Medical Forum / Diseases and Disorders / Alzheimer's / November 2005
One of those "Gotta Laugh" moments
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Karen - 02 Nov 2005 05:05 GMT I may have mentioned a few months back that the glasses we had gotten my MIL disappeared. They were Flexon frames and very durable but looked like small feminine frames and she liked them when she picked them out. But one day a few months back, we're visiting her and she yanks her glasses off and says "These are not my glasses!!!"
When I looked, the frames she held were Laura Ashley frames. I told the administrator of the facility and the staff searched high and low, then offered to let me look through their unclaimed glasses. I've never seen such a collection of "little old lady" glasses that all looked pretty much the same -- but no Flexon frames. Finally, we asked her if she could see okay with them and she said yes, so we let it be.
The other day the administrator emailed me some pics of my MIL from an outing they went on. They could hear me laughing down the hall from my office. I don't know whose glasses she's wearing in those pictures, but they aren't her Flexons and they aren't the Laura Ashley frames. I can only imagine what it must take to keep the glasses with the right person in an ALZ facility. Somehow I just picture one of the activities being musical glasses! I told the staff about it but I told them if they find out whose glasses she has, they have to make sure she has some perched on her nose. Apparently, it doesn't matter what -- just something.
Karen
Anthony Shipley - 02 Nov 2005 12:53 GMT >The other day the administrator emailed me some pics of my MIL from an >outing they went on. They could hear me laughing down the hall from my [quoted text clipped - 5 lines] >glasses she has, they have to make sure she has some perched on her nose. >Apparently, it doesn't matter what -- just something. I wouldn't regard that as being satisfactory!
Would it not be easy to engrave a number on the frame of each pair of glasses? That would easily deal with "switched" glasses. Not only is it demeaning of the staff to not have such a procedure but I would expect such patients wearing the incorrect lenses would likely increase the risk of falls, burns, whatever.
I can understand that sufferers of A.D. provide numerous opportunities for amusement of carers and staff -- and can live with that -- providing they are handled/treated with dignity.
Treating it without dignity as well as risking injury is just not on!
If nothing else, I can't see the ALZ facility wouldn't be paying for a replacement.
No, I am not amused - nor should you be!
Or are we to believe -- 2 + 2 = 5 for sufficiently large values of 2.
Pat Stewart - 02 Nov 2005 17:25 GMT Musical glasses. A favorite pasttime, and almost as interesting as Musical dentures.
As far as engraving a number on the frame goes, if at all possible we do that, however, some frames are difficult if not impossible to engrave even a number on.
We do everything we can to help our residents maintain their dignity. There are times though, when keeping walkers, glasses, dentures, clothing, momentos, etc. with the right person is a constant struggle. Some of my residents love to shop in other people's rooms. We have set up a jewelry box in each of the common rooms and we fill it with inexpensive costume jewelry. My ladies love to rummage there, and about once every couple of weeks, we scour the rooms and find the costume jewelry and replace it into the common areas. Then the cycle repeats itself.
The thing that gets me are the times when a Resident is admitted wearing expensive jewelry. I have my mom's wedding rings. The only reason I have my mom's wedding rings is because when she went into LTC, I replaced those rings with an inexpensive lookalike. I literally beg people to do the same for their loved ones when they are admitted.
Sometimes you do just have to laugh though, or else you'll go totally mad.
Patty
> >The other day the administrator emailed me some pics of my MIL from an > >outing they went on. They could hear me laughing down the hall from my [quoted text clipped - 27 lines] > -- > 2 + 2 = 5 for sufficiently large values of 2. Anthony Shipley - 03 Nov 2005 04:30 GMT >Musical glasses. A favorite pasttime, and almost as interesting as Musical >dentures. > >As far as engraving a number on the frame goes, if at all possible we do >that, however, some frames are difficult if not impossible to engrave even a >number on. How about a tag on the frame to which the ID number goes?
>We do everything we can to help our residents maintain their dignity. There >are times though, when keeping walkers, glasses, dentures, clothing, >momentos, etc. with the right person is a constant struggle. I can appreciate that; I remember faint memories of my mother telling me about my grandmother....
> Some of my >residents love to shop in other people's rooms. We have set up a jewelry >box in each of the common rooms and we fill it with inexpensive costume >jewelry. My ladies love to rummage there, and about once every couple of >weeks, we scour the rooms and find the costume jewelry and replace it into >the common areas. Then the cycle repeats itself. I like your term "ladies" -- much more dignified than dearies :-)
>The thing that gets me are the times when a Resident is admitted wearing >expensive jewelry. I have my mom's wedding rings. The only reason I have >my mom's wedding rings is because when she went into LTC, I replaced those >rings with an inexpensive lookalike. I literally beg people to do the same >for their loved ones when they are admitted. Very good idea.
