember who i am at all so it doesnt upset him in the short > term. Julian you are too young to be giving up on life, no matter what it holds. Drinking doesn't help much, you know.... and along with the smoking, can only make everything worse with the complications they add to the mix.
There are some things that definitely do help, but they involve a lot of committment to the right kind of exercises to strengthen the muscles around the injured parts, and maybe pursuing things to whatever medical limits are available. A lady I know with similar problems has done that and gotten some pretty good relief.
What she did recently involved shots into her back that deadened the painful nerves giving her the first relief she's had in many years. So don't give up. They develop new therapies for injuries like yours all the time.
I don't think there's a person here who hasn't got your best interest at heart. We all followed your story with Annet with kind thoughts. We all want you to be happy and live your life to the fullest you can! If your grandparents could tell you, I am sure that's what they'd say too. So think positively and don't give up on your life.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
jules - 22 Nov 2005 14:05 GMT > >> > Hey John, i smoke like a chimney, usually polish rolling baccy, i know > >> > i [quoted text clipped - 30 lines] > grandparents could tell you, I am sure that's what they'd say too. So > think positively and don't give up on your life. I just dont see me having a good future, the pain 24/7 that in winter months i just cant cope with etc. I tried many things over the years at clinics, only one works but i cant afford it and thats electric shocks in my back.
I put a few more pics up on the Rome page at the bottom, take a look!
> -- > > Best Regards, > Evelyn > > (to reply to me personally, remove 'sox') Evelyn Ruut - 22 Nov 2005 14:55 GMT >> >> > Hey John, i smoke like a chimney, usually polish rolling baccy, i > know [quoted text clipped - 56 lines] >> >> (to reply to me personally, remove 'sox') Evelyn Ruut - 22 Nov 2005 15:11 GMT > I just dont see me having a good future, the pain 24/7 that in winter > months > i just cant cope with etc. I tried many things over the years at clinics, > only one works but i cant afford it and thats electric shocks in my back. > > I put a few more pics up on the Rome page at the bottom, take a look! I'll take a peek at those pics in a minute. But first let me say that they are finding new things that help pain like yours all the time. If the electric shock stuff works, then a lot of your pain could be from muscle spasms and inflammation. The right therapies can sometimes relieve a lot of that. I sympathize because I have had a very bad back all of my life. I bought a special foam mattress that helps sometimes, and even still, sometimes sleeping in a recliner is the only thing that helps.
I have a whole collection of drugs for the problem, and to tell you the truth, the ones that relax the muscles and relieve inflammation are the ones I get the best results from. The pain killers don't do much but just for a couple of hours and then the pain comes back, so I do know how relentless it can be, but I think your injuries are worse than mine. If the conventional therapies don't work, then try some of the unconventional ones.
I have another lady friend who was told she'd never walk again. Well, she walks quite a lot now, and coping with her pain takes a huge amount of effort, but her best therapy turned out to be swimming. She actually has a swimming pool in her garage with a motor that makes a current for her to swim against. Without it she'd be totally crippled. She even has a successful business repairing musical instruments. Sometimes she can only lay on the floor while she repairs them, believe it or not! She wears a back brace and is constantly going to massage therapists and (very gentle) chiropractors and acupuncturists and whatever. But she has managed to find a life and become successful, even though she was nearly crippled for life and her international music career was stopped dead after her accident.
She is really an inspiration, though she is in constant severe pain, like you are going through. Even if you can't get rid of the pain, you might find ways to manage it so it is more bearable. Staying in the best of health you can is only going to help with that.
Keep your courage up and don't lose hope no matter how bleak it seems sometimes.
Now I will go look at those pictures!
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Gwen Love - 21 Nov 2005 22:28 GMT Jules, Annette is a lovely young lady. Looks as if you had fun. Gwen
>I got back from Rome a couple of daysa go to meet up with Anett, here are > some pics. [quoted text clipped - 3 lines] > Hope everyone is ok. > bye jules - 22 Nov 2005 10:02 GMT Gwen
We had a nice few days, it was a struggle for me to walk and luckily the Italian cops and security at the buildings let me jump ques with my disiabitly badge which is valid anywhere in Europe, it took me soooo long to climb all the steps up to that big domed building and really hurt and nearly killed me, Netty doesnt get ashamed when i struggle to walk, she doesnt want to walk 5 metres infront of me like most girls do.
Something funny happened while were staying at our friends appartment. As Anett is E German, she doesnt really have a sense of humour like us Englsih, or Americans i guess.......at night i pulled the shutter down outside of the kitchen doors to the balcony, anyway i went out for a cig so pulled it up a bit but i still had to duck under, Anett didnt see it and banged her head so me and Matti laughed as it was really funny to see , she didnt really hurt herself but it was so funny to see her walk into it, anyway she did it the following night and she said to me why i didnt lift the shutter all the way up and i said well you cant really miss it cant you, its a big brown thing.................and once you hit your head with it once your never going to do it again are you?
