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Medical Forum / Diseases and Disorders / Alzheimer's / September 2005

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Ah Well. :-)

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Ronny TX - 13 Sep 2005 00:00 GMT
Sick some this weekend and slept a lot yesterday evening,so didn't go to
bed till late last night. That was a mistake because about the time I
got in bed, reading and nearly ready to go to sleep, Mom was up and
about. And she wanted me up too. Kept coming into my bedroom and pulling
at my arm or T shirt. Many times I just keep my eyes mostly shut and
hope she goes back to bed. And then I get mean if that doesn't happen.
:-) About the 6th or so time Mom comes in,I'll have my eyes mostly shut
and when she gets close to my bed I go Boo! LoL I know,that sounds
mean;but when I do that I have to start laughing and she starts
grinning. :-)  

And I wear a t shirt and short pants and just sleep on top of the sheet
this time of year and Mom wants to cover me up! I've woke up with a
quilt on me and sweating not that long ago! Last night she wanted to put
the quilt on me and I told her if she kept that up I was going to wrap
her up in the blanket and throw her in our farm pond! LoL She just
grinned and said,no you're not! LoL

But late last night Mom just kept coming into my room right before I
would get to sleep and onetime after I'd slept about 5 minutes or so!
(sigh) I would talk to her just a bit and then tell her she needed to go
back to bed. Onetime she informed me she couldn't do that as there were
4 men in her bed! :-) And I am still trying to figure out how 4 men
would fit on one hospital bed?! LoL

Then there was the one time she wanted to sleep in my bed and I told her
no,she had to go back and sleep in her own. And she informed me her
boyfriend said she could sleep where she wanted to! :-) Now this is the
first time I've heard of her boyfriend! :-) LoL

I did get up once and got Mom to get in her bed and got her all covered
up. That lasted for less than 5 minutes! (sigh) So finally gave it up
and got up about 5:30am. Fixed us something to eat and gave Mom here
meds and just stuck my feet up in my chair and went to reading. Finally
managed to get back to sleep after an hour or so.

I know she doesn't know any better and that's sad;but I can't help but
get tickled when Mom comes up with new stuff like the 4 men in her bed
and her boyfriend. :-) I just never know what new things she will come
up with as to why she should do what she wants and not what I tell her
she needs to do! LoL
Gwen Love - 13 Sep 2005 01:28 GMT
Ronny, sometimes it is the funny things that keep you going.  You'll
remember those things after all the bad memories go away!
Gwen

> Sick some this weekend and slept a lot yesterday evening,so didn't go to
> bed till late last night. That was a mistake because about the time I
[quoted text clipped - 37 lines]
> up with as to why she should do what she wants and not what I tell her
> she needs to do! LoL
Ronny TX - 13 Sep 2005 07:37 GMT
Re: Ah Well. :-)  
Group: alt.support.alzheimers Date: Mon, Sep 12, 2005, 7:28pm From:
cglghl@knology.net (Gwen Love)
Ronny, sometimes it is the funny things that keep you going. You'll
remember those things after all the bad memories go away! Gwen

Ronny:
And it's good that that's true! :-)

Ah,one thing that really threw me was the first time my Mom asked me who
I was!:-( That was a year or two ago now. Now that's a hard one to take!
Now I think she knows who I am at times;but I don't ask her if she does.
I figure it's best to just leave such alone as a no answer would upset
me some and it might very well cause Mom to get upset too and no use in
that.

Now if anyone comes by they or I may tell Mom who they are if it seems
she doesn't know. That still seems to work for a very short times at
times;but then as soon as they're gone,I may say so and so was just here
and many times Mom will not remember a bit of it. But the good part is
she still can have a happy time with people in the here and now. When
they're right with here and talking to her.

But when she asks about someone like a deceased sister,I just say she's
at her home now and Mom's OK with that. That is unless she's determined
I take her to here sister's house. :-) Then I have to tell her no,I have
to do so and so first. Sometimes that upsets her;but the good part is
she soon forgets about what upset her.