>Sometimes you do just have to laugh though, or else you'll go totally mad. Is that where I've been or where I'm going?
-- 2 + 2 = 5 for sufficiently large values of 2.
JM Van_Horn - 02 Nov 2005 22:52 GMT > Would it not be easy to engrave a number on the frame of each pair of > glasses? [quoted text clipped - 3 lines] > wearing the > incorrect lenses would likely increase the risk of falls, burns, whatever. I found it best to put a label on the front part of the earpiece. A mailing label folded over with the stuck-together end sticking out sideways. On that tab I wrote Mom's first name with an indelible pen. I also wrote her name on the earpieces themselves, but this could not be seen when the glasses were on. Mom was fine with the tab sticking out but I think some people would not be.
> No, I am not amused - nor should you be! "Gotta laugh" is short for "You have to laugh to keep from crying."
Joan
Pat Stewart - 03 Nov 2005 04:18 GMT Joan - we have to keep the labels from showing, or else we get cited by the State for "dignity issues".
We do everything we can to make sure that the person has on the right glasses. We take a picture of them, we put them on the copy machine and put that in their chart. It's not something that is taken lightly, but it is a bit of a merry-go-round at times.
You do need to laugh, at least to hide the tears.
Patty
> > Would it not be easy to engrave a number on the frame of each pair of > > glasses? [quoted text clipped - 16 lines] > > Joan Anthony Shipley - 03 Nov 2005 04:32 GMT >> No, I am not amused - nor should you be! > >"Gotta laugh" is short for "You have to laugh to keep from crying." I'll buy that!
-- 2 + 2 = 5 for sufficiently large values of 2.
Lesanne - 03 Nov 2005 02:18 GMT Not to mention the horrible headache from wearing and trying to see through the wrong prescription. Mom had mine on for a while one day, and although she claimed to be able to see fine, all afternoon she was doing her "headache" behaviors despite saying nothing hurt..........
 Signature Lesanne
> >>The other day the administrator emailed me some pics of my MIL from an [quoted text clipped - 34 lines] > -- > 2 + 2 = 5 for sufficiently large values of 2. michelle - 03 Nov 2005 04:31 GMT Being a newbie but an old member of this forum I dont know if i should jump in here but I have to agree strongly with Anthony. All residents(as we call them in Oz) personal belongings should be clearly marked. However I do feel this is also a family issue my mother is also in a nursing home and I am a personal carer in a aged care facilty in Australia. Everything I take in for my Mum is clearly marked you have no idea what it is like for care staff with any personal belongings that are not. Clothing is an absolute nightmare we also have to do the washing and Ironing where I work and many times I bring up at staff meetings about this lack of identification then a letter is sent to relatives to help solve this problem do most families respond No.They sure do however let us know if they find something missing
Karen - 03 Nov 2005 06:10 GMT Every article of clothing down to her socks is marked. And I return the ones I find in her room that aren't hers. Everything else of hers is marked except for the cheap watch and earrings she wears
I couldn't figure out any way to mark a pair of wire frames for someone that loves picking off labels and such. All I can say is with a picture of the glasses, going through her room EVERYWHERE and looking around the whole facility, the original glasses were not to be found. I have to figure it's the price of having her in a place with enough roaming room that she can walk in the garden or go take a nap on her schedule instead of being in a more regimented arrangement.
Maybe in Oz, your facilities don't have any places that can't be found but heck if I'm going to fault the staff because they aren't with her every moment of the day that she could lose something. After the hours I spent searching on top of the time they spent, I consider them lost. If she can't read or watch TV, I'll worry about it. Sorry, but after a certain point -- reality will win and I can't keep fighting the same battle.
