Medical Forum / Diseases and Disorders / Alzheimer's / September 2005
am I leaving him alone?
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Johnny B. - 08 Sep 2005 23:57 GMT HI. My name is Johnny...I am 31. My dad is 60 and has alzheimers...I moved back home about 4 years ago when I was around 27 when he was still just fine and normal as can be. About a year later is when I started to notice different things about him...in late 2003 he was diagnosed with alzheimers...he takes "nemenda" and "arycept". He is allot worse these days.... a completely different man than the man I knew just a few years ago. My mom works second shift from about 5 to 11 at night. While she is at work I am home with my dad. Since I spend most of my time in the basement of our home (where I stay) I installed a door bell in my room and the "button" is near the phone in the kitchen. When my dad needs assistance, he rings the bell. and I go flying up the stairs to him. It works really well for now. I was wondering though....if I am downstairs.....is that considered (leaving him alone)?? I do go check on him every 15 to 20 minuets. I never leave the house if my mom is not home.. But I often feel very guilty if I am not in the same room with him. I was wondering.
I never knew anyone with alzheimers nor anyone that has experienced it personally. This is all very knew to me and I don't know what is going to happen to us. By the way..I have been to this group lots of times...but never posted. Thanks.
Johnny
Evelyn Ruut - 09 Sep 2005 00:04 GMT > HI. My name is Johnny...I am 31. My dad is 60 and has alzheimers...I > moved back home about 4 years ago when I was around 27 when he was still [quoted text clipped - 19 lines] > > Johnny Hi Johnny,
That depends. My mother in law was quite trustworthy with some things, but her various deficits continued to get worse as she went along. At first she was able to wash the dishes and help out in the kitchen, but as time went on, we couldn't trust her with anything much at all, even her own clothing. She'd pull out all the clothes from the closet and make a mess of them, for instance, or change over and over.
One time we heard the water running a really long time. Turns out she put the faucet on in the bathroom and couldn't figure out how to shut it off. So new problems develop along the way. Once our doctor told us she shouldn't be left alone anymore we never left her without someone in the house, even if we were in another room, there was always someone there.
Does your dad go to daycare? We found it was a great help. From your description I wouldn't say you are "leaving him alone" per se, but only you know what he is like and how well he functions in the home. I don't think "not leaving someone alone" means being with them every second, but being in the house and checking every so often in most cases is OK. Unless your dad is someone who might wander off, of course, which is a whole other situation.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Johnny B. - 09 Sep 2005 00:59 GMT He doesn't go to daycare. But I do know he can't figure out how to turn the water faucet on or off. Infact he broke our old faucet ecause he couldn't figure out how to turn it off. He doesn't go near it anymore...I like to try and encourage him to try though... I just now gave him a tall glass of cold ice water. He has never wondered off..at least not yet...I am always watching the door...I can see it right from my door...well thanks for your insight.
Johnny
Evelyn Ruut - 09 Sep 2005 17:45 GMT > He doesn't go to daycare. But I do know he can't figure out how to turn > the water faucet on or off. Infact he broke our old faucet ecause he [quoted text clipped - 5 lines] > > Johnny Johnny, I wouldn't encourage him to use anything he isn't confident of anymore. Remember he can't learn any new things, and is gradually forgetting everything he ever knew. He could turn on the faucet when no one is looking and cause a problem. We realized how serious it was after Ida couldn't turn off the faucet that time.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
The Turd Burglar - 09 Sep 2005 01:27 GMT Johnny BEWARE of Evelyn. She posts nothing but a bunch of crap all the time. But we still get along.
rjmartin@bellsouth.net - 09 Sep 2005 20:32 GMT Do you actually have any valid reason to be here? Or are you so pathetic a specimen of human debris that you get your jollies annoying people?
> Johnny BEWARE of Evelyn. She posts nothing but a bunch of crap all the > time. But we still get along. Bud - 10 Sep 2005 00:25 GMT Kill file him. Most of us have.
