Medical Forum / Diseases and Disorders / Alzheimer's / October 2005
Driving Ability
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James - 06 Oct 2005 04:09 GMT In your experiences, when has it been determined to terminate driving privileges for the patient? Does the doctor make the decision?
In my opinion, my Dad still drives well enough that I do not believe that he is a danger to himself or others, but his ability has diminished. He has difficulty navigating home if he is in unfamiliar surroundings. Trying to take away his privileges will be a difficult task. He is still very independent, so he thinks.
Thanks,
James
Anthony Shipley - 06 Oct 2005 04:36 GMT >In your experiences, when has it been determined to terminate driving >privileges for the patient? Does the doctor make the decision? [quoted text clipped - 4 lines] >take away his privileges will be a difficult task. He is still very >independent, so he thinks. I'm probably the only person who is going to post anything other than "STOP HIM NOW!".
Does "his ability has diminished" refer to anything other than his ability to find his way to his destination or back? If not, I believe it's Ok in the following circumstances: - it's for more than a trivial need (like going to buy a magazine). - it's a trivial distance and it's a common route for him - the traffic is low - if at night, the roads are reasonably lit and there's sufficient need for the trip.
I won't post much more in the above vein but, knowing what the "uninformed" response is going to be, I will assert that the only people who can assist in the making the decision are those who have local experience of his abilities and judgement and who are on the ground to use that experience to determine the appropriate time to cease driving entirely or at night.
Now for the view of those who know the answer by osmosis... - the streets in question are -- 2 + 2 = 5 for sufficiently large values of 2.
Lee - 06 Oct 2005 07:02 GMT I'm tempted to jump up and down and complain that you're not being fair, Anthony ... I, for one, am loathe to make blanket statements like "STOP HIM NOW" .... and I DO try to avoid ~passing judgement~ .... I CAN, however, see why you would feel that we all do it though .... it does tend to be rather common in here, ESPECIALLY as regards driving... so I'll skip the tantrum (even though I am very very tired and cranky and MS Go Everywhere BUT the Toilet is refusing to GO TO SLEEP DAMNIT!!!!!!!!!!! and a tantrum would suit me right at the moment LOL)
I DO think, though, James, that this is an issue that you need to be EXTREMELY on top of and alert to .... and far better to be overly cautious than not cautious enough! Assuming that your judgement is good, and that you are monitoring his driving ability very closely, AND discussing it with his doctor not just once, but on an ongoing basis .... Anthony is right, in my opinion , when he says that
"that the only people who can assist in
> the making the decision are those who have local experience of his > abilities and > judgement and who are on the ground to use that experience to determine > the > appropriate time to cease driving entirely or at night. "
You do need to keep in mind, however, that his abilities can disappear VERY quickly - and it would REALLY SUCK if you missed dealing with it because of either a lack of close monitoring, or because of a reluctance to confront the issue, and someone ended up hurt or killed as a result.
It's very unfortunate that you really can't give him a vote on the big stuff .... as he becomes more impaired, his ability to self monitor his abilities and to determine what he can safely take on are among the first things to go .... you have to be willing to take that responsibility ...and if you would not be willing to put your toddler in a car with him at the wheel.....
IMO that's the criteria ... if I wouldn't trust someone to drive my kid, I wouldn't risk it for my neighbour's kid(s) either
Anthony Shipley - 06 Oct 2005 13:15 GMT >I'm tempted to jump up and down and complain that you're not being fair, >Anthony ... Heh-heh! Those of us with A.D. certainly don't neet to be fair:-p
>I, for one, am loathe to make blanket statements like "STOP HIM >NOW" .... and I DO try to avoid ~passing judgement~ .... I CAN, however, [quoted text clipped - 3 lines] >BUT the Toilet is refusing to GO TO SLEEP DAMNIT!!!!!!!!!!! and a tantrum >would suit me right at the moment LOL) I certainly can't deny _any_ carer the right to the odd tanty!
>I DO think, though, James, that this is an issue that you need to be >EXTREMELY on top of and alert to .... and far better to be overly cautious [quoted text clipped - 24 lines] >IMO that's the criteria ... if I wouldn't trust someone to drive my kid, I >wouldn't risk it for my neighbour's kid(s) either -- 2 + 2 = 5 for sufficiently large values of 2.
Evelyn Ruut - 06 Oct 2005 13:19 GMT > In your experiences, when has it been determined to terminate driving > privileges for the patient? Does the doctor make the decision? [quoted text clipped - 8 lines] > > James Hi James,
I am not going to be "knee jerk" about it and automatically say you should stop him now, but you must remember that our Anthony is in the same position as your dad. He has been diagnosed with the illness and typical of all the sufferers of alzheimers, he cannot see his own deficits. It would be pretty safe to guess that your dad can't see his own deficits either.
So if that is the case, you will have to be the one to judge his abilities and the dangerousness of his driving, for him. If you really wanted to be safe as well as fair, perhaps you should have him tested by professionals and arrange for periodic testing every couple of months, to see if his abilities have continued to decline. When they say "stop" then so should you. But most people are afraid of that, because they know that the authorities would stop them sooner than they would like to do so themselves.