Anyway the third night Matti only put it half up, but this time i warned her to mind her head, then she started saying i was stupid for not putting it all the way up etc etc. so i said it wasnt me who did it and i just didnt want her to bang her head. Then she sort of understoood. She couldnt see the funny side at all, or maybe it was because shes a girl. Matti who is W German told me lots of jokes about E Germans.
> Jules, Annette is a lovely young lady. Looks as if you had fun. > Gwen [quoted text clipped - 7 lines] > > Hope everyone is ok. > > bye Evelyn Ruut - 22 Nov 2005 12:39 GMT Jules did you ever get checked out by the German doctor that Annet wanted you to see a while back? Was just curious to know if you found out if anything further could be done for your injuries.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
> Gwen > [quoted text clipped - 43 lines] >> > Hope everyone is ok. >> > bye jules - 22 Nov 2005 13:45 GMT > Jules did you ever get checked out by the German doctor that Annet wanted > you to see a while back? Was just curious to know if you found out if > anything further could be done for your injuries. > > -- I had some MRi scans done a few months ago here, im waiting for the results but i got a letter today by coincidence for the neurosurgery dept for July 06.
> Best Regards, > Evelyn [quoted text clipped - 47 lines] > >> > Hope everyone is ok. > >> > bye Evelyn Ruut - 22 Nov 2005 13:50 GMT >> Jules did you ever get checked out by the German doctor that Annet wanted >> you to see a while back? Was just curious to know if you found out if [quoted text clipped - 6 lines] > but i got a letter today by coincidence for the neurosurgery dept for July > 06. I hope they can help you Julian. For some it has worked out well.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
jules - 22 Nov 2005 14:03 GMT > >> Jules did you ever get checked out by the German doctor that Annet wanted > >> you to see a while back? Was just curious to know if you found out if [quoted text clipped - 9 lines] > I hope they can help you Julian. > For some it has worked out well. They said twice before over the past 10 years nothing could be done, im not really holding out too much hope.
> -- > > Best Regards, > Evelyn > > (to reply to me personally, remove 'sox') Ronny TX - 22 Nov 2005 05:30 GMT Hello Group: alt.support.alzheimers Date: Mon, Nov 21, 2005, 6:06pm (CST+6) From: julianhales@blueyonder.co.uk (jules)
> I got back from Rome a couple of daysa > go to meet up with Anett, here are some > pics. http://www.julianhales.pwp.blueyonder.co.uk/rometrip.htm
> Hope everyone is ok. > bye Ronny: I really liked the pics you posted! :-) And that Annet sure is pretty.
:-) But then what's up with this deal about your orange/red hair?! :-) {BG} Didn't you say you dyed it? Ah,I can't really remember; but isn't your natural hair color brown or am I wrong and it was blonde?
jules - 22 Nov 2005 09:59 GMT > Hello > Group: alt.support.alzheimers Date: Mon, Nov 21, 2005, 6:06pm (CST+6) [quoted text clipped - 11 lines] > {BG} Didn't you say you dyed it? Ah,I can't really remember; > but isn't your natural hair color brown or am I wrong and it was blonde? It was meant to be blonde but went a bit wrong, im aiming to get it like Don Johnson like i had in the 80's, way cool.....it was sort of brown before, what little i had.
http://www.julianhales.pwp.blueyonder.co.uk/arthur.htm Heres howi had it for the previous 7 or so years.
Ronny TX - 22 Nov 2005 11:44 GMT > > Hello > > Group: alt.support.alzheimers Date: Mon, Nov 21, 2005, 6:06pm (CST+6) [quoted text clipped - 18 lines] > http://www.julianhales.pwp.blueyonder.co.uk/arthur.htm Heres howi had it > for the previous 7 or so years. Ronny: I had forgotten how short you had it cut/shaved before! :-) Would like to see a pic of you when you had it longer all over-just to see how you looked that way? BTW,loved all the pics too of Arthur the dog and one of my favorite pics is of him and your Grandpa Arthur in that last pic!
:-) jules - 22 Nov 2005 13:46 GMT > > Jules: > > It was meant to be blonde but went a bit wrong, im aiming to get it like [quoted text clipped - 9 lines] > of my favorite pics is of him and your Grandpa Arthur in that last pic! > :-) No pics exist of me going that far back, theres a few on the website as me as a kid, not worth looking at really.....Arthurs cute, really miss him when im not here
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