Karen
> Being a newbie but an old member of this forum I dont know if i should > jump in here but I have to agree strongly with Anthony. [quoted text clipped - 10 lines] > solve this problem do most families respond No.They sure do however let > us know if they find something missing Mary_Gordon@tvo.org - 03 Nov 2005 08:25 GMT I'm with you Karen. As I've often described, when my MIL was in the Alzheimer's unit, I had to "toss" her room every week trying to restore order to her belongings, and every week, I'd end up with an armload of items belonging to other residents (clothing, eyeglasses, napkins, toiletries, nicnacs, creamers, lipsticks, books, greeting cards, you name it). Some of these were randomly picked up from various places and taken back to her room by my MIL on her perambulations around the floor, and some were "dropped off" by other residents making THEIR rounds. With freedom to roam the entire floor, and maybe 30 residents...well, personal possessions had legs. We just couldn't keep eyeglasses, hearing aids, and teeth ON my mother in law - she was constantly taking them off and leaving them places or tucking them into the garbage, the laundry, whatever ....(and she also grabbed other people's stuff as she went about her day). You would think it would BOTHER her to not wear them, but it didn't. She also didn't seem to be at all troubled by wearing someone elses, and would fight with you if you tried to take them, whether someone elses ended up on her face or in her purse. She also wasn't bothered by wearing eye glasses so dirty they couldn't have done anything for her vision. And then of course there were the days where ones vaguely similar to hers would show up, and we'd drive ourself crazy looking through a pile of eye glasses trying to figure out which ones were hers (and yes, she'd pick labels off things). I remember once even taking pictures of her wearing hers with us since we couldn't remember exactly what hers looked like (I'd have three similar pairs of eyeglasses in my hand trying to remember whether hers had little squares at the temple or little circles...and of course, hubbie was no help, given that he never paid much attention to those details). The staff tried valiantly to keep order on these fronts - at one point, they had a lot of these items in a little tub with her name on it in the nursing station in an attempt to actually KEEP them safe (eyeglasses and hearing aids aren't cheap). Due to its location near the central sitting area, the staff even tried keeping her room locked part of the day, since her room seemed to be a real magnet for assorted wanderers who'd end up in there and were frequently having to be retrieved and herded out (with or without their belongings).
I really don't know what else could have been done, but it certainly didn't phiz my poor MIL at all. I think at a certain point, it ceases to matter much, and you can knock yourself out but it doesn't get you anywhere.
And yes, we'd laugh about this stuff sometimes and make black jokes - not because we thought poor Dolli was laughable, but because if we didn't laugh, we'd cry, and we were already ankle deep in the river we'd already cried.
Mary G.
Karen - 03 Nov 2005 05:58 GMT > >The other day the administrator emailed me some pics of my MIL from an > >outing they went on. They could hear me laughing down the hall from my [quoted text clipped - 12 lines] > staff to not have such a procedure but I would expect such patients wearing the > incorrect lenses would likely increase the risk of falls, burns, whatever. Anthony, I don't regard it as satisfactory, I regard it as inevitable. if I hadn't spent hours trying to find her glasses before to no avail, I might not be more relaxed about it but it's be amused or go nuts. It isn't possible to engrave wire frames, the ear pieces are too small. And her original glasses could be burried in a kleenex box in someone else's room, stuck in someone else's pocket or buried in the garden (all places they have found glasses).
> I can understand that sufferers of A.D. provide numerous opportunities for > amusement of carers and staff -- and can live with that -- providing they are [quoted text clipped - 6 lines] > > No, I am not amused - nor should you be! The facility treats all of the residents with dignity in spite of the fact that many of them go "shopping" in other resident's rooms, swap articles of clothing with each other in the hall, and various other things that make it difficult to keep items separate. Without staffing the facility one for one (and even then, one has to go to the loo) you're never going to eliminate the problem. They took a picture of her before this started, but after many hours of searching (them and me) the first pair vanished into the ethers and no one was missing a pair to tell us who owned the "new" pair. Each time, we've made sure she can read and watch TV, but I can't manage a new pair of glasses everytime she decides to plant the old pair.
After the problem started, I thought about marking the glasses she was wearing, but they weren't hers. After you've pulled your hair out over a problem and come to the conclusion you can't control it you can either regain your sense of humor or lose it permanently.
Karen
Pat Stewart - 03 Nov 2005 08:07 GMT I can't tell you how many times our Caregivers have rescued a pair of dentures wrapped in a napkin, thrown in the trash.
I can tell you that when something is missing, we search high and low for that item. Sometimes it is never found, perhaps it got inadvertently thrown away, stuck on a box someone in somebody else's room, or even (this has happened) flushed down the toilet.
Even with markings on items, and it is extremely difficult to mark frames, things disappear.
I'm sorry, Karen, that your MIL lost her glasses. I'm also glad that you seem to be handling the situation with grace and humor.