Karen - 10 Sep 2005 00:57 GMT The name says it all. I'd forgotten about him since I killfiled him (and it was a pleasant forgetting),
Karen
> Kill file him. Most of us have. Lee - 09 Sep 2005 04:25 GMT with my MIL it was very clear when she couldn't even be left ~alone~ as in in a different room from us... first, she would constantly come to find us .... then eventually, she would forget that we were there at all, and become extremely anxious and upset at being left ~all alone~
I would guess that your Dad will eventually forget about ringing the bell... but as long as it works for him for now..... key is to not expect it to work forever, and to be ready to change and adapt as his needs do
> HI. My name is Johnny...I am 31. My dad is 60 and has alzheimers...I > moved back home about 4 years ago when I was around 27 when he was still [quoted text clipped - 19 lines] > > Johnny ncgen - 09 Sep 2005 05:11 GMT Johnny, it sounds like the bell is working for you now. Eventually, he won't remember to ring it probably and could become agitated when alone. My FIL used to rip the toilet up. I don't know how many times my husband had to reset the one in their bathroom. When my MIL became unsafe with a stove, we disconnected it. Just watch him. You'll be able to tell if he's doing things which are unsafe for him and you'll know that it's time to not leave him upstairs alone anymore. I do commend you for being willing to take care of him and altering your life to do so. The fact that you're here asking that question shows your concern.
Tumbleweed - 09 Sep 2005 14:26 GMT > HI. My name is Johnny...I am 31. My dad is 60 and has alzheimers...I > moved back home about 4 years ago when I was around 27 when he was still [quoted text clipped - 9 lines] > works really well for now. I was wondering though....if I am > downstairs.....is that considered (leaving him alone)?? Johhny,
sooner or later it will be the same thing, it will get to the point that when he cant see you that you effectively are leaving him alone as far as he is concerned. My father would follow my mother everywhere including to the bathroom because otherwise (I assume) he thought she had gone.
Whether its an issue depends on whether your father gets anxious about it or not, everyone is different. From a safety POV its more about being sure they dont wander off (are the doors locked effectively?) or do something dangerous (ISTR someone posting that their mother used to like setting things on fire !) maybe turning gas on and not lighting it or leavinga pot to boil dry or or or.....
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
ncgen - 09 Sep 2005 16:07 GMT What is ISTR?
Tumbleweed - 09 Sep 2005 16:38 GMT > What is ISTR? typing acronym <acronym> into google (for example, acronym ISTR) will get it right just about every time on the first hit.....but its "I Seem To Recall" (or Remember)
 Signature Tumbleweed
email replies not necessary but to contact use; tumbleweednews at hotmail dot com
Johnny B. - 09 Sep 2005 16:55 GMT Thank you very much everybody. I got some answers to think about. thank you.
Johnny
ncgen - 09 Sep 2005 17:53 GMT Thanks. That was one I hadn't run across before.
Ronny TX - 10 Sep 2005 01:10 GMT am I leaving him alone? Group: alt.support.alzheimers Date: Thu, Sep 8, 2005, 6:57pm (CDT+1) From: jpberrios@webtv.net (Johnny B.) HI. My name is Johnny...I am 31. My dad is 60 and has alzheimers...I moved back home about 4 years ago when I was around 27 when he was still just fine and normal as can be. About a year later is when I started to notice different things about him...in late 2003 he was diagnosed with alzheimers...he takes "nemenda" and "arycept". He is allot worse these days.... a completely different man than the man I knew just a few years ago. My mom works second shift from about 5 to 11 at night. While she is at work I am home with my dad. Since I spend most of my time in the basement of our home (where I stay) I installed a door bell in my room and the "button" is near the phone in the kitchen. When my dad needs assistance, he rings the bell. and I go flying up the stairs to him. It works really well for now. I was wondering though....if I am downstairs.....is that considered (leaving him alone)?? I do go check on him every 15 to 20 minuets. I never leave the house if my mom is not home.. But I often feel very guilty if I am not in the same room with him. I was wondering. I never knew anyone with alzheimers nor anyone that has experienced it personally. This is all very knew to me and I don't know what is going to happen to us. By the way..I have been to this group lots of times...but never posted. Thanks. Johnny
Ronny: Johnny,I can't see where you have anything to feel guilty about. And if your Dad doesn't need someone physically watching him 24/7 then that's good. Such isn't always needed;but as has been pointed out in here,such can change too.
Some of these things I'm going to mention have already been said in this thread. For onething I'm glad the bell setup works for y'all right now.
Does your Dad try to go outside on his own? Has he ever wandered off? My Mom has,so we had to put deadbolt locks on the doors to keep her in and safe.
