You all seem like a nice bunch. I've learned quite a lot by lurking here
for a few days. I will probably stick around, if only to keep lurking.
For those of you who are caregivers, I wish I could express how your posts
have made me feel. In short I have learned a very great deal about the
challenges faced by my sister.
My 90 year old father lives near her, about 25 miles from her residence and
in the town where she is employed. He is in a multi level residential
area - currently in "supported independent" apartment. Levels moving up
from there are available to him with no additional application process
involved.
We have recently received a diagnosis of what I am guessing is 'vascular
dementia" He has had at least one TIA that we know of (when my mother was
still living and observed it) My guess is there have been more - on at
least one occasion he passed out cold as he was entering my sister's home
for an afternoon visit.
While he probably has enough financial assets to be a significant plus for
him - virtually ALL of the value is in illiquid real estate. My sister has
learned recently that he is getting more and more remiss in keeping up with
the necessary expenditures. (Insurance policies lapsing for lack of payment
and then reinstated, etc) Also a local pharmacy has contacted her to obtain
her help in bringing his account current.
She has a POA, and also a medical POA, but as of a day or two ago she has
not been able to connect with the diagnosing neurologist to have it recorded
in his files and get a copy of his various reports (Two or three visits over
the last 8-9 months)
I have four siblings, and one of those four second guesses EVERYTHING my
sister does. This does not help things AT ALL. the dissenting sibling and
I will have an extended time together later next month, with time to visit
my dad and I am planning to use at least some of that time to attempt to
ease the family tension and persuade the dissenter to cut my sister a little
slack and gain more confidence in my sister's on the scene activities.
The nursing staff where he lives is quite helpful - I wish I could persuade
my sister to seek out a caregiver's support group. I think she needs more
on the scene contact with others who cope the way she does.
I know this is a long post. I was encouraged to read other lengthy messages
from the rest of you. I hope I have not overstayed my first foray into your
company.
Thanks so much for being who you are.
Please begin to think of me by my nickname - "Woodstock" I am not a little
yellow bird - I came of age in the 1960's and when another friend called me
"Woodstock" on some whim or another, I loved the handle and kept it.

Signature
A R Pickett aka Woodstock
"Sometimes the facts threaten the truth"
Amos Oz, prize winning Israeli author
Read my book reviews at:
http://www.booksnbytes.com/reviews/_idx_ws_all_byauth.html
Remove lower case "e" to respond
Evelyn Ruut - 23 Jul 2005 00:18 GMT
> You all seem like a nice bunch. I've learned quite a lot by lurking here
> for a few days. I will probably stick around, if only to keep lurking.
[quoted text clipped - 61 lines]
> me
> "Woodstock" on some whim or another, I loved the handle and kept it.
Hi and welcome :-)
I actually live in Woodstock NY ..... how 'bout that!
Nobody can know for a minute how difficult caregiving can be until you have
actually done it for a while. I hope you have some success in convincing
your siblings to cut your sister some slack. Meanwhile, this *is* a nice
group, feel free to come here and share.