Now periodic testing might work, if the decline was steady and gradual and always measurable, but everyone here who has cared for a loved one with alzheimers will assure you that some days their abilities are better and some days they are worse. This means he could be tested OK to drive today, and tomorrow morning go out and get into a bad situation. Maybe a life threatening situation.
It could also be dangerous to other drivers and their passengers to encounter someone who is a little confused, which is why they disallow the use of cell phones while driving, or when indulging in alcohol while driving. A very little impairment or distraction can go a long way in contributing to a dangerous mishap.
In our local news there was a story just this week, about two elderly ladies who went out to the store for a bottle of milk and somehow ended up 90 miles from home, the next day (!) completely confused about how they got there. Some tried to suggest it was foul play, but there was no evidence whatsoever for that. But most of us here could probably tell you exactly what it was with some degree of certainty. It was a moment of confusion, whether caused by a mini-stroke, alzheimers, or some other brain glitch.
Now you may think your Dad is OK enough to drive to the store or the bank or the post office with no problem, but what would you say about those little familiar trips if suddenly he had a moment of complete unfamiliarity with his circumstances? What if he suddenly couldn't remember what pedal to push to stop the car? Or how to get back home? Or where he was supposed to be going? These are typical of the kinds of confusion that characterize the illness.
Did you yourself, ever absent-mindedly make a wrong turn off a familiar road and have some difficulty maneuvering back onto your familiar path? Imagine how confusing it could be for your dad to do that?
Allow me to assure you that any of the above is indeed possible, if your dad has been diagnosed.
If a person is diagnosable with alzheimers disease, he ought not to be driving, and not just for his own sake, for the sake of everybody else on the road. There are young children and innocent other drivers out there and we ALL should be comfortably assured in believing that the other drivers on the road are NOT impaired in any way. Not drunk, not yakking on a cell phone, not impaired with a brain illness, but in full possession of ALL their faculties, with FULL concentration on the road. We all deserve that!
I hope that didn't sound too "knee jerk" to you, because I sincerely re-thought the entire thing as I typed it up. I assure you that Anthony, like so many of us, doesn't want to admit that if he has been diagnosed, he has deficits that should preclude driving a several thousand pound vehicle, hurtling down the road.
I don't want a several thousand pound missile hurtling down the road, piloted by an impaired person of any kind, when my daughter is out driving my grandchildren here or there, or when I myself am going out here or there.
I don't care how familiar the road is, or how slow they are going, impairment has a way of mixing up the most familiar of circumstances.
Please re-think the driving issue, and do it soon before there is a tragedy of some kind.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Anthony Shipley - 07 Oct 2005 06:19 GMT >I am not going to be "knee jerk" about it and automatically say you should >stop him now, but you must remember that our Anthony is in the same position >as your dad. He has been diagnosed with the illness and typical of all the >sufferers of alzheimers, he cannot see his own deficits. There you go again, the all seeing, all knowing Evelyn! I can't see my deficits, my wife can't and my neurologist can't. But, hey folks, Evelyn can!! Hoora
Evelyn, according to your prescription, you should trot off to the doctor because you can't see your own deficits. Forgive me, however, if I don't diagnose your deficits. Being a mere mortal, I hesitate to diagnose without even meeting you.
-- 2 + 2 = 5 for sufficiently large values of 2.
Evelyn Ruut - 07 Oct 2005 11:55 GMT >>I am not going to be "knee jerk" about it and automatically say you should >>stop him now, but you must remember that our Anthony is in the same [quoted text clipped - 6 lines] > folks, > Evelyn can!! Hoora Anthony, if you haven't got any noticeable deficits, how on earth did you ever get a diagnosis? Sounds like there is something fishy about your story. Sorry, but that is how I see it.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Caz - 07 Oct 2005 12:01 GMT > >I am not going to be "knee jerk" about it and automatically say you should > >stop him now, but you must remember that our Anthony is in the same position > >as your dad. He has been diagnosed with the illness and typical of all the > >sufferers of alzheimers, he cannot see his own deficits.
> There you go again, the all seeing, all knowing Evelyn! > I can't see my deficits, my wife can't and my neurologist can't. But, hey folks, > Evelyn can!! Hoora Evelyn has first-hand experience of travelling the entire journey with someone with AD, Anthony. Something, as you pointed out, neither you nor your wife (as yet) has. If, as you say, your neurologist can't see that you have any deficits -- yet has accepted, and possibly diagnosed, that you have a degenerative brain disease -- then I would have to question his/her competence.
You have been diagnosed with early onset Alzheimer's Disease. You come across as an intelligent person, so presumably you are aware that you are .. right now .. cognitively impaired. And you are aware that your disease is daily eroding your mental abilities, your reflexes, your capacity to reason, your ability to form judgements. Yet you believe you are able to determine your capabilities. Think about it.
You're entitled to be angry Anthony. I know I would be. But I hope I would remove myself from situations -- such as being behind the wheel of a car -- where I might injure, kill, or cause lifelong pain to another person. To be responsible for the death of someone's child, parent, spouse or partner ...
At what point do you think you _will_ be aware of your deficits, Anthony, when one of your deficits is your loss of awareness of how deficient you've become?
