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Medical Forum / Diseases and Disorders / Alzheimer's / November 2005

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One of those "Gotta Laugh" moments

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Karen - 02 Nov 2005 05:05 GMT
I may have mentioned a few months back that the glasses we had gotten my MIL
disappeared.  They were Flexon frames and very durable but looked like small
feminine frames and she liked them when she picked them out.  But one day a
few months back, we're visiting her and she yanks her glasses off and says
"These are not my glasses!!!"

When I looked, the frames she held were Laura Ashley frames.  I told the
administrator of the facility and the staff searched high and low, then
offered to let me look through their unclaimed glasses.  I've never seen
such a collection of "little old lady" glasses that all looked pretty much
the same -- but no Flexon frames.  Finally, we asked her if she could see
okay with them and she said yes, so we let it be.

The other day the administrator emailed me some pics of my MIL from an
outing they went on.  They could hear me laughing down the hall from my
office.  I don't know whose glasses she's wearing in those pictures, but
they aren't her Flexons and they aren't the Laura Ashley frames.  I can only
imagine what it must take to keep the glasses with the right person in an
ALZ facility.  Somehow I just picture one of the activities being musical
glasses!  I told the staff about it but I told them if they find out whose
glasses she has, they have to make sure she has some perched on her nose.
Apparently, it doesn't matter what -- just something.

Karen
Anthony Shipley - 02 Nov 2005 12:53 GMT
>The other day the administrator emailed me some pics of my MIL from an
>outing they went on.  They could hear me laughing down the hall from my
[quoted text clipped - 5 lines]
>glasses she has, they have to make sure she has some perched on her nose.
>Apparently, it doesn't matter what -- just something.

I wouldn't regard that as being satisfactory!

Would it not be easy to engrave a number on the frame of each pair of glasses?
That would easily deal with "switched" glasses. Not only is it demeaning of the
staff to not have such a procedure but I would expect such patients wearing the
incorrect lenses would likely increase the risk of falls, burns, whatever.

I can understand that sufferers of  A.D. provide numerous opportunities for
amusement of carers and staff -- and can live with that -- providing they are
handled/treated with dignity.

Treating it without dignity as well as risking injury is just not on!

If nothing else, I can't see the ALZ facility wouldn't be paying for a
replacement.

No, I am not amused - nor should you be!

Or are we to believe
--
2 + 2 = 5 for sufficiently large values of 2.
Pat Stewart - 02 Nov 2005 17:25 GMT
Musical glasses.  A favorite pasttime, and almost as interesting as Musical
dentures.

As far as engraving a number on the frame goes, if at all possible we do
that, however, some frames are difficult if not impossible to engrave even a
number on.

We do everything we can to help our residents maintain their dignity.  There
are times though, when keeping walkers, glasses, dentures, clothing,
momentos, etc. with the right person is a constant struggle.  Some of my
residents love to shop in other people's rooms.  We have set up a jewelry
box in each of the common rooms and we fill it with inexpensive costume
jewelry.  My ladies love to rummage there, and about once every couple of
weeks, we scour the rooms and find the costume jewelry and replace it into
the common areas.  Then the cycle repeats itself.

The thing that gets me are the times when a Resident is admitted wearing
expensive jewelry.  I have my mom's wedding rings.  The only reason I have
my mom's wedding rings is because when she went into LTC, I replaced those
rings with an inexpensive lookalike. I literally beg people to do the same
for their loved ones when they are admitted.

Sometimes you do just have to laugh though, or else you'll go totally mad.

Patty

> >The other day the administrator emailed me some pics of my MIL from an
> >outing they went on.  They could hear me laughing down the hall from my
[quoted text clipped - 27 lines]
> --
> 2 + 2 = 5 for sufficiently large values of 2.
Anthony Shipley - 03 Nov 2005 04:30 GMT
>Musical glasses.  A favorite pasttime, and almost as interesting as Musical
>dentures.
>
>As far as engraving a number on the frame goes, if at all possible we do
>that, however, some frames are difficult if not impossible to engrave even a
>number on.

How about a tag on the frame to which the ID number goes?
>We do everything we can to help our residents maintain their dignity.  There
>are times though, when keeping walkers, glasses, dentures, clothing,
>momentos, etc. with the right person is a constant struggle.
I can appreciate that; I remember faint memories of my mother telling me about
my grandmother....