Also consider the cook stove,gas or electric and any gas outlets if you have those. Gas outlets can need covering up and or a lock put on them in some way. And when I'm not using it I cut our electric cookstove off at the main breaker box. Starting doing that last after Mom turned on and left the stove on 2 or so times- sometimes with a pan on a very hot burner. Fixed out propane heater outlet where she couldn't turn that on-this after I woke up one evening and there was propane gas all over the house and Mom was sitting at the table eating,with not a care in the world! (ha)
I hadn't thought of any of those things until they happened. Best to get such things Dad or Mom proofed before something bad happens.
Another deal I do now is keep the large kitchen match box hidden and I really need to have such as that under lock and key.
So no,from what you've said I don't believe your leaving your Dad alone for awhile is anything bad. And if he seems to like it at all,while you're not with him,you might want to leave some music that he likes or the TV or radio playing. I think it helps my Mom some if the TV is going in her room,so I leave it on almost 24/7.
I think there are just some basic things you can do for your Dad's safety,if you and your Mom haven't already done those. Then I suggest and I don't mean this badly;but I suggest you need to calm down a little bit. Try to relax a bit more. I say that because of your saying you go to check on your Dad every 15 to 20 minutes. And stop feeling guilty because you aren't in the same room with your Dad every minute.
Karen - 10 Sep 2005 01:46 GMT Ronny, you've just reminded me of one tip I read about households with Alzheimer's people -- remove the knobs on the stove before going to bed for the night.
It's almost like having a kid around growing up and getting into trouble except it's going down the other side of the hill. Just when you think you know what to expect...
Karen
----snip---- Also consider the cook stove,gas or electric and any gas outlets if you have those. Gas outlets can need covering up and or a lock put on them in some way. And when I'm not using it I cut our electric cookstove off at the main breaker box. Starting doing that last after Mom turned on and left the stove on 2 or so times- sometimes with a pan on a very hot burner. Fixed out propane heater outlet where she couldn't turn that on-this after I woke up one evening and there was propane gas all over the house and Mom was sitting at the table eating,with not a care in the world! (ha) ----snip----
Ronny TX - 10 Sep 2005 02:28 GMT Re: am I leaving him alone? Group: alt.support.alzheimers Date: Fri, Sep 9, 2005, 7:46pm From: kk5151@hotmail.com (Karen) Ronny, you've just reminded me of one tip I read about households with Alzheimer's people -- remove the knobs on the stove before going to bed for the night. It's almost like having a kid around growing up and getting into trouble except it's going down the other side of the hill. Just when you think you know what to expect... Karen
Ronny: Just when you thing you know what to expect,a new wrinkle pops up! LoL Well, somethings I can laugh about and somethings,truly dangerous to Mom or me or both,those I can't.
Hey,I just checked the knobs on our electric cookstove-had thought they would be hard to get off;but they weren't! :-) Easy to get back on to!
:-) We have a small 7 room house here and so far I have 2 rooms fixed so that Mom can't go in those. Too much stuff there she could get into. Then I really need to put a deadbolt on the kitchen door that goes to a bedroom and then the bathroom. Would like to keep her out of there at night and she has her potty chair in here.