Caz
LindaJean - 07 Oct 2005 14:41 GMT It surprises me how one person gets diagnosed so easily with no symptoms while my husband can't focus his attention and often says bizarre things, forgets he has a closet and yet all the doctors stall about saying he has it.
LindaJean
> Evelyn has first-hand experience of travelling the entire journey with > someone with AD, Anthony. Something, as you pointed out, neither you nor [quoted text clipped - 28 lines] > > Caz Evelyn Ruut - 07 Oct 2005 14:50 GMT > It surprises me how one person gets diagnosed so easily with no symptoms > while my husband can't focus his attention and often says bizarre things, > forgets he has a closet and yet all the doctors stall about saying he has > it. > > LindaJean Yes. They are very careful about diagnosing AD from what I have seen. I have no explanation for Anthony unless he really hasn't got it at all, and is just pulling our legs.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
>> Evelyn has first-hand experience of travelling the entire journey with >> someone with AD, Anthony. Something, as you pointed out, neither you nor [quoted text clipped - 30 lines] >> >> Caz LindaJean - 07 Oct 2005 15:07 GMT You in here warned me it might be a struggle to get the diagnosis and you were so right. At 56 with no idea what his family medical history is and 2 ER visits cuz he was out of control and here I am 5 weeks later. We are going in to his GP this morning because John made the appt. John wants to talk to the doctor that maybe it is a virus also that being in the car for 2 hours might make him have strokes :::sigh:::
Yes I get your point on that one ;-)
LindaJean
> Yes. They are very careful about diagnosing AD from what I have seen. I > have no explanation for Anthony unless he really hasn't got it at all, and [quoted text clipped - 36 lines] >>> >>> Caz Jo Ann Malina - 08 Oct 2005 11:46 GMT LindaJean <lppnp@xyahoo.com> is alleged to have said:
> You in here warned me it might be a struggle to get the diagnosis and you > were so right. At 56 with no idea what his family medical history is and 2 > ER visits cuz he was out of control and here I am 5 weeks later. We are > going in to his GP this morning because John made the appt. John wants to > talk to the doctor that maybe it is a virus also that being in the car for 2 > hours might make him have strokes :::sigh::: I don't remember (pause for appreciation of irony) if you said your husband is having memory problems or not, Linda Jean. In a younger man, if there are personality changes without memory impairment, it might be frontal lobe dementia rather than Alzheimer's. I don't think it changes the outcome, but it may change the treatment.
http://www.cbsnews.com/stories/2004/07/15/health/main629825.shtml
 Signature Jo Ann Malina, make spamthis best to find my address "The mind is a dark forest." -- Jeff MacNelly, "Shoe"
LindaJean - 08 Oct 2005 14:51 GMT yes there are lots of memory issues. This began to have an impact on me because of his memory rather than him changing personality. He has forgotten he had a closet and kept going to the small linen cupboard every time I said "honey it is in the closet, just open the closet door and it will be right in front of you". This happened 4 or 5 times until I had to show him the closet door. John repeats thing often, sometimes the second I finish a sentence he tells it right back to me as if he just thought of it. He has twice that I know of gotten up and walked away while people were in the middle of a conversation with him. My husband was a brilliant man with loads of education. He now talks in circles half the time. I have noticed that if I ask him how he feels about something or what his opinion is he replies by telling me what he read or what he saw on tv re that topic. He seems to not be able to figure out what he thinks about much of anything. It is all very odd
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> I don't remember (pause for appreciation of irony) if you said your > husband is [quoted text clipped - 5 lines] > > http://www.cbsnews.com/stories/2004/07/15/health/main629825.shtml June - 07 Oct 2005 15:21 GMT > It surprises me how one person gets diagnosed so easily with no symptoms > while my husband can't focus his attention and often says bizarre things, > forgets he has a closet and yet all the doctors stall about saying he has > it. What a nightmare for you. But I suppose since this happened so suddenly at relatively young age, the doctors want to be as certain as they can about a diagnosis. With so many variations of this disease, each patient is different too. My 86 year old mother has had dementia for 12 years now and on a good day if you were talking to her on the phone for a short period, you wouldn't pick up on the dementia. She can sound very normal at times. While visiting her at home, I was talking with her the other day about selling her house in Florida. She hates to see it go but told me she realizes that people have their lives and understands why nobody is available to stay with her in Florida. I was amazed that she had this insight but on another day she might not even remember that the house is being sold. Perhaps Anthony has this kind of AD. Extremely slow and less powerful in its influence at first. My mother drove for many years after her diagnosis. Perhaps she shouldn't have but her doctor didn't discourage her. The first two years after diagnosis she drove herself and her husband from Indiana to Florida and back. (He didn't have a drivers license). After that my brother would drive her car down and leave it for her to use and fly down and pick them up in the spring. Her diagnosis was in the fall of '93 and she had a Florida drivers license . I finally had to report her to the state of Florida to stop her driving in early 2001. It should have been done earlier but both of my brothers were in still in denial at that time. So I had to be the bad guy. She really couldn't stay mad at me because she couldn't remember how she lost her license. I know this is another one of my windy responses but I wanted to show how different this disease can be for different people.......June
LindaJean - 07 Oct 2005 15:52 GMT Not windy, helpful :-) It helps those of us just starting this journey to know what may in ahead. Perhaps being better prepared emotionally will help things go smoother. Through your problems you lighten the load of those following. I knew something had gotten very wrong 6 months ago but I let my husband convince me to wait. I shouldn't have but that is spilt milk. Seeing as how this may take a long time to sort out even with him having more bad days it may not have mattered.