> Some of my
>residents love to shop in other people's rooms.  We have set up a jewelry
>box in each of the common rooms and we fill it with inexpensive costume
>jewelry.  My ladies love to rummage there, and about once every couple of
>weeks, we scour the rooms and find the costume jewelry and replace it into
>the common areas.  Then the cycle repeats itself.
I like your term "ladies" -- much more dignified than dearies :-)

>The thing that gets me are the times when a Resident is admitted wearing
>expensive jewelry.  I have my mom's wedding rings.  The only reason I have
>my mom's wedding rings is because when she went into LTC, I replaced those
>rings with an inexpensive lookalike. I literally beg people to do the same
>for their loved ones when they are admitted.
Very good idea.
>Sometimes you do just have to laugh though, or else you'll go totally mad.
Is that where I've been or where I'm going?

--
2 + 2 = 5 for sufficiently large values of 2.
JM Van_Horn - 02 Nov 2005 22:52 GMT
> Would it not be easy to engrave a number on the frame of each pair of
> glasses?
[quoted text clipped - 3 lines]
> wearing the
> incorrect lenses would likely increase the risk of falls, burns, whatever.

I found it best to put a label on the front part of the earpiece.  A mailing
label folded over with the stuck-together end sticking out sideways.  On
that tab I wrote Mom's first name with an indelible pen.  I also wrote her
name on the earpieces themselves, but this could not be seen when the
glasses were on.  Mom was fine with the tab sticking out but I think some
people would not be.

> No, I am not amused - nor should you be!

"Gotta laugh" is short for "You have to laugh to keep from crying."

Joan
Pat Stewart - 03 Nov 2005 04:18 GMT
Joan - we have to keep the labels from showing, or else we get cited by the
State for "dignity issues".

We do everything we can to make sure that the person has on the right
glasses.  We take a picture of them, we put them on the copy machine and put
that in their chart.  It's not something that is taken lightly, but it is a
bit of a merry-go-round at times.

You do need to laugh, at least to hide the tears.

Patty
> > Would it not be easy to engrave a number on the frame of each pair of
> > glasses?
[quoted text clipped - 16 lines]
>
> Joan
Anthony Shipley - 03 Nov 2005 04:32 GMT
>> No, I am not amused - nor should you be!
>
>"Gotta laugh" is short for "You have to laugh to keep from crying."

I'll buy that!

--
2 + 2 = 5 for sufficiently large values of 2.
Lesanne - 03 Nov 2005 02:18 GMT
Not to mention the horrible headache from wearing and trying to see through
the wrong prescription. Mom had mine on for a while one day, and although
she claimed to be able to see fine, all afternoon she was doing her
"headache" behaviors despite saying nothing hurt..........

Signature

Lesanne

>
>>The other day the administrator emailed me some pics of my MIL from an
[quoted text clipped - 34 lines]
> --
> 2 + 2 = 5 for sufficiently large values of 2.
michelle - 03 Nov 2005 04:31 GMT
Being a newbie but an old member of this forum I dont know if i should
jump in here but I have to agree strongly with Anthony.
All residents(as we call them in Oz) personal belongings should be
clearly marked.
However I do feel this is also a family issue my mother is also in a
nursing home and I am a personal carer in a aged care facilty in
Australia.
Everything I take in for my Mum is clearly marked you have no idea what
it is like for care staff with any personal belongings that are not.
Clothing is an absolute nightmare we also have to do the washing and
Ironing where I work and many times I bring up at staff meetings about
this lack of identification then a letter is sent to relatives to help
solve this problem do most families respond No.They sure do however let
us know if they find something missing
Karen - 03 Nov 2005 06:10 GMT
Every article of clothing down to her socks is marked.  And I return the
ones I find in her room that aren't hers.  Everything else of hers is marked
except for the cheap watch and earrings she wears

I couldn't figure out any way to mark a pair of wire frames for someone that
loves picking off labels and such.  All I can say is with a picture of the
glasses, going through her room EVERYWHERE and looking around the whole
facility, the original glasses were not to be found.  I have to figure it's
the price of having her in a place with enough roaming room that she can
walk in the garden or go take a nap on her schedule instead of being in a
more regimented arrangement.

Maybe in Oz, your facilities don't have any places that can't be found but
heck if I'm going to fault the staff because they aren't with her every
moment of the day that she could lose something.  After the hours I spent
searching on top of the time they spent, I consider them lost.  If she can't
read or watch TV, I'll worry about it.  Sorry, but after a certain point --
reality will win and I can't keep fighting the same battle.