Patty
> > >The other day the administrator emailed me some pics of my MIL from an > > >outing they went on. They could hear me laughing down the hall from my [quoted text clipped - 57 lines] > > Karen Anthony Shipley - 03 Nov 2005 08:08 GMT >> >The other day the administrator emailed me some pics of my MIL from an >> >outing they went on. They could hear me laughing down the hall from my [quoted text clipped - 6 lines] >whose glasses she has, they have to make sure she has some perched on her nose. >> >Apparently, it doesn't matter what -- just something. Must be hard for her, knowing she needs them but not knowing where they are.
>Anthony, I don't regard it as satisfactory, I regard it as inevitable. if I >hadn't spent hours trying to find her glasses before to no avail, I might [quoted text clipped - 3 lines] >stuck in someone else's pocket or buried in the garden (all places they have >found glasses). Jeez, I can do all that for myself without being in a home :-)
>The facility treats all of the residents with dignity in spite of the fact >that many of them go "shopping" in other resident's rooms, swap articles of [quoted text clipped - 6 lines] >we've made sure she can read and watch TV, but I can't manage a new pair of >glasses everytime she decides to plant the old pair. You have my full respect for the work you're doing. From what I remember of my grandmother and "Uncle Leo's" decline, it certainly made life more difficult. In some ways they were lucky - having relatively cheap servants (the bad old days of South Africa).
>After the problem started, I thought about marking the glasses she was >wearing, but they weren't hers. [quoted text clipped - 3 lines] > >Karen Thanks for your helpful comments.
If it's any comfort, I am finding that Remynil is making things somewhat better -- the confusion is mostly gone. My memory is pretty bad - had lunch with an ex-workmate today. We were to meet at a particular intersection in the city. For once I remembered to go. I also got there in time. Unfortunately, I waited at the wrong intersection. Luckily, however, I realised what had happened just in time to meet her -- but her face!!!!!
:-) Food for thought: I make the most of the facilities I have to allow me to do what I can. Fortunately, my wife is comfortable with my driving (night driving is an agreed no go zone). I hope that my comments/arguments free up other EOAD sufferers to live their life to the fullest while they can safely.
In that sense, I must speak to my wife about how the carers at her AD carers meetings regard such issues.
I'm trying to think of ways to enrich the lifes of those with EOAD. Feel free to offer suggestions (just don't mention driving!! :-)
-- 2 + 2 = 5 for sufficiently large values of 2.
Karen - 03 Nov 2005 14:27 GMT > >> >The other day the administrator emailed me some pics of my MIL from an > >> >outing they went on. They could hear me laughing down the hall from my [quoted text clipped - 7 lines] > >> >Apparently, it doesn't matter what -- just something. > Must be hard for her, knowing she needs them but not knowing where they are. Anthony, that's that catch. She doesn't _know_ where they are or apparently which ones are hers. She may notice an absence but since she wore contacts for a time, she may not. If there is something perched on her nose, she seems happy and will tell you she can see fine. The only way to test it is to ask her to read something.
> >Anthony, I don't regard it as satisfactory, I regard it as inevitable. if I > >hadn't spent hours trying to find her glasses before to no avail, I might [quoted text clipped - 4 lines] > >found glasses). > Jeez, I can do all that for myself without being in a home :-) Right. Now multiply that by 30 or 40 residents. Anyone that doesn't recognize that the caregivers do a valient job in trying to keep stuff like glasses with the right person has never seen them trying to find something. After awhile you just have to say "Enough!" and bow to the inevitable. Especially when they try to swap with each other (and some do).
> >The facility treats all of the residents with dignity in spite of the fact > >that many of them go "shopping" in other resident's rooms, swap articles of [quoted text clipped - 40 lines] > -- > 2 + 2 = 5 for sufficiently large values of 2. Anthony, I think the hardest thing for caregivers to deal with are the things that make absolutely no sense. Items like Ronny finding his Mom's BM in the fridge or one friend of mine whose Mom with ALZ reduced most of her wardrobe to scraps one day with the scissors "cutting out the patterns". My MIL's glasses may be planted in the garden waiting for spring for all I know. These are things no caregiver would anticipate because they are things a person with a working brain just wouldn't do. You are fortunate that if it had to develop, it did so at a time in which Remynil is available to help slow things down. From what I see and hear from the caregiver side, it seems like a race to "What next?".
Karen
LindaJean - 02 Nov 2005 15:25 GMT hahaha that is funny
Linda Jean
>I may have mentioned a few months back that the glasses we had gotten my >MIL [quoted text clipped - 24 lines] > > Karen
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