Medical Forum / Diseases and Disorders / Alzheimer's / November 2005
Introduction
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karen - 12 Nov 2005 08:27 GMT I would like to introduce myself to one and all. My name is Karen and my husband, Tim (age 55) was diagnosed with dementia last month.
In December 2000 Tim was diagnosed with a brain tumor, had surgery where it was discovered he had metastases of Small Cell Lung Cancer to the brain. He was Stage IV. After the surgery he received whole brain radiation, stereotactic radiation, chest radiation and chemo. We were told at the time that the damage from the combo of surgery and radiation would cause short term memory and vocabulary difficulties but that the brain could retrain other areas to lessen the effects. That proved to be correct and for these last 4 years we've continued on.
Early September Tim had a chance to stop in and visit an aunt that he doesn't see regularly and a couple of weeks later when I had a chance to drop in for a quick visit - well, she nailed me to the wall for an explanation of some behaviors she had seen. What an eye-opener for me! After taking a week to really pay attention and weigh his behaviors in consideration of her "I see people around here behaving like that and they all have dementia." it was obvious something was wrong. I finally got my nerve together and talked to Tim about it and suggested he consider what I was seeing - gave him time to absorb what I had said. A week later we sat down and made up a list of things he had been trying to hide and what I had seen, made a Dr. appointment and had CT Scans and MRI tests done. Back to the oncologist who, while able to tell us what had caused the damage, wasn't able to direct us where to go next. The oncologist called our Dr. and we were back to him.
Tim's been given Aricept 5 mg. now to be increased to 10 mg. in Dec. Between no longer having to hide symptoms, the medication and actively working on reading and math puzzles (he's a very proactive person) I'm seeing improvements. I just about drove off the road last night when he in normal conversation used the word "scenario" in context and without having to search it. In my world right now scenario = miracle. LOL
alt.support.cancer helped me interpret treatments and statistics for myself and family/friends in the past. I was relieved when I found alt.support.alzheimers. I've read thousands of posts here and am comforted by the humor, common sense, compassion and coping strategies you all share so freely.
Karen
Evelyn Ruut - 12 Nov 2005 12:32 GMT >I would like to introduce myself to one and all. My name is Karen and my >husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 37 lines] > > Karen Welcome Karen. We are glad to have you here, but sorry for the cause that made it necessary.
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Best Regards, Evelyn
(to reply to me personally, remove 'sox')
karen - 14 Nov 2005 07:25 GMT >>I would like to introduce myself to one and all. My name is Karen and my >>husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 40 lines] > Welcome Karen. We are glad to have you here, but sorry for the cause that > made it necessary. Thank you for the welcome Evelyn. I've appreciated your sharing what you have learned in caring for Ida.
karen
LindaJean - 12 Nov 2005 14:51 GMT it is wonderful how you worked together through all of this and got him help. I am encouraged that he is struggling against it by doing crosswords etc. I wish my own husband (56) would.
Linda Jean
>I would like to introduce myself to one and all. My name is Karen and my >husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 37 lines] > > Karen karen - 14 Nov 2005 07:48 GMT > it is wonderful how you worked together through all of this and got him > help. I am encouraged that he is struggling against it by doing crosswords > etc. I wish my own husband (56) would. > > Linda Jean Well, it's sure hard watching him struggle with puzzles that were so easy for him before. I've ordered him some paperback books through Amazon that are pretty easy reading. I hope it encourages him to keep on trying. Time will tell I suppose. How are you doing with all of this? Sure not I was expecting to be dealing with in our fifties! I just try to remind myself that if it is to be then better now than 30 years from now when I would expect to have some medical issues of my own at the same time. Sometimes I even believe it! <smile>
karen
>>I would like to introduce myself to one and all. My name is Karen and my >>husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 37 lines] >> >>Karen LJ - 14 Nov 2005 13:53 GMT My husband won't do the puzzles nor read. He just sits and watches tv. We had our first appt with the attorney and that was rough. We go back on the 9th to sign the durable power of attorney. Right now we are having "talks" about the wording on the medical directive. I went thru this with my mother years ago. If you don't say something else then whatever doctor is around is the one that decides just when the person is no longer able to make decisions. That is not acceptable to me :::sigh::: I agree, this is not how I thought my life would be at 55
Linda Jean
> Well, it's sure hard watching him struggle with puzzles that were so > easy for him before. I've ordered him some paperback books through [quoted text clipped - 6 lines] > > karen Octavia - 12 Nov 2005 23:49 GMT He seems so young to have this mess - my thoughts are with you.