What really bugged me was when her nephew came by awhile back. He had to
tell her who he was and she asked about his Mom,her sister,who had
recently died. Of course,Mom didn't remember that until he reminded her
of it and then she started crying. I wish some people would simply tell
her that so and so is fine. For to Mom,  people like here Mom and
Dad,brothers and sisters-they are still very much alive to her and she
simply wants to know how they are? I had thought my cousin would get all
of that because his Mom had Alzheimers too before she died;but maybe he
didn't because it was another brother or his and wife that were taking
care of her?
-------------
"Ronny TX" <Acts17-11@webtv.net> wrote in message
news:584-43260895-1275@storefull-3337.bay.webtv.net...
Sick some this weekend and slept a lot yesterday evening,so didn't go to
bed till late last night. That was a mistake because about the time I
got in bed, reading and nearly ready to go to sleep, Mom was up and
about. And she wanted me up too. Kept coming into my bedroom and pulling
at my arm or T shirt. Many times I just keep my eyes mostly shut and
hope she goes back to bed. And then I get mean if that doesn't happen.
:-) About the 6th or so time Mom comes in,I'll have my eyes mostly shut
and when she gets close to my bed I go Boo! LoL I know,that sounds
mean;but when I do that I have to start laughing and she starts
grinning. :-)
And I wear a t shirt and short pants and just sleep on top of the sheet
this time of year and Mom wants to cover me up! I've woke up with a
quilt on me and sweating not that long ago! Last night she wanted to put
the quilt on me and I told her if she kept that up I was going to wrap
her up in the blanket and throw her in our farm pond! LoL She just
grinned and said,no you're not! LoL
But late last night Mom just kept coming into my room right before I
would get to sleep and onetime after I'd slept about 5 minutes or so!
(sigh) I would talk to her just a bit and then tell her she needed to go
back to bed. Onetime she informed me she couldn't do that as there were
4 men in her bed! :-) And I am still trying to figure out how 4 men
would fit on one hospital bed?! LoL
Then there was the one time she wanted to sleep in my bed and I told her
no,she had to go back and sleep in her own. And she informed me her
boyfriend said she could sleep where she wanted to! :-) Now this is the
first time I've heard of her boyfriend! :-) LoL
I did get up once and got Mom to get in her bed and got her all covered
up. That lasted for less than 5 minutes! (sigh) So finally gave it up
and got up about 5:30am. Fixed us something to eat and gave Mom here
meds and just stuck my feet up in my chair and went to reading. Finally
managed to get back to sleep after an hour or so.
I know she doesn't know any better and that's sad;but I can't help but
get tickled when Mom comes up with new stuff like the 4 men in her bed
and her boyfriend. :-) I just never know what new things she will come
up with as to why she should do what she wants and not what I tell her
she needs to do! LoL
Gwen Love - 14 Sep 2005 00:38 GMT
Ronny, your having to tell your mom you couldn't take her somewhere reminded
me of my daddy.  He was with me before he went to the nursing home and he
decided one afternoon that I should take him to my uncle's house about 3
hours away for a family reunion (which wasn't).  I told him no and he said
well he'd walk.  It was raining and I told him he couldn't walk in the rain,
but he thought he could.  When I wouldn't let him out the front door, he
slapped me (he was a BIG man).  Then he headed to the door to the garage.
When he got in the garage, I closed the door from inside the house and
wouldn't let him out.  I had some 2 liter cokes stored out there and he
started kicking the coke bottles.  Got coke all over my car!  He got so
upset and acted so ugly that I called the doctor to tell him and he sent the
cops out to take him to the psychiatric unit at the hospital.  I had also
called my pastor who Daddy liked and he and his wife came and they took him
to the hospital since he went with them willingly.  It wasn't too long then
until he was in the nursing home.  He was really determined to go to my
uncle's no matter what!
Gwen

Re: Ah Well. :-)
Group: alt.support.alzheimers Date: Mon, Sep 12, 2005, 7:28pm From:
cglghl@knology.net (Gwen Love)
Ronny, sometimes it is the funny things that keep you going. You'll
remember those things after all the bad memories go away! Gwen

Ronny:
And it's good that that's true! :-)

Ah,one thing that really threw me was the first time my Mom asked me who
I was!:-( That was a year or two ago now. Now that's a hard one to take!
Now I think she knows who I am at times;but I don't ask her if she does.
I figure it's best to just leave such alone as a no answer would upset
me some and it might very well cause Mom to get upset too and no use in
that.

Now if anyone comes by they or I may tell Mom who they are if it seems
she doesn't know. That still seems to work for a very short times at
times;but then as soon as they're gone,I may say so and so was just here
and many times Mom will not remember a bit of it. But the good part is
she still can have a happy time with people in the here and now. When
they're right with here and talking to her.

But when she asks about someone like a deceased sister,I just say she's
at her home now and Mom's OK with that. That is unless she's determined
I take her to here sister's house. :-) Then I have to tell her no,I have
to do so and so first. Sometimes that upsets her;but the good part is
she soon forgets about what upset her.