Signature
Best Regards,
Evelyn
(to reply to me personally, remove 'sox')
Dennis P. Harris - 23 Jul 2005 03:45 GMT
> She has a POA, and also a medical POA, but as of a day or two ago she has
> not been able to connect with the diagnosing neurologist to have it recorded
> in his files and get a copy of his various reports (Two or three visits over
> the last 8-9 months)
She needs to WRITE AND MAIL HIM A LETTER requesting an office
visit (to be billed to your father's Medicare; there is indeed a
diagnostic code for "family consultation" or some such thing),
and enclose a copy of her POA. She needs to ask for a meeting by
a specific date a couple of weeks hence.
If he won't meet with her, she should file a complaint with her
State Medical Board. If he still won't respond, she needs to get
her father another neurologist, using his POA to change doctors,
since it allows her to make medical decisions including choosing
his doctor.
No caregiver should have to bother dealing with docs who aren't
doing a good job. You have a right to change doctors, and one
that won't work with family members of the patient should ALWAYS
be fired IMHO.
Doing things in writing creates a record, which is most helpful
when you have trouble. It also puts folks on notice that you are
serious about your request.
Dennis P. Harris - 23 Jul 2005 03:58 GMT
> I have four siblings, and one of those four second guesses EVERYTHING my
> sister does. This does not help things AT ALL. the dissenting sibling and
> I will have an extended time together later next month
and you should jump down her or his throat, and tell the know it
all that she/he can just take over and do the job, since he/she
knows so damn much. imho this is something that you often have
to bludgeon the idiots with; they may only be doing it because
of their denial or inability to handle the idea of dad's
mortality, but often a good verbal smack in the head will give
the dense a wakeup call. feel free to share this insight with
your sibling.
as a matter of fact, you might want to google this group a little
for terms that include the types of familial problems you're
having, or the concerns this one person has, and print out a
little selection to give to her/him, saying "i found a
caregiver's group on the internet. these are the folks that have
been coping with this disease for years, and i think we should
pay attention to what they have to say", and give it the moron as
you're parting.
if the person has any common sense, you'll have a change of tune.
if not, my advice is to constantly tell the know it all that if
she/he wants to do it, then he/she should take over. otherwise,
the know it all should just SHUT UP. and keep repeating it to
her/him, enlisting other siblings to do the same.
if the behavior still persists, it's simply best to ignore the
whiner; that's what caller ID and answering machines are for. i
always ignored those in my family who were quick to accuse me of
many things that only existed in my mother's demented
imagination, or who tried to second-guess decisions made in order
to keep my mother safe and well whether she liked it or not
unless they were willing to step in and take over. they either
finally figured it out or left. i didn't have time to waste on
dealing with their crap, and neither does your sister.
Florence A - 23 Jul 2005 05:27 GMT
Woodstock:
I would advise you to go a bit slower. No one can expect miracles with
a Dr and I doubt you Dad tells the Dr very much.
or if Dr is aware of any problems.
If a family member is not going with your father on an office visit,
they should definitely do so now. It would not be remiss to mail the
medical poa requesting an expedited (accompanied) visit. All this
might be accomplished with a phone call. Take the documents along on the
visit
Usually, I have found being sincere
& understanding goes a lot further than threats. If that doesn't
work---you'll figure it out.
There usually seems to be one sibling who has much to say--but is not a
doer --they generally have a "reason" So be it. (Good Luck on that.)
Tumbleweed - 23 Jul 2005 07:19 GMT
<snip>
> I have four siblings, and one of those four second guesses EVERYTHING my
> sister does. This does not help things AT ALL. the dissenting sibling
[quoted text clipped - 4 lines]
> little
> slack and gain more confidence in my sister's on the scene activities.
an aid to helping would be to get that sibling to look after your father for
an extended peeriod of time. Several days, night and day. People who 'don't
get it' are, from what I read here , *never* going to 'get it' through
logical persuasion. They need to *experience* it.
So I'm going to hazard a guess you'll have a chat with them, but unless they
experience the reality, they will be back to their usual behaviour the nexyt
time a crisis occurs or the caring sister makes a decision.

Signature
Tumbleweed
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tumbleweednews at hotmail dot com
Karen - 23 Jul 2005 16:20 GMT
Although, don't be surprised if there always seems to be a reason that
sibling can't help out. Sigh! The way I put it to someone at an
Alzheimer's Facility is "someone who seems to show how much they care for
their parent by picking apart every decision ever made by anyone actually
doing something."
It usually other issues at play and the parental care is only the outlet.
But that doesn't necessarily make it any easier to deal with.
Karen
> an aid to helping would be to get that sibling to look after your father for
> an extended peeriod of time. Several days, night and day. People who 'don't
[quoted text clipped - 15 lines]
> > little
> > slack and gain more confidence in my sister's on the scene activities.