LindaJean
> What a nightmare for you. But I suppose since this happened so suddenly at
> relatively young age, the doctors want to be as certain as they can about > a diagnosis. With so many variations of this disease, each patient is [quoted text clipped - 21 lines] > wanted to show how different this disease can be for different > people.......June Tumbleweed - 10 Oct 2005 07:51 GMT >>I am not going to be "knee jerk" about it and automatically say you should >>stop him now, but you must remember that our Anthony is in the same [quoted text clipped - 4 lines] > There you go again, the all seeing, all knowing Evelyn! > I can't see my deficits, my wife can't and my neurologist can't. How do you know you've got any then?
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LindaJean - 06 Oct 2005 15:11 GMT My husband is 56 and diagnosis is "cognitive loss". His doctor and I agreed to have the driver's license pulled as John got lost twice that I know of in the last 6 months. Just turned out to make the trip longer but I felt that was better before it got worse rather than after something awful happened.
Linda
> In your experiences, when has it been determined to terminate driving > privileges for the patient? Does the doctor make the decision? [quoted text clipped - 8 lines] > > James June - 06 Oct 2005 17:13 GMT > In your experiences, when has it been determined to terminate driving > privileges for the patient? Does the doctor make the decision? [quoted text clipped - 4 lines] > Trying to take away his privileges will be a difficult task. He is still > very independent, so he thinks. You could anonymously turn him in to the bureau of motor vehicles and they will have him come in for a test. I realize that it's only a test for that particular day but if he's impaired it should show up. I know that Florida has a preliminary test and then if you don't do well there's another test later. Good Luck I know it's toughie....been there.....June
Mary_Gordon@tvo.org - 07 Oct 2005 02:04 GMT Having been through this, my first stop would be the doctor. In many jurisdictions, the doctor has a legal responsibility to report anyone who has a condition that might potentially affect their ability to drive safely. This usually translates into a request for the person to have a third party driver assessment done, or pass an actual written or road test by a specific date, or have their license revoked.
Even if the doctor has not reported the person, you need to think long and hard about dignity and independence vs. safety. Safety trumps everything else - so no excuses. If the bells are ringing in your gut, don't try to justify ignoring them because you want to spare someone's feeling.
Being able to drive safely isn't just about knowing where you are. Most progressive dementias don't just impact memory. They affect depth perception, judgement, reasoning, emotional control, muscular coordination, reaction time - a whole lot of things that are absolute necessities for driving safely.
At the time my mother in law had to stop driving, she had had no accidents or tickets. However, the doctor had to report her and the prospect of a written test was enough to stop her in her tracks. We got the rules of the road book for her and she just wasn't able to remember speed limits, what various signs meant, etc. etc. I think that matters - she should have known what all the signs meant. Shortly before she lost her licence, she told us a story that made us realize her grasp on the rules were slipping - just a couple of blocks from her apartment was a complicated intersection that had an "advance green" for left turns. It came to an end and turned red, and she didn't understand that meant she couldn't turn left. She launched into a left turn right into solid traffic - and just couldn't understand why they were honking at her. Just no idea that she could have been killed or killed someone else.
Would you want your children on the sidewalk or crossing the street where the person is driving? How about being given a drive by the person?
At a bare minimum, satisfy yourself about their abilities by finding a third party professional who specializes in assessing driving skills, and let them tell you if the person is fit.
Mary G.
LindaJean - 07 Oct 2005 03:16 GMT I made the decision by asking myself if I would feel my grandbabies safe if they were in the car with him. I decided I didn't so I asked the doctor and he pull the license
LindaJean >
> At the time my mother in law had to stop driving, she had had no > accidents or tickets. However, the doctor had to report her and the [quoted text clipped - 20 lines] > > Mary G. Evelyn Ruut - 07 Oct 2005 03:26 GMT >I made the decision by asking myself if I would feel my grandbabies safe if >they were in the car with him. I decided I didn't so I asked the doctor and >he pull the license > > LindaJean Good for you LindaJean. And the best part is that you don't have to look like "the bad guy" in doing so either.
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Best Regards, Evelyn
(to reply to me personally, remove 'sox')
> > >> At the time my mother in law had to stop driving, she had had no [quoted text clipped - 21 lines] >> >> Mary G. Karen - 07 Oct 2005 02:31 GMT James, if his abilities have diminished sufficiently to make a diagnosis, that probably should be considered an answer, but I would ask the doctor to make that call. He's an impartial, third party that is an expert in the subject. (or as my Grandma would say "Why buy a dog and bark yourself")
On a personal note, my MIL lived in a town that you could drive through in approx. 5 minutes. One reason we had to get involved is that she had gotten lost several times _that we knew of_ in the town she had lived in for over 50 years and driven around in excess of 4 hours each time trying to find her way. I remember being in the car when she blew through a school zone at 50+ mph. She had also had a wreck the previous year that she remembered nothing about and had dropped her auto insurance.