Karen,you're right,it is like having to take care of and watch out for a small child;but then today my "small child" told me I am not her boss thank you! LoL But then I had gotten grumpy and told her to close the kitchen door! :-) During the day we only cool the kitchen and living room-where Mom's bed,the TV,my recliner chair and WebTV are at. The irony is that it used to be Mom who would fuss at us kids or the grandkids to keep the doors closed when the AC was on. Now if I let her she would have all doors wide open,with the AC going and even in the hottest of weather! But,of course,she doesn't know any better. (sigh) ---------- "Ronny TX" <Acts17-11@webtv.net> wrote in message news:20738-4322248C-412@storefull-3336.bay.webtv.net... ----snip---- Also consider the cook stove,gas or electric and any gas outlets if you have those. Gas outlets can need covering up and or a lock put on them in some way. And when I'm not using it I cut our electric cookstove off at the main breaker box. Starting doing that last after Mom turned on and left the stove on 2 or so times- sometimes with a pan on a very hot burner. Fixed out propane heater outlet where she couldn't turn that on-this after I woke up one evening and there was propane gas all over the house and Mom was sitting at the table eating,with not a care in the world! (ha) ----snip----
Lee - 10 Sep 2005 03:26 GMT with a small child, though, you can TEACH them .... actions have consequences and all that ~fun~ stuff.... heck, even with a DOG ..... I find it very frustrating that NONE of that works - or is even worth trying - with my MIL .... she doesn't have a clue that her behaviour has any relation at all to my reactions .... and she's never ever going to learn :(
> Re: am I leaving him alone? > Group: alt.support.alzheimers Date: Fri, Sep 9, 2005, 7:46pm From: [quoted text clipped - 44 lines] > world! (ha) > ----snip---- Ronny TX - 10 Sep 2005 04:14 GMT Re: am I leaving him alone? Group: alt.support.alzheimers Date: Fri, Sep 9, 2005, 10:26pm (CDT+1) From: sleeplessinwherever@hotmail.com (Lee) with a small child, though, you can TEACH them .... actions have consequences and all that ~fun~ stuff.... heck, even with a DOG ..... I find it very frustrating that NONE of that works - or is even worth trying - with my MIL .... she doesn't have a clue that her behaviour has any relation at all to my reactions .... and she's never ever going to learn :(
Ronny: Yep,that is frustrating. (sigh) But it's just something we have to keep in mind at all times or at least try to. I know I get mad/ frustrated at Mom at times;but then I have to stop and remind myself that she doesn't know any better.
I'm making a start of fixing up something tonight that she and I both like. :-)
Evelyn Ruut - 10 Sep 2005 04:20 GMT > with a small child, though, you can TEACH them .... actions have > consequences and all that ~fun~ stuff.... heck, even with a DOG ..... I > find it very frustrating that NONE of that works - or is even worth > trying - with my MIL .... she doesn't have a clue that her behaviour has > any relation at all to my reactions .... and she's never ever going to > learn :( That, in my opinion is the biggest lesson we learn as caregivers. Early on, when my mother in law was still pretty much "normal" acting, I would sometimes find myself correcting her, or saying something I now regard as totally stupid like telling her that what she'd just said was ridiculous. Of course she said ridiculous things, she had a brain disease! But every now and then you forget that they have it, and find yourself applying normal rules of life to a very abnormal situation.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
ncgen - 10 Sep 2005 10:06 GMT Evelyn, that one took me some time to get through. Lane
Evelyn Ruut - 10 Sep 2005 12:54 GMT > Evelyn, that one took me some time to get through. > Lane Me too. And I kept falling back into that same mistake and having to rethink it as time went on.
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Anthony Shipley - 10 Sep 2005 06:55 GMT >Ronny, you've just reminded me of one tip I read about households with >Alzheimer's people -- remove the knobs on the stove before going to bed for >the night. I don't know if this came up recently but is there a resource of all the safety precautions to take? Did it come up recently?
-- 2 + 2 = 5 for sufficiently large values of 2.
Ronny TX - 10 Sep 2005 10:50 GMT Re: am I leaving him alone? Group: alt.support.alzheimers Date: Sat, Sep 10, 2005, 1:55pm (CDT+13) From: astech@iinet.net.au (Anthony Shipley) "Karen" <kk5151@hotmail.com> [WA] wrote: Ronny, you've just reminded me of one tip I read about households with Alzheimer's people -- remove the knobs on the stove before going to bed for the night.
Anthony: I don't know if this came up recently but is there a resource of all the safety precautions to take? Did it come up recently? 2 + 2 = 5 for sufficiently large values of 2.
Ronny: Surely someone has a list like that Anthony;but I don't know of it. Hope someone else will and will post a link to such,as I would like to print it off.
Evelyn Ruut - 10 Sep 2005 12:56 GMT >>Ronny, you've just reminded me of one tip I read about households with >>Alzheimer's people -- remove the knobs on the stove before going to bed [quoted text clipped - 4 lines] > safety > precautions to take? Did it come up recently? Anthony there is a lot of information at this link. Hope it helps.
http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm
 Signature Best Regards, Evelyn
(to reply to me personally, remove 'sox')
Anthony Shipley - 13 Sep 2005 04:00 GMT >Anthony there is a lot of information at this link. Hope it helps.