Karen

> Being a newbie but an old member of this forum I dont know if i should
> jump in here but I have to agree strongly with Anthony.
[quoted text clipped - 10 lines]
> solve this problem do most families respond No.They sure do however let
> us know if they find something missing
Mary_Gordon@tvo.org - 03 Nov 2005 08:25 GMT
I'm with you Karen. As I've often described, when my MIL was in the
Alzheimer's unit, I had to "toss" her room every week trying to restore
order to her belongings, and every week, I'd end up with an armload of
items belonging to other residents (clothing, eyeglasses, napkins,
toiletries, nicnacs, creamers, lipsticks, books, greeting cards, you
name it).  Some of these were randomly picked up from various places
and taken back to her room by my MIL on her perambulations around the
floor, and some were "dropped off" by other residents making THEIR
rounds. With freedom to roam the entire floor, and maybe 30
residents...well, personal possessions had legs. We just couldn't keep
eyeglasses, hearing aids, and teeth ON my mother in law - she was
constantly taking them off and leaving them places or tucking them into
the garbage, the laundry, whatever ....(and she also grabbed other
people's stuff as she went about her day). You would think it would
BOTHER her to not wear them, but it didn't. She also didn't seem to be
at all troubled by wearing someone elses, and would fight with you if
you tried to take them, whether someone elses ended up on her face or
in her purse. She also wasn't bothered by wearing eye glasses so dirty
they couldn't have done anything for her vision. And then of course
there were the days where ones vaguely similar to hers would show up,
and we'd drive ourself crazy looking through a pile of eye glasses
trying to figure out which ones were hers (and yes, she'd pick labels
off things). I remember once even taking pictures of her wearing hers
with us since we couldn't remember exactly what hers looked like  (I'd
have three similar pairs of eyeglasses in my hand trying to remember
whether hers had little squares at the temple or little circles...and
of course, hubbie was no help, given that he never paid much attention
to those details). The staff tried valiantly to keep order on these
fronts - at one point, they had a lot of these items in a little tub
with her name on it in the nursing station in an attempt to actually
KEEP them safe (eyeglasses and hearing aids aren't cheap). Due to its
location near the central sitting area, the staff even tried keeping
her room locked part of the day, since her room seemed to be a real
magnet for assorted wanderers who'd end up in there and were frequently
having to be retrieved and herded out (with or without their
belongings).

I really don't know what else could have been done, but it certainly
didn't phiz my poor MIL at all. I think at a certain point, it ceases
to matter much, and you can knock yourself out but it doesn't get you
anywhere.

And yes, we'd laugh about this stuff sometimes and make black jokes -
not because we thought poor Dolli was laughable, but because if we
didn't laugh, we'd cry, and we were already ankle deep in the river
we'd already cried.

Mary G.
Karen - 03 Nov 2005 05:58 GMT
> >The other day the administrator emailed me some pics of my MIL from an
> >outing they went on.  They could hear me laughing down the hall from my
[quoted text clipped - 12 lines]
> staff to not have such a procedure but I would expect such patients wearing the
> incorrect lenses would likely increase the risk of falls, burns, whatever.

Anthony, I don't regard it as satisfactory, I regard it as inevitable.  if I
hadn't spent hours trying to find her glasses before to no avail, I might
not be more relaxed about it but it's be amused or go nuts.  It isn't
possible to engrave wire frames, the ear pieces are too small.  And her
original glasses could be burried in a kleenex box in someone else's room,
stuck in someone else's pocket or buried in the garden (all places they have
found glasses).

> I can understand that sufferers of  A.D. provide numerous opportunities for
> amusement of carers and staff -- and can live with that -- providing they are
[quoted text clipped - 6 lines]
>
> No, I am not amused - nor should you be!

The facility treats all of the residents with dignity in spite of the fact
that many of them go "shopping" in other resident's rooms, swap articles of
clothing with each other in the hall, and various other things that make it
difficult to keep items separate.  Without staffing the facility one for one
(and even then, one has to go to the loo) you're never going to eliminate
the problem.  They took a picture of her before this started, but after many
hours of searching (them and me) the first pair vanished into the ethers and
no one was missing a pair to tell us who owned the "new" pair.  Each time,
we've made sure she can read and watch TV, but I can't manage a new pair of
glasses everytime she decides to plant the old pair.

After the problem started, I thought about marking the glasses she was
wearing, but they weren't hers.
After you've pulled your hair out over a problem and come to the conclusion
you can't control it you can either regain your sense of humor or lose it
permanently.

Karen
Pat Stewart - 03 Nov 2005 08:07 GMT
I can't tell you how many times our Caregivers have rescued a pair of
dentures wrapped in a napkin, thrown in the trash.

I can tell you that when something is missing, we search high and low for
that item.  Sometimes it is never found, perhaps it got inadvertently thrown
away, stuck on a box someone in somebody else's room, or even (this has
happened) flushed down the toilet.

Even with markings on items, and it is extremely difficult to mark frames,
things disappear.

I'm sorry, Karen, that your MIL lost her glasses. I'm also glad that you
seem to be handling the situation with grace and humor.