What really bugged me was when her nephew came by awhile back. He had to
tell her who he was and she asked about his Mom,her sister,who had
recently died. Of course,Mom didn't remember that until he reminded her
of it and then she started crying. I wish some people would simply tell
her that so and so is fine. For to Mom,  people like here Mom and
Dad,brothers and sisters-they are still very much alive to her and she
simply wants to know how they are? I had thought my cousin would get all
of that because his Mom had Alzheimers too before she died;but maybe he
didn't because it was another brother or his and wife that were taking
care of her?
-------------
"Ronny TX" <Acts17-11@webtv.net> wrote in message
news:584-43260895-1275@storefull-3337.bay.webtv.net...
Sick some this weekend and slept a lot yesterday evening,so didn't go to
bed till late last night. That was a mistake because about the time I
got in bed, reading and nearly ready to go to sleep, Mom was up and
about. And she wanted me up too. Kept coming into my bedroom and pulling
at my arm or T shirt. Many times I just keep my eyes mostly shut and
hope she goes back to bed. And then I get mean if that doesn't happen.
:-) About the 6th or so time Mom comes in,I'll have my eyes mostly shut
and when she gets close to my bed I go Boo! LoL I know,that sounds
mean;but when I do that I have to start laughing and she starts
grinning. :-)
And I wear a t shirt and short pants and just sleep on top of the sheet
this time of year and Mom wants to cover me up! I've woke up with a
quilt on me and sweating not that long ago! Last night she wanted to put
the quilt on me and I told her if she kept that up I was going to wrap
her up in the blanket and throw her in our farm pond! LoL She just
grinned and said,no you're not! LoL
But late last night Mom just kept coming into my room right before I
would get to sleep and onetime after I'd slept about 5 minutes or so!
(sigh) I would talk to her just a bit and then tell her she needed to go
back to bed. Onetime she informed me she couldn't do that as there were
4 men in her bed! :-) And I am still trying to figure out how 4 men
would fit on one hospital bed?! LoL
Then there was the one time she wanted to sleep in my bed and I told her
no,she had to go back and sleep in her own. And she informed me her
boyfriend said she could sleep where she wanted to! :-) Now this is the
first time I've heard of her boyfriend! :-) LoL
I did get up once and got Mom to get in her bed and got her all covered
up. That lasted for less than 5 minutes! (sigh) So finally gave it up
and got up about 5:30am. Fixed us something to eat and gave Mom here
meds and just stuck my feet up in my chair and went to reading. Finally
managed to get back to sleep after an hour or so.
I know she doesn't know any better and that's sad;but I can't help but
get tickled when Mom comes up with new stuff like the 4 men in her bed
and her boyfriend. :-) I just never know what new things she will come
up with as to why she should do what she wants and not what I tell her
she needs to do! LoL
ncgen - 13 Sep 2005 02:05 GMT
I can relate to the strange man bit. I've had residents tell their
families or the staff about men being in their room at night or
sleeping in their  beds.
At one point, MIL and FIL were in the same facility. We had placed her
in his room.  Boy, was that an interesting experience.  I was working
there as the assist Adm. and my office was right up the hall from their
room.  MIL lost it.

Hubby and I had gone on a quick weekend getaway a few days later which
we'd not had in several years when the staff paged me the first night.
MIL had thrown his things out of the room. She moved the night stand in
front of the door and wouldn't let him in the room. They put him in
another room for the night until we could get back in town.  MIL said
she wasn't letting some man in her bed.  She had no idea anymore who
this man was and they'd been married over 50 years. I think I told
about the night in a motel when she started screaming b/c of thinking
hubby was some strange man in her bed.

There was another lil lady that MIL walked the halls with singing all
day and we eventually moved them in together. That brought other
problems which caused MIL to regress further though b/c that woman
crawled into bed with MIL and sexually  accosted her which sent MIL
into a tailspin. We had a real nightmare for awhile.
Ronny TX - 13 Sep 2005 07:46 GMT
Re: Ah Well. :-)  
Group: alt.support.alzheimers Date: Mon, Sep 12, 2005, 6:05pm (CDT-2)
From: ncgensearcher@hotmail.com (ncgen)
I can relate to the strange man bit. I've had residents tell their
families or the staff about men being in their room at night or sleeping
in their beds.
At one point, MIL and FIL were in the same facility. We had placed her
in his room. Boy, was that an interesting experience. I was working
there as the assist Adm. and my office was right up the hall from their
room. MIL lost it.
Hubby and I had gone on a quick weekend getaway a few days later which
we'd not had in several years when the staff paged me the first night.
MIL had thrown his things out of the room. She moved the night stand in
front of the door and wouldn't let him in the room. They put him in
another room for the night until we could get back in town. MIL said she
wasn't letting some man in her bed. She had no idea anymore who this man
was and they'd been married over 50 years. I think I told about the
night in a motel when she started screaming b/c of thinking hubby was
some strange man in her bed.

Ronny:
Ah,those are the ones you feel sad about and yet have to smile some
about too!:-)

NC:
There was another lil lady that MIL walked the halls with singing all
day and we eventually moved them in together. That brought other
problems which caused MIL to regress further though b/c that woman
crawled into bed with MIL and sexually accosted her which sent MIL into
a tailspin. We had a real nightmare for awhile.

Ronny:
Oh my!

Now this is a different deal;but I am interested in it. I'm wondering
how it is for gay couples who have to go in a nursing home? Say one or
both are still in their right mind. I don't even know;but do nursing
homes and such in general let older gay couples like that have their own
room together?
Pat Stewart - 13 Sep 2005 16:01 GMT
> Now this is a different deal;but I am interested in it. I'm wondering
> how it is for gay couples who have to go in a nursing home? Say one or
> both are still in their right mind. I don't even know;but do nursing
> homes and such in general let older gay couples like that have their own
> room together?

I can't answer for all AL's, Ronny, but I personally know that it would not
be a problem where I work.