You may want to ask yourself what will be the sign that he is no longer able to drive. A wreck? A bashed bumper that he can't explain? I think we all remember the senior citizen that plowed through the crowded market in California because he mistook the gas for the brake. If you don't feel comfortable taking the issue to his doctor, make sure his insurance is kept up.
I believe the rants and tantrums Anthony is referring to was the general reaction to his statement that he still wanted to live life, "even if it means I get stuck between the tyres of a large truck". Few people are lucky enough to be the _only_ recipient of their driving skills on the road when something goes wrong. http://groups.google.com/group/alt.support.alzheimers/msg/b81d74bb5105bbee?hl=en&
Karen
> In your experiences, when has it been determined to terminate driving > privileges for the patient? Does the doctor make the decision? [quoted text clipped - 8 lines] > > James Anthony Shipley - 07 Oct 2005 06:24 GMT >I believe the rants and tantrums Anthony is referring to was the general >reaction to his statement that he still wanted to live life, "even if it >means I get stuck between the tyres of a large truck". Few people are lucky >enough to be the _only_ recipient of their driving skills on the road when >something goes wrong. I think that quote is taken out of context.
-- 2 + 2 = 5 for sufficiently large values of 2.
Karen - 08 Oct 2005 02:09 GMT Anthony, sorry if you think I quoted you out of context. I wanted to make sure your entire message was available if anyone wanted to reference it so I pasted the link to the entire message at the end of the quote. But in it's entirety... ----------------------------------------------------------------- Anthony Shipley Aug 16, 1:29 am
Newsgroups: alt.support.alzheimers From: Anthony Shipley <ast...@iinet.net.au> - Find messages by this author Date: Tue, 16 Aug 2005 14:29:11 +0800 Local: Tues, Aug 16 2005 1:29 am Subject: Re: I am new here
"John Inzer" <o...@doobie.xyz> [WA] wrote:
>I have to wonder how long it may be >before he forgets which side of the road >he should be on. Without knowing, that's an unfair statement on your part.
I'm like that insofar as I can't find my way to places I used to frequent often. Despite that, I'm --currently-- nowhere driving on the wrong side of the road.
It's natural for a carer to be overly protective. Likewise, it's natural for a doctor to be overly cautious -- there are such things as writs. The result can be caution overdone, I understand that, but I would hope that my carer(s) recognise that I am approaching the term of my natural life. I still want to live it -- even if it means I get stuck between the tyres of a large truck. That's far better than choking on my porridge (or eating it :-p)
 Signature 2 + 2 = 5 for sufficiently large values of 2. -----------------------------------------------------------------
> > >I believe the rants and tantrums Anthony is referring to was the general [quoted text clipped - 7 lines] > -- > 2 + 2 = 5 for sufficiently large values of 2. Octavia - 07 Oct 2005 19:33 GMT Take very frequent drives with him to monitor his progress. When you see that he isn't able to hear, see or *react* fast enough, that's when I think it is time to take away the keys. I wouldn't wait until he hurts himself & others. Likewise, I wouldn't want to take the keys prematurely. So I think continuous monitoring is the best solution.
> In your experiences, when has it been determined to terminate driving > privileges for the patient? Does the doctor make the decision? [quoted text clipped - 8 lines] > > James Julian 'Penny for the guy' Hales - 07 Oct 2005 23:17 GMT My granddad could drive from his house to mine no problem, about 6-7 miles, i think what happend was on the way he would forget where he was going........i didnt feel his driving had got worse due to his condition, more his reaction was slower due to his age.
He turned 80 today, spoke to him on the fone.
> Take very frequent drives with him to monitor his progress. When you see > that he isn't able to hear, see or *react* fast enough, that's when I think [quoted text clipped - 14 lines] > > > > James Anthony Shipley - 08 Oct 2005 08:25 GMT >Take very frequent drives with him to monitor his progress. When you see >that he isn't able to hear, see or *react* fast enough, that's when I think >it is time to take away the keys. I wouldn't wait until he hurts himself & >others. Likewise, I wouldn't want to take the keys prematurely. So I think >continuous monitoring is the best solution. Thanks, Octavia, for posting some sense into this thread.
-- 2 + 2 = 5 for sufficiently large values of 2.
Caz - 08 Oct 2005 12:52 GMT > >Take very frequent drives with him to monitor his progress. When you see > >that he isn't able to hear, see or *react* fast enough, that's when I think [quoted text clipped - 3 lines] > > Thanks, Octavia, for posting some sense into this thread. So ... "When you see that he isn't able to hear, see or *react* fast enough" ... as in he's just proceeded through a pedestrian crossing, killing a toddler in a pusher and critically injuring the mother ... "that's when I think it is time to take away the keys" ...?