>http://www.muggsmulcher.com/kstuff/a.s.a/intro.htm Thanks, Ev. I've been there several times but it's so badly arranged as to be useless - esp for someone with A.D. -- 2 + 2 = 5 for sufficiently large values of 2.
Octavia - 12 Sep 2005 18:22 GMT Johnny, I'm still new to this so I don't know how helpful I can be - I can only relate my thoughts based on my short experience so far & things I've read.
We are in a 2 story home & moved in around 2 months ago. Immediately, one of my primary fears was not being able to hear her (my MIL) if she should fall & call out for us. We got monitors & bells (like jingle bells). There is a monitor in the living room on an end table near where she sits. The receiving end for that one is in my husband's work room upstairs, with the volume turned up fairly loud. Another monitor in her bedroom, with the receiving end in our bedroom - that one is a pain in the butt because she often talks out loud (plainly, clearly) in her sleep & doesn't always make for good sleep for us. But I feel somewhat secure with it as she did call out loudly for us one time (she thought someone or something was in her bedroom). Small jingle bells on her door, which actually I need to replace with the larger ones because they aren't loud enough. Yet another monitor in the kitchen, with a string of jingle bells & a cowbell across the entry so I can hear her if she tries to get into the kitchen at night or too early in the morning. Or once I strung it across because I wasn't feeling good myself & had to go to bed for a few hours. Fortunately, my husband works at home so we can alternate with someone always being down here with her, yet I'm the primary "watch". I have my computer & desk set up down here in the living room. Initially, I was supposed to have my stuff set up in "my" room upstairs. But after only about a week, I could see that simply would not work. On one hand, it is quite wearisome on me being in here all day long as I'm constantly "aware" of her, even if nothing at all is going on. So I think you asked a really excellent question!! I've also wondered just how long is too long to leave her alone and haven't figured that one out yet. Mostly she does ok. Like if my husband isn't home & I have to be upstairs ie doing sheets, cleaning or whatever, I try to be up there only around 15 mins at a time. Most of those times, she doesn't leave her chair. She has her drink, I make sure her legs are up, make sure she has her throw on as she gets cool easily. Most of the time she is content to just sit & watch TV. However, she picked at least 2 of those times to get up & do something else!! Arrragghhh!!! Just like a kid, in my opinion. Wait until noone is "watching" to suddenly have the burning desire to get up & go mess around in the kitchen or go outside on the back porch, forgetting the walker of course.... Like Evelyn wisely said, I think it depends on the person you are taking care of. I tend to think those 15 - 20 min breaks at a time are good for both you *&* your loved one. So all I can suggest is to "arm" your home with monitors & bells. I promise you, having a monitor upstairs where he sits & the receiving end in the basement with you will go a very long way with peace of mind. The baby monitors don't have to be the fancy ones. I think the ones we have probably range from around $12 - $25 each & work just fine.... Also you might consider what I did - move some of your things in to the living room (or whever your dad stays) and then alter between being in that room & the basement?
> HI. My name is Johnny...I am 31. My dad is 60 and has alzheimers...I > moved back home about 4 years ago when I was around 27 when he was still [quoted text clipped - 19 lines] > > Johnny Johnny B. - 15 Sep 2005 07:30 GMT HI...I was thinking about monitors but wasn't sure. From the way you descrbed how they worked for you, I think I might give it a try. Also, moving some of my things into the upstairs room sounds like a good idea too. Thanks for the advice!
Johnny
ncgen - 16 Sep 2005 15:31 GMT When we first moved the in-laws in with us, we used baby monitors for them. We had one in their bedroom and one in the living room. They didn't have to cook b/c she poured them cereal during the week and we kept fruit, bagels, etc for them. Hubby made dinner for them and I made supper after I got home. This worked well for us until her dementia got worse. Thankfully, FIL wasn't a wanderer. The worse he ever did was go into the back yard and pull up every blade of grass one little area at a time. When MIL's mental status worsened, she would threaten to leave and when we had to move from the hurricane, we bought a house with one floor and an extra room for her, but had to have deadbolts with key locks at night b/c we never knew if she would try to take off. Hope the monitors work well for you. I still kept one in her room at night in case she got up or fell. It was something in our house at first b/c of baby monitors in both children's rooms and in her room. There was always noise coming from somewhere.
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