Patty
ncgen - 13 Sep 2005 16:34 GMT
In our state, state regs address married couples, but not anything
which is different from the traditional married couple.  Now, the
couple could elect to  move in together.  But in the last place I
worked, if one went to the hospital, even for a day, they would
reassign the room to the next person coming in or charge them a per
diem bed hold.  So technically, they would request to room together but
if one went to the hospital and wasn't able to pay or chose not to pay
the $ 1050/week to hold that bed, then they wouldn't be able to stay
together.  It was different when I worked for smaller companies rather
than large corps,  They were more flexible with allowing the faciilty
to decide on things like that.
Karen - 16 Sep 2005 03:42 GMT
The place my MIL is at asked about sexual orientation and if the person is
sexually active.  It's one of the few times I've seen my hubby stumped.  :-)

From the tales I've heard from some people that work in the ALF field, I now
understand why they ask.  From my experiences with the ALF in my MIL's small
home town versus the experience in our own "big city" I'd say the major
metropolitan areas might be more open.  A lot would probably depend on the
legal paperwork (POA, medical POA and designation of guardian) since you
couldn't fall back on the basic spousal rights.  I saw a lot of that
situation in the '80s.  It's sad when people have been together 30+ years
but don't have the legal protections to take care of each other.

Karen

----snip----
> Now this is a different deal;but I am interested in it. I'm wondering
> how it is for gay couples who have to go in a nursing home? Say one or
> both are still in their right mind. I don't even know;but do nursing
> homes and such in general let older gay couples like that have their own
> room together?
Pat Stewart - 16 Sep 2005 06:07 GMT
We have never, ever asked about sexual orientation in our ALF.  We do have
two married couples (both with dementia) who live there.  They have been
married 58 years and you never see one without the other.

One of our residents moved in with her husband, and he got very ill, went to
the hospital and passed away.  We did not tell her about his death, frankly
she wouldn't have understood or remembered it anyway.  It just seemed cruel
to tell her.

Now she has attached herself to another Resident, a female.  She is always
with her, and says that she is her husband.  When they are apart, she gets
very agitated.  The other woman's family is so happy about the arrangement.
They said that she never really had a strong emotional bond with anybody
until now.  So it's working for both of them.  They now share a room, and
most of the time, they share a bed.  It's actually very sweet to see them
together, holding hands and walking to dinner.  They both get so much out of
the relationship.

Honestly, our Residents have the right to privacy, and asking about their
sexual orientation is not part of our admission process.  Frankly, it's
really none of our business.

Patty
Evelyn Ruut - 16 Sep 2005 12:46 GMT
> We have never, ever asked about sexual orientation in our ALF.  We do have
> two married couples (both with dementia) who live there.  They have been
[quoted text clipped - 24 lines]
>
> Patty

Patty that is so good to hear.   Maybe society is really starting to change
in regards to what privacy and human rights for all people is really about.
I think that when people are old and ill, and it harms no one, nobody should
tell them where they should be allowed to seek comfort and companionship.
It really isn't anyones business, just as you state.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Karen - 16 Sep 2005 13:29 GMT
I think the inquiry was intended to assist room mate placement.  When they
saw our reaction, they told us we weren't required to answer it.  After I
thought about it, it made sense because we are a diverse city.

Two residents landed in my MIL's place after their spouses passed away and
they decided they were married to each other  All they did was hold hands or
hug, but their kids had major overreactions and yanked them out into
separate facilities.  After seeing that, I could imagine something similar
if someone that was not very tolerant found their parent was placed in a
double room with someone that was gay.  Any minor gesture of friendship or
affection could be blown out of proportion by people that are already
emotionally overwrought about putting their parent in "one of those places".

After some of the residents they've had since, I've come to the conclusion
that it was an effort to be sensitive to the social needs of the residents.
They've actually been quite considerate about not invading my MIL's privacy
or space which I thought was an amazing trick considering the personal
hygiene issues they have to help her with.

Karen

> We have never, ever asked about sexual orientation in our ALF.  We do have
> two married couples (both with dementia) who live there.  They have been
> married 58 years and you never see one without the other.
----snip----
> Honestly, our Residents have the right to privacy, and asking about their
> sexual orientation is not part of our admission process.  Frankly, it's
> really none of our business.
>
> Patty
Mary_Gordon@tvo.org - 16 Sep 2005 13:50 GMT
Kinda sad, isn't it. I'd have beenso tickled if my poor MIL had found
someone to hold hands with, no matter how delusional she was about who
they were. A little romance and affection is good for everyone.

But then....my grandfather, entirely in his right mind and a widower
after a 57 year marriage, remarried when he was 83 to a neighbour, and
our entire family was THRILLED. In many ways, it was a testament to my
grandmother, since he certainly had positive views about marriage and
wanted to be back in that condition.

Mary G.
ncgen - 16 Sep 2005 15:12 GMT
That's so sweet about your grandfather. You're right it was a testament
to your grandmother.  I had two residents marry once while living in
the facility.  Both were able to enough to make their wishes known and
cognitively intact at that point.  One family objected but the woman
made it clear to them it was her life and she was getting married. They
were married in the chapel/library at the facility with family,
residents, and staff present.  They shared a room until she had a
massive stroke and had to move to a SNF.  Even then staff transported
him to visit her weekly until he became demented and didn't remember
her.  What was so nice was that they were able to find each other and
share the time they did have together.

I personally do not ask sexual orientation or if the person is sexually
active t admission.   I would however, notify the responsible party who
admitted the person that facility policy was that the residents had the
right to privacy and to share whatever type relationship they wanted as
long as BOTH parties were alert, oriented and legally competent to make
the decision to participate.  Children or grandchildren would sometimes
not react well to that bit of news.  Most never considered that aspect
of their parent's lives or the possibility. Many families would be
surprised though.