Caz
Evelyn Ruut - 08 Oct 2005 13:16 GMT >> >Take very frequent drives with him to monitor his progress. When you see >> >that he isn't able to hear, see or *react* fast enough, that's when I [quoted text clipped - 14 lines] > > Caz It is what Anthony wants to hear, unfortunately. I didn't notice his commenting on all the other good points made in this thread, only the lone person who agreed with him.
I just pray he doesn't hurt anyone (or himself) while he continues to drive.
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Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Caz - 08 Oct 2005 13:50 GMT > >> >Take very frequent drives with him to monitor his progress. When you see > >> >that he isn't able to hear, see or *react* fast enough, that's when I [quoted text clipped - 26 lines] > > (to reply to me personally, remove 'sox') I find it extraordinarily irresponsible and reckless (with other people's lives if not their own) that someone would want to *wait* until their deficits become apparent behind the wheel of a car, in order to cease driving.
Caz
Evelyn Ruut - 08 Oct 2005 14:42 GMT >> "Caz" <munged@here.com> wrote in message > news:4347b3c8$1@quokka.wn.com.au... [quoted text clipped - 41 lines] > > Caz I can only imagine what Anthony's poor wife must be going through. He is a very determined and adamant sort of a guy who is quite typical, in being unable to see his own deficits.
My mother in law imagined she was just as capable as she ever was, when it was quite apparent to everyone who knew her that she was in big trouble.
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Best Regards, Evelyn
(to reply to me personally, remove 'sox')
LindaJean - 08 Oct 2005 15:00 GMT Yes my husband will only admit to having a small issue with forgetfulness. He finds amazing ways to explain away his odd behaviors that crop up hahaha LindaJean
> I can only imagine what Anthony's poor wife must be going through. He is > a very determined and adamant sort of a guy who is quite typical, in being > unable to see his own deficits. > > My mother in law imagined she was just as capable as she ever was, when it > was quite apparent to everyone who knew her that she was in big trouble. LindaJean - 08 Oct 2005 14:53 GMT Perhaps I acted a little bit too quickly in having my husband's license and it certainly has not been an easy thing for us. However, I can't see where risking his or someone else's life is worth it. but that is just my opinion being cautious
LindaJean
> It is what Anthony wants to hear, unfortunately. I didn't notice his > commenting on all the other good points made in this thread, only the lone > person who agreed with him. > > I just pray he doesn't hurt anyone (or himself) while he continues to > drive. Evelyn Ruut - 08 Oct 2005 14:49 GMT > Perhaps I acted a little bit too quickly in having my husband's license > and it certainly has not been an easy thing for us. However, I can't see > where risking his or someone else's life is worth it. but that is just my > opinion being cautious > > LindaJean As the mayor of NY city said yesterday, "it is better to err on the side of caution"
I think you did the right thing. If driving impaired, or using a cell phone is dangerous, how much more so is it if one has an organic illness which affects ones judgement and memory severely enough to be noticeable?
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
>> It is what Anthony wants to hear, unfortunately. I didn't notice his >> commenting on all the other good points made in this thread, only the >> lone person who agreed with him. >> >> I just pray he doesn't hurt anyone (or himself) while he continues to >> drive. Karen - 08 Oct 2005 17:22 GMT If you think you acted too quickly, consider what your financial situation might be if you were sued for reckless endangerment for not acting in the face of the diagnosis you received. Aside from the issue of being sued by injured parties, try going to Google news and searching on the terms "Alzheimer's" and "missing" and see how many people disappear by getting lost in their car. Some wander off on foot but some forget they aren't supposed to drive and can't find their way home (aka how to get lost faster in a bigger way). You did what was necessary to ensure his safety and that of others on the road. Considering the behavior you've described, how do you think he would handle it if a teen driver made a mistake and ran into his car? Could he remain calm and exchange necessary info?
Karen
> Perhaps I acted a little bit too quickly in having my husband's license and > it certainly has not been an easy thing for us. However, I can't see where > risking his or someone else's life is worth it. but that is just my opinion > being cautious > > LindaJean LJ - 08 Oct 2005 20:54 GMT no I honestly don't think he could
LindaJean
> If you think you acted too quickly, consider what your financial situation > might be if you were sued for reckless endangerment for not acting in the [quoted text clipped - 9 lines] > > Karen Ruth - 09 Oct 2005 03:32 GMT Karen is exactly right. And please, Linda Jean, you need to give yourself credit for doing the right thing. It is a very difficult decision for the caregiver to make and most of us know the kind of courage it takes to do that. I am so sorry you are having to deal with so many issues at once; but I marvel at how you are finding the strength we see. We are in your corner! Ruth
> If you think you acted too quickly, consider what your financial situation > might be if you were sued for reckless endangerment for not acting in the [quoted text clipped - 21 lines] >> >> LindaJean LJ - 09 Oct 2005 13:52 GMT it is amazing how much a person can cry <wink>. I am astounded at how quickly everything in life can turn upside down. It seems forever since we had "normal" and it has only been 6 months. I see others in here hanging on thru such heartbreaking events. I just need to learn how to handle things better as they crop up and have much more patience with my husband when he his mind tells him things that are not true.
