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Medical Forum / Diseases and Disorders / Alzheimer's / August 2005

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Now I'm the big bad daughter

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Songbird - 12 Aug 2005 20:00 GMT
Dad did not take my comments well. He says he has "no complaints" from my
mom about her care (!) but he would move to AL with her when *she* says it
is time.

(Yeah, Dad, throw the blame and responsibility on a woman who has a brain
disease which impairs her memory, judgment and reasoning skills!!!)

"Dad, it appears keeping the house clean is too much for you" -- "I cleaned
both bathrooms this morning." (OK, you cleaned the toilets (FINALLY) but
aren't mirrors supposed to be CLEAR? And I thought the floor was white, not
yellow...)
"I worry about you eating the wrong things; you're diabetic and you drink
chocolate milk and eat Snickers ice cream." -- "Your mother likes Snickers
ice cream. And I only have one small cone a day."
"Mom needs more care than you can handle. The cardiologist wants her to walk
a half hour a day, but she can't go by herself, and you don't seem to be up
to going with her." -- "It's hot and she doesn't want to walk. If she says
she wants to go for a walk, I'll go with her."

AAAAAAAAARRRRRRRRRRRRRRRGGGGGGGGGGGGGGHHHHHHHHHHHHHHHH!

The man does not understand SHE IS NOT THE WOMAN SHE ONCE WAS. But he has
always been a selfish, defensive egotist who puts his needs in front of
everyone else's.

At one point he said I had been trying to get him into AL for two years.
(Not true -- I talked him OUT of a facility much like the one I want him to
consider now because of $$ -- they were in better health then!)

Finally he just said, "Make the arrangements then."

Maybe I should have just said, "OK, start packing."  I knew he didn't mean
it, and would have taken it out on my mom, reversed the decision, made my
life a living hell, etc.

So I said, "Dad, you're not one to make rash decisions. All I want today is
for you to say you'll keep an open mind and look at the place." He agreed --  
now we'll see if he goes. I got the silent treatment the rest of the
afternoon.

Mom was in tears and left the room. I went in to her and told her I was
sorry for upsetting her and making her angry, that I just wanted to make
sure they were both well taken care of. She told me she was not angry at me,
just at the situation. I think she sees the need more than Dad, but she
won't move away from him willingly. She and I are OK.

The bishop does not have any power over him except to break the contract he
has with the church. At this time, that is probably not a good idea for
Dad's mood and mental health. Episcopal bishops do not have that much power
over a priest's private life, especially if the priest is retired. He cannot
*order* my dad to do anything. Before he retired, a (different) bishop
instructed him to see a counselor for possible depression. He did, the
counselor said definitely depression so counseling or early retirement (by
six months), Dad said "I'm not depressed, and I'll retire."

One of his last comments was "You're telling me my life is over." I told
him, no, that I was trying to make life easier for him.

So I'll wait for him to calm down. Brother is going to call tonight and see
if Dad brings it up. (Brother is totally in favor of AL.) I'm going to give
it some time to see if I can get him to do this voluntarily. If not, then
I'll take steps to take care of Mom and let him do whatever. She won't want
to leave him, so I may just have to wait for him to hit bottom, as long as
she is reasonably OK.

Songbird

Evelyn Ruut - 13 Aug 2005 00:43 GMT
> Dad did not take my comments well. He says he has "no complaints" from my
> mom about her care (!) but he would move to AL with her when *she* says it
[quoted text clipped - 62 lines]
>
> Songbird

Dear Songbird,

Hang in there and do the right thing in whatever way you can.

You know.... about your dad.... It is all about him, you know.   Never mind
your mom or her needs, HE is afraid "HIS life will be over"   The only thing
you can do is play that angle for all you are worth.

Ask him if he is ready to start physically caring for your mom when she gets
worse, which she inevitably will.    Tell him that it is grueling and
difficult to care for someone with Alzheimers disease and it will take a
terrible toll on his health, and you want him around for as long as
possible.   Tell him he can ALWAYS move out on his own again to be
independent, if and when your mom gets bad enough for full time care.   Tell
him that AL care has many benefits for both of them, but HE will benefit the
most for the time being.

I have a sneaky suspicion that when your mom DOES get worse, he will be the
first one screaming for help.  When she begins to wet the bed, or begins to
fall repeatedly, or show even greater signs of confusion, maybe forgetting
who he is, or wandering off..... I somehow (from what you have told us)
don't see him as being up for all of that.

I know it may feel like a betrayal of your mom to play to his ego the way I
suggest, but you know what we always say around here, that you have to do
and say what you must in order to get the job done.   I hate to say this,
but you may have to "play" him a bit to get the right thing accomplished.

Songbird, I really connect with what you are going through.  My father was a
very cold guy who answered the phone with me the exact same way you say
yours did with you.   My poor longsuffering mother put up with a lot over
the years.   I always said if he didn't die first, there was no justice in
the universe, and sad to say, it was my mom who passed over in the year
2000.    He is still going strong at 93.  The only way to appeal to him is
to always remember that everything..... I mean everything..... is always all
about him.    Other people only exist in his universe as peripherals to his
ego-centricity.    I am not saying they are the same, but there may be some
similarity in the way they both operate.

Signature

Best Regards,
Evelyn

(to reply to me personally, remove 'sox')

Mary_Gordon@tvo.org - 13 Aug 2005 01:24 GMT
What saved hubbie and I during these discussions with his mother was
that he was married - and I got to be the BAD cop - the one that was
the most blunt, practical and matter of fact, and laid out the icky
options (which didn't include status quo). Hubbie got to be the one who
put his arm around mom and pat her hand and tell her the whole thing
was just awful and unfair, and wasn't it a shame.

Sigh. It really does help to have someone who is sort of emotionally
outside the inner circle who can talk turkey. If you can't use the
bishop, is there anyone else he respects who could talk things over
with him? It has to be spun so that its to his advantage - i.e. freeing
him to work part time, with no domestic or caregiving chores. I also
suspect he might like the social aspects of a seniors place, since he
could doubtless do lots of volunteer stuff and feel useful and admired
as a leader.

M.
 
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