I did have an administrator who made a resident cry and publicly
humiliated her for having sex with another resident. DSS cited the home
for it too.  There were medical reasons why the woman shouldn't have
had relations with that resident, BUT legally, it was none of the
administrator's business and she violated the woman's resident rights.
Evelyn Ruut - 16 Sep 2005 14:33 GMT
>I think the inquiry was intended to assist room mate placement.  When they
> saw our reaction, they told us we weren't required to answer it.  After I
[quoted text clipped - 20 lines]
>
> Karen

I can bet you that the reason the kids got so freaked out by it, was that if
the old couple decided to marry, and one of them passed away before the
other one, due to inheritance laws, the survivor would get whatever was left
of their money (if they had any).    Those kids were in fear of losing their
inheritance.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Karen - 17 Sep 2005 02:05 GMT
Evelyn, they were beyond the point that they could have been legally
considered to be "of sound mind".  It was so sad... his wife had been his
caretaker but she died of cancer, her husband had been her caretaker but he
died of heart disease.  And there wasn't anything going on beyond hand
holding and hugs.  There was a spouse shaped space reserved in their minds
and in their dementia, they decided it was each other.  I think the kids may
have overreacted because 1) they had just lost a parent and 2) no one knows
exactly how non-functional a person with dementia is until they live with
them awhile.  These two occurring at the same time seemed to have just been
the proverbial straw.  I know both were moved to different facilities and
I've wondered since if they each attached to someone else at the new place.

But I continue to be amazed at how many people continue to expect someone
with dementia to "make sense", "behave properly" or other such nonsense.
You just want to shake them and say "if they could do that, they wouldn't
have dementia!"

Karen

> I can bet you that the reason the kids got so freaked out by it, was that if
> the old couple decided to marry, and one of them passed away before the
> other one, due to inheritance laws, the survivor would get whatever was left
> of their money (if they had any).    Those kids were in fear of losing their
> inheritance.
Evelyn Ruut - 17 Sep 2005 02:40 GMT
> Evelyn, they were beyond the point that they could have been legally
> considered to be "of sound mind".  It was so sad... his wife had been his
[quoted text clipped - 19 lines]
>
> Karen

Whatever the reason, Karen, it sound so sad.   If they found some shred of
comfort with one another, their kids should have just let it be.

My dad has a companion of sorts.  He is in his nineties now, and my mom died
in the year 2000.   They were longtime friends with another couple, and that
woman's husband died years ago.   So while my mom was ill, this lady came
and stayed with them.   After mom died, she remained, and she drives my
father to the doctor, buys his groceries, helps him organize his pills, and
although she swears it is not a "boyfriend" he relies on her a great deal.
We are just so glad someone is picking up the slack.  If it wasn't for her
we'd be doing a lot of running around caring for him, and he be a lot more
miserable than he is.

From all I can see, old age is a lot of pain and misery.  One nasty medical
procedure after another, one horrible medication side-effect after another.
If people find solace of any kind, even if it is just a little bit of
companionship, more power to them.
Signature


Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

>> I can bet you that the reason the kids got so freaked out by it, was that
> if
[quoted text clipped - 4 lines]
> their
>> inheritance.
ncgen - 16 Sep 2005 14:41 GMT
Patty, the one thing I would say is be careful due to the reaction
Social Services might have upon seeing them in the same bed.

Another thing, after my MIL decided her husband was a stranger and we
had to separate them, she connected with another resident much in the
way you describe..at least in the beginning. They walked the halls
together, sang all the time, constantly together. However, staff
noticed MIL crying more. withdrawing, etc. We had a psych evan done
even. But until the staff caught the other resident in her bed in the
middle of the night holding her against the wall with her hands in
MIL's pants, we didn't know what was wrong with her.  We assumed it was
related to the Alzheimer's, but it wasn't and I felt horribly guilty
for letting her be in that situation.  The home also got cited for it
too.
ncgen - 16 Sep 2005 14:50 GMT
meant to say psych eval not evan
Pat Stewart - 16 Sep 2005 15:56 GMT
Thank you for your thoughts.  The woman who lost her husband does have a
mental health person on board because she does suffer from depression
related to her dementia.  Actually we asked her physician to have a psych
eval because she kept writing on the walls (with a permanent marker no
less).  Since she met her new friend, that issue has become null.  No more
wall writing.

This is not a sexual relationship at all, there have been no instances of
anything other then hand holding.  We've been keeping a close eye on it,
trust me.  We're an AL, and not a Nursing Home.  We fall under boarding home
rules and because of that designation we don't have as many restrictions as
a SNF.  The "relationship" between the two has been noted in both their care
plans, and we have covered all the bases as far as making sure it remains a
mutually consentual issue.

Both these women are well into dementia.  For the time they have left
together, we're all just so happy that they have formed this bond that gives
them both a feeling of warmth and companionship.  We deal with
"hypersexuality" issues in dementia all the time.  Trust me, we've seen
things that we shouldn't see, and we've taken quick measures to deal with
it.  I can't tell you how many times our staff has been inappropriately
groped by men and women whose families would be shocked because mom and dad
would never behave that way.  Dementia seems to erase many taboos that
people once held.  Interesting isn't it?