Linda
> Karen is exactly right. And please, Linda Jean, you need to give yourself > credit for doing the right thing. It is a very difficult decision for the [quoted text clipped - 3 lines] > marvel at how you are finding the strength we see. We are in your corner! > Ruth Dennis P. Harris - 09 Oct 2005 10:41 GMT > Perhaps I acted a little bit too quickly in having my husband's license and > it certainly has not been an easy thing for us. However, I can't see where > risking his or someone else's life is worth it. but that is just my opinion > being cautious thank you! i had to do it for my mother, but her doc said once she thought seriously of mom behind the wheel, it was an easy decision to notify DMV.
mom knew that she couldn't pass the test, so DMV revoked her license.
LJ - 09 Oct 2005 13:54 GMT and it helps me to hear that. I feel guilt even tho I know I did the right thing :-) Linda
> On Sat, 08 Oct 2005 13:53:58 GMT in alt.support.alzheimers, > thank you! i had to do it for my mother, but her doc said once [quoted text clipped - 3 lines] > mom knew that she couldn't pass the test, so DMV revoked her > license. Evelyn Ruut - 09 Oct 2005 14:15 GMT > and it helps me to hear that. I feel guilt even tho I know I did the right > thing :-) > Linda LindaJean,
On this newsgroup we always say "guilt is not allowed" here. It is a good thing to remember. Caregiving requires so much of us that we all too often forget to take care of ourselves. No blame, no guilt, just do the best you can with what you have at the time. Nobody is perfect, and our view is never the full picture. I have a cool list of little rules for life somewhere in which one of the adages is:
"All the important decisions in life are made on the basis of insufficient data"
It seems to be one I need to call on a lot :-)
 Signature
Best Regards, Evelyn
(to reply to me personally, remove 'sox')
>> On Sat, 08 Oct 2005 13:53:58 GMT in alt.support.alzheimers, > > thank you! i had to do it for my mother, but her doc said once [quoted text clipped - 3 lines] >> mom knew that she couldn't pass the test, so DMV revoked her >> license. LJ - 09 Oct 2005 14:29 GMT I have never heard that line but I shall have it tattooed across my forehead first thing <g> That is great hahaha I keep second guessing myself and I know that is making all this worse LindaJean
> On this newsgroup we always say "guilt is not allowed" here. It is a good
> thing to remember. Caregiving requires so much of us that we all too often > forget to take care of ourselves. No blame, no guilt, just do the best you [quoted text clipped - 13 lines] > >> mom knew that she couldn't pass the test, so DMV revoked her > >> license. Evelyn Ruut - 09 Oct 2005 14:23 GMT >I have never heard that line but I shall have it tattooed across my >forehead [quoted text clipped - 3 lines] > all this worse > LindaJean Glad you liked it :-)
Here is the full list. I saved it years ago (before the internet made such lists common) and frankly I still find myself applying some of the "rules" to life circumstances. It seems that there is a "rule" on this list to apply to almost every circumstance that pops up in living. You might want to print it up or copy and paste it and save it. I find it is worth having and keeping around.
A PARTIAL REGISTER OF 927 TRUTHS
1. This is it!
2. There are no hidden meanings.
3. You can't get there from here,and besides there's no place else to go.
4. We are all already dying and we will be dead for a long time.
5. Nothing lasts.
6. There is no way of getting all you want.
7. You can't have anything unless you let go of it.
8. You only get to keep what you give away.
9. There is no particular reason why you lost out on some things.
10. The world is not necessarily just. Being good often does not pay off, and there
is no compensation for misfortune.
11. You have a responsibility to do your best nonetheless.
12. It is a random universe to which we bring meaning.
13. You don't really control anything.
14. You can't make anyone love you.
15. No one is any stronger or any weaker than anyone else.
16. Everyone is in his own way, vulnerable.
17. There are no great men.
18. If you have a hero, look again: you have diminished your self in some way.
19. Everyone lies, cheats pretends (yes you too and most certainly I myself).
20. All evil is potential vitality in need of transformation.
21. All of you is worth something if you will only own it.
22. Progress is an illusion.
23. Evil can be displaced but never eradicated as all solutions breed new problems.
24. Yet it is necessary to keep on struggling toward solution.
25. Childhood is a nightmare.
26. But it is so hard to be an on-your-own, take-care-of-your-self-cause-
there-is-no-one-else-to-do-it-for-you-grown-up.
27. Each of us is ultimately alone.
28. The most important things each man must do for himself.
29. Love is not enough, but it sure helps.
30. We have only ourselves and one another. That may not be much, but that's all
there is.
31. How strange, that so often it all seems worth it.
32. We must live within the ambiguity of partial freedom, partial power, and partial
knowledge.
33. All important decisions must be made on the basis of insufficient data.
34. Yet we are responsible for everything we do.
35. No excuses will be accepted.
36. You can run but you can't hide.
37. It is most important to run out of scapegoats.
38. We must learn the power of living with our helplessness.
39. The only victory lies in surrender to oneself.
40. All of the significant battles are waged within the self.
41. You are free to do whatever you like, you need only face the consequences.
42. What do you know.....for sure....anyway?
43. Learn to forgive yourself, again and again and again and again.......
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
LJ - 09 Oct 2005 14:44 GMT saved! Thanks <s>
LJ
> Glad you liked it :-) > [quoted text clipped - 4 lines] > to print it up or copy and paste it and save it. I find it is worth having > and keeping around. Lee - 09 Oct 2005 15:03 GMT I like it ...especially, right now,
"3. You can't get there from here,and besides there's no place else to go."