I still feel new to this, still learning. Sorry you have to go through it. Wonderful he is taking initiative to do what he can to help himself!
>I would like to introduce myself to one and all. My name is Karen and my >husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 37 lines] > > Karen karen - 14 Nov 2005 08:07 GMT > He seems so young to have this mess - my thoughts are with you. > > I still feel new to this, still learning. Sorry you have to go through it. > Wonderful he is taking initiative to do what he can to help himself! It's hard stuffing all of this new knowledge into our heads. I'm sorry you too are in the middle of learning all of these new problem solving techniques. Newsgroups are so helpful and this one particularly so. I guess we "newbies" to alzheimers will just have to join hands and learn together.
karen
>>I would like to introduce myself to one and all. My name is Karen and my >>husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 37 lines] >> >>Karen LJ - 14 Nov 2005 13:53 GMT <---holding out hands ;-)
Linda Jean
> > He seems so young to have this mess - my thoughts are with you. > > [quoted text clipped - 8 lines] > > karen Ronny TX - 13 Nov 2005 09:57 GMT Hey Karen. Good to meet you; :-) but sorry for the reason you need to be here.:-( Glad though to hear that your husband Tim is improving! :-) Ronny
--------- Introduction Group: alt.support.alzheimers Date: Sat, Nov 12, 2005, 12:27am (CST-2) From: jarrett@example.net (karen) I would like to introduce myself to one and all. My name is Karen and my husband, Tim (age 55) was diagnosed with dementia last month. In December 2000 Tim was diagnosed with a brain tumor, had surgery where it was discovered he had metastases of Small Cell Lung Cancer to the brain. He was Stage IV. After the surgery he received whole brain radiation, stereotactic radiation, chest radiation and chemo. We were told at the time that the damage from the combo of surgery and radiation would cause short term memory and vocabulary difficulties but that the brain could retrain other areas to lessen the effects. That proved to be correct and for these last 4 years we've continued on. Early September Tim had a chance to stop in and visit an aunt that he doesn't see regularly and a couple of weeks later when I had a chance to drop in for a quick visit - well, she nailed me to the wall for an explanation of some behaviors she had seen. What an eye-opener for me! After taking a week to really pay attention and weigh his behaviors in consideration of her "I see people around here behaving like that and they all have dementia." it was obvious something was wrong. I finally got my nerve together and talked to Tim about it and suggested he consider what I was seeing - gave him time to absorb what I had said. A week later we sat down and made up a list of things he had been trying to hide and what I had seen, made a Dr. appointment and had CT Scans and MRI tests done. Back to the oncologist who, while able to tell us what had caused the damage, wasn't able to direct us where to go next. The oncologist called our Dr. and we were back to him. Tim's been given Aricept 5 mg. now to be increased to 10 mg. in Dec. Between no longer having to hide symptoms, the medication and actively working on reading and math puzzles (he's a very proactive person) I'm seeing improvements. I just about drove off the road last night when he in normal conversation used the word "scenario" in context and without having to search it. In my world right now scenario = miracle. LOL alt.support.cancer helped me interpret treatments and statistics for myself and family/friends in the past. I was relieved when I found alt.support.alzheimers. I've read thousands of posts here and am comforted by the humor, common sense, compassion and coping strategies you all share so freely. Karen
karen - 14 Nov 2005 08:10 GMT > Hey Karen. Good to meet you; :-) but sorry for the reason you need to be > here.:-( Glad though to hear that your husband Tim is improving! :-) > Ronny Ronny - Thanks to you I got the medicine and vitamin shelves all cleaned out and organized! I printed out your post about the mother cat with her litter living in the dog house for Tim to read. He really enjoyed it. Thank you for being so generous and sharing your everyday life with all of us.
karen
> --------- > Introduction [quoted text clipped - 36 lines] > you all share so freely. > Karen Ronny TX - 14 Nov 2005 13:54 GMT > Re: Introduction > Group: alt.support.alzheimers Date: > Mon, Nov 14, 2005, 12:10am (CST-2) > From: jarrett@example.net (karen)
>> Ronny TX wrote: >> Hey Karen. Good to meet you; :-) but >> sorry for the reason you need to be >> here.:-( Glad though to hear that your >> husband Tim is improving! :-) Ronny
> karen: > Ronny - Thanks to you I got the [quoted text clipped - 6 lines] > everyday life with all of us. > karen Ronny: You're welcome and I'm just glad I could help both you and Tim some. :-)
And BTW,I love sharing my everyday life with other people. :-) I love it so much that some people in some groups get upset at me for doing that!