We just lost a Resident who was a lesbian.  She was in the military as a
Nurse during WW2.  She parachuted behind enemy lines and set up field
hospitals.  I loved this woman dearly, as did all the staff there.  Her life
partner worked with hospice and was there when she passed, holding her hand,
stroking her hair, and letting her know that she was much loved.  I was also
privileged to be there, and it was one of the most tender and loving moments
I have ever been a part of.

I should of added that as long as the relationship is "consentual" that
frankly it is none of our business.

Patty
> Patty, the one thing I would say is be careful due to the reaction
> Social Services might have upon seeing them in the same bed.
[quoted text clipped - 10 lines]
> for letting her be in that situation.  The home also got cited for it
> too.
Karen - 17 Sep 2005 02:10 GMT
Agreed!  The director of the place my MIL tried to approach the subject in a
round-about manner and my hubby told him "She's been making her own
decisions about that for a long time and that's still her business" but I've
since been told that's not always the attitude people's kids take.  It may
be easier for Hubby since his parents divorced 35 years ago.  It's not an
issue of being disloyal to Dad in his mind.  maybe that's not the case when
the spouse has been in the picture more recently.

Karen

----snip----
> I should of added that as long as the relationship is "consentual" that
> frankly it is none of our business.
Pat Stewart - 17 Sep 2005 05:39 GMT
Karen, there are wives who get very upset because their husbands (with
dementia) attach themselves to other Residents (with dementia).  It's so
hard to explain that they aren't being unfaithful in their attention to
another woman, they just have plain old forgotten that there is a wife
somewhere in most cases.  It's a case of "love the one you're with" most of
the time.  It is difficult for the spouse without dementia to understand
though, usually I try to get them involved in a dementia support group so
they can better understand the disease.  It's not the persons fault that
they don't remember they're married, it's the damn disease that robs someone
of the one they love so much often for so many years.

My father had died years before mom was diagnosed with AD, so it wasn't an
issue for me.  Actually, she got very attached to my dad's brother who bore
a striking resemblance to my father.  In her mind,  he was her husband, and
it was comforting to her.  They have so little to comfort them, sometimes a
doll that they believe is real, a stuffed dog or cat that they believe is
real, or another person they can touch and hold.  Who are we to take that
away from them?

Patty

> Agreed!  The director of the place my MIL tried to approach the subject in a
> round-about manner and my hubby told him "She's been making her own
[quoted text clipped - 5 lines]
>
> Karen
ncgen - 18 Sep 2005 03:01 GMT
Patty, I agree that if a relationship is consensual, it is none of
anyone else's business; not the staff and no one else.  I nearly lost
my job (well got threats of it anyway) for repeatedly having to remind
an administrator that it was NONE of her business what residents did in
privacy. I had one family member who was a physician and guardian for
her LO who wrote a letter to the facility giving consent for her LO to
have sexual relations if she chose. I found it in the resident's file
when I went to work there. But the family member was well aware of her
LO's behaviors and ability to express herself and took the added
precaution to make sure she had the right to do so if she chose.

Ensuring resident rights were not violated was part of my job just as
was investigating resident complaints.  It finally came back to bite
the administrator when the resident she made cry and publicly
humiliated in front of me and two other staff b/c the woman had sex
with another resident filed a complaint which I  documented and
completed an investigation on the way I was supposed to do. The
administrator was way out of line. No matter her personal opinions, she
had no right to express them to the resident or demean the residentr in
that manner.  In doing so, she violated that resident's rights. When
the resident (who was in her 30s)  complained to the ombudsman and DSS,
they reviewed everything and substantiated the resident's complaint.
Thankfully, I had documented it and requested I be allowed to inservice
the staff (although it was really the administrator who needed it) on
resident rights and how to deal with (or stay out of) sensitive issues.
The administrator had denied my request though which didn't put her in
a good light.

However, if  a person is mentally incompetent and incapable of giving
consent, then it is a different issue. I wasn't trying to disapprove of
what is happening in your facility..just to point out that things can
change or aren't always what they appear.  I've worked in ALFs for many
more years than I've been in SNFs and in both instances, consent has to
be in conjunction with mental competence, at least in our state.

With my MIL's situation, she and the other woman walked the halls
constantly, held hands, combed each other's hair, sang together all
day, etc.  It was after the staff caught the other woman in her bed,
holding MIL against the wall, and MIL crying that it became an issue.
That was not a consensual situation.  Whatever innocent behaviors had
gone before were not in play with that situation. In that instance, a
resident was not consenting nor actively taking part but being forced.
She was crying and being held in place.  In this case, it was the
home's (an ALF by the way) responsibility to protect her. Later down
the road, the daughter of the other resident involved let it slip that
"stuff like this is why mama keeps getting kicked out". We solved it by
moving her into a private room. A simple solution which if the daughter
had shared the information at her admission could have prevented a
trauma and regression in another resident.  Even if it hadn't been my
MIL involved, I would still have taken a stand on it b/c one resident
was not consenting.