My MIL's obsession of the day (so far anyway) is that she insists she wants to go downstairs ...c'mon, let's go .... she's very perturbed that I won't go with her. I'd be somewhat more inclined to co-operate if we actually HAD a downstairs LOL
>>I have never heard that line but I shall have it tattooed across my >>forehead [quoted text clipped - 120 lines] > 43. Learn to forgive yourself, again and again and again and > again....... LJ - 09 Oct 2005 15:20 GMT hahahaha thanks I needed a giggle. Yesterday my husband was perturbed about the report from the radiologist and how it would get to the new Neuro. We don't have a radiologist and there is no report. But I finally convinced him I would make sure the report got there <wink> LJ
> I like it ...especially, right now, > [quoted text clipped - 5 lines] > go with her. I'd be somewhat more inclined to co-operate if we actually HAD > a downstairs LOL Jo Ann Malina - 10 Oct 2005 13:44 GMT Evelyn Ruut <mama-lionsox@hvc.rr.com> is alleged to have said:
>>I have never heard that line but I shall have it tattooed across my >>forehead [quoted text clipped - 12 lines] > to print it up or copy and paste it and save it. I find it is worth having > and keeping around. Oh, I remember this. I don't know where that title came from. It's actually a book by Sheldon Kopp called "No Hidden Meanings." Each of these sentences appeared on one page with an evocative black and white photograph. It is certainly worth getting if you can find it.
Kopp is (was? I think he's dead) a psychotherapist and Buddhist who wrote books like "If you Meet the Buddha on the Road, Kill Him," "The Hanged Man," and "Raise Your Right Hand Against Fear: Extend the Other in Compassion" about the inner journeys of psychotherapy and spirituality.
Unfortunately, "No Hidden Meanings" appears to be out of print. You can go to Powell's web site (www.powells.com) and ask them to notify you if they get a used copy. (Amazon doesn't have any either, but I don't encourage people to use Amazon, bookstore killers that they are. Powell's is a real bookstore in Portland, Oregon.)
> A PARTIAL REGISTER OF 927 TRUTHS > [quoted text clipped - 102 lines] > 43. Learn to forgive yourself, again and again and again and > again.......
 Signature Jo Ann Malina, make spamthis best to find my address Your highest god is your highest obstacle. -- Joseph Campbell
Evelyn Ruut - 10 Oct 2005 19:37 GMT Jo Ann, Thanks much. You jogged my memory a bit. I believe I got it originally from the book "If you meet the Buddha on the road, kill him"... An often misunderstood sentence/koan. It means that the buddha without (on the road) is not the real buddha, the buddha within is the real buddha wisdom we seek. At any rate, I always liked that list :-)
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
> Evelyn Ruut <mama-lionsox@hvc.rr.com> is alleged to have said: >>>I have never heard that line but I shall have it tattooed across my [quoted text clipped - 149 lines] >> 43. Learn to forgive yourself, again and again and again and >> again....... Beth Cole - 09 Oct 2005 16:03 GMT > and it helps me to hear that. I feel guilt even tho I know I did the right > thing :-) Guilt is the response of the emotional part of the brain that says we have control over situations over which the logical part of the brain knows we have no control. It is a cognitive dissonence response, in an effort to exert control over our circumstances.
You did nothing to cause your husband's condition. You can only react in ways to keep him, and the people around him, safe, which you have done.
Beth
 Signature "History will deal kindly with me, for I intend to write it." --Winston Churchill
LJ - 09 Oct 2005 16:13 GMT thank you for the kind words
LJ
> > and it helps me to hear that. I feel guilt even tho I know I did the right > > thing :-) [quoted text clipped - 8 lines] > > Beth Evelyn Ruut - 09 Oct 2005 16:58 GMT >> and it helps me to hear that. I feel guilt even tho I know I did the >> right [quoted text clipped - 9 lines] > > Beth Great wisdom in that, Beth!
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Karen - 13 Oct 2005 02:54 GMT Here's a good info source on this topic that I ran across while helping a co-worker research something... http://www.aging-parents-and-elder-care.com/Pages/Checklists/Elderly_Drivers.html
When to Put the Brakes On Elderly Drivers Are elderly drivers safe? Yes ... for the most part. The same can be said for teen drivers.
Do driving skills of elderly drivers decline with age? Yes, but just like other age groups, driving skills vary from one elderly person to another. Telling elderly drivers that it may be time to stop driving can be one of the most difficult milestones for caregivers. Driving represents freedom and independence for the elderly ... the ability to visit friends, go to the movies and shop ... without relying on anyone else.
Revoking an elderly person's drivers license over a certain age is not an acceptable solution. Elderly driving skills vary widely at all ages. It is unfair to punish most elderly drivers for problems caused by only a few drivers. --- continued ---
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