:-) Not a great deal of people;but some. I get upset some at those few;but at times I can also feel sorry for them. I'm just glad I'm not that negative and hateful! Enough problems come our way in life without us adding that on to it!
Yeah,way earlier this year I didn't realize that little female cat was going to have kittens until just a few days before she did! I'm not even sure when I first realized she was a female and not a male?! But then the little thing started getting real fat and I though,Ah oh! LoL
Then she had her 4 kittens in that old dog house;but that's where my two hens had been laying their eggs! :-) Right now I'm too sleepy headed to remember who had their babies first?! But it was so interesting to see around 14 chicks,Mama Hen,4 kittens and Mama Cat all in the same small doghouse! :-) Mama Cat stayed a few days before she moved her kittens. And I have a notion the two got along just fine because they were both new mamas. :-)
Got to get back to my middle bedroom in a bit. If I can keep going I may actually finish it up today! :-) LoL Don't like that much.
See you later. :-) Ronny --------- Introduction Group: alt.support.alzheimers Date: Sat, Nov 12, 2005, 12:27am (CST-2) From: jarrett@example.net (karen) I would like to introduce myself to one and all. My name is Karen and my husband, Tim (age 55) was diagnosed with dementia last month. In December 2000 Tim was diagnosed with a brain tumor, had surgery where it was discovered he had metastases of Small Cell Lung Cancer to the brain. He was Stage IV. After the surgery he received whole brain radiation, stereotactic radiation, chest radiation and chemo. We were told at the time that the damage from the combo of surgery and radiation would cause short term memory and vocabulary difficulties but that the brain could retrain other areas to lessen the effects. That proved to be correct and for these last 4 years we've continued on. Early September Tim had a chance to stop in and visit an aunt that he doesn't see regularly and a couple of weeks later when I had a chance to drop in for a quick visit - well, she nailed me to the wall for an explanation of some behaviors she had seen. What an eye-opener for me! After taking a week to really pay attention and weigh his behaviors in consideration of her "I see people around here behaving like that and they all have dementia." it was obvious something was wrong. I finally got my nerve together and talked to Tim about it and suggested he consider what I was seeing - gave him time to absorb what I had said. A week later we sat down and made up a list of things he had been trying to hide and what I had seen, made a Dr. appointment and had CT Scans and MRI tests done. Back to the oncologist who, while able to tell us what had caused the damage, wasn't able to direct us where to go next. The oncologist called our Dr. and we were back to him. Tim's been given Aricept 5 mg. now to be increased to 10 mg. in Dec. Between no longer having to hide symptoms, the medication and actively working on reading and math puzzles (he's a very proactive person) I'm seeing improvements. I just about drove off the road last night when he in normal conversation used the word "scenario" in context and without having to search it. In my world right now scenario = miracle. LOL alt.support.cancer helped me interpret treatments and statistics for myself and family/friends in the past. I was relieved when I found alt.support.alzheimers. I've read thousands of posts here and am comforted by the humor, common sense, compassion and coping strategies you all share so freely. Karen
Karen - 13 Nov 2005 15:49 GMT Welcome to a truly supportive group! I hope you'll find what you need here.
I'll start using a bit more to sign my posts so we can keep each other straight. (or maybe we should conspire to confuse the heck out of Ronny sometime ;-)
At one time, the floor I worked on had 5 Karens. Kept conversations interesting, it did.