I've seen many behaviors from residents, had my rear and chest grabbed,
had people expose themselves,hit, spit on, etc and much more over the
years.  Female resident's pulling their shirts up/off upsets some
family members, but others accept it as part of the AD behaviors as
much as wandering or taking/hording/moving objects or blaming things on
"imaginary visitors".   Behaviors are just part of working with AD
residents. That's an expected issue.  I just try to maintain their
rights and balance those with making sure no other resident's right is
violated by behaviors of others which may impact on them or to which
they can not legally consent.

I do commend you and your facility for taking cautionary measures and
addressing those issues so thoroughly.  I tend to be proactive rather
than reactive as my last two administrators were.  I'd rather
anticipate things and make sure regs are followed and rights not
violated by taking steps to ensure that before a problem arises, but I
had administrators who waited and reacted after issues arose.  Sounds
as if you have a better situation in your facility.
Lee - 13 Sep 2005 07:04 GMT
whenever I tell my MIL not to do something, she'll tell me that she has to
because ~he~, or ~they~, TOLD her to do it... she couldn't possibly get in
trouble for something the mysterious ~they~ tell her to do ....~they~ tell
her to do all sorts of things....  dump ashtrays on the floor, spit her
pills out into the sink, take my clothes out of my dresser and put them in
the oven, take things off my desk (the one spot in the house that is MINE
MINE ALL MINE!!!!!!!!!!!), pull the plugs out of the back of my computer,
etc etc etc

she will NOT let me have a nap on the couch or anything ... last time I
tried, I woke up to find her hands INSIDE my shirt... a ~little~
disconcerting to wake up to!

Of course, ~they~ told her to do it

LOL

> Sick some this weekend and slept a lot yesterday evening,so didn't go to
> bed till late last night. That was a mistake because about the time I
[quoted text clipped - 37 lines]
> up with as to why she should do what she wants and not what I tell her
> she needs to do! LoL
Ronny TX - 13 Sep 2005 07:58 GMT
Re: Ah Well. :-)  
Group: alt.support.alzheimers Date: Tue, Sep 13, 2005, 2:04am (CDT+1)
From: sleeplessinwherever@hotmail.com (Lee)
whenever I tell my MIL not to do something, she'll tell me that she has
to because ~he~, or ~they~, TOLD her to do it... she couldn't possibly
get in trouble for something the mysterious ~they~ tell her to do
...~they~ tell her to do all sorts of things.... dump ashtrays on the
floor, spit her pills out into the sink, take my clothes out of my
dresser and put them in the oven, take things off my desk (the one spot
in the house that is MINE MINE ALL MINE!!!!!!!!!!!), pull the plugs out
of the back of my computer, etc etc etc
she will NOT let me have a nap on the couch or anything ... last time I
tried, I woke up to find her hands INSIDE my shirt... a ~little~
disconcerting to wake up to!
Of course, ~they~ told her to do it
LOL

Ronny:
Now I can very well see how that would be bothersome! :-) LoL And yeah,I
know about "those people" too! The funny thing here is "they" will also
at times tell Mom not to do something that is good for her or something
that she really wants to do that is good for her and or will certainly
be harmless. In cases like that I tell her "they" whoever are not her
boss! And she can blamed well do so and so if she pleases! LoL And the
funny part is Mom is obviously relieved when I tell her that and she
gets that she can do whatever good or harmless thing she had in mind to
do.

And I do feel for you on your computer! :-( I still need to finish
cleaning out an old bedroom of ours and move my computer in there,as I
have that room closed off where Mom can't get into it.

-------
"Ronny TX" <Acts17-11@webtv.net> wrote in message
news:584-43260895-1275@storefull-3337.bay.webtv.net...
Sick some this weekend and slept a lot yesterday evening,so didn't go to
bed till late last night. That was a mistake because about the time I
got in bed, reading and nearly ready to go to sleep, Mom was up and
about. And she wanted me up too. Kept coming into my bedroom and pulling
at my arm or T shirt. Many times I just keep my eyes mostly shut and
hope she goes back to bed. And then I get mean if that doesn't happen.
:-) About the 6th or so time Mom comes in,I'll have my eyes mostly shut
and when she gets close to my bed I go Boo! LoL I know,that sounds
mean;but when I do that I have to start laughing and she starts
grinning. :-)
And I wear a t shirt and short pants and just sleep on top of the sheet
this time of year and Mom wants to cover me up! I've woke up with a
quilt on me and sweating not that long ago! Last night she wanted to put
the quilt on me and I told her if she kept that up I was going to wrap
her up in the blanket and throw her in our farm pond! LoL She just
grinned and said,no you're not! LoL
But late last night Mom just kept coming into my room right before I
would get to sleep and onetime after I'd slept about 5 minutes or so!
(sigh) I would talk to her just a bit and then tell her she needed to go
back to bed. Onetime she informed me she couldn't do that as there were
4 men in her bed! :-) And I am still trying to figure out how 4 men
would fit on one hospital bed?! LoL
Then there was the one time she wanted to sleep in my bed and I told her
no,she had to go back and sleep in her own. And she informed me her
boyfriend said she could sleep where she wanted to! :-) Now this is the
first time I've heard of her boyfriend! :-) LoL
I did get up once and got Mom to get in her bed and got her all covered
up. That lasted for less than 5 minutes! (sigh) So finally gave it up
and got up about 5:30am. Fixed us something to eat and gave Mom here
meds and just stuck my feet up in my chair and went to reading. Finally
managed to get back to sleep after an hour or so.
I know she doesn't know any better and that's sad;but I can't help but
get tickled when Mom comes up with new stuff like the 4 men in her bed
and her boyfriend. :-) I just never know what new things she will come
up with as to why she should do what she wants and not what I tell her
she needs to do! LoL
Lee - 13 Sep 2005 08:24 GMT
we quite often resort to telling her that ~they~ are troublemakers and so we
have sent them all home! Also, ~they~ took all the (imaginary) children and
extra dogs with them LOL