Patty

> > >The other day the administrator emailed me some pics of my MIL from an
> > >outing they went on.  They could hear me laughing down the hall from my
[quoted text clipped - 57 lines]
>
> Karen
Anthony Shipley - 03 Nov 2005 08:08 GMT
>> >The other day the administrator emailed me some pics of my MIL from an
>> >outing they went on.  They could hear me laughing down the hall from my
[quoted text clipped - 6 lines]
>whose glasses she has, they have to make sure she has some perched on her nose.
>> >Apparently, it doesn't matter what -- just something.
Must be hard for her, knowing she needs them but not knowing where they are.

>Anthony, I don't regard it as satisfactory, I regard it as inevitable.  if I
>hadn't spent hours trying to find her glasses before to no avail, I might
[quoted text clipped - 3 lines]
>stuck in someone else's pocket or buried in the garden (all places they have
>found glasses).
Jeez, I can do all that for myself without being in a home :-)

>The facility treats all of the residents with dignity in spite of the fact
>that many of them go "shopping" in other resident's rooms, swap articles of
[quoted text clipped - 6 lines]
>we've made sure she can read and watch TV, but I can't manage a new pair of
>glasses everytime she decides to plant the old pair.
You have my full respect for the work you're doing. From what I remember of my
grandmother and "Uncle Leo's" decline, it certainly made life more difficult. In
some ways they were lucky - having relatively cheap servants (the bad old days
of South Africa).
>After the problem started, I thought about marking the glasses she was
>wearing, but they weren't hers.
[quoted text clipped - 3 lines]
>
>Karen
Thanks for your helpful comments.

If it's any comfort, I am finding that Remynil is making things somewhat better
-- the confusion is mostly gone. My memory is pretty bad - had lunch with an
ex-workmate today. We were to meet at a particular intersection in the city. For
once I remembered to go. I also got there in time. Unfortunately, I waited at
the wrong intersection. Luckily, however, I realised what had happened just in
time to meet her -- but her face!!!!!
:-)

Food for thought: I make the most of the facilities I have to allow me to do
what I can. Fortunately, my wife is comfortable with my driving (night driving
is an agreed no go zone). I hope that my comments/arguments free up other EOAD
sufferers to live their life to the fullest while they can safely.

In that sense, I must speak to my wife about how the carers at her AD carers
meetings regard such issues.

I'm trying to think of ways to enrich the lifes of those with EOAD. Feel free to
offer suggestions (just don't mention driving!! :-)

--
2 + 2 = 5 for sufficiently large values of 2.
Karen - 03 Nov 2005 14:27 GMT
> >> >The other day the administrator emailed me some pics of my MIL from an
> >> >outing they went on.  They could hear me laughing down the hall from my
[quoted text clipped - 7 lines]
> >> >Apparently, it doesn't matter what -- just something.
> Must be hard for her, knowing she needs them but not knowing where they are.

Anthony, that's that catch.  She doesn't _know_ where they are or apparently
which ones are hers.  She may notice an absence but since she wore contacts
for a time, she may not.  If there is something perched on her nose, she
seems happy and will tell you she can see fine.  The only way to test it is
to ask her to read something.

> >Anthony, I don't regard it as satisfactory, I regard it as inevitable.  if I
> >hadn't spent hours trying to find her glasses before to no avail, I might
[quoted text clipped - 4 lines]
> >found glasses).
> Jeez, I can do all that for myself without being in a home :-)

Right.  Now multiply that by 30 or 40 residents.  Anyone that doesn't
recognize that the caregivers do a valient job in trying to keep stuff like
glasses with the right person has never seen them trying to find something.
After awhile you just have to say "Enough!" and bow to the inevitable.
Especially when they try to swap with each other (and some do).

> >The facility treats all of the residents with dignity in spite of the fact
> >that many of them go "shopping" in other resident's rooms, swap articles of
[quoted text clipped - 40 lines]
> --
> 2 + 2 = 5 for sufficiently large values of 2.

Anthony, I think the hardest thing for caregivers to deal with are the
things that make absolutely no sense.  Items like Ronny finding his Mom's BM
in the fridge or one friend of mine whose Mom with ALZ reduced most of her
wardrobe to scraps one day with the scissors "cutting out the patterns".  My
MIL's glasses may be planted in the garden waiting for spring for all I
know.  These are things no caregiver would anticipate because they are
things a person with a working brain just wouldn't do.  You are fortunate
that if it had to develop, it did so at a time in which Remynil is available
to help slow things down.  From what I see and hear from the caregiver side,
it seems like a race to "What next?".

Karen
LindaJean - 02 Nov 2005 15:25 GMT
hahaha that is funny

Linda Jean

>I may have mentioned a few months back that the glasses we had gotten my
>MIL
[quoted text clipped - 24 lines]
>
> Karen
 
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