 Signature Karen kk5151@hotmail.com
> I would like to introduce myself to one and all. My name is Karen and > my husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 37 lines] > > Karen karen - 14 Nov 2005 08:20 GMT > Welcome to a truly supportive group! I hope you'll find what you need here. > [quoted text clipped - 4 lines] > At one time, the floor I worked on had 5 Karens. Kept conversations > interesting, it did. Karen - You just keep signing your posts as you always have and I will use a small "k". That would probably work out fine. My family and friends would get a "kick" out of the small "k" as I have been known to announce that it has taken the lives of many innocent calories for me to have "broadend my horizons" so effectively! LOL
karen
Ronny TX - 14 Nov 2005 13:29 GMT Re: Introduction Group: alt.support.alzheimers Date: Sun, Nov 13, 2005, 9:49am From: kk5151@hotmail.com (Karen) Welcome to a truly supportive group! I hope you'll find what you need here. I'll start using a bit more to sign my posts so we can keep each other straight. (or maybe we should conspire to confuse the heck out of Ronny sometime ;-) At one time, the floor I worked on had 5 Karens. Kept conversations interesting, it did.
 Signature Karen kk5151@hotmail.com
Ronny: Just what I need,more confusion in my life! :-( LoL
----------- "karen" <jarrett@example.net> wrote in message news:11nb9s1qn7c8fb2@corp.supernews.com... I would like to introduce myself to one and all. My name is Karen and my husband, Tim (age 55) was diagnosed with dementia last month. In December 2000 Tim was diagnosed with a brain tumor, had surgery where it was discovered he had metastases of Small Cell Lung Cancer to the brain. He was Stage IV. After the surgery he received whole brain radiation, stereotactic radiation, chest radiation and chemo. We were told at the time that the damage from the combo of surgery and radiation would cause short term memory and vocabulary difficulties but that the brain could retrain other areas to lessen the effects. That proved to be correct and for these last 4 years we've continued on. Early September Tim had a chance to stop in and visit an aunt that he doesn't see regularly and a couple of weeks later when I had a chance to drop in for a quick visit - well, she nailed me to the wall for an explanation of some behaviors she had seen. What an eye-opener for me! After taking a week to really pay attention and weigh his behaviors in consideration of her "I see people around here behaving like that and they all have dementia." it was obvious something was wrong. I finally got my nerve together and talked to Tim about it and suggested he consider what I was seeing - gave him time to absorb what I had said. A week later we sat down and made up a list of things he had been trying to hide and what I had seen, made a Dr. appointment and had CT Scans and MRI tests done. Back to the oncologist who, while able to tell us what had caused the damage, wasn't able to direct us where to go next. The oncologist called our Dr. and we were back to him. Tim's been given Aricept 5 mg. now to be increased to 10 mg. in Dec. Between no longer having to hide symptoms, the medication and actively working on reading and math puzzles (he's a very proactive person) I'm seeing improvements. I just about drove off the road last night when he in normal conversation used the word "scenario" in context and without having to search it. In my world right now scenario = miracle. LOL alt.support.cancer helped me interpret treatments and statistics for myself and family/friends in the past. I was relieved when I found alt.support.alzheimers. I've read thousands of posts here and am comforted by the humor, common sense, compassion and coping strategies you all share so freely. Karen
Gwen Love - 14 Nov 2005 21:48 GMT Karen,welcome to a place none of us really wanted to have to come to, but we have all been helped by being here. I hope both you and Tim will benefit from all that goes on here. We do have some nice folks around. Gwen
>I would like to introduce myself to one and all. My name is Karen and my >husband, Tim (age 55) was diagnosed with dementia last month. [quoted text clipped - 6 lines] > would cause short term memory and vocabulary difficulties but that the > brain could retrain other areas to lessen the effects. That proved to be
> correct and for these last 4 years we've continued on. > [quoted text clipped - 4 lines] > After taking a week to really pay attention and weigh his behaviors in > consideration of her "I see people around here behaving like that and they
> all have dementia." it was obvious something was wrong. I finally got my
> nerve together and talked to Tim about it and suggested he consider what I
> was seeing - gave him time to absorb what I had said. A week later we sat
> down and made up a list of things he had been trying to hide and what I > had seen, made a Dr. appointment and had CT Scans and MRI tests done. > Back to the oncologist who, while able to tell us what had caused the > damage, wasn't able to direct us where to go next. The oncologist called
> our Dr. and we were back to him. > [quoted text clipped - 8 lines] > myself and family/friends in the past. I was relieved when I found > alt.support.alzheimers. I've read thousands of posts here and am comforted
> by the humor, common sense, compassion and coping strategies you all share
> so freely. > > Karen Karen
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