she often won't believe me... but when hubby gets home and tells her, she'll
buy it and give up on worrying about what the (imaginary) kids are getting
into

The sad part is that she has totally rejected her dog now....  often crabs
about the fact that we should send him 'home" with all the other dogs
...tells him that he's not welcome here, is leaving tomorrow, etc... and
will slap at him, pull his ears, kick him, take his food away from him, etc
if she gets the slightest opportunity... poor puppy : (    He's started
following me even into the washroom so that he won't be alone with her -
even though he was, once upon a time, absolutely neurotic about going in
there at all ...got over his fear LOL

> Re: Ah Well. :-)
> Group: alt.support.alzheimers Date: Tue, Sep 13, 2005, 2:04am (CDT+1)
[quoted text clipped - 65 lines]
> up with as to why she should do what she wants and not what I tell her
> she needs to do! LoL
Evelyn Ruut - 13 Sep 2005 15:20 GMT
> we quite often resort to telling her that ~they~ are troublemakers and so
> we have sent them all home! Also, ~they~ took all the (imaginary) children
[quoted text clipped - 12 lines]
> her - even though he was, once upon a time, absolutely neurotic about
> going in there at all ...got over his fear LOL

I hope you do all you can to protect the poor dog.....

My mother in law's dog was very old and she was insanely obsessive about him
in a lot of ways.

She would forcibly feed it with a spoon, with food she had half chewed
herself, which was pretty disgusting to watch, not to mention that it was
cruel to the dog.   I was apalled watching this, and my husband was furious.

She forgot to walk the dog for so long that it was completely used to
defecating all over the house, and could not be re-taught to go outside for
its business anymore.   This created a scenario where my own pets were
starting to scent where her dog had gone, and territorial peeing was then
starting in my house.

She would clutch the dog constantly with an awful death grip, never allowing
it to walk around by itself.  The dog was a prisoner, only getting free when
she fell asleep, and it would then bark obsessively at 3 in the morning,
because it was so glad to be free.

It was 17 years old and she had tried to take it to the vet to put him to
sleep a few years earlier, but fell in a parking lot getting a cut on her
head.  She interpreted this as a "sign from God" that she shouldn't put him
to sleep, and instead allowed the dog to continue ruining the floors in her
house.

Hubby decided it was "time" and gently had the dog put to sleep.   We
couldn't care for both her and an incontinent dog.   One had to go, and it
was the aged dog, unfortunately.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Lee - 13 Sep 2005 17:03 GMT
we do our best....   and he is staying away from her for the most part....
used to be when she said 'come here' to him, he would go ... now he
immediately runs and hides behind my legs

she used to try to feed him with a spoon as well... one bite for you, one
for me .... used to pout and give me ~injured~ looks when I would make her
stop

now I get the constant injured look from her whenever I won't let her go see
(won't wake him; I just want to SEE)  hubby  in the morning ... he gets up
with her during the night, then I take a shift in the morning so that he
gets SOME sleep ....I spend almost all of that time playing keep away ... so
by the time he gets up, she and I are usually quite happy for me to leave
and go to work LOL

I'm SOOOOOOOOO mean

Right now I'm mean cuz I insist that if she's going to go pee, she needs to
go into the bathroom, NOT my bedroom, to do it.  Oh, the humanity! as my kid
would say LOL

>> we quite often resort to telling her that ~they~ are troublemakers and so
>> we have sent them all home! Also, ~they~ took all the (imaginary)
[quoted text clipped - 43 lines]
> couldn't care for both her and an incontinent dog.   One had to go, and it
> was the aged dog, unfortunately.
Lesanne - 14 Sep 2005 00:57 GMT
I just had to give away my Mom's little poodle because she had started
throwing him when he would hop in her lap. She used to love him, and he was
so totally confused and upset that he was yiping constantly and trying to
kiss her, etc. etc which just made it all worse.

He was about 8 years old and quite cute, and I had a friend to took him, but
darned if I don't still miss the little guy. I never did like him much, I
have a Doberman that is my love that we had to move outside (with rights to
the air conditioned porch in back). She adjusted, but I am having a hard
time with it all.

Signature

Lesanne

>
>> we quite often resort to telling her that ~they~ are troublemakers and so
[quoted text clipped - 44 lines]
> couldn't care for both her and an incontinent dog.   One had to go, and it
> was the aged dog, unfortunately.
 
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